{ "total_codes": 3562, "unique_codes": 890, "codes": [ { "code": "Lack of questions", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No", "context": "Patient does not have questions about their care", "file_id": "dr_DL0111 (1)", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Medication adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "just take my-- take my medications", "context": "Patient is taking medications as part of their care", "file_id": "dr_DL0111 (1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Carb counting", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I count carbs--", "context": "Patient is managing their diet as part of their care", "file_id": "dr_DL0111 (1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "The Ozempic made it really easy", "context": "Patient has access to effective treatment options", "file_id": "dr_DL0111 (1)", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "A1C monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "My A1C in January of last year was 15.8", "context": "Patient is receiving regular monitoring and feedback from their provider", "file_id": "dr_DL0111 (1)", "chunk_id": 0, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider guidance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they got me to bring it back up", "context": "Patient is receiving guidance and support from their provider", "file_id": "dr_DL0111 (1)", "chunk_id": 0, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I wish I had it five years ago", "context": "Patient expresses regret over delayed access to effective treatment", "file_id": "dr_DL0111 (1)", "chunk_id": 1, "original_category": "BARRIER - SDOH" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "The Ozempic made it really easy", "context": "Patient appreciates provider's prescription of effective medication", "file_id": "dr_DL0111 (1)", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Just making sure this is working, the-- Dexcom", "context": "Patient prioritizes understanding and managing their condition", "file_id": "dr_DL0111 (1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "The Ozempic made it really easy", "context": "Patient has positive experience with provider's treatment approach", "file_id": "dr_DL0111 (1)", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "None", "context": "No direct quote, but the conversation implies a need for backup checks, potentially indicating distrust in device readings", "file_id": "dr_DL0111 (1)", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Device issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "he kept saying I was low reading, low reading, and I was pricking my fingers. And I was in the three hundreds, so.", "context": "Patient experiences faulty readings from device", "file_id": "dr_DL0111 (1)", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Access to technology", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I just don't prick my finger every day. I, -- so, , so-- if I feel off of or feel different than what that number's reading--", "context": "Patient has access to and uses a Dexcom device", "file_id": "dr_DL0111 (1)", "chunk_id": 2, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "and have you, , brought that up with your doctor that-- well, if it was just your last sensor, have you spoke to your doctor since then, your diabetes doctor?", "context": "Patient discusses device issues with their doctor", "file_id": "dr_DL0111 (1)", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I was pricking my fingers. And I was in the three hundreds, so.", "context": "Patient understands how to use and interpret device readings", "file_id": "dr_DL0111 (1)", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they didn't have any Libre 3s", "context": "Patient experienced lack of access to preferred device", "file_id": "dr_DL0111 (1)", "chunk_id": 3, "original_category": "BARRIER - SDOH" }, { "code": "Equipment issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "the sensors were supposed to last 15 days, and they were only lasting sometimes between 6 and 11", "context": "Patient experienced problems with medical equipment", "file_id": "dr_DL0111 (1)", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And they said, 'Do you wanna try it?' And I'm , 'Yeah.'", "context": "Patient received supportive care from provider", "file_id": "dr_DL0111 (1)", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And they gave me the Dexcom 7--", "context": "Patient received alternative solution from provider", "file_id": "dr_DL0111 (1)", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of assistance", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I have to have somebody else do it", "context": "Patient needs help with medical device", "file_id": "dr_DL0111 (1)", "chunk_id": 4, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Fear of hypoglycemia", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "my main concern, is that it drops too low", "context": "Patient worries about blood sugar levels", "file_id": "dr_DL0111 (1)", "chunk_id": 4, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Self monitoring skills", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I'll finger stick for two or three days, and then I'll put it back on", "context": "Patient takes initiative in tracking blood sugar", "file_id": "dr_DL0111 (1)", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support network", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a friend who wears one", "context": "Patient has friends who understand their condition", "file_id": "dr_DL0111 (1)", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "my sight was really, really bad", "context": "Patient lacks awareness of diabetes impact on eyes", "file_id": "dr_DL0111 (1)", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I thought I wet the bed", "context": "Patient experiences anxiety related to diabetes symptoms", "file_id": "dr_DL0111 (1)", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I get very tired", "context": "Patient experiences emotional burden of diabetes management", "file_id": "dr_DL0111 (1)", "chunk_id": 5, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I always keep little candies beside my bed", "context": "Patient uses strategies to manage diabetes", "file_id": "dr_DL0111 (1)", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I'm very-- I get very tired when it goes too low", "context": "Patient has knowledge of diabetes symptoms", "file_id": "dr_DL0111 (1)", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "when the numbers are high-- even now, -- I-- there's a little slight difference in my, my-- with my sugar being 300. I don't know why it's 300 right now", "context": "Patient seems unsure about relationship between blood sugar and vision", "file_id": "dr_DL0111 (1)", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive treatment outcome", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah. And that-- The cataract removal and, I think, because of the, the Ozempic and-- numbers coming down.", "context": "Patient attributes improved vision to successful treatment", "file_id": "dr_DL0111 (1)", "chunk_id": 6, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "The cataract removal and, I think, because of the, the Ozempic and-- numbers coming down.", "context": "Patient receives effective care from healthcare system", "file_id": "dr_DL0111 (1)", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know why it's 300 right now", "context": "Patient unsure about blood sugar levels", "file_id": "dr_DL0111 (1)", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "when the numbers are high-- even now", "context": "Patient anxious about high blood sugar levels", "file_id": "dr_DL0111 (1)", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "since the vision's changed?", "context": "Patient aware of vision changes due to diabetes", "file_id": "dr_DL0111 (1)", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "if it's below 140, I-I'm fine", "context": "Patient managing blood sugar levels", "file_id": "dr_DL0111 (1)", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of provider feedback", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "not really anything", "context": "Patient reports doctor hasn't discussed vision changes", "file_id": "dr_DL0111 (1)", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of darkness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I have no balance. I'm all over the place", "context": "Patient experiences anxiety in dark environments", "file_id": "dr_DL0111 (1)", "chunk_id": 8, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Adaptive strategies", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I always have a-- , a flashlight if I go out", "context": "Patient uses tools to cope with vision loss", "file_id": "dr_DL0111 (1)", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Environmental modifications", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've got motion lights all along the path", "context": "Patient makes environmental changes to improve safety", "file_id": "dr_DL0111 (1)", "chunk_id": 8, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "not really anything", "context": "Patient lacks information from doctor about vision changes", "file_id": "dr_DL0111 (1)", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "you can go blind from it", "context": "Patient aware of potential severe consequences of diabetes", "file_id": "dr_DL0111 (1)", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "watch your sugar levels", "context": "Patient understands importance of managing blood sugar", "file_id": "dr_DL0111 (1)", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they're impressed that", "context": "Patient feels valued by healthcare provider", "file_id": "dr_DL0111 (1)", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the chances are that you-- that I- - that I could lose my sight altogether", "context": "Patient expresses fear of losing sight due to DR", "file_id": "dr_DL0111 (1)", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider referral", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And that's when, , Dr. L sent me to Dr. P,", "context": "Patient was referred to a specialist by their provider", "file_id": "dr_DL0111 (1)", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of services", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "they don't do the contact exams here", "context": "Patient needs to go elsewhere for contact exams", "file_id": "dr_DL0111 (1)", "chunk_id": 11, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I get them here", "context": "Patient has access to eye care at the clinic", "file_id": "dr_DL0111 (1)", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "--she shows me the pictures of what's-- she's looking for", "context": "Patient feels informed by provider", "file_id": "dr_DL0111 (1)", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "--she shows me the pictures of what's-- she's looking for", "context": "Patient receives educational content from provider", "file_id": "dr_DL0111 (1)", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "--she shows me the pictures of what's-- she's looking for", "context": "Patient has a positive interaction with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Well, for the last year, I've been going every four weeks", "context": "Patient has regular access to provider", "file_id": "dr_DL0111 (1)", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "no, she, -- I know that they said there's something with capillaries", "context": "Patient lacks clear understanding of diabetes-related eye conditions", "file_id": "dr_DL0111 (1)", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider explanation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they said there's something with capillaries", "context": "Provider explains patient's condition, facilitating understanding", "file_id": "dr_DL0111 (1)", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "that could progress and cause blindness-- so glaucoma", "context": "Patient fears potential consequences of diabetes-related eye conditions", "file_id": "dr_DL0111 (1)", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. L was doing a laser and zapping-- that's what I call it, zapping, --", "context": "Patient feels comfortable with provider's treatment approach", "file_id": "dr_DL0111 (1)", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "What do you mean they're not bad? I'm looking through a prism sometimes--", "context": "Patient questioning doctor's assessment of cataracts", "file_id": "dr_DL0111 (1)", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Oh, you got the cataracts, but they're not bad. They're not bad.", "context": "Doctor downplaying patient's condition", "file_id": "dr_DL0111 (1)", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "As soon as Dr. L saw them, she sent me to Dr. P.", "context": "Patient receiving timely and effective care from providers", "file_id": "dr_DL0111 (1)", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And P-P was, 'Yep, they're coming off.'", "context": "Provider clearly communicating treatment plan to patient", "file_id": "dr_DL0111 (1)", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Second opinion", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And as soon as Dr. L saw them, she sent me to Dr. P.", "context": "Patient receiving additional expert opinion", "file_id": "dr_DL0111 (1)", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "If something's wrong, I tell them", "context": "Patient feels comfortable discussing issues with doctor", "file_id": "dr_DL0111 (1)", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "If something's wrong, I tell them", "context": "Patient communicates openly with doctor", "file_id": "dr_DL0111 (1)", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I had a tear in the retina--", "context": "Patient has knowledge of diabetes-related eye problems", "file_id": "dr_DL0111 (1)", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "If something's wrong, I tell them", "context": "Patient takes initiative in discussing health issues", "file_id": "dr_DL0111 (1)", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider Empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust him 100%", "context": "Patient expresses high level of trust in doctor", "file_id": "dr_DL0111 (1)", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective Communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Dr. P, this is what's going on", "context": "Patient uses messaging system to communicate with doctor", "file_id": "dr_DL0111 (1)", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "MyChart's my best friend", "context": "Patient finds online portal helpful for communication and access to care", "file_id": "dr_DL0111 (1)", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient Engagement", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "if I notice something, I send them a message right away", "context": "Patient takes proactive approach to monitoring health and communicating with doctor", "file_id": "dr_DL0111 (1)", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust him 100%.", "context": "Patient expresses high level of trust in their doctor", "file_id": "dr_DL0111 (1)", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "speaking with the diabetic educators and, , my family doctor and the pharmacy team has opened my eyes a lot more.", "context": "Patient values open communication with healthcare team", "file_id": "dr_DL0111 (1)", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I didn't feel I was getting anywhere with, , endocrinology--", "context": "Patient had negative experience with previous provider", "file_id": "dr_DL0111 (1)", "chunk_id": 17, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "speaking with the diabetic educators... has opened my eyes a lot more.", "context": "Patient benefits from health education", "file_id": "dr_DL0111 (1)", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they got me to counting carbs, , 'Okay, I know that I can have this many carbs, or I can have that many carbs.'", "context": "Patient receives support for managing diabetes", "file_id": "dr_DL0111 (1)", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of hunger", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm not hungry all the time", "context": "Patient experiences reduced hunger due to Ozempic", "file_id": "dr_DL0111 (1)", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Food aversion", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "a lot of foods turn me off", "context": "Patient experiences food aversion", "file_id": "dr_DL0111 (1)", "chunk_id": 18, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Smell sensitivity", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "the smell of food cooking sometimes makes me sick to my stomach", "context": "Patient experiences smell sensitivity", "file_id": "dr_DL0111 (1)", "chunk_id": 18, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Self management skills", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I know that I can have this many carbs, or I can have that many carbs", "context": "Patient demonstrates understanding of carb counting", "file_id": "dr_DL0111 (1)", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive treatment outcome", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yes", "context": "Patient is pleased with outcomes from Ozempic", "file_id": "dr_DL0111 (1)", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "If you were to ask me that a year ago, I would've said, '100%, I think I'll lose it.'", "context": "Patient previously had limited understanding of diabetes impact on vision", "file_id": "dr_DL0111 (1)", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I wish I would've known about it six years ago, and maybe I would still have my leg.", "context": "Patient expresses regret over not knowing about treatment options sooner, implying fear of diagnosis", "file_id": "dr_DL0111 (1)", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive outlook", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "now I'm, I'm fairly comfortable with it, and I think it's-- if I can keep maintaining what I'm doing--", "context": "Patient feels more in control of their condition after learning about treatment options", "file_id": "dr_DL0111 (1)", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "now I'm, I'm fairly comfortable with it, and I think it's-- if I can keep maintaining what I'm doing--", "context": "Patient demonstrates understanding of their condition and treatment", "file_id": "dr_DL0111 (1)", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Okay. I'm coming up on a year next month--", "context": "Patient mentions timing of next appointment, implying they may not see urgent need", "file_id": "dr_DL0111 (1)", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family influence", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "my stepmom, she had the cataracts, but she's not diabetic, so", "context": "Patient mentions family member's experience with eye care, potentially influencing their own attitudes", "file_id": "dr_DL0111 (1)", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Personal experience", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "she just now had to go get an eye exam and get glasses again", "context": "Patient learns from family member's experience, potentially informing their own health decisions", "file_id": "dr_DL0111 (1)", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Very scary at first", "context": "Patient describes initial reaction to diagnosis as scary", "file_id": "dr_DL0111 (1)", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of worry", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I haven't-- had any problems", "context": "Patient doesn't perceive follow-ups as urgent", "file_id": "dr_DL0111 (1)", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Trust in provider", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I don't have to worry about what's gonna happen", "context": "Patient trusts their provider", "file_id": "dr_DL0111 (1)", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "everybody's , 'Y-you live an hour and a half away. Why do you keep coming here?'", "context": "Patient finds the healthcare system accessible despite distance", "file_id": "dr_DL0111 (1)", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Continuity of care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Everybody knows, so they can see it", "context": "Patient appreciates the continuity of care in the system", "file_id": "dr_DL0111 (1)", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "Y-you live an hour and a half away", "context": "Patient faces transportation challenges due to distance", "file_id": "dr_DL0111 (1)", "chunk_id": 22, "original_category": "BARRIER - SDOH" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "But I don't trust them", "context": "Patient expresses distrust in local healthcare providers", "file_id": "dr_DL0111 (1)", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor care perception", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "All you guys did was put lipstick on a pig. You're making those buildings look beautiful, but you need to change the staff", "context": "Patient perceives local healthcare providers as inadequate", "file_id": "dr_DL0111 (1)", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "The care is better here", "context": "Patient prefers care at current location due to perceived higher quality", "file_id": "dr_DL0111 (1)", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "All you guys did was put lipstick on a pig. You're making those buildings look beautiful, but you need to change the staff.", "context": "Patient expresses dissatisfaction with provider behavior", "file_id": "dr_DL0111 (1)", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "All you guys did was put lipstick on a pig. You're making those buildings look beautiful, but you need to change the staff.", "context": "Patient implies ineffective communication from providers", "file_id": "dr_DL0111 (1)", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I'm talking about the doctors because--", "context": "Patient expresses distrust towards doctors", "file_id": "dr_DL0111 (1)", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "The care is better here.", "context": "Patient perceives better care at current facility", "file_id": "dr_DL0111 (1)", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "we were there for 14 hours", "context": "Patient experienced long wait time at the emergency room", "file_id": "dr_DL0111 (1)", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they kept saying they were gonna give me fluids. I begged them for water and never got it", "context": "Patient did not receive clear communication about their treatment", "file_id": "dr_DL0111 (1)", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "the emergency room was coming here. But she said that was too far for what was happening", "context": "Patient had to go to a different hospital due to distance", "file_id": "dr_DL0111 (1)", "chunk_id": 25, "original_category": "BARRIER - SDOH" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "I'll drive myself", "context": "Patient had to arrange their own transportation to the hospital", "file_id": "dr_DL0111 (1)", "chunk_id": 25, "original_category": "BARRIER - SDOH" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I begged them for water and never got it", "context": "Patient felt neglected by healthcare staff", "file_id": "dr_DL0111 (1)", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Well, we don't know what to do with you, so we're going-- we're going to get an ambulance and take you to W-- to Ruby", "context": "Patient experienced unclear communication from providers", "file_id": "dr_DL0111 (1)", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "They didn't give me anything", "context": "Patient distrusts provider's actions and decisions", "file_id": "dr_DL0111 (1)", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And they started giving me fluids", "context": "Patient received timely care from responsive providers", "file_id": "dr_DL0111 (1)", "chunk_id": 26, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they said, Well, we'd to give you another, , bag of fluids, but we can't because Reynolds has already charted that they did do.", "context": "Patient was denied further treatment due to administrative issues", "file_id": "dr_DL0111 (1)", "chunk_id": 27, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they said, Well, we'd to give you another, , bag of fluids, but we can't because Reynolds has already charted that they did do.", "context": "Patient experienced poor communication from healthcare providers", "file_id": "dr_DL0111 (1)", "chunk_id": 27, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "it's good that you got-- to here and that you're comfortable here.", "context": "Patient felt comfortable with their current healthcare provider", "file_id": "dr_DL0111 (1)", "chunk_id": 27, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And I-- and I know that one of the things for blood pressure low is to drink water to increase it, so.", "context": "Patient demonstrated knowledge of their condition and how to manage it", "file_id": "dr_DL0111 (1)", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No Transportation Issues", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So it doesn't bother me to drive down here.", "context": "Patient has no issues with driving to appointments", "file_id": "dr_DL0111 (1)", "chunk_id": 28, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Provider Instruction", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "a doctor said, 'This is when you come back,' so that's when I come back.", "context": "Patient follows provider's instructions for follow-up", "file_id": "dr_DL0111 (1)", "chunk_id": 28, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Self Awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm just always been one that I know when something's wrong with me.", "context": "Patient is aware of their health and takes initiative", "file_id": "dr_DL0111 (1)", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider Empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "a doctor said, 'This is when you come back,'", "context": "Patient values provider's instruction", "file_id": "dr_DL0111 (1)", "chunk_id": 29, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient Empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I know when something's wrong with me", "context": "Patient takes initiative in seeking help", "file_id": "dr_DL0111 (1)", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective Communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "a doctor said, 'This is when you come back,'", "context": "Clear instruction from provider", "file_id": "dr_DL0111 (1)", "chunk_id": 29, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient Autonomy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I argued with the doctors", "context": "Patient takes active role in healthcare decisions", "file_id": "dr_DL0111 (1)", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "Most guys would just let it burst", "context": "Patient questions doctor's decision", "file_id": "dr_DL0111 (1)", "chunk_id": 30, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I know my body", "context": "Patient takes initiative in healthcare", "file_id": "dr_DL0111 (1)", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And the doctor asked me, he goes", "context": "Doctor engages with patient's concerns", "file_id": "dr_DL0111 (1)", "chunk_id": 30, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a nurse, a friend who's a nurse", "context": "Patient has supportive social connections", "file_id": "dr_DL0111 (1)", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Don't worry about how I know about it", "context": "Patient demonstrates understanding of medical procedures", "file_id": "dr_DL0111 (1)", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a nur-- a friend who's a nurse, so who's an ex-girlfriend, and-- we're still good friends.", "context": "Patient has a supportive friend who is a nurse", "file_id": "dr_DL0111 (1)", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare Advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And she told me, she said, 'Ask them for HIDA scan.'", "context": "Patient receives healthcare advice from a supportive friend", "file_id": "dr_DL0111 (1)", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "sometimes I, I will plan it, and I'll say, 'Okay. I, I need somebody to drive me home.'", "context": "Patient needs someone to drive them home after appointment", "file_id": "dr_DL0111 (1)", "chunk_id": 32, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "We were so in tune to each other that, , we could actually have a conversation and not say a word.", "context": "Patient feels comfortable with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 32, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Trust in provider", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "if your doctor's suggesting it, follow through with it-- , because it-- they're the professionals, and they know best.", "context": "Patient trusts provider's expertise", "file_id": "dr_DL0111 (1)", "chunk_id": 32, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "because I wasn't paying attention and I wasn't doing anything", "context": "Patient initially lacked awareness of disease progression", "file_id": "dr_DL0111 (1)", "chunk_id": 33, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "when Dr. L started doing the, the lasers on my eyes", "context": "Patient feared treatment and diagnosis", "file_id": "dr_DL0111 (1)", "chunk_id": 33, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. L started doing the, the lasers on my eyes and, and I was coming back and she goes, 'They're coming back. They're, they're growing faster, and I can zap them away'", "context": "Provider showed empathy and explained treatment", "file_id": "dr_DL0111 (1)", "chunk_id": 33, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my mom lives next door. And the first thing she says when she see me, 'Did you take your meds?'", "context": "Patient has social support from family member", "file_id": "dr_DL0111 (1)", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I need to follow through with getting my sugars down and getting--everything down", "context": "Patient learned about importance of managing diabetes", "file_id": "dr_DL0111 (1)", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I don't eat carbs. Well, I don't eat potatoes. I don't eat bread. I don't eat all this stuff, the carbs. I eat a lot of protein", "context": "Patient is managing diet to control diabetes", "file_id": "dr_DL0111 (1)", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my mom lives next door. And the first thing she says when she see me, 'Did you take your meds?'", "context": "Patient has a supportive family member", "file_id": "dr_DL0111 (1)", "chunk_id": 34, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family Involvement", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "And she actually comes over and checks to make sure that I've filled up my weekly pill bottle.", "context": "Patient's family member helps with medication management", "file_id": "dr_DL0111 (1)", "chunk_id": 34, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare Team Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "'Cause I got the ha-- the, the pharmacy team-- and Dr", "context": "Patient has a supportive healthcare team", "file_id": "dr_DL0111 (1)", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they message me and say, 'Hey, how's this going? How's--'", "context": "Patient feels supported by provider's regular check-ins", "file_id": "dr_DL0111 (1)", "chunk_id": 35, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they message me and say, 'Hey, how's this going? How's--'", "context": "Patient receives regular updates and feedback from provider", "file_id": "dr_DL0111 (1)", "chunk_id": 35, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the pharmacy team-- and Dr. P--", "context": "Patient has access to multiple healthcare professionals", "file_id": "dr_DL0111 (1)", "chunk_id": 35, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They sent me a message yesterday", "context": "Patient receives reminders and follow-ups from healthcare team", "file_id": "dr_DL0111 (1)", "chunk_id": 35, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "That feels more personal", "context": "Patient appreciates personalized care from provider", "file_id": "dr_DL0111 (1)", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "it is more personalized", "context": "Patient values clear and personal communication with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient comfort with provider", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I feel comfortable with them", "context": "Patient feels at ease with their healthcare provider", "file_id": "dr_DL0111 (1)", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "If you can't laugh about it--", "context": "Patient uses humor to cope with health issues", "file_id": "dr_DL0111 (1)", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I will call here", "context": "Patient has access to healthcare providers for advice", "file_id": "dr_DL0111 (1)", "chunk_id": 37, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Dr. M came in, the surgeon, saw me in recovery", "context": "Patient receives clear communication from healthcare provider", "file_id": "dr_DL0111 (1)", "chunk_id": 37, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Coping mechanism", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It is what it is. I'm-- I gotta live with it, so", "context": "Patient uses coping mechanisms to deal with health issues", "file_id": "dr_DL0111 (1)", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I will call here", "context": "Patient has access to healthcare services", "file_id": "dr_DL0111 (1)", "chunk_id": 37, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "And i-it's hard to get an appointment-- that quick anyways", "context": "Patient finds it challenging to schedule appointments quickly", "file_id": "dr_DL0111 (1)", "chunk_id": 38, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I will call here", "context": "Patient has easy access to healthcare providers via MyChart messaging", "file_id": "dr_DL0111 (1)", "chunk_id": 38, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "'Hey, this is going on. What should I do, or any suggestions?'", "context": "Patient communicates effectively with providers via messaging", "file_id": "dr_DL0111 (1)", "chunk_id": 38, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "You mentioned earlier that you did, , diabetes education classes, right--", "context": "Patient has participated in diabetes education classes", "file_id": "dr_DL0111 (1)", "chunk_id": 38, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "it's hard to get an appointment-- that quick anyways", "context": "Patient finds it challenging to schedule appointments quickly", "file_id": "dr_DL0111 (1)", "chunk_id": 39, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "diabetes education classes", "context": "Patient participated in diabetes education classes", "file_id": "dr_DL0111 (1)", "chunk_id": 39, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the diabetic educators. A lot of it was when I was hospitalized. They'd come in and talk to me", "context": "Patient had access to diabetic educators during hospitalization", "file_id": "dr_DL0111 (1)", "chunk_id": 39, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "someone from family medicine would come in and talk to me", "context": "Patient received communication from family medicine providers", "file_id": "dr_DL0111 (1)", "chunk_id": 39, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "when I started counting carbs and I learned how to count carbs", "context": "Patient received education on carb counting", "file_id": "dr_DL0111 (1)", "chunk_id": 40, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I saw a big difference", "context": "Patient experienced positive outcomes from self-management", "file_id": "dr_DL0111 (1)", "chunk_id": 40, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of side effects", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I am not having any side effects on them", "context": "Patient feels empowered by lack of side effects from medication", "file_id": "dr_DL0111 (1)", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I tell people all the time", "context": "Patient has social support from friends", "file_id": "dr_DL0111 (1)", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm not having any side effects on them", "context": "Patient understands medication side effects", "file_id": "dr_DL0111 (1)", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I live, an hour a half away up", "context": "Patient mentions living far from the clinic", "file_id": "dr_DL0111 (1)", "chunk_id": 45, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Telehealth options", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've done that a couple of times, not with the eye doctor, but", "context": "Patient has experience with telemedicine", "file_id": "dr_DL0111 (1)", "chunk_id": 45, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "couldn't get down here to it", "context": "Patient had difficulty traveling to appointments", "file_id": "dr_DL0111 (1)", "chunk_id": 46, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Telehealth options", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've done that a couple of times, not with the eye doctor, but", "context": "Patient has experience with telemedicine", "file_id": "dr_DL0111 (1)", "chunk_id": 46, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Provider technical limitations", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "if it was for eyes-- them being able to visually see my eyes", "context": "Patient concerns about telemedicine limitations for eye exams", "file_id": "dr_DL0111 (1)", "chunk_id": 46, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Oh, no, we do that", "context": "Patient has access to primary care provider via telemedicine", "file_id": "dr_DL0111 (1)", "chunk_id": 46, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Poor provider change experience", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I actually tried changing my PCP to a local, and that was a disaster", "context": "Patient had negative experience changing primary care providers", "file_id": "dr_DL0111 (1)", "chunk_id": 46, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "--couldn't get down here to it", "context": "Patient had difficulty traveling to the clinic", "file_id": "dr_DL0111 (1)", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "--couldn't get down here to it", "context": "Patient had difficulty accessing healthcare due to location", "file_id": "dr_DL0111 (1)", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "--We told you there's nothing wrong with you. Why do you keep coming here?", "context": "Patient experienced rude treatment from healthcare providers", "file_id": "dr_DL0111 (1)", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "--We told you there's nothing wrong with you. Why do you keep coming here?", "context": "Patient experienced poor communication from healthcare providers", "file_id": "dr_DL0111 (1)", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I actually tried changing my PCP to a local, and that was a disaster", "context": "Patient lacked trust in their healthcare provider", "file_id": "dr_DL0111 (1)", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I actually tried changing my PCP to a local", "context": "Patient attempted to find a more accessible provider", "file_id": "dr_DL0111 (1)", "chunk_id": 47, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "'We told you there's nothing wrong with you. Why do you keep coming here?'", "context": "Patient feels dismissed by provider", "file_id": "dr_DL0111 (1)", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "'We told you you had Lyme disease.' But they admitted me every time for one night.", "context": "Patient experiences inconsistent messaging from providers", "file_id": "dr_DL0111 (1)", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "And the person who was supposed-- doctor who's supposed to be my PCP, walk past the room every time I was in the hospital but never stepped in to see me.", "context": "Patient feels neglected by their PCP", "file_id": "dr_DL0111 (1)", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I'd make a P-- appointment with PCP, and then they tell me I didn't have an appointment, or they cancel it or change it.", "context": "Patient experiences issues with scheduling appointments", "file_id": "dr_DL0111 (1)", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "And the person who was supposed-- doctor who's supposed to be my PCP, walk past the room every time I was in the hospital but never stepped in to see me.", "context": "Patient lacks consistent care from their PCP", "file_id": "dr_DL0111 (1)", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "She goes, 'Oh, somebody screwed up,' and that's all she said and slid the window u-- down.", "context": "Patient experiences poor communication with healthcare staff", "file_id": "dr_DL0111 (1)", "chunk_id": 49, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "And he just look-looked at me, and I just got up and walked away.", "context": "Patient loses trust in healthcare provider", "file_id": "dr_DL0111 (1)", "chunk_id": 49, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "They're -- she's, 'No, you don't. We, we don't have appointments on Friday.'", "context": "Patient experiences difficulty with appointment scheduling", "file_id": "dr_DL0111 (1)", "chunk_id": 49, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "And he just look-looked at me, and I just got up and walked away.", "context": "Patient experiences rude behavior from healthcare provider", "file_id": "dr_DL0111 (1)", "chunk_id": 49, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I called Dr", "context": "Patient has access to a preferred healthcare provider", "file_id": "dr_DL0111 (1)", "chunk_id": 49, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I don't have an appointment for-- , I don't have anything available until August something.", "context": "Patient faces difficulty in getting an appointment", "file_id": "dr_DL0111 (1)", "chunk_id": 50, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Nobody will listen to me at all.", "context": "Patient feels not heard by healthcare providers", "file_id": "dr_DL0111 (1)", "chunk_id": 50, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "She has this lovely Thursday night office hours.", "context": "Patient appreciates flexible office hours of provider", "file_id": "dr_DL0111 (1)", "chunk_id": 50, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And she said, 'I'll find it.' And she kept looking and looking", "context": "Patient feels heard and helped by provider", "file_id": "dr_DL0111 (1)", "chunk_id": 50, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And she said, 'I'll find it.' And she kept looking and looking", "context": "Patient experiences effective communication with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 50, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "nobody will listen to me in, in Glendale. Nobody--will listen to me at all.", "context": "Patient felt unheard by previous providers", "file_id": "dr_DL0111 (1)", "chunk_id": 51, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust her", "context": "Patient has a trusting relationship with current provider", "file_id": "dr_DL0111 (1)", "chunk_id": 51, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "she likes very thorough, da, da, da.", "context": "Provider is described as thorough and communicative", "file_id": "dr_DL0111 (1)", "chunk_id": 51, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust her", "context": "Patient feels comfortable with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 52, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust her. I trust--", "context": "Patient has established trust with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 52, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they'll ask me, 'Do you mind if--'", "context": "Provider involves patient in decision-making process", "file_id": "dr_DL0111 (1)", "chunk_id": 52, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So, but, -- so I trust her", "context": "Patient feels comfortable with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 53, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And it's good that you felt comfortable enough to express that to her", "context": "Patient and provider have open communication", "file_id": "dr_DL0111 (1)", "chunk_id": 53, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient-provider trust", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So, but, -- so I trust her", "context": "Patient has established trust with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 53, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of diagnosis/treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the first two, , I was in pain, and it felt he was pushing the needle", "context": "Patient experienced pain during injections", "file_id": "dr_DL0111 (1)", "chunk_id": 53, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I pretty much just go with whatever she suggests", "context": "Patient trusts doctor's suggestions", "file_id": "dr_DL0111 (1)", "chunk_id": 54, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "If it's something that I'm not familiar with or something's changing", "context": "Patient feels comfortable asking questions", "file_id": "dr_DL0111 (1)", "chunk_id": 54, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And it's good that you felt comfortable enough to express that to her", "context": "Interviewer acknowledges patient's comfort with doctor", "file_id": "dr_DL0111 (1)", "chunk_id": 54, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "You're crazy", "context": "Patient expresses distrust in doctor's diagnosis", "file_id": "dr_DL0111 (1)", "chunk_id": 54, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I'm not going back", "context": "Patient lost trust in providers after a negative experience", "file_id": "dr_DL0111 (1)", "chunk_id": 55, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "nobody came in", "context": "Patient felt neglected and not communicated with by healthcare staff", "file_id": "dr_DL0111 (1)", "chunk_id": 55, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "You're crazy", "context": "Patient felt disrespected by a provider", "file_id": "dr_DL0111 (1)", "chunk_id": 55, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "the doctors changed at midnight", "context": "Patient experienced a change in providers during their care", "file_id": "dr_DL0111 (1)", "chunk_id": 55, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "the second doctor, he at least attempted", "context": "Patient appreciated a provider's effort to understand and help", "file_id": "dr_DL0111 (1)", "chunk_id": 55, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they talk to me, not down to me or at me", "context": "Patient feels respected by providers", "file_id": "dr_DL0111 (1)", "chunk_id": 56, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they will explain it so that I understand it", "context": "Patient feels heard and understood by providers", "file_id": "dr_DL0111 (1)", "chunk_id": 56, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've been with Dr", "context": "Patient has established a relationship with their doctor", "file_id": "dr_DL0111 (1)", "chunk_id": 56, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've been with Dr. P since she was a resident", "context": "Patient has long-term relationship with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 57, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I do. Yeah", "context": "Patient feels respected by provider", "file_id": "dr_DL0111 (1)", "chunk_id": 57, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Could you explain that so I can understand it?", "context": "Patient asks for clarification from provider", "file_id": "dr_DL0111 (1)", "chunk_id": 57, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "everybody needs to learn to count carbs", "context": "Patient emphasizes importance of health education", "file_id": "dr_DL0111 (1)", "chunk_id": 57, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "everybody needs to learn to count carbs", "context": "Patient emphasizes importance of health education", "file_id": "dr_DL0111 (1)", "chunk_id": 58, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. P and I made the decision", "context": "Patient feels supported by provider in decision-making", "file_id": "dr_DL0111 (1)", "chunk_id": 58, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She said, 'Yeah?' And I was, 'It is-- the--' what do I want to say? 'The side effects-- the, the benefits far outweigh the side effects.'", "context": "Patient engages in open conversation with provider", "file_id": "dr_DL0111 (1)", "chunk_id": 58, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Shared decision-making", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Dr. P and I made the decision", "context": "Patient collaborates with provider in making decisions", "file_id": "dr_DL0111 (1)", "chunk_id": 58, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She said, 'Are you sure?' And I'm , 'Yep.' She said, 'Okay.'", "context": "Patient feels heard and understood by provider", "file_id": "dr_DL0111 (1)", "chunk_id": 59, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I told her, I said, 'Yeah.' I was , 'I think the, the side effects-- the benefits are-- far outweigh the side effects.'", "context": "Patient and provider discuss treatment options", "file_id": "dr_DL0111 (1)", "chunk_id": 59, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Insurance coverage", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "the insurance. I have to pay for it.", "context": "Patient mentions insurance as a factor in using healthcare services", "file_id": "dr_MD0610(part3)", "chunk_id": 1, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Insurance coverage", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "the insurance. I have to pay for it.", "context": "Patient mentions insurance as a factor in using healthcare services", "file_id": "dr_MD0610(part3)", "chunk_id": 2, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Healthcare system knowledge", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I'm a paramedic, so.", "context": "Patient's profession gives them understanding of healthcare", "file_id": "dr_MD0610(part3)", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Because I can see people that do take care of themselves lots of the time", "context": "Patient's experience as a paramedic influences their view of healthcare providers", "file_id": "dr_MD0610(part3)", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "when the people are nice and they're not a-holes to everybody", "context": "Patient mentions importance of provider personality", "file_id": "dr_MD0610(part3)", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Cost concerns", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "the cost of the-- stuff", "context": "Patient mentions cost as a factor affecting people", "file_id": "dr_MD0610(part3)", "chunk_id": 3, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Cost concerns", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "the cost of the-- stuff", "context": "Patient mentions cost as a concern", "file_id": "dr_MD0610(part3)", "chunk_id": 4, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Insurance issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "especially if they don't have insurance", "context": "Patient highlights lack of insurance as a barrier", "file_id": "dr_MD0610(part3)", "chunk_id": 4, "original_category": "BARRIER - SDOH" }, { "code": "Lack of social support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No", "context": "Patient indicates no help with daily diabetes care", "file_id": "dr_MD0610(part3)", "chunk_id": 4, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, yeah", "context": "Patient has someone to help with daily chores if needed", "file_id": "dr_MD0610(part3)", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Hmm", "context": "Patient is asked about participating in diabetes education classes", "file_id": "dr_MD0610(part3)", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I didn't pay too much attention", "context": "Patient did not fully engage with diabetes education", "file_id": "dr_MD0610(part3)", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Limited social support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No", "context": "Patient lacks people to share worries or fears with", "file_id": "dr_MD0610(part3)", "chunk_id": 5, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Doctor as resource", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I talk to my doctor", "context": "Patient relies on doctor for health advice", "file_id": "dr_MD0610(part3)", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it don't really limit me now", "context": "Patient seems unaware of potential future vision problems", "file_id": "dr_MD0610(part3)", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I was hoping he would tell me it's okay, but it's detaching a little bit again", "context": "Patient expresses concern about diagnosis", "file_id": "dr_MD0610(part3)", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he tells me it's--", "context": "Patient trusts provider to explain condition", "file_id": "dr_MD0610(part3)", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "if I got a health problem, I talk to my doctor", "context": "Patient has easy access to healthcare provider", "file_id": "dr_MD0610(part3)", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of worry", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I wasn't really worried about it then either", "context": "Patient doesn't perceive urgency for follow-up", "file_id": "dr_MD0610(part3)", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of context", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "we're exploring the views perspectives on eyecare, , and eye exams for those individuals who have diabetes", "context": "Patient seems unclear about purpose of interview", "file_id": "dr_KS1121", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Time constraints", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I know you have, , something to do", "context": "Patient has other commitments limiting their time", "file_id": "dr_KS1121", "chunk_id": 1, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Incentivization", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you'll get that $20 Visa gift card", "context": "Patient is motivated by financial reward", "file_id": "dr_KS1121", "chunk_id": 1, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what are some things you do each day related to your diabetes?", "context": "Patient is engaged in health discussions", "file_id": "dr_KS1121", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I check my blood sugars, take my medications", "context": "Patient is proactive about managing their diabetes", "file_id": "dr_KS1121", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I really am trying to watch my carb intake", "context": "Patient demonstrates understanding of healthy habits", "file_id": "dr_KS1121", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "not yet", "context": "Patient seems unaware of potential eye damage from diabetes", "file_id": "dr_KS1121", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Yes", "context": "Patient indicates doctor has informed them about diabetes effects on eyes", "file_id": "dr_KS1121", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Here", "context": "Patient goes to the same location for eye exams, implying accessibility", "file_id": "dr_KS1121", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "since I don't have any problems", "context": "Patient believes they don't need frequent check-ups", "file_id": "dr_KS1121", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "It's good", "context": "Patient finds doctor's availability satisfactory", "file_id": "dr_KS1121", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Easy appointment scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I just get an appointment, and come, and go", "context": "Patient finds scheduling process straightforward", "file_id": "dr_KS1121", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider Availability", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It's good", "context": "Patient finds doctor's availability satisfactory", "file_id": "dr_KS1121", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive Experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think it all goes very well", "context": "Patient is satisfied with eye care experience", "file_id": "dr_KS1121", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack Of Challenges", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No", "context": "Patient does not face challenges in receiving eye care", "file_id": "dr_KS1121", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Self Care Practices", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I wear my eyeglasses", "context": "Patient takes care of their eyes by wearing glasses", "file_id": "dr_KS1121", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Awareness Of Risk", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they can sneak up on you at any time", "context": "Patient is aware of the risk of vision loss due to diabetes", "file_id": "dr_KS1121", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they can sneak up on you at any time", "context": "Patient lacks knowledge about diabetes-related eye problems", "file_id": "dr_KS1121", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "And then you could go blind", "context": "Patient is aware of potential vision loss due to diabetes", "file_id": "dr_KS1121", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm fine", "context": "Patient feels comfortable discussing concerns with doctor", "file_id": "dr_KS1121", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "today, I ask him", "context": "Patient is able to express concerns to doctor", "file_id": "dr_KS1121", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I hope I'm not likely at all", "context": "Patient shows lack of understanding about diabetes vision loss", "file_id": "dr_KS1121", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "My current vision is good", "context": "Patient feels no urgency due to current good vision", "file_id": "dr_KS1121", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Calendar reminder", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "My calendar.", "context": "Patient uses calendar to keep track of appointments", "file_id": "dr_KS1121", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "You go elevator", "context": "Patient is being helped with transportation within the clinic", "file_id": "dr_KS1121", "chunk_id": 8, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She'll take you", "context": "Patient is being escorted by a staff member", "file_id": "dr_KS1121", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My mom", "context": "Patient has someone to share worries with", "file_id": "dr_KS1121", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self Management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I do it myself, basically", "context": "Patient feels comfortable managing diabetes alone", "file_id": "dr_KS1121", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Home health support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "right now I have home health", "context": "Patient receives help from home health services", "file_id": "dr_KS1121", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive expectations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "To tell me everything was okay", "context": "Patient has positive expectations for their visit", "file_id": "dr_KS1121", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know what else there is to ...", "context": "Patient unsure about comprehensive diabetic care", "file_id": "dr_TK0914", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I don't know what else there is to ...", "context": "Patient lacks knowledge about diabetes management", "file_id": "dr_TK0914", "chunk_id": 0, "original_category": "BARRIER - SDOH" }, { "code": "Self-monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I scan my blood sugar at least five, 10 times a day", "context": "Patient actively monitors blood sugar levels", "file_id": "dr_TK0914", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Adherence to medication", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'll take my medications", "context": "Patient prioritizes taking prescribed medications", "file_id": "dr_TK0914", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Proactive care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "check my blood sugar level multiple times", "context": "Patient engages in proactive diabetic care activities", "file_id": "dr_TK0914", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of symptoms", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "None. Speaker 1: None? Okay. , has your doctor said anything, , regarding your eyes and no diabetes? Speaker 3: No.", "context": "Patient hasn't noticed any changes in their eyes", "file_id": "dr_TK0914", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I mean, they, they of course say, , you gotta keep it under control.", "context": "Patient receives guidance from their doctor", "file_id": "dr_TK0914", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Self monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I scan my blood sugar at least five, 10 times a day so I don't have to look for symptoms 'cause this tells me.", "context": "Patient actively manages their diabetes", "file_id": "dr_TK0914", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "my eye problems are not related to diabetes", "context": "Patient believes their eye issues are unrelated to diabetes", "file_id": "dr_TK0914", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they let me know how important that is", "context": "Patient feels informed by their provider", "file_id": "dr_TK0914", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Access to healthcare", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I see two different doctors here", "context": "Patient has access to multiple specialists", "file_id": "dr_TK0914", "chunk_id": 2, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "the neuro ophthalmologist is Dr. Chaudhary and she tea- treats me for non-arteritic anterior ischemic optic neuropathy", "context": "Patient seems unsure about their condition", "file_id": "dr_TK0914", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I see two different doctors here", "context": "Patient has access to multiple specialists", "file_id": "dr_TK0914", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "the neuro ophthalmologist is Dr. Chaudhary and she tea- treats me for non-arteritic anterior ischemic optic neuropathy", "context": "Patient understands their treatment", "file_id": "dr_TK0914", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Thorough eye exam", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they do a vision field, they do pictures, and they do an eye exam, a thorough eye exam", "context": "Patient receives comprehensive care", "file_id": "dr_TK0914", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Well, I don't understand what you wanna know", "context": "Patient expresses lack of understanding about their eye exams", "file_id": "dr_TK0914", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "(laughs) ... how has the experience for you?", "context": "Patient and provider share a laugh, indicating a positive relationship", "file_id": "dr_TK0914", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Each doctor sees me twice a year", "context": "Patient has regular access to their healthcare providers", "file_id": "dr_TK0914", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Since I can't drive", "context": "Patient cannot drive due to eye dilation", "file_id": "dr_TK0914", "chunk_id": 5, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "on the way home, it's a trip", "context": "Patient experiences difficulty traveling after eye dilation", "file_id": "dr_TK0914", "chunk_id": 5, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "central scheduling kept calling me because they said I was scheduled with the wrong doctor.", "context": "Patient experiences issues with scheduling process due to poor communication", "file_id": "dr_TK0914", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I did try to change doctors recently and I was successful at doing it, but central scheduling kept calling me", "context": "Patient faces challenges with scheduling appointments", "file_id": "dr_TK0914", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Patient liaison support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "a liaison, a patient liaison called me- ... and then that was the end of it", "context": "Patient receives helpful support from patient liaison", "file_id": "dr_TK0914", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "problems with communication", "context": "Patient experienced issues with communication", "file_id": "dr_TK0914", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "that's where you had a big problem", "context": "Patient had issues with central scheduling", "file_id": "dr_TK0914", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "once or twice I've had to wait", "context": "Patient experienced wait times on some occasions", "file_id": "dr_TK0914", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I think it's fine", "context": "Patient generally finds it easy to access care", "file_id": "dr_TK0914", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "a liaison, a patient liaison called me", "context": "Patient received support from a patient liaison", "file_id": "dr_TK0914", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Easy scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "for the most part it's been pretty easy- ... and you can get right in?", "context": "Patient finds scheduling appointments to be easy", "file_id": "dr_TK0914", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm very satisfied with Dr. Chaudhary. She's very thorough", "context": "Patient has a positive relationship with their provider", "file_id": "dr_TK0914", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they tell me there's nothing they can do and they're sorry", "context": "Patient feels that providers communicate effectively", "file_id": "dr_TK0914", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Thorough care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "She's very thorough", "context": "Patient receives thorough care from their provider", "file_id": "dr_TK0914", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Getting here.", "context": "Patient mentions difficulty getting to appointments", "file_id": "dr_TK0914", "chunk_id": 9, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation barriers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "we're a ... more than an hour away", "context": "Patient lives far from the clinic, making transportation difficult", "file_id": "dr_TK0914", "chunk_id": 9, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I can't drive", "context": "Patient's lack of driving ability limits access to clinic", "file_id": "dr_TK0914", "chunk_id": 9, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Family support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my husband brings me", "context": "Patient has family support for transportation to appointments", "file_id": "dr_TK0914", "chunk_id": 9, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I can't drive", "context": "Patient has difficulty with transportation due to inability to drive", "file_id": "dr_TK0914", "chunk_id": 10, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I try and schedule on days that he has off", "context": "Patient has to work around schedules to make appointments", "file_id": "dr_TK0914", "chunk_id": 10, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I can see fine now", "context": "Patient doesn't perceive urgency for follow-up", "file_id": "dr_TK0914", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I just get tired", "context": "Patient feels overwhelmed with daily activities", "file_id": "dr_TK0914", "chunk_id": 11, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have a magnifier that's really good", "context": "Patient uses tools to manage condition, indicating some health literacy", "file_id": "dr_TK0914", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible resources", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have a magnifier that's really good", "context": "Patient has access to tools that help with daily activities", "file_id": "dr_TK0914", "chunk_id": 11, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "but I just get tired", "context": "Patient expresses emotional exhaustion", "file_id": "dr_TK0914", "chunk_id": 12, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't", "context": "Patient doesn't have additional information to share about vision loss risk", "file_id": "dr_TK0914", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Very comfortable", "context": "Patient feels at ease discussing diabetes-related eye problems with doctor", "file_id": "dr_TK0914", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm one of those people that thinks of doctors as, they put their pants on the same way as you and I every morning.", "context": "Patient feels comfortable with doctor", "file_id": "dr_TK0914", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I don't hesitate to talk to 'em about any problem I might have.", "context": "Patient feels open with doctor", "file_id": "dr_TK0914", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They're there to help me.", "context": "Patient perceives doctor as helpful", "file_id": "dr_TK0914", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. Chaudhary is so thorough", "context": "Patient appreciates their eye doctor's thoroughness", "file_id": "dr_TK0914", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I don't hesitate to talk to 'em about any problem I might have", "context": "Patient feels comfortable discussing problems with their doctor", "file_id": "dr_TK0914", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. Chaudhary is so thorough", "context": "Patient implies their eye doctor is caring and attentive", "file_id": "dr_TK0914", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "Dr. Halenda doesn't, ... His personage does not allow for chitchat", "context": "Patient describes a doctor as not allowing for conversation", "file_id": "dr_TK0914", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And they're doing a good job", "context": "Patient feels providers are competent and caring", "file_id": "dr_TK0914", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Trust in provider", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I am not going to question them", "context": "Patient has trust in their healthcare providers", "file_id": "dr_TK0914", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Perceived severity", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I think it's extremely serious", "context": "Patient understands the seriousness of diabetes-related vision loss", "file_id": "dr_TK0914", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Acceptance of condition", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I've already lost my eyesight", "context": "Patient has experienced vision loss due to diabetes", "file_id": "dr_TK0914", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Satisfaction with care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Fully satisfactory", "context": "Patient is satisfied with their current eye care", "file_id": "dr_TK0914", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I think there's a 50/50 chance- ... that I'll get retinopathy", "context": "Patient unsure about disease progression", "file_id": "dr_TK0914", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the worst that could happen is that I would have total vision loss", "context": "Patient fears potential outcome", "file_id": "dr_TK0914", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive outlook", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think it's extremely serious", "context": "Patient acknowledges disease severity", "file_id": "dr_TK0914", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a good friend with retinopathy", "context": "Patient has supportive social network", "file_id": "dr_TK0914", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "You don't see it making any worse, but there's always the possibility", "context": "Patient does not perceive immediate need for follow-up", "file_id": "dr_TK0914", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the worst that could happen is that I would have total vision loss", "context": "Patient fears potential consequences of diagnosis", "file_id": "dr_TK0914", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "People say, You have a good attitude. Well, what are you gonna do?", "context": "Patient maintains positive outlook despite challenges", "file_id": "dr_TK0914", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've got 22 grandkids. Come on", "context": "Patient has strong social support system", "file_id": "dr_TK0914", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "It's just poor", "context": "Patient seems unaware of potential vision changes due to DR", "file_id": "dr_TK0914", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Pre-existing conditions", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I have non-arteritic, anterior ischemic optic neuropathy- ... probable glaucoma", "context": "Patient has multiple eye conditions that may impact perception of DR", "file_id": "dr_TK0914", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family history", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "glaucoma", "context": "Patient's family history may motivate them to prioritize eye health", "file_id": "dr_TK0914", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Thorough care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "very thorough", "context": "Patient describes positive experience with eye doctors", "file_id": "dr_TK0914", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they did everything", "context": "Patient feels informed about treatment plan", "file_id": "dr_TK0914", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health literacy", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm smart enough to know the outcome-", "context": "Patient implies understanding of health information", "file_id": "dr_TK0914", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family influence", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "I was raised you go to the eye doctor, you go to the dentist", "context": "Patient mentions family upbringing as a factor", "file_id": "dr_TK0914", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Intelligence. I mean, that's the truth. I'm smart enough to know the outcome-", "context": "Patient values knowledge and understanding of health", "file_id": "dr_TK0914", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider Issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I did not find that person to be helpful, nor did I find them to give a darn", "context": "Patient had negative experience with new doctor after original doctor retired", "file_id": "dr_TK0914", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive Upbringing", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I was raised you go to the eye doctor, you go to the dentist", "context": "Patient's upbringing encouraged regular health checkups", "file_id": "dr_TK0914", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of Provider Continuity", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "when my original doctor retired", "context": "Patient experienced disruption in care due to doctor's retirement", "file_id": "dr_TK0914", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I did not find that person to be helpful, nor did I find them to give a darn", "context": "Patient had negative experience with new doctor", "file_id": "dr_TK0914", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "he didn't dilate my eyes, he didn't do a vision field, he did nothing", "context": "Patient felt doctor did not communicate or perform proper examination", "file_id": "dr_TK0914", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "They canceled it, , because he was gonna be out of the office and they moved it four months", "context": "Patient's appointment was rescheduled without their input", "file_id": "dr_TK0914", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I did not find that person to be helpful, nor did I find them to give a darn", "context": "Patient lacks trust in new doctor", "file_id": "dr_TK0914", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "They canceled it, , because he was gonna be out of the office and they moved it four months", "context": "Patient's appointment was rescheduled without their input", "file_id": "dr_TK0914", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Just they just didn't seem to understand (laughs) that I wanted to change", "context": "Patient had trouble communicating with staff about changing providers", "file_id": "dr_TK0914", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "he's just very curt", "context": "Patient perceived their previous provider as being unfriendly", "file_id": "dr_TK0914", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm very happy with her", "context": "Patient is satisfied with their new provider, Dr. Chaudhary", "file_id": "dr_TK0914", "chunk_id": 23, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'm very happy with her", "context": "Patient has found a provider they like and can work with", "file_id": "dr_TK0914", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "find the right provider that works for you", "context": "Patient emphasizes importance of finding a suitable provider", "file_id": "dr_TK0914", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "does the care that you expect", "context": "Patient values a positive and expectation-meeting provider relationship", "file_id": "dr_TK0914", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It was just a problem with the- ... with the scheduling and stuff", "context": "Patient experienced issues with scheduling appointments", "file_id": "dr_TK0914", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider preference", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I want to see Dr. Chaudhary", "context": "Patient has a preferred provider, indicating potential issue with assigned doctor", "file_id": "dr_TK0914", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They just kept either texting me or calling me and saying ... You're supposed to see Dr. (name)", "context": "Patient receives reminders from the healthcare system, facilitating follow-up", "file_id": "dr_TK0914", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they're not translating?", "context": "Patient experiences poor communication between providers", "file_id": "dr_TK0914", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I don't want to see him", "context": "Patient lacks trust in provider", "file_id": "dr_TK0914", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My husband. He, he, he fixes my food", "context": "Patient has social support from husband", "file_id": "dr_TK0914", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of adherence", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Doesn't mean that I do it all the time", "context": "Patient knows what to do but doesn't always follow through", "file_id": "dr_TK0914", "chunk_id": 27, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I know it all. I mean, I do ... I researched a lot", "context": "Patient has received health education and researched diabetes management", "file_id": "dr_TK0914", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He fixes my food", "context": "Patient receives help from husband with daily tasks", "file_id": "dr_TK0914", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of time", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "a mother of 10 kids didn't have time to cook two plus", "context": "Patient had limited time due to family responsibilities", "file_id": "dr_TK0914", "chunk_id": 28, "original_category": "BARRIER - SDOH" }, { "code": "Family responsibilities", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I was the mother of 10 children", "context": "Patient's family responsibilities impacted her ability to manage diabetes", "file_id": "dr_TK0914", "chunk_id": 28, "original_category": "BARRIER - SDOH" }, { "code": "Health education needs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Maybe ... Well, a, a, a wild dream would be for there to be one plan that works for everybody", "context": "Patient suggests improvement in diabetic education classes", "file_id": "dr_TK0914", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Personalized care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "one plan that works for everybody", "context": "Patient desires tailored approach to diabetes management", "file_id": "dr_TK0914", "chunk_id": 28, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "it makes it very difficult", "context": "Patient finds dietary management challenging due to family members' different needs", "file_id": "dr_TK0914", "chunk_id": 29, "original_category": "BARRIER - SDOH" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "a wild dream would be for there to be one plan that works for everybody", "context": "Patient desires a simplified diabetes management plan", "file_id": "dr_TK0914", "chunk_id": 29, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Maybe ... Well, a, a, a wild dream would be for there to be one plan that works for everybody", "context": "Patient seeks standardized diabetes education", "file_id": "dr_TK0914", "chunk_id": 29, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Is there anything different you would to see with, , diabetic education classes?", "context": "Patient inquires about diabetes education", "file_id": "dr_TK0914", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of practical support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'd to see something practical- that fits everybody", "context": "Patient seeking practical solutions for diabetes management", "file_id": "dr_TK0914", "chunk_id": 30, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Unhelpful advice", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Don't eat this, don't eat that. Oh, no. You should eat that and you should eat that", "context": "Patient frustrated with unhelpful dietary advice from providers", "file_id": "dr_TK0914", "chunk_id": 30, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Need for inclusive support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Just something that caters to everybody- and everybody's needs", "context": "Patient desires personalized and inclusive health education", "file_id": "dr_TK0914", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Misinformation barriers", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "So there's so much misinformation- ... that it's amazing that anybody can ever, ever figure things out.", "context": "Patient discusses the challenge of navigating conflicting health information", "file_id": "dr_TK0914", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Is that a feasible thing? Are they affordable or, , the stuff they're saying in the education classes, if that's one of their barriers to implementation?", "context": "Patient discusses the cost of food plans and potential financial burden", "file_id": "dr_TK0914", "chunk_id": 31, "original_category": "BARRIER - SDOH" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "So there's so much misinformation- ... that it's amazing that anybody can ever, ever figure things out.", "context": "Patient highlights the issue of inadequate health education", "file_id": "dr_TK0914", "chunk_id": 31, "original_category": "BARRIER - SDOH" }, { "code": "Health education support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "the stuff they're saying in the education classes", "context": "Patient mentions education classes as a potential resource for health information", "file_id": "dr_TK0914", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "raw vegetables are expensive", "context": "Patient mentions expense of healthy food", "file_id": "dr_TK0914", "chunk_id": 32, "original_category": "BARRIER - SDOH" }, { "code": "Food cost barriers", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I eat good meat. It's expensive", "context": "Patient discusses high cost of healthy food options", "file_id": "dr_TK0914", "chunk_id": 32, "original_category": "BARRIER - SDOH" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "a lot of people in ... particularly in West Virginia are on food stamps", "context": "Patient implies limited access to healthy food due to socioeconomic factors", "file_id": "dr_TK0914", "chunk_id": 32, "original_category": "BARRIER - SDOH" }, { "code": "Health education barriers", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "if that's one of their barriers to implementation", "context": "Patient discusses potential lack of understanding about healthy food choices", "file_id": "dr_TK0914", "chunk_id": 32, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "the stuff they're saying in the education classes", "context": "Patient implies potential lack of understanding about healthy food choices due to education", "file_id": "dr_TK0914", "chunk_id": 32, "original_category": "BARRIER - SDOH" }, { "code": "Accessible healthcare resources", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "my two autistic sons both receive benefits", "context": "Patient mentions access to benefits for family members", "file_id": "dr_TK0914", "chunk_id": 32, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "it's all very expensive", "context": "Patient mentions that eating healthy is expensive", "file_id": "dr_TK0914", "chunk_id": 33, "original_category": "BARRIER - SDOH" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they can't afford to eat that way", "context": "Patient's sons cannot afford healthy food due to financial constraints", "file_id": "dr_TK0914", "chunk_id": 33, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My doctors", "context": "Patient mentions having doctors to call for advice", "file_id": "dr_TK0914", "chunk_id": 33, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I have to get this- ... to see", "context": "Patient implies difficulty accessing necessary care", "file_id": "dr_TK0914", "chunk_id": 34, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "None explicitly mentioned", "context": "No direct quote, but patient's situation implies potential financial struggles", "file_id": "dr_TK0914", "chunk_id": 34, "original_category": "BARRIER - SDOH" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "None explicitly mentioned", "context": "Patient's understanding of their condition is not directly discussed", "file_id": "dr_TK0914", "chunk_id": 34, "original_category": "BARRIER - SDOH" }, { "code": "Provider support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My doctors", "context": "Patient mentions relying on doctors for advice", "file_id": "dr_TK0914", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "None explicitly mentioned", "context": "No direct discussion of patient's understanding of their condition", "file_id": "dr_TK0914", "chunk_id": 34, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Vision Loss", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "This vision loss I have is a kaleidoscope almost", "context": "Patient describes their experience with vision loss", "file_id": "dr_TK0914", "chunk_id": 35, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Daily Activity Barriers", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I mean, you want me to list all the other can’ts", "context": "Patient lists limitations due to vision loss", "file_id": "dr_TK0914", "chunk_id": 35, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Expectation Of Quick Visit", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "In and out", "context": "Patient expects a quick and efficient visit", "file_id": "dr_TK0914", "chunk_id": 35, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of comparison", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I have no basis for comparison", "context": "Patient lacks prior experience with glaucoma doctor", "file_id": "dr_TK0914", "chunk_id": 36, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Brief appointment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "In and out", "context": "Patient expects a quick visit", "file_id": "dr_TK0914", "chunk_id": 36, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He asks if I'm still using the drops", "context": "Provider inquires about patient's treatment adherence", "file_id": "dr_TK0914", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Brief appointment", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "it's just very brief", "context": "Patient perceives appointment as too short", "file_id": "dr_TK0914", "chunk_id": 37, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of comparison", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I have no basis for comparison", "context": "Patient lacks understanding of their condition", "file_id": "dr_TK0914", "chunk_id": 37, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they said since I had so many eye surgeries", "context": "Patient has had multiple eye surgeries, implying potential lack of access to preventive care", "file_id": "dr_DA1010_Part1", "chunk_id": 0, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "they pre-treating it with drops", "context": "Patient is receiving pre-treatment, potentially implying cost concerns", "file_id": "dr_DA1010_Part1", "chunk_id": 0, "original_category": "BARRIER - SDOH" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what are some things that you do each day, regarding your diabetes", "context": "Patient is being asked about daily diabetes management, implying some level of health education", "file_id": "dr_DA1010_Part1", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Take my blood sugar", "context": "Patient is actively managing their diabetes, implying some level of self-management support", "file_id": "dr_DA1010_Part1", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of discussion", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "So they pre-treating it with drops.", "context": "Patient seems unclear about treatment", "file_id": "dr_DA1010_Part1", "chunk_id": 1, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Medication management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Take my blood sugar.", "context": "Patient is managing diabetes through medication and monitoring", "file_id": "dr_DA1010_Part1", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Priority on health", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Keep my A1C down as low as possible.", "context": "Patient prioritizes controlling diabetes through A1C management", "file_id": "dr_DA1010_Part1", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "Well, if I have a week of high blood sugars-", "context": "Patient is aware of the impact of high blood sugar on their health", "file_id": "dr_DA1010_Part1", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "No, I don't think diabetes has affected my eyes", "context": "Patient shows lack of awareness about diabetes impact on eyes", "file_id": "dr_DA1010_Part1", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Yes, my doctor explained how diabetes could affect my eyesight", "context": "Patient received education from provider about diabetes and eye health", "file_id": "dr_DA1010_Part1", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Access to care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I get my eye exams here, 50/50", "context": "Patient has access to eye care services", "file_id": "dr_DA1010_Part1", "chunk_id": 2, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know what you mean by procedure, because the, , the doctor determines that.", "context": "Patient unsure about procedures during eye exams", "file_id": "dr_DA1010_Part1", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I don't know what you mean by procedure, because the, , the doctor determines that.", "context": "Patient unclear about procedures, possibly due to poor communication", "file_id": "dr_DA1010_Part1", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "For a normal eye exam? ... the doctor determines that.", "context": "Patient has access to a provider for regular exams", "file_id": "dr_DA1010_Part1", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know what you mean by procedure", "context": "Patient unsure about medical procedures", "file_id": "dr_DA1010_Part1", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Familiarity with process", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm familiar with the process", "context": "Patient has knowledge of medical procedures", "file_id": "dr_DA1010_Part1", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "they cancel just as many times as I do", "context": "Patient experiences challenges with scheduling follow-up appointments due to cancellations", "file_id": "dr_DA1010_Part1", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Flexible scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they're far enough apart from each other that pretty well pick your own time", "context": "Patient appreciates the flexibility in scheduling eye care visits", "file_id": "dr_DA1010_Part1", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider availability issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "No, because- they cancel just as many times as I do", "context": "Patient experiences difficulties with provider availability", "file_id": "dr_DA1010_Part1", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "And there's nobody, there's nobody t- to push me around", "context": "Patient has mobility issues and lacks assistance with transportation", "file_id": "dr_DA1010_Part1", "chunk_id": 6, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of accessibility", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "nobody to push me around", "context": "Patient has mobility issues and lacks assistance", "file_id": "dr_DA1010_Part1", "chunk_id": 7, "original_category": "BARRIER - SDOH" }, { "code": "Inaccessible facilities", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "no place to sit", "context": "Clinic lacks seating for patients with mobility issues", "file_id": "dr_DA1010_Part1", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "stand out there so long", "context": "Patient experiences prolonged waiting periods", "file_id": "dr_DA1010_Part1", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "When you're by yourself, yes", "context": "Patient implies difficulty accessing care alone", "file_id": "dr_DA1010_Part1", "chunk_id": 8, "original_category": "BARRIER - SDOH" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I feel comfortable with him", "context": "Patient feels at ease with their doctor", "file_id": "dr_DA1010_Part1", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I'm still working on him for a secret on fishing", "context": "Patient has casual conversation with doctor, indicating good rapport", "file_id": "dr_DA1010_Part1", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Understanding of DR progression", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I'd say it's about 100%", "context": "Patient shows awareness of diabetes-related vision loss risk", "file_id": "dr_DA1010_Part1", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "A doctor here that botched up a detached retina", "context": "Patient expresses distrust due to past negative experience", "file_id": "dr_DA1010_Part1", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor provider care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "A doctor here that botched up a detached retina", "context": "Patient had a negative experience with a provider", "file_id": "dr_DA1010_Part1", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I'm greatly disappointed in my vision", "context": "Patient expresses fear and disappointment about their vision loss", "file_id": "dr_DA1010_Part1", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "All my life I've had problems with my eyes", "context": "Patient lacks understanding of their condition and its progression", "file_id": "dr_DA1010_Part1", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of family health history", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, but keep in mind I grew up at a time where, , adults looked at kids should be seen and not heard", "context": "Patient lacks knowledge about family health history due to cultural upbringing", "file_id": "dr_DA1010_Part1", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Cultural beliefs about healthcare", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "And anytime the adults were talking, the kids left the room", "context": "Patient's cultural background may influence their perception of healthcare and communication with providers", "file_id": "dr_DA1010_Part1", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No way for you to know", "context": "Patient lacks knowledge about family medical history", "file_id": "dr_DA1010_Part1", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Cultural beliefs", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "adults looked at kids should be seen and not heard", "context": "Patient's cultural upbringing may impact health communication", "file_id": "dr_DA1010_Part1", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I live with a woman", "context": "Patient has someone to help with daily care", "file_id": "dr_DA1010_Part1", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Acceptance of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "you just gotta accept that and go on", "context": "Patient's emotional response to diagnosis may impact adherence", "file_id": "dr_DA1010_Part1", "chunk_id": 11, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I live with a woman", "context": "Patient has a partner for potential support", "file_id": "dr_DA1010_Part1", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of Clarity", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "that's a really gray area there", "context": "Patient expresses uncertainty about their care", "file_id": "dr_DA1010_Part1", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don’t know. It’s been a while.", "context": "Patient unsure about normal eye exam process", "file_id": "dr_MD0610(part2)", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Limited health knowledge", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don’t know. It’s been a while.", "context": "Patient lacks knowledge about eye exam procedures", "file_id": "dr_MD0610(part2)", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the only diabetic one I do is here at the retina specialist", "context": "Patient has access to a retina specialist", "file_id": "dr_MD0610(part2)", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "It's usually pretty easy", "context": "Patient finds scheduling appointments easy", "file_id": "dr_MD0610(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they tell me about that", "context": "Patient receives clear explanations from provider", "file_id": "dr_MD0610(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "the doctor says he wants to see me in four weeks", "context": "Patient feels provider is invested in their care", "file_id": "dr_MD0610(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Easy scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they schedule me one", "context": "Patient finds scheduling appointments straightforward", "file_id": "dr_MD0610(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "It's usually pretty easy", "context": "Patient finds it easy to access healthcare provider", "file_id": "dr_MD0610(part2)", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Appointment scheduling ease", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you can get into them quickly too", "context": "Patient can easily schedule appointments", "file_id": "dr_MD0610(part2)", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "Well, we're not in your plan. It'd be 180 bucks for today.", "context": "Patient faces out-of-network costs", "file_id": "dr_MD0610(part2)", "chunk_id": 3, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I was, I don't think so.", "context": "Patient is deterred by high costs", "file_id": "dr_MD0610(part2)", "chunk_id": 3, "original_category": "BARRIER - SDOH" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "So I called up here, and he's -- made the appointment a month later.", "context": "Patient experiences delay in scheduling", "file_id": "dr_MD0610(part2)", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So I called up here, and he's -- made the appointment", "context": "Patient finds alternative provider", "file_id": "dr_MD0610(part2)", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I figured it'll be another month waiting to get in", "context": "Patient expects a long wait for the next appointment", "file_id": "dr_MD0610(part2)", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "He goes, 'I won't be seeing you anymore. Dr. G is going to be taking over your care'", "context": "Patient experiences a change in healthcare provider", "file_id": "dr_MD0610(part2)", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "He walks out, the nurse comes in, and she's , ', let's go'", "context": "Patient experiences abrupt communication from healthcare staff", "file_id": "dr_MD0610(part2)", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They come in, and he looked, and he said, 'Well, you do have catar-- cataracts, but that's not your problem'", "context": "Patient has access to a specialist who can assess their condition", "file_id": "dr_MD0610(part2)", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "the insurance change was a bit of a challenge", "context": "Patient experienced challenges due to insurance changes", "file_id": "dr_MD0610(part2)", "chunk_id": 5, "original_category": "BARRIER - SDOH" }, { "code": "Poor vision insurance", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "the vision insurances - it don't matter where you work - is not usually very good for just regular stuff a lot", "context": "Patient expresses dissatisfaction with vision insurance coverage", "file_id": "dr_MD0610(part2)", "chunk_id": 5, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So, yeah, he-- they're pretty up on it", "context": "Patient expresses satisfaction with provider responsiveness", "file_id": "dr_MD0610(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "somebody going to poke you in the eye with something", "context": "Patient expresses fear of eye exam procedure", "file_id": "dr_MD0610(part2)", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they have that eye care thing. It's awesome", "context": "Patient appreciates gentle eye care approach", "file_id": "dr_MD0610(part2)", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they have that eye care thing. It's awesome", "context": "Patient values provider's use of gentle technology", "file_id": "dr_MD0610(part2)", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it's just somebody going to poke you in the eye with something", "context": "Patient expresses fear of eye examination", "file_id": "dr_MD0610(part2)", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He explains everything to you and tells you what he recommends to do for right now", "context": "Patient praises provider's communication skills", "file_id": "dr_MD0610(part2)", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He's really good", "context": "Patient expresses positive sentiment towards provider", "file_id": "dr_MD0610(part2)", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He explains everything to you and tells you what he recommends to do for right now.", "context": "Patient appreciates provider's clear explanations", "file_id": "dr_MD0610(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He's really good.", "context": "Patient has positive perception of provider", "file_id": "dr_MD0610(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "He explains everything to you and tells you what he recommends to do for right now.", "context": "Provider educates patient on eye care", "file_id": "dr_MD0610(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Adherence to recommendations", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I just take what my doctor tells me.", "context": "Patient follows provider's advice", "file_id": "dr_MD0610(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Not really. They said it could cause you problems, but never really explained what.", "context": "Patient lacked clear understanding of diabetes impact on vision", "file_id": "dr_MD0610(part2)", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Not really. They said it could cause you problems, but never really explained what.", "context": "Patient received inadequate information from provider", "file_id": "dr_MD0610(part2)", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, very. Oh, yeah, .", "context": "Patient feels comfortable discussing health issues with doctor", "file_id": "dr_MD0610(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Oh, very. Oh, yeah, .", "context": "Patient has open and honest communication with provider", "file_id": "dr_MD0610(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He's easy to talk to", "context": "Patient feels comfortable with doctor due to personal connection", "file_id": "dr_MD0610(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Comes down to my level", "context": "Doctor shows understanding and relates to patient", "file_id": "dr_MD0610(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He's easy to talk to", "context": "Patient feels doctor listens and understands them", "file_id": "dr_MD0610(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He used to be a paramedic, so he's easy to talk to", "context": "Patient feels comfortable with provider due to shared background", "file_id": "dr_MD0610(part2)", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Comes down to my level", "context": "Provider communicates in a way that is understandable to patient", "file_id": "dr_MD0610(part2)", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He's easy to talk to", "context": "Patient feels provider is approachable and caring", "file_id": "dr_MD0610(part2)", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "All my doctors are really good about explaining everything", "context": "Patient has access to providers who explain things clearly", "file_id": "dr_MD0610(part2)", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they're very descriptive, and they explain things well", "context": "Patient appreciates provider's clear explanations", "file_id": "dr_MD0610(part2)", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he explains it well, and then if I have a question, he answers it", "context": "Patient feels heard and supported by provider", "file_id": "dr_MD0610(part2)", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "he explains it well, and then if I have a question, he answers it", "context": "Patient learns about their condition through provider explanations", "file_id": "dr_MD0610(part2)", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I mean, it's 20/80 right now, but I can still see", "context": "Patient may not fully understand the risks of DR", "file_id": "dr_MD0610(part2)", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he explains it well, and then if I have a question, he answers it", "context": "Patient has a positive relationship with their provider", "file_id": "dr_MD0610(part2)", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know. It seems --", "context": "Patient unsure about potential vision loss due to diabetes", "file_id": "dr_MD0610(part2)", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "if you watch it and--", "context": "Patient implies concern about monitoring and potential diagnosis", "file_id": "dr_MD0610(part2)", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And it seems he's fixed it.", "context": "Patient feels provider has helped resolve issue, implying positive relationship", "file_id": "dr_MD0610(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "And I told her, my A1C was it's-- my A1C was very bad.", "context": "Patient discusses A1C levels, indicating some understanding of health metrics", "file_id": "dr_MD0610(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And honestly, my doctor, he put me on another, , medicine to go with what I was taking--", "context": "Patient reports open discussion with provider about treatment adjustments", "file_id": "dr_MD0610(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know what you mean", "context": "Patient unsure about diabetes care priorities", "file_id": "dr_CL0110", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Watch what you eat", "context": "Doctor suggests diet monitoring for diabetes management", "file_id": "dr_CL0110", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient-provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Keep my A1C down", "context": "Doctor and patient discuss importance of A1C levels", "file_id": "dr_CL0110", "chunk_id": 0, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Can't really tell", "context": "Patient unsure about signs of worsening diabetes", "file_id": "dr_CL0110", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Can't really tell", "context": "Patient is unaware of symptoms indicating worsening diabetes", "file_id": "dr_CL0110", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I didn't talk to him about it", "context": "Patient avoids discussing eye changes with doctor due to fear", "file_id": "dr_CL0110", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I didn't talk to him about it", "context": "Patient does not communicate effectively with healthcare provider", "file_id": "dr_CL0110", "chunk_id": 1, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Watch what you eat", "context": "Doctor provides patient with dietary advice for managing diabetes", "file_id": "dr_CL0110", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider guidance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Keep my A1C down", "context": "Doctor advises patient on importance of monitoring blood sugar levels", "file_id": "dr_CL0110", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "None really", "context": "Patient lacks understanding about diabetes and its effect on eyes", "file_id": "dr_CL0110", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Nobody has told you anything?", "context": "Patient feels uninformed by healthcare providers", "file_id": "dr_CL0110", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I didn't talk to him about it", "context": "Patient does not discuss concerns with doctor", "file_id": "dr_CL0110", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They just come and get me, take me to the room", "context": "Patient receives convenient care at clinic", "file_id": "dr_CL0110", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "None really", "context": "Patient lacks health education, implying a need for it", "file_id": "dr_CL0110", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Blurry vision", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Oh, yeah, blurry", "context": "Patient experiences discomfort after eye dilation", "file_id": "dr_CL0110", "chunk_id": 3, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Difficulty with daily activities", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Oh, yeah", "context": "Patient has trouble with daily tasks due to blurry vision", "file_id": "dr_CL0110", "chunk_id": 3, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Work schedule conflict", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "Working, getting back to work, getting back to driving", "context": "Patient faces challenges in scheduling appointments due to work commitments", "file_id": "dr_CL0110", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Yeah. Your doctor's availability is good?", "context": "Patient finds the doctor's schedule accommodating", "file_id": "dr_CL0110", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "closer to home", "context": "Patient prefers care closer to home due to transportation concerns", "file_id": "dr_CL0110", "chunk_id": 5, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Returning to work", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Working, getting back to work, getting back to driving", "context": "Patient is concerned about resuming daily activities after treatment", "file_id": "dr_CL0110", "chunk_id": 5, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Provider trust issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "If I can get somebody else to do a better job, I'd take it", "context": "Patient expresses dissatisfaction with current provider and seeks alternative care", "file_id": "dr_CL0110", "chunk_id": 5, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Distance is a problem. How far are you-- If I got to get somebody to drive.", "context": "Patient mentions distance as an issue and needing someone to drive them", "file_id": "dr_CL0110", "chunk_id": 6, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "We live about 45 minutes, almost an hour or so away.", "context": "Patient lives far from the clinic, implying limited access", "file_id": "dr_CL0110", "chunk_id": 6, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "They said that, , they don't understand what's going on.", "context": "Patient feels providers do not communicate effectively about their condition", "file_id": "dr_CL0110", "chunk_id": 6, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of answers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "They never knew the-- They don't have answers?", "context": "Patient expresses frustration with lack of information from provider", "file_id": "dr_CL0110", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Discomfort", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "And you're still in discomfort", "context": "Patient experiences physical and emotional distress", "file_id": "dr_CL0110", "chunk_id": 7, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Motivation to recover", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I got to get my eyesight back", "context": "Patient expresses desire to regain vision and participate in activities", "file_id": "dr_CL0110", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self care practices", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Outside, yep", "context": "Patient takes steps to protect eyes by wearing sunglasses", "file_id": "dr_CL0110", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I got to get my eyesight back", "context": "Patient's motivation for treatment, but unclear understanding of DR", "file_id": "dr_CL0110", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what kinds of ways do you take care of your eyes?", "context": "Interviewer inquiring about patient's knowledge of eye care", "file_id": "dr_CL0110", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access to healthcare", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Just the eye drops", "context": "Patient has access to medication for their condition", "file_id": "dr_CL0110", "chunk_id": 8, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't know the name of it", "context": "Patient lacks knowledge about eye drops", "file_id": "dr_CL0110", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No cost issues mentioned", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "None", "context": "No cost-related concerns discussed", "file_id": "dr_CL0110", "chunk_id": 9, "original_category": "NO BARRIER - Cost-Related Barriers" }, { "code": "No system issues mentioned", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "None", "context": "No provider or system issues discussed", "file_id": "dr_CL0110", "chunk_id": 9, "original_category": "NO BARRIER - Provider/System Issues" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Do you ever give your eyes a rest when working on the computer or watching TV for a long time?", "context": "Interviewer provides health education", "file_id": "dr_CL0110", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No emotional issues mentioned", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "None", "context": "No emotional or psychological concerns discussed", "file_id": "dr_CL0110", "chunk_id": 9, "original_category": "NO BARRIER - Emotional/Psychological" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They said you could go blind. That's pretty much it.", "context": "Patient lacks detailed information about diabetes-related vision loss", "file_id": "dr_CL0110", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "They said you could go blind. That's pretty much it.", "context": "Patient receives limited information from healthcare provider", "file_id": "dr_CL0110", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I've asked him a few questions.", "context": "Patient feels comfortable asking questions to their eye doctor", "file_id": "dr_CL0110", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm all right with it. Because I've asked him a few questions.", "context": "Patient feels comfortable discussing diabetes with their eye doctor", "file_id": "dr_CL0110", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "He said, 'I don't-- I don't understand it.'", "context": "Patient's eye doctor did not understand or address patient's concern", "file_id": "dr_CL0110", "chunk_id": 11, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "He said, 'I don't-- I don't understand it.'", "context": "Patient's eye doctor did not understand or address patient's concern, potentially indicating lack of trust", "file_id": "dr_CL0110", "chunk_id": 11, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I've asked him a few questions.", "context": "Patient feels comfortable asking eye doctor questions, indicating effective communication", "file_id": "dr_CL0110", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm all right with it. Because I--", "context": "Patient feels comfortable discussing diabetes with eye doctor, indicating positive relationship", "file_id": "dr_CL0110", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know anything about it", "context": "Patient lacks knowledge about their condition", "file_id": "dr_CL0110", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Get my eyes fixed", "context": "Patient implies concern about their eye health", "file_id": "dr_CL0110", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My primary doctor-- and my sugar doc-- or eye doctor", "context": "Patient mentions multiple providers, implying a supportive relationship", "file_id": "dr_CL0110", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They've told you it's a serious problem", "context": "Patient reports being informed about their condition by providers", "file_id": "dr_CL0110", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "My primary doctor-- and my sugar doc-- or eye doctor", "context": "Patient has received information about their condition from providers", "file_id": "dr_CL0110", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I really don't know", "context": "Patient unsure about potential vision loss due to diabetes", "file_id": "dr_CL0110", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "My eyeball hurts a little bit", "context": "Patient experiences eye pain after laser surgery", "file_id": "dr_CL0110", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My primary doctor-- and my sugar doc-- or eye doctor", "context": "Patient mentions multiple healthcare providers involved in care", "file_id": "dr_CL0110", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it was getting a little blurry, but I could still see to drive", "context": "Patient doesn't understand the severity of their condition", "file_id": "dr_CL0110", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it was getting a little blurry, but I could still see to drive", "context": "Patient doesn't feel urgent need for follow-up", "file_id": "dr_CL0110", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "What's that?", "context": "Patient shows lack of knowledge about age-related eyesight decline and macular degeneration", "file_id": "dr_CL0110", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "not too happy", "context": "Patient expresses negative emotions after being diagnosed with eye conditions", "file_id": "dr_CL0110", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "not too happy", "context": "Patient experiences emotional discomfort after diagnosis", "file_id": "dr_CL0110", "chunk_id": 15, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "You don't know? Okay.", "context": "Provider shows patience and understanding in explaining conditions to patient", "file_id": "dr_CL0110", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "it's a particular condition with that-- where it, , affects a part of your retina called your macula.", "context": "Provider takes time to explain complex medical conditions to patient", "file_id": "dr_CL0110", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of satisfaction", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Fair", "context": "Patient expresses dissatisfaction with follow-up experience", "file_id": "dr_CL0110", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Procedures discomfort", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "two weeks ago they'd done the--", "context": "Patient experiences discomfort due to procedures", "file_id": "dr_CL0110", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Personal motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Just trying to save my eyes", "context": "Patient's personal motivation for attending follow-ups", "file_id": "dr_CL0110", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I got a friend that drives me when I need to--", "context": "Patient receives social support from friends for transportation", "file_id": "dr_CL0110", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No discouragement", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Not yet", "context": "Patient experiences no discouragement from using healthcare services", "file_id": "dr_CL0110", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I got a friend that drives me when I need to", "context": "Patient has a friend who provides transportation", "file_id": "dr_CL0110", "chunk_id": 17, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He just said, 'Well, me too. Hopefully, it clears up now.'", "context": "Patient had a positive interaction with their provider", "file_id": "dr_CL0110", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He just said, 'Well, me too. Hopefully, it clears up now.'", "context": "Provider communicated effectively with the patient", "file_id": "dr_CL0110", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of information", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Probably", "context": "Patient feels they don't have enough information about their condition", "file_id": "dr_CL0110", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "He said, 'I don't know. I don't understand it.'", "context": "Patient experiences poor communication with provider", "file_id": "dr_CL0110", "chunk_id": 18, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what kinds of information would you prefer, you had that would help you maybe manage things better?", "context": "Patient suggests needing more health education to manage their condition", "file_id": "dr_CL0110", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He just said, 'Well, me too. Hopefully, it clears up now.'", "context": "Patient experiences provider empathy", "file_id": "dr_CL0110", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know", "context": "Patient lacks understanding about their condition and treatment", "file_id": "dr_CL0110", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, I'd try it", "context": "Patient expresses interest in diabetes education but lacks access", "file_id": "dr_CL0110", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of provider support", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "No one's ever mentioned it or--", "context": "Patient reports lack of discussion about diabetes education from healthcare providers", "file_id": "dr_CL0110", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My wife. She checks my sugars", "context": "Patient has a supportive spouse who helps with daily diabetes care", "file_id": "dr_CL0110", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Limited health literacy", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "We just eat what we want", "context": "Patient lacks understanding of healthy diet for diabetes management", "file_id": "dr_CL0110", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Primary care only", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Just primary doc", "context": "Patient sees only a primary care physician, potentially lacking specialized diabetes care", "file_id": "dr_CL0110", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "No one's ever mentioned it or-- offered it", "context": "Patient not offered additional resources for diabetes management", "file_id": "dr_CL0110", "chunk_id": 20, "original_category": "BARRIER - SDOH" }, { "code": "Poor provider relationship", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "Just primary doc", "context": "Patient only sees primary doctor, may indicate lack of specialized care", "file_id": "dr_CL0110", "chunk_id": 20, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My wife", "context": "Patient has spouse for emotional support", "file_id": "dr_CL0110", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Practical support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My wife", "context": "Patient's wife may provide practical help, including transportation", "file_id": "dr_CL0110", "chunk_id": 20, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Well, if it'd help, yeah, I'd try it", "context": "Patient unsure about benefits of additional resources for diabetes management", "file_id": "dr_CL0110", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I wanted them to say, your sight's going to come back tomorrow or something", "context": "Patient has unrealistic expectations about treatment outcomes", "file_id": "dr_CL0110", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "He can't drive to the campsite", "context": "Patient's vision loss affects daily activities, including driving", "file_id": "dr_CL0110", "chunk_id": 21, "original_category": "BARRIER - SDOH" }, { "code": "Emotional frustration", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Oh, it's frustrating for him", "context": "Patient experiences emotional distress due to vision loss", "file_id": "dr_CL0110", "chunk_id": 21, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Positive expectations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I wanted them to say, your sight's going to come back tomorrow or something", "context": "Patient has positive expectations from healthcare providers", "file_id": "dr_CL0110", "chunk_id": 21, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He said, We're working on it", "context": "Provider shows empathy and reassurance", "file_id": "dr_CL0110", "chunk_id": 21, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Well, just young and dumb. Didn't do it.", "context": "Patient lacked understanding of importance of regular eye checks", "file_id": "dr_CL0110", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of provider recommendation", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "No. I-- He never went to the doctor", "context": "Patient was not advised by doctor to get regular eye checks", "file_id": "dr_CL0110", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Tell people they better-- take care of their eyes.", "context": "Patient emphasizes importance of self-care for eye health", "file_id": "dr_CL0110", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Regular check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "They better go once a year and get them checked.", "context": "Patient recognizes importance of regular eye checks for maintaining health", "file_id": "dr_CL0110", "chunk_id": 22, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of insurance", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "Because he didn't have, , good insurance and stuff", "context": "Patient lacked good insurance", "file_id": "dr_CL0110", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "No provider visits", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "He never went to the doctor", "context": "Patient did not visit doctors prior to 2021", "file_id": "dr_CL0110", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Insurance barrier", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "Insurance was a barrier", "context": "Patient confirms insurance as a barrier", "file_id": "dr_CL0110", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "Lack of health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Well, just young and dumb. Didn't do it", "context": "Patient lacked knowledge about importance of check-ups", "file_id": "dr_CL0110", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Primary care doctor", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yeah. I've got my primary care doctor", "context": "Patient has a primary care doctor", "file_id": "dr_CL0110", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "you guys mentioned you come from far to get here", "context": "Patient has to travel far for healthcare", "file_id": "dr_CL0110", "chunk_id": 24, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "He's right there at Bridgeport", "context": "Patient has a nearby primary care doctor", "file_id": "dr_CL0110", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Importance of follow-up", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "You better keep up with it", "context": "Patient understands the importance of regular healthcare", "file_id": "dr_CL0110", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I'm not planning on going blind", "context": "Patient is motivated by fear of blindness", "file_id": "dr_CL0110", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Appreciation for support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I really appreciate it", "context": "Patient expresses gratitude for healthcare service", "file_id": "dr_CL0110", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of adherence to meds", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I just take my meds when I can", "context": "Patient does not prioritize medication schedule", "file_id": "dr_RW1026", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor health literacy", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "What now?", "context": "Patient seems unclear about diabetes management questions", "file_id": "dr_RW1026", "chunk_id": 0, "original_category": "BARRIER - SDOH" }, { "code": "Health education importance", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "check my sugar, pretty much make meal plans", "context": "Patient values learning about diabetes management", "file_id": "dr_RW1026", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider guidance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "my doctor has discussed with you that it's important for people with diabetes to do", "context": "Patient receives guidance from healthcare provider", "file_id": "dr_RW1026", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "check blood sugar, get exercise, plenty of sleep, diet, take my medication", "context": "Patient is aware of self-management strategies", "file_id": "dr_RW1026", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of symptoms", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "far as symptoms go, there really wasn't no symptoms", "context": "Patient does not experience noticeable symptoms", "file_id": "dr_RW1026", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No education on DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "That's pretty much it", "context": "Patient lacks knowledge on diabetes management and complications", "file_id": "dr_RW1026", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "check blood sugar, get exercise, plenty of sleep, diet, take my medication", "context": "Patient has received guidance on diabetes management", "file_id": "dr_RW1026", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider discussion on self-care", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And what are some things your doctor has discussed with you that it's important for people with diabetes to do?", "context": "Patient receives guidance from provider on self-care", "file_id": "dr_RW1026", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I noticed my eyes are getting worse", "context": "Patient is unaware of the severity of their condition", "file_id": "dr_RW1026", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I went from seeing to not", "context": "Patient is experiencing vision loss, potentially fearing diagnosis", "file_id": "dr_RW1026", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "It's going swimming in a pool and coming up and having water, water in your eyes", "context": "Patient is describing their condition without clear understanding", "file_id": "dr_RW1026", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've had blood-- high blood sugar. I've had low blood sugar", "context": "Patient has received medical attention, indicating some level of healthcare support", "file_id": "dr_RW1026", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I noticed my eyes are getting worse", "context": "Patient is aware of their condition, potentially due to health education", "file_id": "dr_RW1026", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "he didn't really say diabetic retinopathy", "context": "Patient unclear about diagnosis", "file_id": "dr_RW1026", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "No, he didn't say nothing about them", "context": "Provider did not communicate effectively", "file_id": "dr_RW1026", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Not really, no. No.", "context": "Patient reports lack of information about diabetes effects on eyes", "file_id": "dr_RW1026", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Nobody's told you anything about how ?", "context": "Patient indicates providers did not inform them about diabetes effects on eyes", "file_id": "dr_RW1026", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "And I had to find another one.", "context": "Patient experienced change in primary care provider", "file_id": "dr_RW1026", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I had an eye doctor--", "context": "Patient reports having access to a specialist", "file_id": "dr_RW1026", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of explanation", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "didn't really get into too much of, , the explanation part of it", "context": "Patient felt doctor didn't explain diabetes effects on eyes thoroughly", "file_id": "dr_RW1026", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And she got my diabetes down and really informed me a lot about diabetes", "context": "Patient had a positive experience with a specialist doctor", "file_id": "dr_RW1026", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Access to healthcare", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I got it here", "context": "Patient has access to eye exams at their current location", "file_id": "dr_RW1026", "chunk_id": 5, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "And she got my diabetes down and really informed me a lot about diabetes", "context": "Patient received health education from their doctor", "file_id": "dr_RW1026", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Workplace health programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "we had our eyes tested every three years", "context": "Patient's workplace offers regular eye exams", "file_id": "dr_RW1026", "chunk_id": 5, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I didn't really-- --", "context": "Patient implies lack of prior eye exams", "file_id": "dr_RW1026", "chunk_id": 6, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "we get-- , we had our eyes tested every three years", "context": "Patient's workplace provides regular eye exams", "file_id": "dr_RW1026", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Resources and access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "at work, we get-- , we had our eyes tested every three years", "context": "Patient's workplace provides eye exams, implying access to resources", "file_id": "dr_RW1026", "chunk_id": 6, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know where to begin", "context": "Patient unsure about the examination process", "file_id": "dr_RW1026", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor health literacy", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I don't know 'cause I really haven't-- really haven't been through it before", "context": "Patient lacks knowledge about the examination procedure", "file_id": "dr_RW1026", "chunk_id": 7, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They pretty much did everything", "context": "Patient received thorough care from providers", "file_id": "dr_RW1026", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I think you should have your eyes checked once a year, or if you started having problems", "context": "Patient lacks knowledge about necessary follow-up frequency", "file_id": "dr_RW1026", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Oh, man. Horrible.", "context": "Patient expresses negative emotions about eye exam experience", "file_id": "dr_RW1026", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Vision problems", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I couldn't hardly see at all.", "context": "Patient experiences vision difficulties, contradicting 'no perceived urgency' belief", "file_id": "dr_RW1026", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I think you should have your eyes checked once a year, or if you started having problems", "context": "Patient demonstrates some knowledge about eye exam frequency", "file_id": "dr_RW1026", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of clarity on schedule", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "And, , after that, I don't-- really don't know--", "context": "Patient unsure about future appointments", "file_id": "dr_RW1026", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Easy scheduling process", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No, it wasn't. -- Yeah. Pretty much.", "context": "Patient found scheduling easy and convenient", "file_id": "dr_RW1026", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Flexible doctor availability", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I can match it too.", "context": "Patient's schedule matches doctor's availability", "file_id": "dr_RW1026", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it's an hour 45-minute drive, right?", "context": "Patient mentions long distance to clinic", "file_id": "dr_RW1026", "chunk_id": 10, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation barriers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Well, that's a little bit difficult, 'cause I gotta get a ride to get up here", "context": "Patient lacks transportation to clinic", "file_id": "dr_RW1026", "chunk_id": 10, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of education", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "they really didn't say anything", "context": "Patient received no educational information", "file_id": "dr_RW1026", "chunk_id": 10, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they really didn't say anything", "context": "Patient received no information from provider", "file_id": "dr_RW1026", "chunk_id": 10, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I gotta get a ride to get up here", "context": "Patient faces difficulty due to lack of transportation", "file_id": "dr_RW1026", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Long distance", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "hour and 45 minutes drive makes it inconvenient", "context": "Patient finds long travel time to clinic inconvenient", "file_id": "dr_RW1026", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they explained what diabetes would do with the, , the blood vessels in your eye--", "context": "Patient lacked knowledge about diabetes effects on eyes", "file_id": "dr_RW1026", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they explained what diabetes would do with the, , the blood vessels in your eye--", "context": "Patient received clear information from doctor", "file_id": "dr_RW1026", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, I'm very comfortable", "context": "Patient feels at ease with their eye doctor", "file_id": "dr_RW1026", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I'm just another number, just another--", "context": "Patient feels like just a number to their provider", "file_id": "dr_RW1026", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "we didn't understand what really was going on", "context": "Patient had difficulty understanding their condition due to poor communication", "file_id": "dr_RW1026", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm very comfortable", "context": "Patient feels comfortable discussing their concerns with their provider", "file_id": "dr_RW1026", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they tell me what, what could happen, what I could do", "context": "Patient receives clear information from their provider", "file_id": "dr_RW1026", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I'm just another number, just another--", "context": "Patient feels like just a number to providers", "file_id": "dr_RW1026", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they-they've got so many people coming through a day", "context": "Patient perceives providers as too busy to communicate effectively", "file_id": "dr_RW1026", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they tell me what, , what could happen, what, what I could do", "context": "Patient lacks clear understanding of diabetes and its effects", "file_id": "dr_RW1026", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Just tell them", "context": "Patient reports being able to communicate needs to providers", "file_id": "dr_RW1026", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've told them, , , what I do as far as my medication and stuff goes", "context": "Patient takes active role in managing health", "file_id": "dr_RW1026", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Perceived severity of diabetes", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Very serious", "context": "Patient understands the seriousness of diabetes-related vision loss", "file_id": "dr_RW1026", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "So I can't really say, one way or the other, whether diabetes really had anything to do with that or not", "context": "Patient unsure about diabetes impact on vision", "file_id": "dr_RW1026", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Well, the last two years I've seen what-- know what it's", "context": "Patient hesitant to discuss vision loss", "file_id": "dr_RW1026", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Well, well, right now I got partial", "context": "Patient has some knowledge about diabetes and vision", "file_id": "dr_RW1026", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Very serious", "context": "Patient recognizes diabetes severity", "file_id": "dr_RW1026", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "but with the diabetes, I don't know, it's, it's up in the air", "context": "Patient unsure about diabetes impact on vision", "file_id": "dr_RW1026", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I don't know, it's, it's up in the air", "context": "Patient anxious about potential vision loss", "file_id": "dr_RW1026", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "doctor said I wouldn't have-- I wouldn't have the eyesight of a 20-year-old, but 30 is all right", "context": "Patient feels reassured by doctor's words", "file_id": "dr_RW1026", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "doctor said I wouldn't have-- I wouldn't have the eyesight of a 20-year-old, but 30 is all right", "context": "Patient receives information about vision expectations", "file_id": "dr_RW1026", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I can see colors, and-- I can see copiers and papers, the pencils--", "context": "Patient describes visual limitations without mentioning disease progression", "file_id": "dr_RW1026", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I've got all kinds of-- I've go eye problems", "context": "Patient expresses concern about multiple eye issues", "file_id": "dr_RW1026", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "we've got injections, , dilate", "context": "Patient mentions receiving treatments, implying access to care", "file_id": "dr_RW1026", "chunk_id": 17, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient Empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I can see colors, and-- I can see copiers and papers, the pencils--", "context": "Patient demonstrates some understanding of visual limitations", "file_id": "dr_RW1026", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "He's a quack", "context": "Patient had negative experience with provider", "file_id": "dr_RW1026", "chunk_id": 18, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "And then he just left the room", "context": "Patient felt provider did not communicate effectively", "file_id": "dr_RW1026", "chunk_id": 18, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I called him a quack when I left", "context": "Patient does not trust provider", "file_id": "dr_RW1026", "chunk_id": 18, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I called him a quack when I left", "context": "Patient had negative experience with provider", "file_id": "dr_RW1026", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I called him a quack when I left", "context": "Patient does not trust provider", "file_id": "dr_RW1026", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Negative experience", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It sucks", "context": "Patient had negative experience with diagnosis", "file_id": "dr_RW1026", "chunk_id": 19, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Fear of vision loss", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it-it's going from being able to see to not being able to see", "context": "Patient fears losing vision", "file_id": "dr_RW1026", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it come on fairly quick", "context": "Patient expresses surprise at rapid vision loss", "file_id": "dr_RW1026", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It sucks", "context": "Patient expresses negative emotions about diagnosis", "file_id": "dr_RW1026", "chunk_id": 20, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, that's been pretty good", "context": "Patient describes overall positive experience with eye doctors", "file_id": "dr_RW1026", "chunk_id": 21, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of prior issues", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I haven't had any dealings with-- , I seen the eye doctor or having a normal eye doctor, or nor-normal examination", "context": "Patient has not had negative experiences with providers", "file_id": "dr_RW1026", "chunk_id": 21, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "New process", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So right now, it's still new process", "context": "Patient is in the initial stages of treatment and follow-up", "file_id": "dr_RW1026", "chunk_id": 21, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I haven't had any dealings with-- , I seen the eye doctor or having a normal eye doctor, or nor-normal examination", "context": "Patient is new to the process and lacks experience with eye care", "file_id": "dr_RW1026", "chunk_id": 22, "original_category": "BARRIER - SDOH" }, { "code": "Lack of trust", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "So I'm not gonna give, , anyone excellent until I know them", "context": "Patient is hesitant to trust new healthcare providers", "file_id": "dr_RW1026", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Visual impairment", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I can't see my phone", "context": "Patient's visual impairment limits their ability to use technology", "file_id": "dr_RW1026", "chunk_id": 22, "original_category": "BARRIER - SDOH" }, { "code": "Accessible communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "being available, , calling them--", "context": "Patient values being able to call and communicate with healthcare providers", "file_id": "dr_RW1026", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "being available, calling them-- and, schedule appointments and stuff", "context": "Patient finds it helpful to be able to call and schedule appointments", "file_id": "dr_RW1026", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "being available, calling them-- and, schedule appointments and stuff", "context": "Patient values being able to communicate with providers", "file_id": "dr_RW1026", "chunk_id": 23, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "being available, calling them-- and, schedule appointments and stuff", "context": "Patient implies that being able to schedule appointments is helpful, possibly due to reminder systems", "file_id": "dr_RW1026", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of support system", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, you do it by yourself?", "context": "Patient lacks daily diabetes care support", "file_id": "dr_RW1026", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I got some. my sisters.", "context": "Patient has supportive family members", "file_id": "dr_RW1026", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Emotional support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They support me", "context": "Patient receives emotional support from sisters", "file_id": "dr_RW1026", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah. They support me.", "context": "Patient has sisters who provide emotional support", "file_id": "dr_RW1026", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation Assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "My sister do. My transportation.", "context": "Patient has sisters who help with transportation", "file_id": "dr_RW1026", "chunk_id": 25, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Health Education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Yep. I wanna say, , seven years ago.", "context": "Patient participated in a diabetes education class", "file_id": "dr_RW1026", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Limited Health Advice", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No. Mostly just you doc-- call your doctor for advice.", "context": "Patient relies solely on doctor for health advice", "file_id": "dr_RW1026", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They tell-- , diet, -- medications", "context": "Patient attended a week-long education class", "file_id": "dr_RW1026", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Prior knowledge", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "So I knew a little bit-- prior going into it", "context": "Patient had existing knowledge about diabetes", "file_id": "dr_RW1026", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my father was diabetic", "context": "Patient has a family history of diabetes", "file_id": "dr_RW1026", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "can't really go outdoors much", "context": "Patient has difficulty going out due to eyesight and mobility issues", "file_id": "dr_RW1026", "chunk_id": 27, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Mobility issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "can't move", "context": "Patient has difficulty with mobility, using a cane", "file_id": "dr_RW1026", "chunk_id": 27, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access to activities", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "can't really go outdoors much", "context": "Patient has limited ability to participate in outdoor activities", "file_id": "dr_RW1026", "chunk_id": 27, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "that's been so tough", "context": "Patient mentions difficulty related to their condition", "file_id": "dr_RW1026", "chunk_id": 28, "original_category": "BARRIER - SDOH" }, { "code": "Internet Access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "having access to the information", "context": "Patient mentions internet access as a potential issue for telemedicine", "file_id": "dr_RW1026", "chunk_id": 28, "original_category": "BARRIER - SDOH" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I get pretty good, yeah", "context": "Patient describes their interaction with the eye doctor as positive", "file_id": "dr_RW1026", "chunk_id": 28, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient Comfort", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Oh, I'm comfortable", "context": "Patient feels comfortable asking questions to their eye doctor", "file_id": "dr_RW1026", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Telehealth options", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'd be all right", "context": "Patient is open to using telemedicine for follow-up appointments", "file_id": "dr_RW1026", "chunk_id": 28, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of control", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Not much at all", "context": "Patient feels they have no control over their eye care decisions", "file_id": "dr_RW1026", "chunk_id": 29, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Rushing communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "it's just monotonous", "context": "Patient feels their doctor rushes through explanations", "file_id": "dr_RW1026", "chunk_id": 29, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm comfortable", "context": "Patient feels at ease asking questions to their eye doctor", "file_id": "dr_RW1026", "chunk_id": 29, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "he just rattled off", "context": "Patient feels eye doctor rushes through communication", "file_id": "dr_RW1026", "chunk_id": 30, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rushed communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I feel that they are rushing their communication", "context": "Patient perceives eye doctor as rushed", "file_id": "dr_RW1026", "chunk_id": 30, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "he explains results recommendations for your eyes pretty good", "context": "Patient feels eye doctor communicates effectively", "file_id": "dr_RW1026", "chunk_id": 30, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Clear explanations", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "the explanations are clear in a way that everybody can understand", "context": "Patient appreciates clear communication from eye doctor", "file_id": "dr_RW1026", "chunk_id": 30, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Respected provider", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I feel pretty good about my eye doctor", "context": "Patient has positive relationship with eye doctor", "file_id": "dr_RW1026", "chunk_id": 30, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of choice", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "some people ain't got choice", "context": "Patient mentions lack of choice as a factor", "file_id": "dr_RW1026", "chunk_id": 31, "original_category": "BARRIER - SDOH" }, { "code": "Lifestyle factors", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "some it's lifestyle", "context": "Patient attributes diabetes to lifestyle choices", "file_id": "dr_RW1026", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Genetic factors", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Some are born with it", "context": "Patient mentions genetic predisposition to diabetes", "file_id": "dr_RW1026", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "monitoring and checking it", "context": "Patient discusses importance of monitoring blood sugar", "file_id": "dr_JC0228", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Medication adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I do take my medications of course", "context": "Patient prioritizes taking medications", "file_id": "dr_JC0228", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lifestyle modifications", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have been doing a keto diet", "context": "Patient makes dietary changes to manage diabetes", "file_id": "dr_JC0228", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Physical activity", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "when I can, I try to go to the gym", "context": "Patient engages in physical activity for diabetes management", "file_id": "dr_JC0228", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Blood sugar monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "so I use that and check my sugars with that", "context": "Patient uses device to monitor blood sugar levels", "file_id": "dr_JC0228", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider guidance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "what has she, or she or he told you to do?", "context": "Patient discusses provider's recommendations", "file_id": "dr_JC0228", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "getting my A1C down is my, my one I'm working on the most right now", "context": "Patient focuses on blood sugar control but doesn't mention DR or eye care", "file_id": "dr_JC0228", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "monitoring and checking it", "context": "Patient mentions importance of monitoring blood sugar levels", "file_id": "dr_JC0228", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Medication adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "making sure you take your medications at the right times", "context": "Patient emphasizes importance of taking medications correctly", "file_id": "dr_JC0228", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Exercise awareness", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "that exercise is very good for it", "context": "Patient recognizes benefits of exercise for diabetes management", "file_id": "dr_JC0228", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't really feel, I guess when I get high", "context": "Patient lacks clear understanding of diabetes effects", "file_id": "dr_JC0228", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it makes me feel tired", "context": "Patient experiences emotional distress due to diabetes", "file_id": "dr_JC0228", "chunk_id": 3, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "even though I have been doing things, making better choices, this has been going on longer than I knew", "context": "Patient was unaware of the progression of their diabetic retinopathy", "file_id": "dr_JC0228", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "the last two doctors just said it should get better", "context": "Patient received inadequate information from healthcare providers", "file_id": "dr_JC0228", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "another doctor where they didn't tell me it'd come to something this until I found out a couple days ago", "context": "Patient feels that healthcare providers have not been transparent about their condition", "file_id": "dr_JC0228", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "my primary care doctor is in Weirton currently, and I'm trying to transfer", "context": "Patient having difficulty accessing primary care due to location", "file_id": "dr_JC0228", "chunk_id": 5, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I had another doctor where they didn't tell me it'd come to something this until I found out a couple days ago", "context": "Patient experienced poor communication from healthcare provider", "file_id": "dr_JC0228", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "the last two doctors just said it should get better", "context": "Patient lacks trust in providers due to inconsistent information", "file_id": "dr_JC0228", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Difficulty with communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I've had some difficulty with communicating with them about the fl- these few things", "context": "Patient having trouble communicating with primary care doctor", "file_id": "dr_JC0228", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "So I've had some difficulty with communicating with them about the fl- these few things.", "context": "Patient experiences difficulty communicating with healthcare providers", "file_id": "dr_JC0228", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "she did say she wanted to make sure that I got it checked again.", "context": "Patient's endocrinologist shows concern for their care", "file_id": "dr_JC0228", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "she did say she wanted to make sure that I got it checked again.", "context": "Patient's endocrinologist communicates effectively with them", "file_id": "dr_JC0228", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So when I got it checked again, just that's whenever I noticed all this extra stuff, so.", "context": "Patient feels supported by provider", "file_id": "dr_JC0228", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Aggressive treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "he wants to be aggressive with my treatments", "context": "Provider is proactive in treatment approach", "file_id": "dr_JC0228", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'd rather be aggressive than not, so.", "context": "Patient is motivated to manage condition", "file_id": "dr_JC0228", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it's circulation... it can restrict blood flow and that causes the, , tension and the squeezing in your eyes", "context": "Patient has limited knowledge about diabetes effects on eyes", "file_id": "dr_JC0228", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "just that basically the sugars, , it's circulation", "context": "Doctor provided patient with information about diabetes and eye health", "file_id": "dr_JC0228", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "diabetes is, is, , directly linked to that and it can restrict blood flow", "context": "Patient demonstrates understanding of diabetes effects on eyes", "file_id": "dr_JC0228", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I haven't had a typical doctor for quite a while", "context": "Patient lacks consistent healthcare provider", "file_id": "dr_JC0228", "chunk_id": 9, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "we had changed insurance a couple times", "context": "Patient experiences changes in insurance coverage", "file_id": "dr_JC0228", "chunk_id": 9, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'm hoping this will be more consistent", "context": "Patient seeks consistent healthcare provider", "file_id": "dr_JC0228", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Healthcare access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "we are settled and moved into Morgantown, so I'm hoping this will be more consistent", "context": "Patient has access to healthcare in new location", "file_id": "dr_JC0228", "chunk_id": 9, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "we had changed insurance a couple times", "context": "Patient experienced changes in insurance coverage", "file_id": "dr_JC0228", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'm hoping this will be more consistent", "context": "Patient expects consistent care from new provider", "file_id": "dr_JC0228", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "she did everything from the ch- the glaucoma, , scanned, , the eye exam", "context": "Patient describes thorough and clear explanation of eye exam process", "file_id": "dr_JC0228", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "she had some very good technology too for that", "context": "Patient appreciates provider's use of advanced technology", "file_id": "dr_JC0228", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Uncomfortable procedure", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It's uncomfortable", "context": "Patient finds eye dilation uncomfortable", "file_id": "dr_JC0228", "chunk_id": 11, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive provider interaction", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they did a good job", "context": "Patient appreciates provider's care during procedure", "file_id": "dr_JC0228", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Frequent follow-up needed", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "minimum would be probably three months", "context": "Patient understands importance of regular eye checks", "file_id": "dr_JC0228", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they did a good job", "context": "Patient had positive experience with provider", "file_id": "dr_JC0228", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "try to call in and get my dates set up", "context": "Patient describes process of scheduling appointments", "file_id": "dr_JC0228", "chunk_id": 12, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they'll call me to confirm my appointment or whatever", "context": "Patient receives clear communication from provider", "file_id": "dr_JC0228", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "A little bit longer, more waits", "context": "Patient experienced long wait times in the past", "file_id": "dr_JC0228", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Today was amazing. It was fast", "context": "Patient had a positive experience with provider availability", "file_id": "dr_JC0228", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "try to call in and then they'll call me to confirm my appointment", "context": "Patient describes a potentially cumbersome appointment scheduling process", "file_id": "dr_JC0228", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So I mean, I would say here was excellent", "context": "Patient expresses satisfaction with their provider interaction", "file_id": "dr_JC0228", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "A little bit longer, more waits", "context": "Patient experienced long wait times previously", "file_id": "dr_JC0228", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rushed appointments", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I feel rushed, occasionally the, , , the doctor I had in Weirton and I felt it wasn't very thorough", "context": "Patient felt rushed during appointments with previous doctor", "file_id": "dr_JC0228", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "it was more, , , just in and out. Didn't really take the time to really do the, the work", "context": "Patient felt doctor did not communicate effectively", "file_id": "dr_JC0228", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And I got in in three days, so I was very happy with that today", "context": "Patient had easy access to provider", "file_id": "dr_JC0228", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "But here it's been very good. So", "context": "Patient has positive relationship with current provider", "file_id": "dr_JC0228", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Personal issues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I have my own personal, self issues", "context": "Patient mentions personal issues as a challenge", "file_id": "dr_JC0228", "chunk_id": 15, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Stress levels", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "working on my stress levels", "context": "Patient identifies stress as an area for improvement", "file_id": "dr_JC0228", "chunk_id": 15, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "trying to keep my sugar levels, down in the 70 range-ish", "context": "Patient is actively managing their diabetes", "file_id": "dr_JC0228", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I've been told is stress", "context": "Patient has received health advice on stress management", "file_id": "dr_JC0228", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Personal issues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "as more I have my own personal, , self issues-", "context": "Patient mentions personal challenges affecting follow-up", "file_id": "dr_JC0228", "chunk_id": 16, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Crowded facilities", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "just crowded-", "context": "Patient finds clinic environment overwhelming", "file_id": "dr_JC0228", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "you'll get there and you'll have to wait-", "context": "Patient experiences delays at the clinic", "file_id": "dr_JC0228", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Anxiety issues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I have anxiety issues", "context": "Patient's mental health affects follow-up adherence", "file_id": "dr_JC0228", "chunk_id": 16, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "ADHD", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I have ADHD-", "context": "Patient's neurodevelopmental disorder may impact follow-up", "file_id": "dr_JC0228", "chunk_id": 16, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Anxiety issues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "well I have anxiety issues", "context": "Patient experiences anxiety", "file_id": "dr_JC0228", "chunk_id": 17, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Frustration issues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "the frustration issues with the problems I have", "context": "Patient feels frustrated with health issues", "file_id": "dr_JC0228", "chunk_id": 17, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "so that, , you could almost connect someone to something, especially if you're diabetic", "context": "Patient suggests needing more information on diabetes management", "file_id": "dr_JC0228", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "one of the things that I would suggest personally is somehow a better linkage to a dietary certain thing", "context": "Patient suggests needing health education on diet and diabetes", "file_id": "dr_JC0228", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible resources", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "so that, , you could almost connect someone to something, especially if you're diabetic", "context": "Patient suggests needing accessible resources for diabetes management", "file_id": "dr_JC0228", "chunk_id": 17, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "plan for food management or, or things of that nature", "context": "Patient suggests needing guidance on managing diabetes", "file_id": "dr_JC0228", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "self-management", "context": "Patient emphasizes importance of self-care", "file_id": "dr_JC0228", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Holistic approaches", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "minor holistic things that you could do", "context": "Patient open to alternative methods for managing health", "file_id": "dr_JC0228", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible healthcare", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "having something for people that would be able to go to, for a, a beginner", "context": "Patient suggests needing accessible resources for diabetes management", "file_id": "dr_JC0228", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Stress relief methods", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "ways to relieve stress", "context": "Patient recognizes importance of stress management in diabetes care", "file_id": "dr_JC0228", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family History", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "my grandmother had glaucoma, my aunt had, , eye issues, and my grand- my aunt had diabetes", "context": "Patient aware of family history of eye issues and diabetes", "file_id": "dr_JC0228", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Preventative Measures", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm trying to be more preventative of the things that, , for that", "context": "Patient taking proactive steps for health", "file_id": "dr_JC0228", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthy Diet", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I'm trying to eat better and do things, anything I can do to, , as I basically turned 50", "context": "Patient making lifestyle changes for health", "file_id": "dr_JC0228", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Stress Management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I am trying, I said, I'm working on meditation and breathing", "context": "Patient using stress management techniques for health", "file_id": "dr_JC0228", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family History Awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "my grandmother had glaucoma, my aunt had, , eye issues, and my grand- my aunt had diabetes", "context": "Patient is aware of family history and trying to be preventative", "file_id": "dr_JC0228", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Preventative Motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm trying to be more preventative of the things that, , for that", "context": "Patient is motivated to take care of their health", "file_id": "dr_JC0228", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack Of Self Care", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "But I don't, there are times where I will probably overstress my eyes with certain things that", "context": "Patient is not prioritizing self-care for their eyes", "file_id": "dr_JC0228", "chunk_id": 20, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Intention To Change", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "But that's something I definitely would to work on", "context": "Patient intends to make positive changes for their health", "file_id": "dr_JC0228", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "if you don't treat, if untreated, it can lead to blindness", "context": "Patient's understanding of diabetes and vision loss", "file_id": "dr_JC0228", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education/health literacy", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I am, I'm a little self-educated enough to know it as well", "context": "Patient's self-education on diabetes and its consequences", "file_id": "dr_JC0228", "chunk_id": 21, "original_category": "BARRIER - SDOH" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he did say I was doing a better path", "context": "Patient's interaction with their doctor", "file_id": "dr_JC0228", "chunk_id": 21, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I have some nursing background and some medical background and, and dietary actually", "context": "Patient's background knowledge on health and diabetes", "file_id": "dr_JC0228", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I do know that there are consequences to your actions when it comes to those things", "context": "Patient's understanding of their health and its consequences", "file_id": "dr_JC0228", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Open communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I'm open", "context": "Patient feels comfortable discussing diabetes with eye doctor", "file_id": "dr_JC0228", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I feel I need to ask questions", "context": "Patient takes initiative to learn about their condition", "file_id": "dr_JC0228", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm fine with it", "context": "Patient feels at ease discussing concerns with provider", "file_id": "dr_JC0228", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of provider empathy", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "they weren't really going to gimme any answers", "context": "Patient felt dismissed by previous healthcare providers", "file_id": "dr_JC0228", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they weren't really going to gimme any answers", "context": "Patient experienced poor communication with previous healthcare providers", "file_id": "dr_JC0228", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I feel I need to ask questions", "context": "Patient takes initiative to ask questions and understand their condition", "file_id": "dr_JC0228", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I have felt that way before, so-", "context": "Patient experiences effective communication with current healthcare provider", "file_id": "dr_JC0228", "chunk_id": 23, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient advocacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Do you ever tell them what you feel is good for you, advocating for yourself? Speaker 2: Absolutely. Yeah", "context": "Patient advocates for themselves and expresses their needs to healthcare providers", "file_id": "dr_JC0228", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I try to tell them the things that, , as far as , what, what things that I'm trying to do", "context": "Patient takes initiative to inform themselves", "file_id": "dr_JC0228", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I try to ask, , as far as , , or if I, I feel I need something, if I need to ask a doctor", "context": "Patient feels comfortable asking questions", "file_id": "dr_JC0228", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Self-advocacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I would definitely advocate for myself to be , 'Can we move this along or could we do that?'", "context": "Patient speaks up for their needs", "file_id": "dr_JC0228", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Understanding of DR severity", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Very, , yeah. Very s- very, very serious", "context": "Patient recognizes the seriousness of diabetes-related vision loss", "file_id": "dr_JC0228", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I would definitely advocate for myself", "context": "Patient takes initiative to manage care", "file_id": "dr_JC0228", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "be honest. be forward.", "context": "Patient values open communication with provider", "file_id": "dr_JC0228", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Understanding of DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Very, , yeah. Very s- very, very serious.", "context": "Patient acknowledges seriousness of diabetes-related vision loss", "file_id": "dr_JC0228", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "be kind", "context": "Patient values a kind and honest provider", "file_id": "dr_JC0228", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "shoot me straight", "context": "Patient wants clear and direct communication from provider", "file_id": "dr_JC0228", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Bedside manner", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "just have a bedside manner", "context": "Patient values a good bedside manner in their provider", "file_id": "dr_JC0228", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I think not very likely", "context": "Patient underestimates risk of losing eyesight due to diabetes", "file_id": "dr_JC0228", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Honest provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "be honest", "context": "Patient values honesty in provider communication", "file_id": "dr_JC0228", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I think not very likely", "context": "Patient does not believe they are at risk for vision loss", "file_id": "dr_JC0228", "chunk_id": 27, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive outlook", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm taking steps to not make that happen", "context": "Patient is proactive about their health", "file_id": "dr_JC0228", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Good health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm taking steps to not make that happen", "context": "Patient understands importance of self-care", "file_id": "dr_JC0228", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of provider referral", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I wish the other doctors would've told me to go to the eye doctor", "context": "Patient feels providers failed to recommend necessary care", "file_id": "dr_JC0228", "chunk_id": 28, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Delayed diagnosis awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "The things that I wish I would've caught just a little bit sooner", "context": "Patient regrets not seeking care earlier", "file_id": "dr_JC0228", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication gap", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I wish they would've pushed a little harder on if I would've known it was at the level it was", "context": "Patient feels providers did not adequately communicate urgency", "file_id": "dr_JC0228", "chunk_id": 28, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "if I would've known it was at the level it was", "context": "Patient expresses regret over not pushing harder for diagnosis due to lack of knowledge", "file_id": "dr_JC0228", "chunk_id": 29, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "My grandmother had glaucoma and I believe my mom does actually", "context": "Patient is aware of family history, potentially empowering them to take action", "file_id": "dr_JC0228", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Denial", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "There was a time where I'd more, be in more denial", "context": "Patient experiences denial about their condition", "file_id": "dr_JC0228", "chunk_id": 30, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Worry", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "be a little bit more, more worried", "context": "Patient feels worried about their condition", "file_id": "dr_JC0228", "chunk_id": 30, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Denial", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "There was a time where I'd more, be in more denial", "context": "Patient initially denied their condition", "file_id": "dr_JC0228", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Worry", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "be a little bit more, more worried", "context": "Patient experiences worry about their condition", "file_id": "dr_JC0228", "chunk_id": 31, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Prevention motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "prevention", "context": "Patient is motivated by prevention", "file_id": "dr_JC0228", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Longevity motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "it definitely benefits on their longevity", "context": "Patient believes regular healthcare services improve longevity", "file_id": "dr_JC0228", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Prevention motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "prevention. motivation to, , I, , people that go to the doctors, people that get check-ups.", "context": "Patient is motivated by prevention and health benefits", "file_id": "dr_JC0228", "chunk_id": 32, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Desire for longevity", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "wanting to live longer and have a health, , a happy, healthy life.", "context": "Patient values long-term health outcomes", "file_id": "dr_JC0228", "chunk_id": 32, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Cost concerns", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "cost can be. cost can be a factor.", "context": "Patient is discouraged by high costs", "file_id": "dr_JC0228", "chunk_id": 32, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Frustration with timing", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "frustration, , timing.", "context": "Patient experiences frustration with appointment scheduling", "file_id": "dr_JC0228", "chunk_id": 32, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Emotional state", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "personal mood.", "context": "Patient's emotional state affects healthcare utilization", "file_id": "dr_JC0228", "chunk_id": 32, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he became comforting to me and made me, guided me in a good way", "context": "Patient had a positive experience with their doctor", "file_id": "dr_JC0228", "chunk_id": 33, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "someone that told me, 'Look, , we're not looking to find anything, , we're just, we're here to help you and get you to that next level'", "context": "Patient felt supported by their doctor's empathetic approach", "file_id": "dr_JC0228", "chunk_id": 33, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "he became comforting to me and made me, guided me in a good way", "context": "Patient appreciated their doctor's clear and reassuring communication", "file_id": "dr_JC0228", "chunk_id": 33, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive staff personality", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "just personality of staff and people", "context": "Patient appreciates friendly healthcare staff", "file_id": "dr_JC0228", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Good attitude of staff", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "the girls that work here... and a good attitude", "context": "Patient values positive attitude of healthcare staff", "file_id": "dr_JC0228", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "exactly the opposite of what I said", "context": "Patient implies negative experience with provider", "file_id": "dr_JC0228", "chunk_id": 34, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "when you're just a, a patient", "context": "Patient feels like just a number, not valued", "file_id": "dr_JC0228", "chunk_id": 34, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "someone that told me, Look, we're not looking to find anything, we're just, we're here to help you", "context": "Patient appreciates empathetic provider", "file_id": "dr_JC0228", "chunk_id": 34, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "when you're not getting treated that. You are, you're not any different than anyone else", "context": "Patient feels like just another patient, not unique", "file_id": "dr_JC0228", "chunk_id": 35, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "'We give this to everyone, we're giving it to you too.'", "context": "Patient feels like provider is not communicating effectively", "file_id": "dr_JC0228", "chunk_id": 35, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my wife to truth for, yeah. I would say my wife who's a nurse.", "context": "Patient has supportive spouse who is a nurse", "file_id": "dr_JC0228", "chunk_id": 35, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "We try to help each other", "context": "Patient and daughter support each other with diabetes management", "file_id": "dr_JC0228", "chunk_id": 35, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "We try to help each other", "context": "Patient has a supportive family member", "file_id": "dr_JC0228", "chunk_id": 36, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She's a good, she's a very good support system", "context": "Patient has a supportive family member", "file_id": "dr_JC0228", "chunk_id": 36, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health Education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "We talk about it", "context": "Patient discusses health with supportive family member", "file_id": "dr_JC0228", "chunk_id": 36, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "We, we help each other", "context": "Patient has a supportive relationship with someone", "file_id": "dr_JC0228", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health Education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I have a little bit, but at- ... the time I really didn't", "context": "Patient participated in diabetes education class", "file_id": "dr_JC0228", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Emotional Readiness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I wasn't really mentally ready for what I was experiencing at that time", "context": "Patient was not emotionally prepared for diabetes education", "file_id": "dr_JC0228", "chunk_id": 37, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Emotional barriers", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I wasn't really mentally ready for what I was experiencing at that time", "context": "Patient expresses emotional unpreparedness", "file_id": "dr_JC0228", "chunk_id": 38, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I do have someone to help me with my chores, my food, things that", "context": "Patient has support system for daily tasks", "file_id": "dr_JC0228", "chunk_id": 39, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of Understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they just don't understand when it comes to certain things", "context": "Support system lacks full understanding of patient's condition", "file_id": "dr_JC0228", "chunk_id": 39, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "do you have people who you can share your worries or fears about your diabetes and your eyesight?", "context": "Patient has people to share concerns with", "file_id": "dr_JC0228", "chunk_id": 39, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Limited Support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I think they do to a point, but I don't think they do fully", "context": "Support system has limited understanding of patient's needs", "file_id": "dr_JC0228", "chunk_id": 39, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the emotional beat up it takes sometimes on you, the wear and tear of the frustration", "context": "Patient experiences emotional burden due to diabetes management", "file_id": "dr_JC0228", "chunk_id": 40, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they just don't understand when it comes to certain things", "context": "Patient feels others do not comprehend the challenges of living with diabetes", "file_id": "dr_JC0228", "chunk_id": 40, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And that would again, be my wife when it comes-", "context": "Patient has a supportive spouse to help with daily tasks", "file_id": "dr_JC0228", "chunk_id": 40, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "the sacrifices sometimes you make-", "context": "Patient feels overwhelmed by the demands of diabetes management", "file_id": "dr_JC0228", "chunk_id": 40, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of empathy", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I just feel just a lot of people are selfish with their feelings", "context": "Patient perceives lack of empathy from others, possibly including healthcare providers", "file_id": "dr_JC0228", "chunk_id": 41, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Self research", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I do a lot of my own research", "context": "Patient takes initiative to educate themselves about their health", "file_id": "dr_JC0228", "chunk_id": 41, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access to resources", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I even use ChatGPT certain things, so", "context": "Patient has access to online resources for health information", "file_id": "dr_JC0228", "chunk_id": 41, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "If wh- if, if I need that- ... thing. Yeah.", "context": "Patient implies uncertainty about accessing healthcare", "file_id": "dr_JC0228", "chunk_id": 42, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "If wh- if, if I need that- ... thing. Yeah.", "context": "Patient mentions ability to access healthcare professionals", "file_id": "dr_JC0228", "chunk_id": 42, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider Relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I wouldn't do it for more sympathy, but yeah.", "context": "Patient implies a positive relationship with their provider", "file_id": "dr_JC0228", "chunk_id": 42, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I try not to let it, to be honest with you", "context": "Patient downplays impact of eyesight on daily life", "file_id": "dr_JC0228", "chunk_id": 43, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Safety concerns", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I don't wanna get anybody hurt", "context": "Patient takes responsibility for safety due to eyesight limitations", "file_id": "dr_JC0228", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Visual difficulties", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "certain times when I can't see certain things really well", "context": "Patient experiences visual difficulties in daily life", "file_id": "dr_JC0228", "chunk_id": 43, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Adaptation strategies", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've been trying to change some things with my life", "context": "Patient adapts to eyesight limitations by making lifestyle changes", "file_id": "dr_JC0228", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I felt I got full, the best. I don't think I could have walked out here with a better treatment than I got today, to be honest.", "context": "Patient expresses satisfaction with care received", "file_id": "dr_JC0228", "chunk_id": 44, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I wanted to, I wanted to get an answer today, so-", "context": "Patient indicates desire for clear information from provider", "file_id": "dr_JC0228", "chunk_id": 44, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I felt I got full, the best. I don't think I could have walked out here with a better treatment than I got today, to be honest.", "context": "Patient feels understood and supported by provider", "file_id": "dr_JC0228", "chunk_id": 44, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I had, I honestly, I just wanted to get, know what was wrong.", "context": "Patient able to access provider for care", "file_id": "dr_JC0228", "chunk_id": 44, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Mental health aspect", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it's a lot more of a mental game than it is a physical game", "context": "Patient emphasizes the mental challenge of managing diabetes", "file_id": "dr_JC0228", "chunk_id": 45, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Social support importance", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "support is extremely important if you can get it and have people to communicate with", "context": "Patient highlights the value of social support in managing diabetes", "file_id": "dr_JC0228", "chunk_id": 45, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Mental game", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I just think a lot of it is, , it, personally, I think it's a lot more of a mental game than it is a physical game.", "context": "Patient views diabetes management as mentally challenging", "file_id": "dr_JC0228", "chunk_id": 46, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I do think support is extremely important if you can get it and have people to communicate with.", "context": "Patient emphasizes importance of social support", "file_id": "dr_JC0228", "chunk_id": 46, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Denial", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I think a lot of people, the biggest problem is denial-", "context": "Patient believes denial is a major obstacle to diabetes management", "file_id": "dr_JC0228", "chunk_id": 46, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I do think support is extremely important if you can get it and have people to communicate with.", "context": "Patient values social support for diabetes management", "file_id": "dr_JC0228", "chunk_id": 46, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of self monitoring", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm bad at doing that", "context": "Patient admits to not regularly checking blood sugar", "file_id": "dr_MD0610(part1)", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective treatment regimen", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Ozempic really helped with that", "context": "Patient attributes improved A1C to medication", "file_id": "dr_MD0610(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive health outcomes", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "It brought it down. My A1C was really bad", "context": "Patient experiences improvement in A1C levels", "file_id": "dr_MD0610(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I do check my A1C all the time with my doctor", "context": "Patient works closely with doctor to monitor A1C", "file_id": "dr_MD0610(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I watch what I eat", "context": "Patient takes initiative to manage diet", "file_id": "dr_MD0610(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Just keep my A1C down so it don't cause me more problems", "context": "Patient lacks understanding of diabetes complications", "file_id": "dr_MD0610(part1)", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Well, you're supposed to keep a check on your, your blood sugar readings", "context": "Patient receives health education from doctor", "file_id": "dr_MD0610(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I watch what I eat. I cut out a lot of carbs and stuff, so", "context": "Patient practices self-management techniques", "file_id": "dr_MD0610(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I can tell if I get thirsty a lot or tired and stuff. I can tell if it's starting to go up a little bit", "context": "Patient demonstrates health literacy skills", "file_id": "dr_MD0610(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I drink a lot or you feel really tired all the time and stuff", "context": "Patient lacks clear understanding of diabetes symptoms", "file_id": "dr_MD0610(part1)", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I've got a place that's detaching again", "context": "Patient expresses concern about vision deterioration", "file_id": "dr_MD0610(part1)", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "What do you watch out for that tell you your diabetes may be getting worse", "context": "Patient seeks knowledge about diabetes management", "file_id": "dr_MD0610(part1)", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I've had it repaired, but I've got a place that's detaching again", "context": "Patient expresses emotional concern about vision problems", "file_id": "dr_MD0610(part1)", "chunk_id": 2, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Not really", "context": "Patient lacks knowledge about diabetes effects on eyes", "file_id": "dr_MD0610(part1)", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "Not really", "context": "Patient receives limited information from doctor", "file_id": "dr_MD0610(part1)", "chunk_id": 3, "original_category": "BARRIER - SDOH" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Well, that's when my retina was detached, and that's when I figured it out", "context": "Doctor informs patient about condition", "file_id": "dr_MD0610(part1)", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "you get the fluid and stuff, and then the blood vessels burst, and then it causes scar tissue that pulls on your retina", "context": "Patient receives information about diabetes effects", "file_id": "dr_MD0610(part1)", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "Our insurance changed, so I had to go to Parkersburg, but now they changed it again", "context": "Patient's insurance changes affect their ability to see their preferred doctor", "file_id": "dr_MD0610(part1)", "chunk_id": 4, "original_category": "BARRIER - SDOH" }, { "code": "Access barriers", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I had to go to Parkersburg, but now they changed it again. So I think I'm going to be able to go back to Ravenswood", "context": "Patient faces challenges accessing care due to insurance and location changes", "file_id": "dr_MD0610(part1)", "chunk_id": 4, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "she just keeps an eye on it", "context": "Patient lacks clear understanding of diabetes management", "file_id": "dr_DT0331", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "to watch what she's eating", "context": "Doctor provides health education on diet", "file_id": "dr_DT0331", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "she tries to walk", "context": "Patient engages in physical activity for diabetes management", "file_id": "dr_DT0331", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "checking sugar", "context": "Patient monitors blood sugar levels", "file_id": "dr_DT0331", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "bad", "context": "Patient lacks clear understanding of diabetes effects on eyes", "file_id": "dr_DT0331", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "needles in the eye", "context": "Patient expresses fear or discomfort with treatment methods", "file_id": "dr_DT0331", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they had to give her needles in the eye", "context": "Patient receives medical treatment and care from providers", "file_id": "dr_DT0331", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Follow-up appointments", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "she got to come back in two weeks and have laser again", "context": "Patient has scheduled follow-up appointments for ongoing care", "file_id": "dr_DT0331", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they just said that if she doesn't go through the process-- she can go blind", "context": "Patient lacks detailed information about diabetes effects on eyesight", "file_id": "dr_DT0331", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they just said to-- she has to watch what she's eating and exercise", "context": "Provider's advice seems vague and lacks specific guidance", "file_id": "dr_DT0331", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "she can go blind if she didn't, -- take care of it", "context": "Patient is aware of potential severe consequences but lacks detailed understanding", "file_id": "dr_DT0331", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they just said to-- she has to watch what she's eating and exercise", "context": "Provider shows concern for patient's well-being but communication is limited", "file_id": "dr_DT0331", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "they just said to-- she has to watch what she's eating and exercise", "context": "Patient receives basic health advice but may need more comprehensive education", "file_id": "dr_DT0331", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "they just said that if she doesn't go through the process-- that she can go blind", "context": "Patient lacks understanding of diabetes effects on eyesight", "file_id": "dr_DT0331", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider passed away", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "he passed away", "context": "Patient's provider is no longer available", "file_id": "dr_DT0331", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "he just-- he tells her to watch what she's eating", "context": "Provider's advice is unclear or incomplete", "file_id": "dr_DT0331", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "she's been seeing Dr. C in Elkins", "context": "Patient has found a new provider", "file_id": "dr_DT0331", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. C, he's a good doctor", "context": "Patient expresses trust in their doctor", "file_id": "dr_DT0331", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Dr. C, he's a good doctor", "context": "Patient has access to a trusted provider", "file_id": "dr_DT0331", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "But she does it more than that because she's diabetic", "context": "Patient lacks clear understanding of diabetes and eye exam frequency", "file_id": "dr_DT0331", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Discomfort during procedure", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it was, , stinging a little bit when they did the drops", "context": "Patient experienced discomfort during eye exam", "file_id": "dr_DT0331", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Oh, yes, yes. They, , sting", "context": "Provider acknowledges and explains patient's discomfort", "file_id": "dr_DT0331", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "When was your last dilated eye exam? S2: 03:28 Today", "context": "Patient has access to regular eye exams", "file_id": "dr_DT0331", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of provider guidance", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "They just said just keep coming back until they can get her better", "context": "Patient feels lack of clear instructions from doctor", "file_id": "dr_DT0331", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It's hard on me because I got to juggle between me and her", "context": "Patient struggles with finding matching availability", "file_id": "dr_DT0331", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Need for more availability", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Yes. More, more availability?", "context": "Patient suggests more doctor availability would be helpful", "file_id": "dr_DT0331", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it's just the drive. We have a four-hour drive up and back.", "context": "Patient faces long distance to travel for eye care", "file_id": "dr_DT0331", "chunk_id": 7, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Telehealth options", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yes. virtual?", "context": "Patient expresses interest in telehealth for convenience", "file_id": "dr_DT0331", "chunk_id": 7, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Telehealth options", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yes. virtual?", "context": "Patient finds telehealth beneficial", "file_id": "dr_DT0331", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Distance barriers", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "It's just the dis-distance right now", "context": "Patient cites distance as a challenge", "file_id": "dr_DT0331", "chunk_id": 8, "original_category": "BARRIER - SDOH" }, { "code": "Accessibility", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "If it wasn't too far, I would think about maybe coming", "context": "Patient prefers closer location for follow-up", "file_id": "dr_DT0331", "chunk_id": 8, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Convenience", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "maybe she can follow up in Buchanan because that's only 45 minutes from--", "context": "Patient prefers more convenient location", "file_id": "dr_DT0331", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They just said if she didn't follow up and take care of it, then she could lose her eyesight", "context": "Patient lacks detailed information about diabetes-related vision loss", "file_id": "dr_DT0331", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "They just said if she didn't follow up and take care of it, then she could lose her eyesight", "context": "Patient may fear losing eyesight due to diabetes", "file_id": "dr_DT0331", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider warning", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "They just said if she didn't follow up and take care of it, then she could lose her eyesight", "context": "Eye doctor or diabetes doctor warned patient about risk of vision loss", "file_id": "dr_DT0331", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They just said if she didn't follow up and take care of it, then she could lose her eyesight.", "context": "Patient lacks detailed information about diabetes-related vision loss", "file_id": "dr_DT0331", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "They just said if she didn't follow up and take care of it, then she could lose her eyesight.", "context": "Patient received limited information from doctor", "file_id": "dr_DT0331", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, yeah", "context": "Patient feels comfortable talking to their doctor", "file_id": "dr_DT0331", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Yeah, mm-hmm.", "context": "Patient is able to express concerns to their doctor", "file_id": "dr_DT0331", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, yeah", "context": "Patient feels comfortable talking to doctor", "file_id": "dr_DT0331", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient advocacy", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "We'll just go by what the doctor says", "context": "Patient does not express own needs or concerns", "file_id": "dr_DT0331", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Oh, yeah", "context": "Patient feels comfortable discussing concerns with doctor", "file_id": "dr_DT0331", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient concern expression", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "she just wonders-- she keeps asking if she's going to get better with her vision", "context": "Patient expresses concerns and asks questions", "file_id": "dr_DT0331", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of self-advocacy", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No. We'll just go by what the doctor says", "context": "Patient does not advocate for own needs", "file_id": "dr_DT0331", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "we just want to get her better to where she won't lose her eyesight", "context": "Patient's concern about vision loss", "file_id": "dr_DT0331", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "we just want to get her better to where she won't lose her eyesight", "context": "Patient's concern about vision loss", "file_id": "dr_DT0331", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, they water a lot", "context": "Patient feels heard by provider", "file_id": "dr_DT0331", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Yeah, she's told them", "context": "Patient communicates with provider", "file_id": "dr_DT0331", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Because we can tell, , medically how she's progressed--", "context": "Patient has knowledge about diabetes progression", "file_id": "dr_DT0331", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "How serious do you think diabetes can cause vision loss for you?", "context": "Patient's understanding of disease severity", "file_id": "dr_DT0331", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Diabetes distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Oh, likely to lose it?", "context": "Patient's emotional response to potential vision loss", "file_id": "dr_DT0331", "chunk_id": 12, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "We're hoping it don't happen", "context": "Patient expresses concern about potential vision loss", "file_id": "dr_DT0331", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "We're hoping it don't happen", "context": "Patient lacks clear understanding of diabetes impact on vision", "file_id": "dr_DT0331", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Concern about health", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "That's why we're here", "context": "Patient is proactive about seeking care due to health concerns", "file_id": "dr_DT0331", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "That's why we're here", "context": "Patient seeks care, implying a positive relationship with provider", "file_id": "dr_DT0331", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "That's why we're here", "context": "Patient has access to healthcare, facilitating follow-up appointments", "file_id": "dr_DT0331", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "It don't bug me too bad", "context": "Patient seems to downplay the severity of their condition", "file_id": "dr_DT0331", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "When it gets to the cobwebs", "context": "Patient expresses concern about worsening vision", "file_id": "dr_DT0331", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "just a little bit", "context": "Patient seems unclear about their condition", "file_id": "dr_DT0331", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "They didn't say", "context": "Patient reports lack of information from providers", "file_id": "dr_DT0331", "chunk_id": 15, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they did tell me", "context": "Patient reports receiving information from providers", "file_id": "dr_DT0331", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It's the distance", "context": "Patient mentions distance as a challenge for follow-ups", "file_id": "dr_DT0331", "chunk_id": 17, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Time-consuming", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it's just time-consuming", "context": "Patient finds the process of getting follow-ups time-consuming", "file_id": "dr_DT0331", "chunk_id": 17, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It's the distance, and it's just time-consuming.", "context": "Patient finds traveling for follow-ups to be time-consuming due to distance", "file_id": "dr_DT0331", "chunk_id": 18, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Time-consuming appointments", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "It's just been a trip and a half.", "context": "Patient describes follow-up experience as overly burdensome", "file_id": "dr_DT0331", "chunk_id": 18, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Distance barriers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "we don't have to travel four hours out of the day to get this done.", "context": "Patient highlights the significant distance traveled for follow-ups", "file_id": "dr_DT0331", "chunk_id": 18, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible technology", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Yes. MyChart?", "context": "Patient finds MyChart to be a helpful resource for managing healthcare", "file_id": "dr_DT0331", "chunk_id": 18, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of resources", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "no, we do it on our own.", "context": "Patient lacks external support or resources for managing follow-ups", "file_id": "dr_DT0331", "chunk_id": 18, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Distance discouragement", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It's just the distance.", "context": "Patient cites distance as a primary discouragement for using healthcare services", "file_id": "dr_DT0331", "chunk_id": 18, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It's just the distance.", "context": "Patient mentions distance as a discouraging factor for using healthcare services", "file_id": "dr_DT0331", "chunk_id": 19, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they've been w-working with her really well, so.", "context": "Patient mentions positive experience with healthcare providers", "file_id": "dr_DT0331", "chunk_id": 19, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, not that I know of", "context": "Patient lacks knowledge about diabetes and eye care", "file_id": "dr_DT0331", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Never", "context": "Patient has not participated in diabetes education classes", "file_id": "dr_DT0331", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Limited social support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No, other than me and her", "context": "Patient has limited social support for diabetes and eye care", "file_id": "dr_DT0331", "chunk_id": 20, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Peer support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, she has a friend--that she talks to, and he's got diabetes too", "context": "Patient has peer support for diabetes management", "file_id": "dr_DT0331", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "we just keep an eye on her sugar", "context": "Patient has family support for daily diabetes care", "file_id": "dr_DT0331", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, she has a friend--that she talks to, and he's got diabetes too.", "context": "Patient has a supportive friend with similar condition", "file_id": "dr_DT0331", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Emotional Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, her sister helps with chores and medications", "context": "Patient has a supportive sibling for daily tasks", "file_id": "dr_DT0331", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health Advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Just me, her sister", "context": "Patient seeks health advice from a trusted family member", "file_id": "dr_DT0331", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Just me, her sister", "context": "Patient relies on sibling for health advice", "file_id": "dr_DT0331", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Vision Limitations", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "My eyes are", "context": "Patient experiences vision problems", "file_id": "dr_DT0331", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Activity Limitation", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "She don't do a whole lot other than work puzzles", "context": "Patient's daily activities are limited due to vision", "file_id": "dr_DT0331", "chunk_id": 22, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Vision Impact", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "She has to take breaks and sit down and rest her eyes", "context": "Patient's vision affects daily tasks", "file_id": "dr_DT0331", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Vision limitations", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "because of her vision", "context": "Patient's vision limits daily activities", "file_id": "dr_DT0331", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Headaches", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it causes her to have headaches", "context": "Patient experiences headaches due to vision issues", "file_id": "dr_DT0331", "chunk_id": 23, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Positive expectations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "it was-- it was good", "context": "Patient has positive expectations for eye care visit", "file_id": "dr_DT0331", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they told me I couldn't put, , a damp rag on me", "context": "Patient receives guidance from provider", "file_id": "dr_DT0331", "chunk_id": 23, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "we're trying to get her, one of those machines", "context": "Patient lacks access to necessary medical equipment", "file_id": "dr_DT0331", "chunk_id": 24, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "we're working on it", "context": "Patient is working to obtain necessary medical equipment, implying financial difficulties", "file_id": "dr_DT0331", "chunk_id": 24, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They're going to give", "context": "Patient is receiving support from healthcare providers to obtain necessary medical equipment", "file_id": "dr_DT0331", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Resources & Access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They're going to give a machine", "context": "Patient is receiving necessary resources and support from healthcare providers", "file_id": "dr_DT0331", "chunk_id": 24, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I had damage done to my right, , side of my face. I hit a telephone pole.", "context": "Patient experienced delayed diagnosis due to lack of access", "file_id": "dr_HD1103(part2)", "chunk_id": 0, "original_category": "BARRIER - SDOH" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "And so, , I had a s-- a spot on my retina--", "context": "Patient shows concern about their condition", "file_id": "dr_HD1103(part2)", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "he said, , we're, we're going to do a vitrectomy. , , there's a tear or a pucker in the retina.", "context": "Patient received unclear explanation of treatment", "file_id": "dr_HD1103(part2)", "chunk_id": 0, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I went to this one doctor--", "context": "Patient had access to a healthcare provider", "file_id": "dr_HD1103(part2)", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "but all those years without any issue", "context": "Patient seems unaware of potential long-term effects", "file_id": "dr_HD1103(part2)", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "he said, 'Hey.' He said, 'Your vision's fine.'", "context": "Provider's communication style may be unclear", "file_id": "dr_HD1103(part2)", "chunk_id": 1, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And whenever, , I went to this one doctor--", "context": "Patient has access to a specific doctor", "file_id": "dr_HD1103(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "he said, 'Hey.' He said, 'Your vision's fine.'", "context": "Provider communicates clearly with patient", "file_id": "dr_HD1103(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "they tapped dance around the truth", "context": "Patient feels providers were not honest", "file_id": "dr_HD1103(part2)", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "What you told me in the office and what you did in the long term was two totally different things", "context": "Patient feels provider did not communicate effectively", "file_id": "dr_HD1103(part2)", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "they tapped dance around the truth", "context": "Patient feels providers were evasive and unhelpful", "file_id": "dr_HD1103(part2)", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Your vision's fine. But I just want to touch up a couple places", "context": "Patient may not fully understand their condition", "file_id": "dr_HD1103(part2)", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I also went to another-- I went to two other eye specialists, retinal specialists", "context": "Patient has access to multiple providers", "file_id": "dr_HD1103(part2)", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "they tapped dance around the truth", "context": "Patient feels provider was dishonest", "file_id": "dr_HD1103(part2)", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "what he did and what he ended up doing was two totally different things", "context": "Patient distrusts provider due to inconsistent information", "file_id": "dr_HD1103(part2)", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they tapped dance around the truth", "context": "Patient feels provider did not communicate clearly", "file_id": "dr_HD1103(part2)", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Well, vision in my left eye is fine,", "context": "Patient feels no need for follow-up due to current good vision", "file_id": "dr_HD1103(part2)", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Age related concerns", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "So, , naturally, I'm up in the years. I, I want to be 60. I'm an old man.", "context": "Patient's age and perceived life stage may influence follow-up adherence", "file_id": "dr_HD1103(part2)", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of diagnosis understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They just keep checking on the pressure in my eye--", "context": "Patient unsure about glaucoma diagnosis", "file_id": "dr_HD1103(part2)", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Previous positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I had cataract surgery already, so", "context": "Patient had successful surgery in the past", "file_id": "dr_HD1103(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "whenever I see a glaucoma doctor, but they never told me I had glaucoma", "context": "Patient attends regular appointments", "file_id": "dr_HD1103(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive outlook", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I try to live as full a life as I possibly can", "context": "Patient has positive attitude towards life", "file_id": "dr_HD1103(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "but I was never diagnosed with glaucoma, so", "context": "Patient unsure about their condition", "file_id": "dr_HD1103(part2)", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family health unknown", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "We're a functional, dysfunctional family. So, , , , I couldn't tell you what, what my siblings have or what they don't have", "context": "Patient lacks knowledge about family health history", "file_id": "dr_HD1103(part2)", "chunk_id": 6, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I don't want to become blind", "context": "Patient expresses fear of losing vision", "file_id": "dr_HD1103(part2)", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of family health knowledge", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "We're a functional, dysfunctional family. So, , , , I couldn't tell you what, what my siblings have or what they don't have", "context": "Patient lacks knowledge of family health history", "file_id": "dr_HD1103(part2)", "chunk_id": 7, "original_category": "BARRIER - SDOH" }, { "code": "Belief in preventative care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I believe in preventative care", "context": "Patient values proactive health management", "file_id": "dr_HD1103(part2)", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I just don't want to become, , dependent on somebody or a blind person", "context": "Patient fears losing independence due to DR", "file_id": "dr_HD1103(part2)", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive mindset", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "it changes your mindset", "context": "Patient believes in preventative care and has a positive outlook", "file_id": "dr_HD1103(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Preventative care beliefs", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I believe in preventative care", "context": "Patient values proactive healthcare approach", "file_id": "dr_HD1103(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of losing independence", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the fear of, , losing my abilities to be independent", "context": "Patient fears loss of independence due to DR", "file_id": "dr_HD1103(part2)", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "the doctors do what they can", "context": "Patient appreciates doctor's efforts", "file_id": "dr_HD1103(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Adaptable healthcare providers", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they try to adapt what knowledge they have to the situation at hand", "context": "Patient values provider's adaptability", "file_id": "dr_HD1103(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Limited health technology", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I just wish it was more-- , I just-- , I know it's through Epic--", "context": "Patient finds MyChart limiting", "file_id": "dr_HD1103(part2)", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of losing independence", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the fear of, , losing my abilities to be independent", "context": "Patient fears losing independence due to DR", "file_id": "dr_HD1103(part2)", "chunk_id": 10, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "User-friendly technology", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "I just wish it was more, , user-friendly", "context": "Patient wants easier-to-use technology for healthcare services", "file_id": "dr_HD1103(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Technology literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "not all of us were brought up in the age of, , technology", "context": "Patient struggles with using technology due to age and lack of familiarity", "file_id": "dr_HD1103(part2)", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Accessible healthcare information", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the more results that they put into the visit, not only, , , what the doctor's notes were, but the technician's--", "context": "Patient wants easier access to healthcare information and history", "file_id": "dr_HD1103(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Ride service support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "there's a ride service, something-- , support system, anything at all that, , you feel that is it helps me get to my appointments", "context": "Patient mentions the importance of transportation support for appointment adherence", "file_id": "dr_HD1103(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Visual impairment barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "With me having one good eye and being, --", "context": "Patient's visual impairment creates challenges for daily life and healthcare management", "file_id": "dr_HD1103(part2)", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it's hard to find someone to go with you", "context": "Patient has difficulty finding transportation to appointments", "file_id": "dr_HD1103(part2)", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of social support", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "my family was functional, dysfunctional", "context": "Patient lacks reliable social support for appointments", "file_id": "dr_HD1103(part2)", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessibility issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "If they could give you that before they let you out, it would be-- it would be fantastic", "context": "Patient suggests improvement to clinic procedure for easier navigation", "file_id": "dr_HD1103(part2)", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Ride service support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "there's a ride service, something-- , support system", "context": "Patient mentions ride services as helpful for appointment adherence", "file_id": "dr_HD1103(part2)", "chunk_id": 11, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Support system", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "anything at all that, , you feel that is it helps me get to my appointments", "context": "Patient values support systems for facilitating appointment attendance", "file_id": "dr_HD1103(part2)", "chunk_id": 11, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "They don't have money for gas", "context": "Patient discusses financial constraints related to transportation", "file_id": "dr_HD1103(part2)", "chunk_id": 12, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Financial constraints", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I have to manage, my fuel consumption and, and so on", "context": "Patient mentions managing fuel costs as a challenge", "file_id": "dr_HD1103(part2)", "chunk_id": 12, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Cost-related barriers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "how do you want to say the total bill after the appointment?", "context": "Patient inquires about costs associated with appointments", "file_id": "dr_HD1103(part2)", "chunk_id": 12, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Out-of-pocket costs", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "$25 is hitting the lottery", "context": "Patient expresses difficulty affording out-of-pocket expenses", "file_id": "dr_HD1103(part2)", "chunk_id": 12, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "$25 is hitting the lottery", "context": "Patient struggles with budgeting for healthcare costs", "file_id": "dr_HD1103(part2)", "chunk_id": 13, "original_category": "BARRIER - SDOH" }, { "code": "Cost-related barriers", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I just can't afford the co-pays or the, the travel expense to you because of that reason", "context": "Patient cannot afford healthcare expenses", "file_id": "dr_HD1103(part2)", "chunk_id": 13, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I had a great doctor at UPMC. He was fantastic", "context": "Patient had a positive experience with a healthcare provider", "file_id": "dr_HD1103(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Compassionate provider", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "He was fantastic. And, , , he gave me hope. He was compassionate.", "context": "Patient had a positive experience with a doctor", "file_id": "dr_HD1103(part2)", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I just had a visual eye field done, , WVU is going to send me another bill for $300. And I just had this done two months ago. Now you want to do another one. I can't-- I can't afford it.", "context": "Patient cannot afford repeated medical tests", "file_id": "dr_HD1103(part2)", "chunk_id": 14, "original_category": "BARRIER - SDOH" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He listened to me, , you know.", "context": "Patient felt heard by their doctor", "file_id": "dr_HD1103(part2)", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I can't-- I can't afford it.", "context": "Patient cannot afford follow-up appointment", "file_id": "dr_HD1103(part2)", "chunk_id": 15, "original_category": "BARRIER - SDOH" }, { "code": "Financial assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "she was able to help me so I can afford it", "context": "Patient received financial assistance for follow-up appointment", "file_id": "dr_HD1103(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "these people are real. They get it.", "context": "Patient feels understood by healthcare provider", "file_id": "dr_HD1103(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Cost-related barriers", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I just don't have the funding to do it.", "context": "Patient cannot afford follow-up appointment due to cost", "file_id": "dr_HD1103(part2)", "chunk_id": 15, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "she was cold and she was sterile", "context": "Patient describes negative experience with resident doctor", "file_id": "dr_HD1103(part2)", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "she looked at me and she goes, 'Oh, do you just pick up the place to go, to seek treatment?'", "context": "Patient feels misunderstood by resident doctor", "file_id": "dr_HD1103(part2)", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "she was cold and she was sterile", "context": "Patient describes negative experience with resident doctor, indicating lack of trust", "file_id": "dr_HD1103(part2)", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "And she was cold and she was sterile", "context": "Patient had a negative experience with a resident doctor", "file_id": "dr_HD1103(part2)", "chunk_id": 17, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "And that set me back a step or two", "context": "Patient lost trust in the provider after a negative experience", "file_id": "dr_HD1103(part2)", "chunk_id": 17, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "The comment that was made to me about that at that time truly, truly bothered me", "context": "Patient felt misunderstood or disrespected by the provider's comment", "file_id": "dr_HD1103(part2)", "chunk_id": 17, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I'm here for a reason. I'm not here to abuse anything.", "context": "Patient implies difficulty accessing care", "file_id": "dr_HD1103(part2)", "chunk_id": 18, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "just don't sit there and say, 'Well, what more can you have?'", "context": "Patient experiences unhelpful provider interaction", "file_id": "dr_HD1103(part2)", "chunk_id": 18, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "With my financial situation as well, I can't afford internet or a hotspot on a phone.", "context": "Patient faces financial difficulties", "file_id": "dr_HD1103(part2)", "chunk_id": 18, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "have a game plan, knowing that you're going to have a diab-diabetic patient that day.", "context": "Patient suggests need for prepared providers", "file_id": "dr_HD1103(part2)", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "instead of a flyer, sit there and answer the question.", "context": "Patient values clear provider communication", "file_id": "dr_HD1103(part2)", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I will say this too. With my financial situation as well, I can't afford internet or a hotspot on a phone.", "context": "Patient's financial situation limits access to technology", "file_id": "dr_HD1103(part2)", "chunk_id": 19, "original_category": "BARRIER - SDOH" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "Technology is great, but if you can't afford the technology and you say go to this website or follow up here, that's a different animal.", "context": "Patient highlights limitations in accessing healthcare due to financial constraints", "file_id": "dr_HD1103(part2)", "chunk_id": 19, "original_category": "BARRIER - SDOH" }, { "code": "Education/health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "you need-- you have to have something tangible-- in hand if they can do a flyer or something that for you to read, , or go to this website and see.", "context": "Patient suggests needing more accessible educational materials", "file_id": "dr_HD1103(part2)", "chunk_id": 19, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "maybe have a dietician there in-house-- come in and say, 'Hey, , you-- there's a couple of minutes before Dr. XYZ comes in. Is there something that-- here's something that we can do for you?'", "context": "Patient suggests having more accessible providers, such as an in-house dietician", "file_id": "dr_HD1103(part2)", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient navigation services", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Go in with-- maybe have a dietician there in-house-- come in and say, 'Hey, , you-- there's a couple of minutes before Dr. XYZ comes in. Is there something that-- here's something that we can do for you?'", "context": "Patient implies needing more navigation support from healthcare providers", "file_id": "dr_HD1103(part2)", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I got nothing out of it", "context": "Patient felt diabetes education class was unhelpful", "file_id": "dr_HD1103(part2)", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor education quality", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "the person wasn't as thorough or answering the questions as well", "context": "Patient criticism of diabetes education class instructor", "file_id": "dr_HD1103(part2)", "chunk_id": 20, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Limited access to resources", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "it was back in '10 or '11, I think", "context": "Patient has not participated in recent diabetes education", "file_id": "dr_HD1103(part2)", "chunk_id": 20, "original_category": "BARRIER - SDOH" }, { "code": "No social support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I'm by myself", "context": "Patient lacks support for daily diabetes care", "file_id": "dr_HD1103(part2)", "chunk_id": 20, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "the person wasn't as thorough or answering the questions as well", "context": "Patient felt provider did not communicate effectively", "file_id": "dr_HD1103(part2)", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "it was condensed, overcrowded", "context": "Patient felt healthcare service was inadequate due to overcrowding", "file_id": "dr_HD1103(part2)", "chunk_id": 21, "original_category": "BARRIER - SDOH" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "it was a wasted two hours of my life", "context": "Patient felt they wasted time due to inefficient service", "file_id": "dr_HD1103(part2)", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "they were trying to do it in a condensed form, trying to tell you how to read a diet", "context": "Patient felt education was inadequate due to time constraints", "file_id": "dr_HD1103(part2)", "chunk_id": 21, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "if you would take someone more to the side and explain to them how to prepare a meal properly", "context": "Patient desired more personalized attention from provider", "file_id": "dr_HD1103(part2)", "chunk_id": 21, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Flexible scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "not 6 o'clock at night-- maybe 4 o'clock in the afternoon", "context": "Patient preferred more convenient appointment times", "file_id": "dr_HD1103(part2)", "chunk_id": 21, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "And just offer it as a free class and send something out", "context": "Patient suggests increasing accessibility of health services", "file_id": "dr_HD1103(part2)", "chunk_id": 22, "original_category": "BARRIER - SDOH" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "And I was, Okay. You're here for a dietary class.", "context": "Patient values health education", "file_id": "dr_HD1103(part2)", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Make a phone call or send a flyer out to these people, Hey, we have a class.", "context": "Patient suggests effective provider-patient communication", "file_id": "dr_HD1103(part2)", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessibility of care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Have enough dietitians on board.", "context": "Patient emphasizes importance of accessible healthcare providers", "file_id": "dr_HD1103(part2)", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of social support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No. No.", "context": "Patient lacks someone to share worries or fears about diabetes", "file_id": "dr_HD1103(part2)", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "if I'm sick and if I don't have the resources to purchase good nourishing food", "context": "Patient lacks financial resources for basic needs", "file_id": "dr_HD1103(part2)", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "Lack of access to resources", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "it makes me want to be a stronger person. , it, it hurts because if I'm sick and if I don't have the resources", "context": "Patient lacks access to necessary resources for health management", "file_id": "dr_HD1103(part2)", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it hurts because if I'm sick and if I don't have the resources", "context": "Patient experiences emotional pain due to lack of resources", "file_id": "dr_HD1103(part2)", "chunk_id": 23, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "nobody-- someone you could trust, --", "context": "Patient lacks trust in healthcare providers", "file_id": "dr_HD1103(part2)", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Is there somewhere you can call or ask for advice about handling health or eye problems? Is it mainly your doctor, or do you call other-- any other people for, , advice about health and eye problems?", "context": "Patient seeks support from healthcare system", "file_id": "dr_HD1103(part2)", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I found an app. It's called Be My Eyes.", "context": "Patient uses app for support with health and eye problems", "file_id": "dr_HD1103(part2)", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Resources Access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I found an app. It's called Be My Eyes.", "context": "Patient uses community resource for support", "file_id": "dr_HD1103(part2)", "chunk_id": 24, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Patient Empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they will try to help you with what resources", "context": "Patient receives health education through app", "file_id": "dr_HD1103(part2)", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of faith", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "you lose, lose faith in it, you know, in yourself", "context": "Patient expresses loss of confidence due to vision limitations", "file_id": "dr_HD1103(part2)", "chunk_id": 25, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Discouragement", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I do get a little bit discouraged", "context": "Patient feels discouraged about limited abilities due to vision", "file_id": "dr_HD1103(part2)", "chunk_id": 25, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Healthcare support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they will help you, , , help you see or if you're lost or if you have-- or you need help or you need knowledge", "context": "Patient perceives healthcare system as supportive", "file_id": "dr_HD1103(part2)", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "that just brings you down", "context": "Patient feels frustrated with daily activities due to vision loss", "file_id": "dr_HD1103(part2)", "chunk_id": 26, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Social stigma", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "you get the dirtiest looks from people", "context": "Patient experiences social stigma due to vision loss", "file_id": "dr_HD1103(part2)", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessibility issues", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "everybody's in a hurry to go nowhere", "context": "Patient struggles with navigating public spaces due to vision loss", "file_id": "dr_HD1103(part2)", "chunk_id": 26, "original_category": "BARRIER - SDOH" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't-- , , I walked into the store actually to bump into people. No, I didn't.", "context": "Patient lacks awareness about their condition and its impact on daily life", "file_id": "dr_HD1103(part2)", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Self-advocacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm blind in my right eye. I pass on the left.", "context": "Patient takes initiative to adapt to vision loss and navigate public spaces", "file_id": "dr_HD1103(part2)", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of research", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "There's no research goin on. There-there's no-- there's nobody taking this at hand to, , , to do this.", "context": "Patient feels that lack of research is hindering their care", "file_id": "dr_HD1103(part2)", "chunk_id": 27, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Feeling rushed", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "when somebody rushes in--", "context": "Patient feels rushed by others, possibly implying a desire for more time with providers", "file_id": "dr_HD1103(part2)", "chunk_id": 27, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive expectations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "of hopefully everything stays the same. Everything is-- those are my expectations.", "context": "Patient has positive expectations for their care, possibly due to health education", "file_id": "dr_HD1103(part2)", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Desire for patient-centered care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I always ask, what's new on the horizon?", "context": "Patient desires to be involved in their care and have open communication with providers", "file_id": "dr_HD1103(part2)", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I think-- I think sometimes that just brings you down.", "context": "Patient experiences emotional distress related to their condition", "file_id": "dr_HD1103(part2)", "chunk_id": 27, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of research", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "There's no re-- there's no research goin on.", "context": "Patient feels providers are not proactive in finding solutions", "file_id": "dr_HD1103(part2)", "chunk_id": 28, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Sometimes I don't even bother asking because I know what the answer is going to be.", "context": "Patient feels providers do not communicate effectively", "file_id": "dr_HD1103(part2)", "chunk_id": 28, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of hope", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Hope is a four-letter word. And sometimes it can be a great word. It can be the worst word out there.", "context": "Patient feels hopeless about their condition", "file_id": "dr_HD1103(part2)", "chunk_id": 28, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "If you think that it’ll work, 'Hey, I'll try it.'", "context": "Patient is willing to try new treatments if recommended by provider", "file_id": "dr_HD1103(part2)", "chunk_id": 28, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'll e-- I'll even be a guinea pig.", "context": "Patient is proactive and willing to take an active role in their care", "file_id": "dr_HD1103(part2)", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "they want $800 before you even commit to an appointment", "context": "Patient faces high upfront costs for appointments", "file_id": "dr_HD1103(part2)", "chunk_id": 29, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "Medicare does not cover their practices", "context": "Patient's insurance does not cover certain medical practices", "file_id": "dr_HD1103(part2)", "chunk_id": 29, "original_category": "BARRIER - SDOH" }, { "code": "Cost-related barriers", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "They want $200 right off the bat", "context": "Patient faces out-of-pocket expenses for medical services", "file_id": "dr_HD1103(part2)", "chunk_id": 29, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they want $800 before you even commit to an appointment", "context": "Patient faces barriers to accessing medical care due to cost", "file_id": "dr_HD1103(part2)", "chunk_id": 29, "original_category": "BARRIER - SDOH" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "if they would just take a little bit extra time in a smaller group of people, explain to people what actually goes on", "context": "Patient believes more education is needed", "file_id": "dr_HD1103(part2)", "chunk_id": 30, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "if you just put it out there, I think if more public knowledge, , , more maybe helpful educational", "context": "Patient suggests public education is beneficial", "file_id": "dr_HD1103(part2)", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Free clinic access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "have a free clinic", "context": "Patient mentions the importance of accessible healthcare services", "file_id": "dr_HD1103(part2)", "chunk_id": 30, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Provider time constraints", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "everybody got to schedule. Everybody got life", "context": "Patient acknowledges providers' busy schedules", "file_id": "dr_HD1103(part2)", "chunk_id": 30, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "explain to people what actually goes on", "context": "Patient suggests that lack of understanding about diabetes management is a barrier", "file_id": "dr_HD1103(part2)", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor diet", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "they don't eat a good, healthy diet or a clean diet, and they're experiencing issues", "context": "Patient believes that poor diet is a barrier to effective diabetes management", "file_id": "dr_HD1103(part2)", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "explain to people what actually goes on", "context": "Patient suggests that health education programs would facilitate better diabetes management", "file_id": "dr_HD1103(part2)", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective self-management", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "check your-- , your best friend is your glucometer", "context": "Patient emphasizes the importance of effective self-management in diabetes care", "file_id": "dr_HD1103(part2)", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthy diet", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "watch what you consume", "context": "Patient suggests that a healthy diet is essential for effective diabetes management", "file_id": "dr_HD1103(part2)", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of discussion", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "", "context": "No mention of doctor discussing follow-up appointments", "file_id": "dr_VP1219", "chunk_id": 0, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Diet watching", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I try to watch what I eat", "context": "Patient takes initiative in managing diet", "file_id": "dr_VP1219", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Exercise encouragement", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "do a little more exercise too", "context": "Doctor recommends exercise for patient's well-being", "file_id": "dr_VP1219", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I try to watch what I eat", "context": "Patient lacks clear understanding of diabetes management and potential eye complications", "file_id": "dr_VP1219", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I try to watch what I eat", "context": "Patient is attempting to manage diet, indicating some level of health education", "file_id": "dr_VP1219", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I feel just tired all the time", "context": "Patient experiences emotional and psychological burden of diabetes, potentially affecting follow-up adherence", "file_id": "dr_VP1219", "chunk_id": 1, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Oh, it's made them worse. Yeah. Definitely", "context": "Patient lacks clear understanding of diabetes impact on eyes, potentially leading to poor follow-up adherence", "file_id": "dr_VP1219", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I guess I'm not sure exactly how to describe it", "context": "Patient unsure about their condition", "file_id": "dr_VP1219", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he said today, looking stable and still, still looking good from the original surgeries that I had", "context": "Patient receives reassuring news from doctor", "file_id": "dr_VP1219", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Limited health literacy", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I guess I'm not sure exactly how to describe it", "context": "Patient struggles to understand their condition", "file_id": "dr_VP1219", "chunk_id": 2, "original_category": "BARRIER - SDOH" }, { "code": "Accessible healthcare", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "he said today, looking stable and still, still looking good from the original surgeries that I had", "context": "Patient receives regular check-ups", "file_id": "dr_VP1219", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I don't want to be blind", "context": "Patient expresses fear of blindness due to diabetes", "file_id": "dr_VP1219", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they told me it could lead to blindness", "context": "Patient lacks detailed understanding of diabetes impact on eyesight", "file_id": "dr_VP1219", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he said today, looking stable and still, still looking good from the original surgeries that I had", "context": "Patient feels reassured by doctor's positive feedback", "file_id": "dr_VP1219", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they told me it could lead to blindness", "context": "Doctor clearly communicates potential risks of diabetes on eyesight", "file_id": "dr_VP1219", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider explanation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Because a lot of the blood-- the growth of blood vessels in my eyes--", "context": "Patient understands their condition due to provider's explanation", "file_id": "dr_VP1219", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Trust in provider", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. G said that", "context": "Patient trusts and follows Dr. G's advice", "file_id": "dr_VP1219", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I, -- here", "context": "Patient receives regular care at a convenient location", "file_id": "dr_VP1219", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Because a lot of the blood-- the growth of blood vessels in my eyes--", "context": "Patient has knowledge about their condition and treatment", "file_id": "dr_VP1219", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of difficulty", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It's not really difficult at all. No.", "context": "Patient finds the dilation process easy", "file_id": "dr_VP1219", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Temporary vision issues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It is a little difficult", "context": "Patient experiences temporary difficulty due to dilation", "file_id": "dr_VP1219", "chunk_id": 5, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "It's not hard at all. I mean, they usually schedule me", "context": "Patient finds scheduling process easy", "file_id": "dr_VP1219", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "usually get notifications if there's a message", "context": "Patient receives reminders through MyChart", "file_id": "dr_VP1219", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, yes. It's fine", "context": "Patient feels comfortable with doctor's availability", "file_id": "dr_VP1219", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Just to be careful about, , rubbing your eyes", "context": "Doctor provides clear recommendations for eye care", "file_id": "dr_VP1219", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it's a-- it's a distance, but I don't-- it's not really that difficult", "context": "Patient mentions distance as a potential issue but downplays its impact", "file_id": "dr_VP1219", "chunk_id": 7, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I wish it was closer to where I lived, but it's not, so", "context": "Patient expresses desire for clinic to be closer to their home", "file_id": "dr_VP1219", "chunk_id": 7, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "it's easy to make arrangements", "context": "Patient finds it easy to schedule appointments", "file_id": "dr_VP1219", "chunk_id": 7, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Dusty work environment", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "it's almost a warehouse setting. So-- lot of dusty in the air.", "context": "Patient works in a dusty environment", "file_id": "dr_VP1219", "chunk_id": 8, "original_category": "BARRIER - SDOH" }, { "code": "Lack of supplements", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, I don't take anything that.", "context": "Patient does not take eye-healthy supplements", "file_id": "dr_VP1219", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Insulin management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "insulin to keep the diabetes down.", "context": "Patient manages diabetes with insulin", "file_id": "dr_VP1219", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Eye care practices", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I wear sunglasses. And occasionally I'll take, -- especially an environment where I work, it's dusty.", "context": "Patient takes steps to protect eyes", "file_id": "dr_VP1219", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Resting eyes", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yes. I give my eyes a rest when working on the computer or watching TV.", "context": "Patient prioritizes eye health", "file_id": "dr_VP1219", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They've never really told me exactly how much risk it would be", "context": "Patient unsure about personal risk of vision loss", "file_id": "dr_VP1219", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "They've never really told me exactly how much risk it would be", "context": "Patient feels providers did not fully inform them", "file_id": "dr_VP1219", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Awareness of risk", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Is it a-- it is a risk if I don't take care of it and keep on top of it", "context": "Patient understands importance of managing diabetes", "file_id": "dr_VP1219", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider guidance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yes. S1: 07:39 Your eye doctor and your diabetes doctor?", "context": "Patient has access to multiple healthcare providers", "file_id": "dr_VP1219", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They've never really told me exactly how much risk it would be", "context": "Patient unsure about personal risk of blindness", "file_id": "dr_VP1219", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And they explained to me-- we went through with that and they explained it-- why it was there", "context": "Patient feels informed by eye doctor", "file_id": "dr_VP1219", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And they explained to me-- we went through with that and they explained it-- why it was there", "context": "Patient feels supported by eye doctor", "file_id": "dr_VP1219", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they explained to me-- we went through with that and they explained it-- why it was there", "context": "Patient feels informed by provider", "file_id": "dr_VP1219", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Thorough providers", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they're very thorough about it", "context": "Patient appreciates comprehensive care from providers", "file_id": "dr_VP1219", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient advocacy", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "not really, because we-- every time I go to an appointment, we pretty much-- they're very thorough about it, so--", "context": "Patient does not often express concerns or needs", "file_id": "dr_VP1219", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they'd be pretty much explained to me. Ask me what I'm doing, I tell them what's going on, and then we discuss it that way", "context": "Patient feels heard by provider", "file_id": "dr_VP1219", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they're very thorough about it", "context": "Patient feels comfortable with provider's approach", "file_id": "dr_VP1219", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they're very thorough about it", "context": "Patient appreciates provider's clear communication", "file_id": "dr_VP1219", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I think what they're doing probably is the best thing that they--", "context": "Patient feels informed about their care", "file_id": "dr_VP1219", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think so", "context": "Patient feels supported in managing their diabetes", "file_id": "dr_VP1219", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Perceived treatment effectiveness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yes, I do believe. Yeah, it is", "context": "Patient believes their treatment is working", "file_id": "dr_VP1219", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know", "context": "Patient unsure about potential vision loss", "file_id": "dr_VP1219", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis/treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Oh, very serious if I don't keep up with it", "context": "Patient aware of potential consequences", "file_id": "dr_VP1219", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know. If I don't take care of it, highly likely it could happen", "context": "Patient unsure about diabetes impact on vision", "file_id": "dr_VP1219", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm good with that. I'm happy with that", "context": "Patient feels current vision is satisfactory", "file_id": "dr_VP1219", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Oh, very serious if I don't keep up with it", "context": "Patient aware of diabetes management importance", "file_id": "dr_VP1219", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I try to take care of it. So I think if I keep it stable", "context": "Patient proactive about managing diabetes", "file_id": "dr_VP1219", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "And I'm not sure how", "context": "Patient unsure about their condition", "file_id": "dr_VP1219", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "get surprised easily", "context": "Patient anxious about unexpected news", "file_id": "dr_VP1219", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare facilities", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm glad I have the facilities that I need to, to be able to manage it", "context": "Patient has access to necessary healthcare facilities", "file_id": "dr_VP1219", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, that-- it was a good experience", "context": "Patient had a positive experience with follow-ups and treatment plan", "file_id": "dr_VP1219", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Professional staff", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "everybody is professional", "context": "Patient appreciates the professionalism of healthcare staff", "file_id": "dr_VP1219", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Thorough discussions", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They're very thorough in their discussions", "context": "Patient values the detailed conversations with providers", "file_id": "dr_VP1219", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Clear explanations", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They explained all that", "context": "Patient received clear information about their condition and treatment", "file_id": "dr_VP1219", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Access to facilities", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'm glad I have the facilities that I need", "context": "Patient has access to necessary healthcare facilities", "file_id": "dr_VP1219", "chunk_id": 16, "original_category": "FACILITATOR - Resources & Access" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Well, well, I can still see", "context": "Patient may not fully understand the importance of follow-up appointments", "file_id": "dr_VP1219", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health Education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They explained all that--", "context": "Patient received health education about diabetes management", "file_id": "dr_VP1219", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective Communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They explained all that--", "context": "Patient received clear explanations from healthcare provider", "file_id": "dr_VP1219", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Reminder Systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "The good resource is the, -- the MyChart. It's very, very helpful because, yeah, otherwise I'd just forget.", "context": "Patient uses MyChart for reminders and organization", "file_id": "dr_VP1219", "chunk_id": 17, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible Providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Is it helpful in contacting your doctor and stuff too? Yes, it is", "context": "Patient finds MyChart helpful for contacting healthcare provider", "file_id": "dr_VP1219", "chunk_id": 17, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Good resources", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Good resources to be able to call them when I need it", "context": "Patient finds healthcare system resources helpful", "file_id": "dr_VP1219", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "it's good that they have the ability to reach out", "context": "Patient appreciates ease of contact with healthcare providers", "file_id": "dr_VP1219", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Well, when I had the surgery, the first time I could actually see clearly", "context": "Patient had a positive experience with healthcare services", "file_id": "dr_VP1219", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Frustration", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "sometimes you think-- get a little frustrated", "context": "Patient experiences emotional frustration with healthcare process", "file_id": "dr_VP1219", "chunk_id": 18, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Everybody, yeah, very good. Very friendly, very informative.", "context": "Patient feels comfortable with healthcare providers", "file_id": "dr_VP1219", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Family support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have family that can help if I need it.", "context": "Patient has family support for daily diabetes care", "file_id": "dr_VP1219", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "They make sure I get to where I need to be--", "context": "Patient's family helps with transportation to appointments", "file_id": "dr_VP1219", "chunk_id": 19, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Dietary encouragement", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "They help with the diet, , encouragement, make sure you're eating right, things that", "context": "Patient's family provides support for healthy diet", "file_id": "dr_VP1219", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Frustration with care", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Why they got to do this?", "context": "Patient sometimes feels frustrated with diabetes care", "file_id": "dr_VP1219", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they make sure I get to where I need to be", "context": "Patient receives support for appointments", "file_id": "dr_VP1219", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I did participate in a diabetes education class", "context": "Patient received health education", "file_id": "dr_VP1219", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yes, I do have people to share my worries or fears about my diabetes and eyesight", "context": "Patient has social support", "file_id": "dr_VP1219", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diet encouragement", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "they help with the diet, encouragement, make sure you're eating right", "context": "Patient receives dietary support", "file_id": "dr_VP1219", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yes. Yes, I do. Well, friends and family.", "context": "Patient has people to share worries and fears", "file_id": "dr_VP1219", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Emotional Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yes. Yes, they do.", "context": "Patient's friends and family understand and support them", "file_id": "dr_VP1219", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Practical Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yes. Yes. Mm-hmm. That'd be sisters.", "context": "Patient has someone to help with daily chores, food, transportation", "file_id": "dr_VP1219", "chunk_id": 21, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it does in transportation sometimes", "context": "Patient's eyesight limits their ability to drive", "file_id": "dr_VP1219", "chunk_id": 22, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of social support", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I mean, they're there if I need to call them, but I normally don't", "context": "Patient does not often seek advice from friends and family", "file_id": "dr_VP1219", "chunk_id": 22, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "You're just-- Yeah. With your doctor mainly", "context": "Patient primarily relies on their doctor for advice", "file_id": "dr_VP1219", "chunk_id": 22, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Adaptive strategies", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have to-- I have something I use to magnify to see what I'm doing, so", "context": "Patient uses tools to adapt to their eyesight limitations", "file_id": "dr_VP1219", "chunk_id": 22, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it doesn't really prevent me", "context": "Patient feels their eyesight does not limit them", "file_id": "dr_VP1219", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Adaptive devices", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have to-- I have something I use to magnify to see what I'm doing", "context": "Patient uses assistive technology to adapt", "file_id": "dr_VP1219", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Assistive technology", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have a device I could use-- A magnifying-- to do that", "context": "Patient has access to devices that aid in daily activities", "file_id": "dr_VP1219", "chunk_id": 23, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Self modification", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm just more careful", "context": "Patient has learned to adapt and be more careful due to eyesight changes", "file_id": "dr_VP1219", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't need it, but now I do", "context": "Patient lacks understanding of their condition", "file_id": "dr_VP1219", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I wasn't anticipating-- didn't-- wasn't liking it, but it was necessary", "context": "Patient fears their diagnosis and treatment", "file_id": "dr_VP1219", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He said it was stable and it was good, and that was very encouraging to me", "context": "Patient has a positive relationship with their provider", "file_id": "dr_VP1219", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Pretty much discussed everything", "context": "Patient feels they have effective communication with their provider", "file_id": "dr_VP1219", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "keep emphasizing the, the care you need to take of your eyes and to manage your diabetes", "context": "Patient values health education for managing their condition", "file_id": "dr_VP1219", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of motivation", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Motivation & Self-Care Barriers", "quote": "I don't want to hear that", "context": "Patient resists health advice due to lack of perceived urgency", "file_id": "dr_VP1219", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Difficulty with self-care", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Taking insulin shots every day", "context": "Patient struggles with daily diabetes management tasks", "file_id": "dr_VP1219", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Food temptation", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Oh, I really want to have that", "context": "Patient experiences emotional struggle with dietary restrictions", "file_id": "dr_VP1219", "chunk_id": 25, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Importance of reminders", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Keep reminding", "context": "Patient suggests regular reminders for diabetes management", "file_id": "dr_VP1219", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Keep the information flowing", "context": "Patient emphasizes the need for ongoing health education and awareness", "file_id": "dr_VP1219", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I can ride the bus. It takes me right to the store where I need to go and right back home.", "context": "Patient has easy transportation to stores", "file_id": "dr_VP1219", "chunk_id": 26, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "", "context": "No direct quote, but implied by the need for analysis", "file_id": "dr_VP1219", "chunk_id": 27, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "", "context": "No direct quote, but a potential barrier", "file_id": "dr_VP1219", "chunk_id": 27, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "", "context": "No direct quote, but a potential facilitator", "file_id": "dr_VP1219", "chunk_id": 27, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Oh, now you're asking a big question", "context": "Patient seems uncertain about their medication", "file_id": "dr_SE0108", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "So, , do you have diabetes?", "context": "Interviewer inquires about patient's diabetes, potentially indicating a health education opportunity", "file_id": "dr_SE0108", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Medication management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Take medicine in the morning and take medicine at night and take a, a shot at night", "context": "Patient describes their daily medication routine", "file_id": "dr_SE0108", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of health literacy", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "And I don't even have my list on me", "context": "Patient seems unsure about their medication", "file_id": "dr_SE0108", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My doctor's gotten me on half-decent medicine now", "context": "Patient expresses satisfaction with their doctor", "file_id": "dr_SE0108", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Access to effective treatment", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "My numbers have all come down", "context": "Patient has seen improvement in their condition", "file_id": "dr_SE0108", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of adherence", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Don't want to take medicine", "context": "Patient initially refused medication", "file_id": "dr_SE0108", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I wasn't taking medicine for probably a year or so", "context": "Patient avoided treatment due to fear", "file_id": "dr_SE0108", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "That's when I first started being old, hard-headed", "context": "Patient learned about importance of adherence", "file_id": "dr_SE0108", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Weight loss motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I lost 72 pounds- ... doing that", "context": "Patient motivated by health improvements", "file_id": "dr_SE0108", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I figured I better start doing something or I'm just gonna fade away", "context": "Patient's motivation to take medicine due to significant weight loss", "file_id": "dr_SE0108", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "everybody looked at me and thought I had AIDS because I lost that much weight", "context": "Patient's fear of being judged or misdiagnosed", "file_id": "dr_SE0108", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what are some things that your doctor may have discussed, that you think may be important for people with diabetes to do?", "context": "Patient's awareness of importance of health education", "file_id": "dr_SE0108", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "did you feel you were able to express that with your doctor and you came to an agreement?", "context": "Patient's perception of provider's empathy and understanding", "file_id": "dr_SE0108", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Well, no, I still have, what would you say? My DNA is one of-", "context": "Patient seems uncertain about their condition", "file_id": "dr_SE0108", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor diet awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "And I eat candy bars and candy and stuff that. They're in sweets that I shouldn't.", "context": "Patient acknowledges unhealthy eating habits", "file_id": "dr_SE0108", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education importance", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "People pay attention to what they're eating-", "context": "Patient emphasizes the need for awareness about diet", "file_id": "dr_SE0108", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "People pay attention to what they're eating- ... and how it does react to your-", "context": "Patient highlights the importance of understanding food effects", "file_id": "dr_SE0108", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of symptoms", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "mine very seldom gives me any signals", "context": "Patient doesn't experience noticeable symptoms when sugar levels are high", "file_id": "dr_SE0108", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional cues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I get aggravated easier", "context": "Patient experiences emotional changes when sugar levels are high", "file_id": "dr_SE0108", "chunk_id": 6, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I, mine very seldom gives me any signals", "context": "Patient lacks awareness of diabetes symptoms", "file_id": "dr_SE0108", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional cues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I get aggravated easier- ... and mad easier", "context": "Patient experiences emotional changes when sugar is high", "file_id": "dr_SE0108", "chunk_id": 7, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Spousal support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And then she explains it to you-", "context": "Patient receives support from spouse", "file_id": "dr_SE0108", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Increased awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "and you watch for it then, and then you notice- ... it's actually happening", "context": "Patient becomes more aware of diabetes symptoms with support", "file_id": "dr_SE0108", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "My eyes were probably better and 20/20 for almost my whole life. And then it started getting a little bit worse", "context": "Patient describes decline in vision without understanding the cause", "file_id": "dr_SE0108", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She's my alarm clock. She keeps me awake.", "context": "Patient values provider's support and reminders", "file_id": "dr_SE0108", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "My visibility started going a little bit on it", "context": "Patient seems unsure about their condition", "file_id": "dr_SE0108", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Age related issues", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "72 years old, you expect to do that", "context": "Patient attributes declining eyesight to age", "file_id": "dr_SE0108", "chunk_id": 9, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "They did, they said my num- my numbers were very high", "context": "Patient seems concerned about their test results", "file_id": "dr_SE0108", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They did, they said my num- my numbers were very high", "context": "Provider clearly explained patient's test results", "file_id": "dr_SE0108", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I use readers and stuff that", "context": "Patient is taking steps to manage their condition", "file_id": "dr_SE0108", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I have sugar with idiopathic or whatever the heck it's called", "context": "Patient shows lack of understanding about their condition", "file_id": "dr_SE0108", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "my doctor explained to you, , about how diabetes might affect your eyesight?", "context": "Patient receives clear explanation from provider", "file_id": "dr_SE0108", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "my doctor explained to you, , about how diabetes might affect your eyesight?", "context": "Patient receives health education from provider", "file_id": "dr_SE0108", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my doctor explained to you, , about how diabetes might affect your eyesight?", "context": "Patient has positive interaction with provider", "file_id": "dr_SE0108", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I've even been to Philadelphia", "context": "Patient had to travel far to see a specialist", "file_id": "dr_SE0108", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "seen the best eye doctor in the United States", "context": "Patient has access to high-quality care", "file_id": "dr_SE0108", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I get eye exams every six months", "context": "Patient is able to maintain regular follow-up appointments", "file_id": "dr_SE0108", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I've even been to Philadelphia", "context": "Patient had to travel far to see a specialist", "file_id": "dr_SE0108", "chunk_id": 12, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "seen the best eye doctor in the United States", "context": "Patient has access to high-quality care", "file_id": "dr_SE0108", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider Relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my eye doctor, he sent me to go ahead and get all my moles checked", "context": "Patient trusts and follows provider's recommendations", "file_id": "dr_SE0108", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Resources Access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they removed one", "context": "Patient has access to necessary treatments", "file_id": "dr_SE0108", "chunk_id": 12, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "So if I wouldn't have had my eyes checked- ... he wouldn't have seen that and wouldn't have sent me.", "context": "Patient implies they didn't know the importance of eye checks", "file_id": "dr_SE0108", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "One of the best ones.", "context": "Patient expresses satisfaction with their eye doctor", "file_id": "dr_SE0108", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "One of the best ones.", "context": "Patient has access to a good eye doctor", "file_id": "dr_SE0108", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular health checks", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I get shots now in 'em every eight weeks", "context": "Patient is proactive about their eye health", "file_id": "dr_SE0108", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I couldn't see- ... the light in there probably", "context": "Patient seems uncertain about their condition", "file_id": "dr_SE0108", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "It's okay", "context": "Interviewer shows understanding and empathy", "file_id": "dr_SE0108", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Always had good vision, had no problems, what I mean?", "context": "Patient previously didn't see the need for regular eye checks due to good vision", "file_id": "dr_SE0108", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Perceived necessity", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have to do it. I have to, every eight weeks they check my eyes", "context": "Patient now understands the importance of regular eye checks", "file_id": "dr_SE0108", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Regular scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "every eight weeks they check my eyes", "context": "Patient has a regular schedule for eye checks", "file_id": "dr_SE0108", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they've all been excellent. I have no complaints about them at all.", "context": "Patient expresses satisfaction with healthcare providers", "file_id": "dr_SE0108", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they've all been excellent. I have no complaints about them at all.", "context": "Patient implies effective communication with providers", "file_id": "dr_SE0108", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they've all been excellent. I have no complaints about them at all.", "context": "Patient feels understood and supported by providers", "file_id": "dr_SE0108", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Well, I have no problem", "context": "Patient finds scheduling process easy", "file_id": "dr_SE0108", "chunk_id": 17, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They ask us and then they ask us what time", "context": "Patient experiences clear communication with staff", "file_id": "dr_SE0108", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient navigation services", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "They say what day, what days are available", "context": "Staff assists patient with scheduling process", "file_id": "dr_SE0108", "chunk_id": 17, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider Response Time", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they get back to us, i, I could say within an hour or so", "context": "Patient appreciates prompt response from provider", "file_id": "dr_SE0108", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider Availability", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Is your doctor's availability, , what does that look ? is there availability open?", "context": "Patient inquires about provider's schedule", "file_id": "dr_SE0108", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective Communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they're really right up on-", "context": "Patient feels informed and supported by provider", "file_id": "dr_SE0108", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider System Issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "he's not asking nobody. He knows it already", "context": "Patient perceives provider as not communicative", "file_id": "dr_SE0108", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "the only place that I seen that really worked different was in Philadelphia", "context": "Patient praises healthcare system in Philadelphia", "file_id": "dr_SE0108", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective Communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Any question she's asked was answered right now by somebody standing right there", "context": "Patient describes effective communication in Philadelphia eye hospital", "file_id": "dr_SE0108", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Short wait times", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I sat today, I bet you a minute and a half", "context": "Patient experiences short waiting time at the clinic", "file_id": "dr_SE0108", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Where for when you come in here, he's not asking nobody. He knows it already", "context": "Patient feels provider is knowledgeable and communicative", "file_id": "dr_SE0108", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "you come in, you stand here and tell 'em who you're seeing, you sit down and-", "context": "Patient finds the clinic process easy to navigate", "file_id": "dr_SE0108", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Short wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "you end up sitting out there, so it's one after another. If you're on time, they're gonna be on time it seems", "context": "Patient experiences short wait times at the clinic", "file_id": "dr_SE0108", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "If you're on time, they're gonna be on time it seems", "context": "Patient perceives providers as accessible and punctual", "file_id": "dr_SE0108", "chunk_id": 21, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective self-care", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I always wear safety glasses- ... when I'm doing anything and , I have sunglasses in a car- ... I put on when I get out there. Then I put eyedrops in my eyes three day, three times a day.", "context": "Patient engages in effective self-care practices for eye health", "file_id": "dr_SE0108", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I didn't put nothing in my eyeballs after that", "context": "Patient had a bad experience with eyedrops", "file_id": "dr_SE0108", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor adherence due to past experience", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I didn't put nothing in my eyeballs after that", "context": "Patient's past experience influences current behavior", "file_id": "dr_SE0108", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible treatment", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I got it in my pocket right now", "context": "Patient has easy access to artificial tears", "file_id": "dr_SE0108", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it hurt so bad in the one eye that the other eye blacked out too", "context": "Patient had a bad experience with eyedrops", "file_id": "dr_SE0108", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't pay no attention", "context": "Patient lacked knowledge about proper use of eyedrops", "file_id": "dr_SE0108", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "She come over and she put a drop in my eye and I shoved her all the way across the room", "context": "Patient had a bad experience due to lack of clear instructions", "file_id": "dr_SE0108", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it was running an ice pick through your eye, is what it felt", "context": "Patient expresses fear of painful treatment", "file_id": "dr_SE0108", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I would not put anything in my eye until my eyes got bad", "context": "Patient lacks understanding of disease progression", "file_id": "dr_SE0108", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Chloe Hatfield: Mm. Okay.", "context": "Interviewer shows empathy and understanding", "file_id": "dr_SE0108", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I had to start putting eye drops in", "context": "Patient takes initiative to manage condition", "file_id": "dr_SE0108", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "black out the other eye because it hurts so bad", "context": "Patient expresses fear of vision loss", "file_id": "dr_SE0108", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "if I didn't stay on my stuff, I'll lose my eyes", "context": "Patient lacks understanding of diabetes complications", "file_id": "dr_SE0108", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "If I got a problem I'm gonna call him", "context": "Patient feels comfortable contacting doctor", "file_id": "dr_SE0108", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Your doctor only can fix what you explain is wrong", "context": "Patient values open communication with doctor", "file_id": "dr_SE0108", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "That's why he gets paid", "context": "Patient feels doctor is invested in their care", "file_id": "dr_SE0108", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "You feel he's listening to you", "context": "Patient feels heard by their doctor", "file_id": "dr_SE0108", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Your doctor only can fix what you explain is wrong", "context": "Patient understands importance of clear communication with doctor", "file_id": "dr_SE0108", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "You feel he's listening to you", "context": "Patient has a positive relationship with their doctor", "file_id": "dr_SE0108", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient engagement", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No. And they always, I know at least two to three times ask me during the sessions- ... Do you have any questions to ask?", "context": "Patient does not ask questions or engage with their doctor", "file_id": "dr_SE0108", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor patient-provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "No. I don't", "context": "Patient does not express preferences or concerns to their doctor", "file_id": "dr_SE0108", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I don't tell them what I would prefer or what I think would be better for you when discussing care", "context": "Patient does not express preferences to provider", "file_id": "dr_SE0108", "chunk_id": 27, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he paid his way through school and knows more about anything that's wrong than I did", "context": "Patient perceives provider as knowledgeable", "file_id": "dr_SE0108", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient beliefs about healthcare", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I believe that he paid his way through school and knows more about anything that's wrong than I did", "context": "Patient defers to provider due to perceived expertise", "file_id": "dr_SE0108", "chunk_id": 27, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "If you don't fix it, it's gonna break all the way", "context": "Patient has limited understanding of diabetes complications", "file_id": "dr_SE0108", "chunk_id": 27, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "If you don't fix it, it's gonna break all the way", "context": "Patient lacks understanding of diabetes complications", "file_id": "dr_SE0108", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "If I don't pay attention to what I'm supposed to be doing-", "context": "Patient fears consequences of not managing diabetes", "file_id": "dr_SE0108", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "If I don't pay attention to what I'm supposed to be doing-", "context": "Patient takes responsibility for managing diabetes", "file_id": "dr_SE0108", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive outlook", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm hoping not to", "context": "Patient has positive attitude towards managing diabetes", "file_id": "dr_SE0108", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I think is very good for 72 years old", "context": "Patient feels their vision is good, implying no urgent need for follow-up", "file_id": "dr_SE0108", "chunk_id": 29, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education/health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I can't see any writing, writing in it sometimes", "context": "Patient may not fully understand their condition or its implications", "file_id": "dr_SE0108", "chunk_id": 29, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "What, what is that?", "context": "Patient unsure about age-related eyesight decline", "file_id": "dr_SE0108", "chunk_id": 30, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "What, what is that?", "context": "Patient lacks understanding of medical term", "file_id": "dr_SE0108", "chunk_id": 30, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "What, what is that?", "context": "Patient shows lack of knowledge about age-related eyesight decline", "file_id": "dr_SE0108", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family history", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "My aunt's the only one in the family besides me that had it", "context": "Patient is aware of family history of diabetes", "file_id": "dr_SE0108", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of health literacy", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "What, what is that?", "context": "Patient lacks understanding of medical terms", "file_id": "dr_SE0108", "chunk_id": 31, "original_category": "BARRIER - SDOH" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My doctors seem to be-", "context": "Patient has good experience with doctors", "file_id": "dr_SE0108", "chunk_id": 32, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I just luck out and get a lot of good ones", "context": "Patient has access to good healthcare providers", "file_id": "dr_SE0108", "chunk_id": 32, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my wife worked in the eye field too", "context": "Patient has supportive spouse with healthcare knowledge", "file_id": "dr_SE0108", "chunk_id": 32, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, I'm one of the type people that don't go to too many classes", "context": "Patient has not participated in diabetes education", "file_id": "dr_SE0108", "chunk_id": 33, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "she, she yells if I didn't take my medicine", "context": "Patient has a supportive family member", "file_id": "dr_SE0108", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy barriers", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, I'm one of the type people that don't go to too many classes", "context": "Patient lacks engagement with educational resources", "file_id": "dr_SE0108", "chunk_id": 33, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of education", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No, I'm one of the type people that don't go to too many classes", "context": "Patient has not participated in diabetes education", "file_id": "dr_SE0108", "chunk_id": 34, "original_category": "BARRIER - SDOH" }, { "code": "Unsupportive spouse", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "She explains that I'm being stupid by not doing this or taking that", "context": "Patient's spouse is not supportive of their health concerns", "file_id": "dr_SE0108", "chunk_id": 34, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of emotional support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "That's, that's aggravating to her", "context": "Patient feels frustrated with their spouse's response to health concerns", "file_id": "dr_SE0108", "chunk_id": 34, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Supportive partner", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "If I tell her I, I get, it seems a headache in my eye", "context": "Patient's spouse is somewhat responsive to their health concerns", "file_id": "dr_SE0108", "chunk_id": 34, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I could feel it start to drop, whole face dropped", "context": "Patient seems unsure about their condition", "file_id": "dr_SE0108", "chunk_id": 35, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I said, 'For what?'", "context": "Patient was not informed about the reason for hospital visit", "file_id": "dr_SE0108", "chunk_id": 35, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I could feel it start to drop, whole face dropped", "context": "Patient seems unsure about their condition", "file_id": "dr_SE0108", "chunk_id": 36, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It, it really doesn't right now", "context": "Patient does not feel their eyesight is currently limiting", "file_id": "dr_SE0108", "chunk_id": 36, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I couldn't see to drive or anything for three months", "context": "Patient experienced vision loss affecting daily activities", "file_id": "dr_SE0108", "chunk_id": 37, "original_category": "BARRIER - SDOH" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "No, my wife, I drove for a lot of years and I think she was forgetting how to drive", "context": "Patient has a supportive spouse", "file_id": "dr_SE0108", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Adaptation strategies", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "so I'm gonna put her back into condition to drive", "context": "Patient finds alternative solutions with spouse's help", "file_id": "dr_SE0108", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I'm going home, my eyes are hurting.", "context": "Patient expresses fear or reluctance towards eye treatment", "file_id": "dr_SE0108", "chunk_id": 38, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Pain in my eyes", "context": "Patient seems to lack understanding of their condition, focusing on immediate symptoms", "file_id": "dr_SE0108", "chunk_id": 38, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I'm going home, my eyes are hurting.", "context": "Patient expresses emotional distress due to eye pain", "file_id": "dr_SE0108", "chunk_id": 38, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "There ain't a way in hell I'm going", "context": "Patient expresses fear or reluctance to attend follow-up appointment", "file_id": "dr_SE0108", "chunk_id": 39, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I can see a big black spot right about here", "context": "Patient lacks understanding of their condition and its progression", "file_id": "dr_SE0108", "chunk_id": 39, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "everybody that we've dealt with", "context": "Patient expresses satisfaction with healthcare providers", "file_id": "dr_SE0108", "chunk_id": 39, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Excellent providers", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "everybody that we've dealt with have been right on their toes, right on the mark and are, are excellent people", "context": "Patient praises healthcare providers", "file_id": "dr_SE0108", "chunk_id": 40, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "everybody that we've dealt with have been right on their toes, right on the mark and are, are excellent people", "context": "Patient has positive experience with providers", "file_id": "dr_SE0108", "chunk_id": 40, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Excellent staff", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "The people there were excellent", "context": "Patient praises hospital staff", "file_id": "dr_SE0108", "chunk_id": 41, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Everybody in the hospital was excellent", "context": "Patient has good luck with hospitals", "file_id": "dr_SE0108", "chunk_id": 41, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "everybody looked and says, 'Hey, it's pretty good.' The person who was gonna gimme the drugs come in and says, 'No, we're not having that today.'", "context": "Patient experiences inconsistent care from different providers", "file_id": "dr_SE0108", "chunk_id": 42, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "That's somebody looking out for me", "context": "Patient feels cared for by provider", "file_id": "dr_SE0108", "chunk_id": 42, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She says, 'We don't know the reaction to your bell palsy and what's going on with your system right now'", "context": "Patient receives clear explanation from provider", "file_id": "dr_SE0108", "chunk_id": 42, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "That's somebody looking out for me.", "context": "Patient feels supported by healthcare provider", "file_id": "dr_SE0108", "chunk_id": 43, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "So the people here have really been good.", "context": "Patient appreciates clear communication from providers", "file_id": "dr_SE0108", "chunk_id": 43, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I don't wanna make you worse.", "context": "Patient feels understood and cared for by provider", "file_id": "dr_SE0108", "chunk_id": 43, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Staying active", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you have to stay active, , to keep the blood sugar--", "context": "Patient emphasizes importance of physical activity for diabetes management", "file_id": "dr_TS1008(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "just stay positive of whatever you do", "context": "Patient recognizes the importance of a positive mindset in managing diabetes", "file_id": "dr_TS1008(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Depression anxiety", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "try not to let, , my eye situation get me, , , in the de-- , depressed stage", "context": "Patient acknowledges the risk of depression due to their eye condition", "file_id": "dr_TS1008(part1)", "chunk_id": 0, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Depression anxiety", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "try not to let, , my eye situation get me, , , in the de-- , depressed stage", "context": "Patient mentions avoiding depression due to eye condition", "file_id": "dr_TS1008(part1)", "chunk_id": 1, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "if my eye vision get-- , gets a little worse", "context": "Patient lacks clear understanding of disease progression", "file_id": "dr_TS1008(part1)", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "just stay positive of whatever you do", "context": "Patient emphasizes importance of staying positive", "file_id": "dr_TS1008(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you have to stay active, , to keep the blood sugar--", "context": "Patient prioritizes self-management of diabetes", "file_id": "dr_TS1008(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Awareness of changes", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "that's when, , you have to be aware of, , of the changes of your everyday routine", "context": "Patient recognizes importance of monitoring health changes", "file_id": "dr_TS1008(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "", "context": "No direct quote, but implied by the context that patient may not fully understand their condition", "file_id": "dr_WD0321", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "", "context": "No direct quote, but fear is a common barrier in similar contexts", "file_id": "dr_WD0321", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "", "context": "No direct quote, interview chunk does not provide sufficient information", "file_id": "dr_WD0321", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "mostly it's about portion control in eating and eating on a regular schedule", "context": "Patient understands importance of diet control", "file_id": "dr_LR0314", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Just keeping weight off and trying to get some exercise and eating", "context": "Patient takes proactive approach to managing diabetes", "file_id": "dr_LR0314", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I look at wounds", "context": "Patient is aware of signs of worsening diabetes", "file_id": "dr_LR0314", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I'm not so sure it has", "context": "Patient unsure about diabetes impact on eyes", "file_id": "dr_LR0314", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm not so sure it has", "context": "Patient does not perceive diabetes as affecting their eyes", "file_id": "dr_LR0314", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Self monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I look at wounds", "context": "Patient actively monitors their health", "file_id": "dr_LR0314", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I check my feet every day", "context": "Patient takes proactive steps to manage their diabetes", "file_id": "dr_LR0314", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I'm not so sure it has", "context": "Patient unsure about diabetes effect on eyes", "file_id": "dr_LR0314", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm not so sure it has", "context": "Patient does not perceive diabetes as affecting eyesight", "file_id": "dr_LR0314", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Right here at the I- WVU Eye Institute", "context": "Patient has access to local eye care services", "file_id": "dr_LR0314", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "the retinal issues, but not, not recently", "context": "Patient has received some education about retinal issues", "file_id": "dr_LR0314", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of mention", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "well, today I had my fields test, which is the flashing lights to see- ... how your peripheral vil- v- vision is.", "context": "Patient seems to understand the procedure but doesn't explicitly mention their understanding of DR progression", "file_id": "dr_LR0314", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Regular check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "so they check that on regularly", "context": "Patient receives regular check-ups for their eye condition", "file_id": "dr_LR0314", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Medication adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "in the morning and the evening", "context": "Patient is able to manage their medication regimen", "file_id": "dr_LR0314", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I had cataract surgery, I have new lenses, so it's pretty stable now", "context": "Patient feels their condition is stable", "file_id": "dr_LR0314", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Easy scheduling process", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Oh, absolutely. Quite easy", "context": "Patient finds scheduling appointments easy", "file_id": "dr_LR0314", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Adequate provider availability", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yeah, his availability is adequate for me", "context": "Patient feels their doctor's availability meets their needs", "file_id": "dr_LR0314", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know at this point because I had cataract surgery, I have new lenses, so it's pretty stable now", "context": "Patient lacks understanding of their condition", "file_id": "dr_LR0314", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "And I sat for an hour today, close to an hour waiting for him", "context": "Patient experiences long wait time to see doctor", "file_id": "dr_LR0314", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I schedule my appointments around his open calendar", "context": "Patient has to work around doctor's availability for scheduling", "file_id": "dr_LR0314", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "Spread thin here at the hospital", "context": "Patient implies that doctor may be overworked or unavailable", "file_id": "dr_LR0314", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "his availability is adequate for me", "context": "Patient feels that doctor's availability meets their needs", "file_id": "dr_LR0314", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "At least 30 minutes generally", "context": "Patient experiences long wait times", "file_id": "dr_LR0314", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it's just scheduling around my work schedule", "context": "Patient has difficulty scheduling appointments around work", "file_id": "dr_LR0314", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "the script went south on me", "context": "Patient had issues with prescription, possibly due to lack of access", "file_id": "dr_LR0314", "chunk_id": 9, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "the script went south on me", "context": "Patient implies financial issue with prescription", "file_id": "dr_LR0314", "chunk_id": 9, "original_category": "BARRIER - SDOH" }, { "code": "Lack of health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I haven't ... I used to wear 'em freq- all the time, but now I've just gotten grown used to not wearing sunglasses", "context": "Patient lacks knowledge about eye protection", "file_id": "dr_LR0314", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No supplements taken", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No", "context": "Patient does not take vitamins for eye health", "file_id": "dr_LR0314", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Inadequate eye rest", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "not directly", "context": "Patient does not prioritize eye rest", "file_id": "dr_LR0314", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible work environment", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'm working with papers and then, and typing and-", "context": "Patient has flexible work setup", "file_id": "dr_LR0314", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Eye care routine", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So it seems the one thing you really emphasize for your eyecare is eyedrops", "context": "Patient has established eye care habit", "file_id": "dr_LR0314", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "we talked about it. But, , Dr. Palko is the, the cataract guy, so-", "context": "Patient seems unclear about their doctor's role in diabetes care", "file_id": "dr_LR0314", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider expertise", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Dr. Palko is the, the cataract guy", "context": "Patient acknowledges doctor's specialization", "file_id": "dr_LR0314", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Urgency to act", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "He, he said, 'You need to do this sooner than later.'", "context": "Doctor's advice prompted patient to take action", "file_id": "dr_LR0314", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Discomfort discussing issues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Not at all. I mean, I mean, I don't have any problems with-", "context": "Patient feels uncomfortable talking about diabetes-related eye problems", "file_id": "dr_LR0314", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of questions", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Sometimes", "context": "Patient does not always ask questions to their doctor", "file_id": "dr_LR0314", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I feel comfortable with my doctors", "context": "Patient feels at ease with their healthcare providers", "file_id": "dr_LR0314", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "we talked about the glasses and the-", "context": "Patient and provider engage in open discussion", "file_id": "dr_LR0314", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I thought there’s extremely good care here at the Eye Institute", "context": "Patient expresses satisfaction with care received", "file_id": "dr_LR0314", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "we- ... talked about the glasses and the- ... progressive lenses that I use", "context": "Patient discusses conversation with doctor about treatment", "file_id": "dr_LR0314", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. ... in his opinion, larger's better or taller's better with progressives", "context": "Doctor provides personalized advice to patient", "file_id": "dr_LR0314", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't think it is a risk at this point", "context": "Patient underestimates diabetes risk", "file_id": "dr_LR0314", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't think it is a risk at this point", "context": "Patient feels no immediate need for follow-up", "file_id": "dr_LR0314", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I thought there's extremely good care here at the Eye Institute", "context": "Patient has trust in healthcare providers", "file_id": "dr_LR0314", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "do the things I'm supposed to do to be a good diabetic person", "context": "Patient has knowledge of self-care", "file_id": "dr_LR0314", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't, I really don't know", "context": "Patient unsure about diabetes impact on eyesight", "file_id": "dr_LR0314", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It's very good", "context": "Patient feels current vision is fine, no need to worry", "file_id": "dr_LR0314", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Avoidance due to fear", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I don't want- ... to worry about it so I don't think about it", "context": "Patient avoids thinking about potential vision loss due to fear", "file_id": "dr_LR0314", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of mention", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Just going from a world of mud to a world of color", "context": "Patient discusses improvement in vision but not follow-up", "file_id": "dr_LR0314", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Work environment", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I work in an archives and I work with old papers", "context": "Patient's job may expose them to dust, potentially irritating eyes", "file_id": "dr_LR0314", "chunk_id": 16, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "No codes directly", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Get dust and things or out in the yard maybe", "context": "Patient discusses potential eye irritants but not follow-up", "file_id": "dr_LR0314", "chunk_id": 16, "original_category": "NO BARRIER OR FACILITATOR" }, { "code": "Physician communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Physicians here are very good", "context": "Patient praises physician communication", "file_id": "dr_LR0314", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "well, I'm motivated", "context": "Patient self-reports being motivated for healthcare", "file_id": "dr_LR0314", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Self-motivation- ... is one of 'em", "context": "Patient mentions self-motivation as a factor for follow-up adherence", "file_id": "dr_LR0314", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I wanna be around my, for my wife and be able-", "context": "Patient mentions family as a motivator for follow-up adherence", "file_id": "dr_LR0314", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Just something I have to do and-", "context": "Patient shows a positive attitude towards follow-up appointments", "file_id": "dr_LR0314", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Good provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Physicians here are very good", "context": "Patient mentions good provider relationship as a facilitator", "file_id": "dr_LR0314", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think it's all positive, due to the quality of the care here", "context": "Patient has a positive experience with healthcare services", "file_id": "dr_LR0314", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Quality of care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "the quality of the care here", "context": "Patient appreciates the high-quality care at the Eye Institute", "file_id": "dr_LR0314", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think it's all positive, due to the quality of the care here", "context": "Patient implies a positive relationship with providers", "file_id": "dr_LR0314", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the MyChart thing is really great because", "context": "Patient finds online portal helpful", "file_id": "dr_LR0314", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Puts it, sends it to your phone and", "context": "Patient appreciates electronic reminders", "file_id": "dr_LR0314", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "they could stop the billing", "context": "Patient is frustrated with billing process", "file_id": "dr_LR0314", "chunk_id": 20, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Stop billing me for stuff", "context": "Patient is concerned about being billed", "file_id": "dr_LR0314", "chunk_id": 21, "original_category": "BARRIER - SDOH" }, { "code": "Self motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm pretty well- self-motivated", "context": "Patient takes initiative in managing diabetes", "file_id": "dr_LR0314", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "doctor told me, ask- every time he asked me, well, your AC- A1c is good, you don't need to worry about that", "context": "Patient lacks understanding of diabetes management", "file_id": "dr_LR0314", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of procedure", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "No, no one wants to prick their finger", "context": "Patient fears blood sugar monitoring", "file_id": "dr_LR0314", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Spousal support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My wife is there if I need some help", "context": "Patient has supportive spouse for daily care", "file_id": "dr_LR0314", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I participated in a diabetes education class", "context": "Patient attended diabetes education session", "file_id": "dr_LR0314", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they gave you pamphlets and a couple cookbooks", "context": "Patient received educational materials for self-management", "file_id": "dr_LR0314", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "they gave you- pamphlets and a couple cookbooks", "context": "Patient received educational materials", "file_id": "dr_LR0314", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My wife is- best friend", "context": "Patient has a supportive spouse", "file_id": "dr_LR0314", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have reached out through MyChart to the hospital", "context": "Patient can easily contact healthcare providers", "file_id": "dr_LR0314", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Pretty quick response", "context": "Patient experiences timely communication from nursing staff", "file_id": "dr_LR0314", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Helpful staff", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And helpful.", "context": "Patient finds nursing staff responsive", "file_id": "dr_LR0314", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive expectations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "just to get, make sure my pressures are where he wants them to be.", "context": "Patient has clear understanding of visit goals", "file_id": "dr_LR0314", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "if you're not everyone can come to this Eye Institute", "context": "Patient mentions limited access to the Eye Institute", "file_id": "dr_LR0314", "chunk_id": 26, "original_category": "BARRIER - SDOH" }, { "code": "Poor care elsewhere", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I don't think that they do the dilation that they should when, when you go to the-", "context": "Patient expresses concern about quality of care at other facilities", "file_id": "dr_LR0314", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "being a diabetic is my entrée into the hospital", "context": "Patient has access to hospital care due to diabetes", "file_id": "dr_LR0314", "chunk_id": 26, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it's a long haul to get here", "context": "Patient mentions distance as a challenge", "file_id": "dr_LR0314", "chunk_id": 27, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I wish there was more satellite institutes or something", "context": "Patient expresses desire for more accessible care options", "file_id": "dr_LR0314", "chunk_id": 27, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I wish there was more satellite institutes or something", "context": "Patient suggests having more providers in different locations would be helpful", "file_id": "dr_LR0314", "chunk_id": 27, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "what I could see, , a month ago, , I'm having problems, , seeing it now", "context": "Patient expresses uncertainty about their condition", "file_id": "dr_TS1008(part2)", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Dr. G. told me that, , my eye is swelling a little bit", "context": "Patient mentions provider's clear explanation", "file_id": "dr_TS1008(part2)", "chunk_id": 0, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Treatment adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "he told me to, , to put in an extra drop of, , steroids with the--", "context": "Patient understands and follows treatment instructions", "file_id": "dr_TS1008(part2)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. G. told me that, , my eye is swelling a little bit", "context": "Patient has access to a provider for guidance", "file_id": "dr_TS1008(part2)", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't know", "context": "Patient unaware of changes in their eyes", "file_id": "dr_TS1008(part2)", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of cure", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "they do not have a cure for glaucoma", "context": "Patient's understanding of their condition", "file_id": "dr_TS1008(part2)", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Reliance on treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "the only thing I have to, , rely on is the, the eye drops", "context": "Patient's reliance on medication", "file_id": "dr_TS1008(part2)", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Here. S1: 01:51 You just-- you do them here? S2: 01:53 Yes", "context": "Patient's access to care", "file_id": "dr_TS1008(part2)", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I always come here", "context": "Patient implies limited options for healthcare", "file_id": "dr_TS1008(part2)", "chunk_id": 3, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Mike-- he'd give me some eye drops and he'll take my pressure", "context": "Patient has a familiar and accessible provider", "file_id": "dr_TS1008(part2)", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Mike-- he'd give me some eye drops and he'll take my pressure", "context": "Patient seems to have a positive relationship with provider Mike", "file_id": "dr_TS1008(part2)", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Oh, , I don't know. Every, every four to six months, I think.", "context": "Patient unsure about recommended follow-up frequency", "file_id": "dr_TS1008(part2)", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Mike-- he'd give me some eye drops and he'll take my pressure.", "context": "Patient mentions provider by name, indicating familiarity and comfort", "file_id": "dr_TS1008(part2)", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And they look, , behind my, , my eye--", "context": "Patient describes prompt and thorough care from providers", "file_id": "dr_TS1008(part2)", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Morning Availability", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "As long have them done in the morning, it's good", "context": "Patient prefers morning appointments", "file_id": "dr_TS1008(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Flexible Scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "if they're available in the morning, that's good", "context": "Patient appreciates flexible scheduling options", "file_id": "dr_TS1008(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider Accommodation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm grateful for that", "context": "Patient feels accommodated by provider", "file_id": "dr_TS1008(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Probably getting here.", "context": "Patient mentions difficulty in receiving eye care due to transportation", "file_id": "dr_TS1008(part2)", "chunk_id": 6, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "my sister-- she makes the, , travel arrangements for me.", "context": "Patient has family support for transportation to clinic", "file_id": "dr_TS1008(part2)", "chunk_id": 6, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "if they're available in the morning, that's good. And-- but if I have to do them in the afternoon, then, , hey, I just gotta do what they say--", "context": "Patient has limited control over appointment scheduling", "file_id": "dr_TS1008(part2)", "chunk_id": 6, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "depends on how many cars they got on the road, who, who they can afford, -- to let loose to come to Morgantown", "context": "Patient discusses transportation challenges", "file_id": "dr_TS1008(part2)", "chunk_id": 7, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "she's, she's, she's pretty nice", "context": "Patient praises provider's demeanor", "file_id": "dr_TS1008(part2)", "chunk_id": 7, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So she got me there in no time", "context": "Patient appreciates provider's efficiency", "file_id": "dr_TS1008(part2)", "chunk_id": 7, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "hopefully, things will turn out for the better down the line", "context": "Patient seems uncertain about disease progression", "file_id": "dr_TS1008(part2)", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I try to keep the lights, dim", "context": "Patient takes initiative to protect eyes", "file_id": "dr_TS1008(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self care practices", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take naps in the afternoon sometime", "context": "Patient prioritizes rest for eye health", "file_id": "dr_TS1008(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Adherence to treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take one-- the steroid drop one time", "context": "Patient follows medication regimen", "file_id": "dr_TS1008(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I-- , I s-- , all I know is that my mom had it and, --", "context": "Patient lacks knowledge about diabetic retinopathy", "file_id": "dr_TS1008(part2)", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "they just told me that there's no cure for glaucoma, and whoever, , have glaucoma, , if you don't take care of it, , , , you can go blind", "context": "Patient fears losing vision due to diabetes", "file_id": "dr_TS1008(part2)", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, I feel good", "context": "Patient feels comfortable talking to doctor", "file_id": "dr_TS1008(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "they just told me that there's no cure for glaucoma, and whoever, , have glaucoma, , if you don't take care of it, , , , you can go blind", "context": "Patient receives information about eye condition", "file_id": "dr_TS1008(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Motivation to care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So I wanna take care of my eyes--", "context": "Patient wants to manage eye health", "file_id": "dr_TS1008(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I feel good", "context": "Patient feels comfortable talking to doctor", "file_id": "dr_TS1008(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "You have to know all the information", "context": "Patient values open communication with doctor", "file_id": "dr_TS1008(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "You have to know all the information", "context": "Patient recognizes importance of being informed", "file_id": "dr_TS1008(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So you can't keep nothing away", "context": "Patient takes active role in healthcare", "file_id": "dr_TS1008(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of control", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't have no control over that", "context": "Patient feels powerless over diabetes progression", "file_id": "dr_TS1008(part2)", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Acceptance", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "whatever happens, happens", "context": "Patient shows resignation to potential vision loss", "file_id": "dr_TS1008(part2)", "chunk_id": 11, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They explain it to me", "context": "Patient appreciates clear explanations from providers", "file_id": "dr_TS1008(part2)", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient comfort", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I feel comfortable with that", "context": "Patient feels at ease with provider-patient interaction", "file_id": "dr_TS1008(part2)", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I can still see a little bit", "context": "Patient feels they can still see and may not prioritize follow-ups", "file_id": "dr_TS1008(part2)", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family health history", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "My mom had glaucoma", "context": "Patient's family health history may motivate them to attend follow-ups", "file_id": "dr_TS1008(part2)", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Acceptance of condition", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It's something that has to be done", "context": "Patient accepts their condition and the need for follow-ups", "file_id": "dr_TS1008(part2)", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Resignation to treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I just gotta deal with whatever comes", "context": "Patient feels overwhelmed and resigned to their treatment", "file_id": "dr_TS1008(part2)", "chunk_id": 12, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Need for help", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I need-- I need their help", "context": "Patient recognizes the importance of healthcare provider's assistance", "file_id": "dr_TS1008(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Dependence on providers", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "the only ones I know that can, , help my situation", "context": "Patient relies on healthcare providers for support", "file_id": "dr_TS1008(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Willpower", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Willpower", "context": "Patient attributes their adherence to personal motivation", "file_id": "dr_TS1008(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of poor outcome", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "when I don't get it right, I'll be, , down", "context": "Patient experiences emotional distress when considering potential negative outcomes", "file_id": "dr_TS1008(part2)", "chunk_id": 13, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "on the outside looking in", "context": "Patient feels uninformed about their condition", "file_id": "dr_TS1008(part2)", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Give them every knowledge that", "context": "Patient suggests providing education to improve care experience", "file_id": "dr_TS1008(part2)", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "make them feel comfortable", "context": "Patient values empathetic providers for better care experience", "file_id": "dr_TS1008(part2)", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "the nurse who comes in", "context": "Patient receives support from a home nurse", "file_id": "dr_TS1008(part2)", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My friends and family", "context": "Patient has people to share worries with", "file_id": "dr_TS1008(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health Education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I participated in an education class for diabetes", "context": "Patient received diabetes education", "file_id": "dr_TS1008(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible Providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the nurse who comes in. Miss Theresa", "context": "Patient has access to a helpful nurse", "file_id": "dr_TS1008(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Supportive Network", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Brian. Theresa", "context": "Patient has people to call for advice", "file_id": "dr_TS1008(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Brian. Theresa. Mark. John.", "context": "Patient mentions having people to call for advice", "file_id": "dr_TS1008(part2)", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health Education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "getting all the knowledge that I can", "context": "Patient expects to gain knowledge from visit", "file_id": "dr_TS1008(part2)", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I just pray, , each night, and when I wake up in the morning, I see a little bit better than--", "context": "Patient lacks understanding of their condition", "file_id": "dr_TS1008(part2)", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "getting all the knowledge that I can", "context": "Patient seeks health education", "file_id": "dr_TS1008(part2)", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of problems", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No problems", "context": "Patient reports ease with managing diabetes", "file_id": "dr_RC0426", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Keeping it under control", "context": "Patient prioritizes controlling diabetes", "file_id": "dr_RC0426", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "watching what I eat", "context": "Patient learned to manage diet", "file_id": "dr_RC0426", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they put me to watch my sodium", "context": "Patient received guidance from healthcare providers", "file_id": "dr_RC0426", "chunk_id": 0, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Access to care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I was in the hospital a couple of months ago", "context": "Patient has access to hospital care", "file_id": "dr_RC0426", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Just keep my eye appointments and watch-- mainly, it's just he has to watch the fluid and the blood in the eyes, I guess", "context": "Patient seems uncertain about doctor's instructions", "file_id": "dr_RC0426", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider instruction", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Just keep my eye appointments and watch-- mainly, it's just he has to watch the fluid and the blood in the eyes, I guess", "context": "Doctor provides clear instructions for patient care", "file_id": "dr_RC0426", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Watch your sugar, watch what you eat, , exercise", "context": "Doctor educates patient on diabetes management", "file_id": "dr_RC0426", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient engagement", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And that has been the biggest help. ... Yeah, because I've lost 30-some pounds", "context": "Patient takes active role in managing diabetes", "file_id": "dr_RC0426", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Not really", "context": "Patient lacks detailed information about diabetes effects on eyes", "file_id": "dr_RC0426", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Not really", "context": "Doctors did not elaborate on diabetes effects on eyes", "file_id": "dr_RC0426", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Here at the Eye Institute", "context": "Patient has access to eye care services at the institute", "file_id": "dr_RC0426", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Here at the Eye Institute", "context": "Patient mentions getting eye exams at a specific institute, implying accessibility", "file_id": "dr_RC0426", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "and then he'll look at them too", "context": "Patient describes a clear process of examination and communication with the doctor", "file_id": "dr_RC0426", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "he's been bringing me back every", "context": "Patient mentions a schedule for follow-up appointments, implying a reminder system", "file_id": "dr_RC0426", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient navigation services", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "the little guy checks you-- whoever brings you back there", "context": "Patient describes being guided through the examination process by staff", "file_id": "dr_RC0426", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "No Transportation Issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "No", "context": "Patient does not experience transportation problems", "file_id": "dr_RC0426", "chunk_id": 4, "original_category": "BARRIER - SDOH" }, { "code": "No Scheduling Difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "No. I've never had a problem with that.", "context": "Patient does not have issues with scheduling appointments", "file_id": "dr_RC0426", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible Providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "No. I've never had a problem with that.", "context": "Patient finds it easy to schedule appointments, implying accessible providers", "file_id": "dr_RC0426", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Good Doctor Availability", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So your doctor's availability has been good? You're able to-- no issues with scheduling? S2: 04:43 No.", "context": "Patient experiences good availability of doctors for appointments", "file_id": "dr_RC0426", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "No challenges", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I don't think so.", "context": "Patient reports no challenges in receiving eye care", "file_id": "dr_RC0426", "chunk_id": 5, "original_category": "BARRIER - None" }, { "code": "Diabetes management challenge", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "being off of it, being good with it, and then not caring sometimes.", "context": "Patient struggles with managing diabetes", "file_id": "dr_RC0426", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think they do pretty good.", "context": "Patient is satisfied with their eye care experience", "file_id": "dr_RC0426", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Adherence to treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I do those.", "context": "Patient adheres to prescribed eye drop treatment", "file_id": "dr_RC0426", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I do multivitamins.", "context": "Patient takes supplements for their health", "file_id": "dr_RC0426", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I do multivitamins", "context": "Patient lacks understanding of proper eye care", "file_id": "dr_RC0426", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "My eyes don't get tired by the time you're done", "context": "Patient does not feel need to prioritize eye care", "file_id": "dr_RC0426", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible treatment", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I use that", "context": "Patient has access to necessary medication for dry eyes", "file_id": "dr_RC0426", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Just the drops I'm supposed to take, the ketorola-ketorolac", "context": "Patient understands and follows medication instructions", "file_id": "dr_RC0426", "chunk_id": 6, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know exactly", "context": "Patient lacks knowledge about diabetes-related eye problems", "file_id": "dr_RC0426", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Just the fear of it getting worse", "context": "Patient expresses fear about disease progression", "file_id": "dr_RC0426", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "None. Yeah. S1: 07:57 Oh, you're very comfortable, so no problems? S2: 08:00 Yeah", "context": "Patient feels comfortable discussing concerns with eye doctor", "file_id": "dr_RC0426", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "if you don't watch your sugars and you don't watch what you eat, it could be very bad", "context": "Patient has some knowledge about diabetes management", "file_id": "dr_RC0426", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Just the fear of it getting worse", "context": "Patient expresses fear about DR progression", "file_id": "dr_RC0426", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of patient-provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I don't think I usually ask any questions", "context": "Patient rarely asks questions to provider", "file_id": "dr_RC0426", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Limited health literacy", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "if there's-- if he doesn't tell me, I'll ask if there is fluid buildup or whatever", "context": "Patient lacks knowledge about DR and relies on provider for information", "file_id": "dr_RC0426", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm pretty comfortable with too, so I don't think I'd have trouble talking to her about anything", "context": "Patient feels comfortable with diabetes doctor", "file_id": "dr_RC0426", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they tell me everything I should be doing", "context": "Patient feels supported by providers' guidance", "file_id": "dr_RC0426", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I guess because of how much I guess I've gone down with that over the years since I've had it", "context": "Patient lacks clear understanding of diabetes impact on vision", "file_id": "dr_RC0426", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Now I would say not very likely", "context": "Patient feels less urgent about vision loss due to current condition", "file_id": "dr_RC0426", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "since you've made the changes, you feel that?", "context": "Patient has received health education leading to behavior change", "file_id": "dr_RC0426", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm watching my sodium-- as much as I can, and then I try to watch the water or stuff that I drink", "context": "Patient is managing diabetes through lifestyle changes", "file_id": "dr_RC0426", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Now I would say not very likely", "context": "Patient underestimates risk of vision loss due to diabetes", "file_id": "dr_RC0426", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "How likely? Now I would say not very likely", "context": "Patient may be downplaying risk due to fear", "file_id": "dr_RC0426", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I have a hard time, -- when they do the eye exam and you have to look up on the wall and see those letters", "context": "Patient struggles with understanding medical tests", "file_id": "dr_RC0426", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I've had them both removed", "context": "Patient has received necessary treatments, implying access to care", "file_id": "dr_RC0426", "chunk_id": 10, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Since you've made the changes, you feel that?", "context": "Provider is engaged and supportive, facilitating open discussion", "file_id": "dr_RC0426", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My number one answer would be because of the doctor-- the doctors that I have", "context": "Patient attributes good experience to their doctors", "file_id": "dr_RC0426", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Probably talk to you more", "context": "Patient values doctor's communication style", "file_id": "dr_RC0426", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "because of the doctor-- the doctors that I have", "context": "Patient attributes good experience to their doctors", "file_id": "dr_RC0426", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they're really good about that", "context": "Patient appreciates doctors' ability to explain in plain language", "file_id": "dr_RC0426", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I know I need to, and I know I need to do it for my health", "context": "Patient understands importance of regular healthcare services", "file_id": "dr_RC0426", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible technology", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "MyChart, I-- I use it a lot", "context": "Patient finds MyChart helpful for managing appointments", "file_id": "dr_RC0426", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Yeah, as far as appointment reminders", "context": "Patient uses MyChart for appointment reminders", "file_id": "dr_RC0426", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider attitude", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "a lot of doctors just want to come in and leave", "context": "Patient perceives some doctors as having a poor attitude", "file_id": "dr_RC0426", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of provider time", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "They don't take time", "context": "Patient feels doctors do not spend enough time with them", "file_id": "dr_RC0426", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my husband", "context": "Patient has a supportive spouse who helps with diabetes management", "file_id": "dr_RC0426", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Spousal support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my husband... he's pretty good about, 'If you don't eat-- if you're eating what you're not supposed to--'", "context": "Patient receives help from spouse with daily diabetes care", "file_id": "dr_RC0426", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Medication reminders", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "he'll ask sometimes, 'Did you take this? Did you take that?'", "context": "Patient receives medication reminders from spouse", "file_id": "dr_RC0426", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Oh, yes... years ago, but three or four", "context": "Patient participated in diabetes education class", "file_id": "dr_RC0426", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of education impact", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It didn't work", "context": "Patient did not find diabetes education class helpful", "file_id": "dr_RC0426", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of motivation", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Motivation & Self-Care Barriers", "quote": "I didn't want to change my diet. I didn't want to, , do the things I should be doing.", "context": "Patient lacks motivation to make lifestyle changes", "file_id": "dr_RC0426", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I do, but it would be my sister.", "context": "Patient has social support from family member", "file_id": "dr_RC0426", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Emotional support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yes. S1: 17:31 --you-- S2: 17:32 Yes.", "context": "Patient feels supported by family member", "file_id": "dr_RC0426", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Practical support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My husband.", "context": "Patient has practical support from spouse", "file_id": "dr_RC0426", "chunk_id": 15, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Health advice support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My sister", "context": "Patient has someone to ask for health advice", "file_id": "dr_RC0426", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My husband", "context": "Patient has a supportive spouse", "file_id": "dr_RC0426", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family Advice", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "My sister", "context": "Patient has a supportive sibling for general advice", "file_id": "dr_RC0426", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Doctor Advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Except from your doctors?", "context": "Patient relies on doctors for advice", "file_id": "dr_RC0426", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Limited Understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Just getting good news", "context": "Patient may not fully understand the importance of follow-up", "file_id": "dr_RC0426", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No Perceived Urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Not really", "context": "Patient does not feel their eyesight currently limits them", "file_id": "dr_RC0426", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I was afraid this was getting worse", "context": "Patient expresses fear about potential worsening of condition", "file_id": "dr_RC0426", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive expectations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Just getting good news", "context": "Patient has positive expectations for their eye care visit", "file_id": "dr_RC0426", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He said it was fine", "context": "Provider communicates effectively with patient", "file_id": "dr_RC0426", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of self-monitoring", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't check myself, because I use my A1C", "context": "Patient does not regularly monitor blood sugar levels", "file_id": "dr_SR0511", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider guidance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've discussed this with my doctor, I don't check", "context": "Patient follows provider's advice on self-monitoring", "file_id": "dr_SR0511", "chunk_id": 0, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Medication adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take medication", "context": "Patient is taking prescribed medication for diabetes", "file_id": "dr_SR0511", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I use my A1C", "context": "Patient understands and uses A1C results to guide care", "file_id": "dr_SR0511", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "So, but as of right now, I don't check weekly or even daily because my A1C is good", "context": "Patient doesn't feel the need to monitor closely due to good A1C levels", "file_id": "dr_SR0511", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I watch how I'm feeling, if I get lightheaded, I will go check it.", "context": "Patient relies on physical symptoms to manage diabetes", "file_id": "dr_SR0511", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Making sure I take my medication.", "context": "Patient prioritizes medication adherence", "file_id": "dr_SR0511", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I watch how I'm feeling, if I get lightheaded, I will go check it.", "context": "Patient actively monitors physical symptoms", "file_id": "dr_SR0511", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Because usually I don't crave it all the time.", "context": "Patient may not fully understand diabetes management", "file_id": "dr_SR0511", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Physical signs", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "If I feel at all that I'm lightheaded or I'm really craving sugar, it makes me go check my", "context": "Patient recognizes physical signs of potential issues", "file_id": "dr_SR0511", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't think the torn retina is because of the, of, of my diabetes", "context": "Patient unsure about relationship between diabetes and eye condition", "file_id": "dr_SR0511", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I know that I don't, , I know that the glaucoma is, and I don't know if there's a name for what I have right now", "context": "Patient uncertain about diagnosis and treatment", "file_id": "dr_SR0511", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "now, it's only affected one eye. So my doctor wasn't sure if it was diabetes, diabetic related, but when I went to the, another, , I think it was my ENT, they were , yeah, it's definitely diabetic related, so...", "context": "Patient has trust in provider's diagnosis", "file_id": "dr_SR0511", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I know that I don't, , I know that the glaucoma is, and I don't know if there's a name for what I have right now", "context": "Patient lacks knowledge about condition, needs health education", "file_id": "dr_SR0511", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "now, it's only affected one eye. So my doctor wasn't sure if it was diabetes, diabetic related, but when I went to the, another, , I think it was my ENT, they were , yeah, it's definitely diabetic related, so...", "context": "Patient has access to multiple providers for diagnosis", "file_id": "dr_SR0511", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I had a bleed. I think they called it a stroke, which is just an eye stroke, not a heart stroke, but an eye stroke", "context": "Patient shows limited knowledge of diabetic retinopathy and its effects", "file_id": "dr_SR0511", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I had a bleed. I think they called it a stroke, which is just an eye stroke, not a heart stroke, but an eye stroke", "context": "Patient's experience with a bleed and subsequent diagnosis may indicate fear", "file_id": "dr_SR0511", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And while I was with Dr. G, we found that I had, a torn retina", "context": "Patient received care from Dr. G, indicating access to healthcare", "file_id": "dr_SR0511", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And while I was with Dr. G, we found that I had, a torn retina", "context": "Patient's interaction with Dr. G suggests a positive relationship", "file_id": "dr_SR0511", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of passion", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "the passion I used to feel for reading a book, I don't have it", "context": "Patient expresses decreased motivation due to health changes", "file_id": "dr_SR0511", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Brain fog", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'll miss a whole chapter of a book because I just went brain fog", "context": "Patient experiences cognitive difficulties", "file_id": "dr_SR0511", "chunk_id": 5, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Loss of interest", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Motivation & Self-Care Barriers", "quote": "I don't actually have the feel of the book in my hand", "context": "Patient expresses loss of enjoyment in activities due to health changes", "file_id": "dr_SR0511", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Probably a year ago when I, when I scheduled a regular eye appointment to get new glasses", "context": "Patient was unaware of potential vision problems until incidentally discovered during routine appointment", "file_id": "dr_SR0511", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Incidental discovery", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "They found the stroke and sent me here", "context": "Patient received timely referral to specialist after unexpected diagnosis", "file_id": "dr_SR0511", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I think that was a, a, a really sweet find", "context": "Patient seems unaware of the severity of their condition", "file_id": "dr_SR0511", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Previous healthcare experience", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Dr. Pagali had done the laser surgery", "context": "Patient has had positive experiences with healthcare providers in the past", "file_id": "dr_SR0511", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Existing health condition", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "the glaucoma, I knew about the glaucoma", "context": "Patient has existing health conditions that may impact their perception of DR", "file_id": "dr_SR0511", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. Pagali had done the laser surgery", "context": "Patient has a established relationship with their healthcare provider", "file_id": "dr_SR0511", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I haven't spoken, , in depth", "context": "Patient lacks understanding about diabetes and eye health", "file_id": "dr_SR0511", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I mean, I feel that this place is very, very good", "context": "Patient has positive experience with healthcare provider", "file_id": "dr_SR0511", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I mean, I feel that this place is very, very good", "context": "Patient has access to healthcare services", "file_id": "dr_SR0511", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I haven't spoken, , in depth", "context": "Patient lacks in-depth knowledge about diabetes impact on eyes", "file_id": "dr_SR0511", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think Dr. G is very, very, , , he'll ask me questions", "context": "Patient appreciates engaging and inquiring provider", "file_id": "dr_SR0511", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "if I had questions, they would be answered", "context": "Patient feels confident in provider's ability to address concerns", "file_id": "dr_SR0511", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I mean, I feel that this place is very, very good", "context": "Patient has positive impression of healthcare facility", "file_id": "dr_SR0511", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. McNair, , does a really good job of keeping my diabetic, betes under control", "context": "Patient appreciates provider's efforts in managing diabetes", "file_id": "dr_SR0511", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "since I've went to Dr. McNair, I've got it under control", "context": "Patient feels comfortable with current provider", "file_id": "dr_SR0511", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "If I needed to, I could", "context": "Patient feels able to ask questions", "file_id": "dr_SR0511", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And I'm, I'm okay with what, I mean, what I know I'm, I'm fine", "context": "Patient feels informed and in control", "file_id": "dr_SR0511", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "there are no longer any eye doctors in Preston County", "context": "Patient mentions lack of local eye care providers", "file_id": "dr_SR0511", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I went to the eye doctor at the Walmart, on 219, right off the interstate", "context": "Patient found an accessible alternative for eye care", "file_id": "dr_SR0511", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "she immediately found the problem I was having", "context": "Patient praises provider's effective diagnosis and communication", "file_id": "dr_SR0511", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I feel very good, that she just immediately found the problem and took care of it", "context": "Patient feels positive about provider's care and attitude", "file_id": "dr_SR0511", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of technology", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "the eye doctor I had in Preston County, he was no longer there, didn't have that technology", "context": "Patient's previous doctor lacked necessary technology", "file_id": "dr_SR0511", "chunk_id": 12, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the doctor I'm going to now does have the newer technology", "context": "Patient's current doctor has necessary technology", "file_id": "dr_SR0511", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "But usually my glasses are pretty expensive", "context": "Patient mentions high cost of glasses due to bad vision", "file_id": "dr_SR0511", "chunk_id": 13, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I think, did they dilate me today? No, they didn't dilate me", "context": "Patient seems unsure about eye exam procedures", "file_id": "dr_SR0511", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Infrequent exams", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Probably two months ago", "context": "Patient had not had a dilated eye exam recently", "file_id": "dr_SR0511", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'll either go through, I think it's called Rennie, or I'll buy the glasses there", "context": "Patient mentions possible insurance coverage for glasses", "file_id": "dr_SR0511", "chunk_id": 13, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Regular check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It, well, I've been monthly", "context": "Patient believes in regular eye check-ups", "file_id": "dr_SR0511", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of self management", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm getting shots in my eyes and I definitely can't do that myself", "context": "Patient relies on healthcare providers for treatment", "file_id": "dr_SR0511", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "once I get this problem under control, I think I should go yearly", "context": "Patient believes less frequent visits are needed when condition is controlled", "file_id": "dr_SR0511", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider Relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm getting shots in my eyes", "context": "Patient receives regular treatment from provider", "file_id": "dr_SR0511", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've been monthly", "context": "Patient has access to regular appointments", "file_id": "dr_SR0511", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "So sometimes that's difficult and it has to be done in a four-week time", "context": "Patient experiences difficulty scheduling appointments", "file_id": "dr_SR0511", "chunk_id": 15, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Limited appointment times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "because I'm a teacher, I can only do after school", "context": "Patient has limited availability for appointments", "file_id": "dr_SR0511", "chunk_id": 15, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Just driving in Morgantown. (Laughs) I'm from rural Preston County, so... I gotta go to Morgantown", "context": "Patient experiences difficulty traveling to clinic due to rural location", "file_id": "dr_SR0511", "chunk_id": 16, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They've, they've totally accommodated me.", "context": "Patient feels supported by healthcare providers", "file_id": "dr_SR0511", "chunk_id": 16, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Appointment scheduling flexibility", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And they've always given me lots of options.", "context": "Patient appreciates flexible appointment scheduling", "file_id": "dr_SR0511", "chunk_id": 16, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Just driving in Morgantown. (Laughs) I'm from rural Preston County, so... I gotta go to Morgantown.", "context": "Patient faces challenges due to rural location", "file_id": "dr_SR0511", "chunk_id": 17, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "This, , doc, the WVU eye care is very prompt. I mean, I literally sat down for one minute and they called my name", "context": "Patient praises promptness of healthcare providers", "file_id": "dr_SR0511", "chunk_id": 17, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Prompt service", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "the WVU eye care is very prompt", "context": "Patient appreciates the efficiency of the clinic", "file_id": "dr_SR0511", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Short wait times", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I literally sat down for one minute and they called my name", "context": "Patient experiences minimal waiting time", "file_id": "dr_SR0511", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Efficient appointments", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm in and I'm out", "context": "Patient values the quick appointment process", "file_id": "dr_SR0511", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "Literally, when I go and say I'm here, for them to call my name and for me to get everything done and the shot in my eye is, is usually less than half an hour", "context": "Patient describes wait time as relatively short", "file_id": "dr_SR0511", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they literally found it and they literally took care of it right there", "context": "Patient appreciates prompt care from provider", "file_id": "dr_SR0511", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And they asked me if I wanted it done, I'm , 'Yes'", "context": "Patient engages in shared decision-making with provider", "file_id": "dr_SR0511", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I was thankful for that", "context": "Patient expresses gratitude towards provider", "file_id": "dr_SR0511", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And then they just took care of it", "context": "Patient received immediate care", "file_id": "dr_SR0511", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And they asked me if I wanted it done, I'm , 'Yes'", "context": "Patient felt heard by provider", "file_id": "dr_SR0511", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "so what are some ways you take care of your eyes?", "context": "Patient is educated on eye care", "file_id": "dr_SR0511", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Light sensitivity", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm just really, really sensitive to the light", "context": "Patient experiences discomfort due to light sensitivity", "file_id": "dr_SR0511", "chunk_id": 20, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I didn't know I could", "context": "Patient unaware of potential supplements for eye health", "file_id": "dr_SR0511", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Light sensitivity", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm just really, really sensitive to the light", "context": "Patient experiences discomfort due to light sensitivity after dilation", "file_id": "dr_SR0511", "chunk_id": 21, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of knowledge", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't know I could", "context": "Patient unaware of potential supplements for eye health", "file_id": "dr_SR0511", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I didn't even think about it", "context": "Patient lacks awareness of potential treatments or discussions with doctor", "file_id": "dr_SR0511", "chunk_id": 22, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "definitely something you could discuss with your doctor", "context": "Patient encouraged to discuss supplements with doctor", "file_id": "dr_SR0511", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "(laughs)", "context": "Interviewer shows understanding and empathy towards patient's lack of knowledge", "file_id": "dr_SR0511", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they haven't replied", "context": "Patient requested better computer for work due to vision issues but was ignored", "file_id": "dr_SR0511", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I've requested from my special-ed director, a better computer", "context": "Patient needs better computer for work due to vision issues but may not be able to afford it", "file_id": "dr_SR0511", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "Education/health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "Which I think affects the, the eyes", "context": "Patient lacks understanding of how diabetes medications affect their eyes", "file_id": "dr_SR0511", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Which I think affects the, the eyes", "context": "Patient lacks understanding of how diabetes medications affect their eyes", "file_id": "dr_SR0511", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it's very hard to type on my computer and see the screen when I'm that close up", "context": "Patient struggles with daily activities due to vision issues", "file_id": "dr_SR0511", "chunk_id": 23, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I've requested from my special-ed director, a better computer", "context": "Patient receives support from special-ed director for work accommodations", "file_id": "dr_SR0511", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I take stuff for my diabetes", "context": "Patient is aware of their diabetes management and takes medications", "file_id": "dr_SR0511", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "No, just the fact that having diabetes can be very bad for your eyes", "context": "Patient lacks detailed knowledge about diabetes effects on vision", "file_id": "dr_SR0511", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They have told me, I am aware", "context": "Patient has received some health education from doctors", "file_id": "dr_SR0511", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've done what I can to take care of the glaucoma", "context": "Patient takes initiative in managing their condition", "file_id": "dr_SR0511", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "No, just the fact that having diabetes can be very bad for your eyes", "context": "Patient lacks detailed knowledge about diabetes effects on eyes", "file_id": "dr_SR0511", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "if they say this needs to be done, I do it", "context": "Patient trusts provider's recommendations", "file_id": "dr_SR0511", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They have told you? What are, do you remember anything specific that they said to you?", "context": "Patient receives health information from providers", "file_id": "dr_SR0511", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Adherence to treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I do do the drops in my eyes twice a day", "context": "Patient follows prescribed treatment regimen", "file_id": "dr_SR0511", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "if they say this needs to be done, I do it", "context": "Patient feels heard and understood by provider", "file_id": "dr_SR0511", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of symptoms", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "because it never hurt", "context": "Patient doesn't feel urgency due to lack of symptoms", "file_id": "dr_SR0511", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they're aware of my issue and I haven't had to ask them", "context": "Patient feels provider is proactive in their care", "file_id": "dr_SR0511", "chunk_id": 26, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I guess I would tell them any symptoms I had", "context": "Patient feels comfortable sharing information with provider", "file_id": "dr_SR0511", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I really wanna continue to drive. And, and live a fulfilled life", "context": "Patient is motivated to manage their condition", "file_id": "dr_SR0511", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't even know I had it", "context": "Patient was unaware of their condition", "file_id": "dr_SR0511", "chunk_id": 27, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it never hurt", "context": "Patient did not feel symptoms and therefore didn't perceive a need for follow-up", "file_id": "dr_SR0511", "chunk_id": 27, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what supplements I could do", "context": "Patient is interested in learning about self-care and prevention", "file_id": "dr_SR0511", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they become aware of it before I know if there's issues", "context": "Patient feels their provider is proactive and caring", "file_id": "dr_SR0511", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I didn't know about the fish oil", "context": "Patient is learning about new health information and seeking knowledge", "file_id": "dr_SR0511", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I didn't know there were eye, eye supplements", "context": "Patient lacks knowledge about available treatments", "file_id": "dr_SR0511", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "how serious you think the vision loss is because of diabetes", "context": "Patient unsure about severity of vision loss due to diabetes", "file_id": "dr_SR0511", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I haven't really had diabetic tests for my eyes yet or anything, hardly", "context": "Patient has limited access to eye care services", "file_id": "dr_WS1217", "chunk_id": 0, "original_category": "BARRIER - SDOH" }, { "code": "Health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I haven't really had diabetic tests for my eyes yet or anything, hardly", "context": "Patient lacks understanding of diabetes eye care", "file_id": "dr_WS1217", "chunk_id": 0, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I haven't really had diabetic tests for my eyes yet or anything, hardly", "context": "Patient lacks knowledge about diabetes retinopathy", "file_id": "dr_WS1217", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I haven't really had diabetic tests for my eyes yet or anything, hardly", "context": "Patient lacks knowledge about diabetes eye care", "file_id": "dr_WS1217", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "since I had my appointment last-- on the 6th-- ... One of the lenses are starting to fall-- fog", "context": "Patient may not prioritize follow-up due to current vision", "file_id": "dr_WS1217", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She always told me to be careful what I do, what I-- ... the way I have to watch and look at things and stuff and everything", "context": "Patient receives clear guidance from doctor", "file_id": "dr_WS1217", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "He's gonna tell me what's going on and everything", "context": "Patient has access to specialist for follow-up care", "file_id": "dr_WS1217", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Not too much. This is the first I had trouble with them.", "context": "Patient seems unsure about their diabetic retinopathy condition", "file_id": "dr_WS1217", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I haven't had too much talk with the doctor yet about it.", "context": "Patient feels they have not discussed their condition enough with their doctor", "file_id": "dr_WS1217", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "why I, I have the meeting to-- the surgeon today", "context": "Patient has an upcoming appointment with a specialist", "file_id": "dr_WS1217", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She always told me to be careful what I do", "context": "Patient mentions their doctor's advice, indicating a positive interaction", "file_id": "dr_WS1217", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I haven't had too much talk with the doctor yet about it", "context": "Patient lacks knowledge about their condition", "file_id": "dr_WS1217", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I haven't had too much talk with the doctor yet about it", "context": "Patient reports limited discussion with doctor", "file_id": "dr_WS1217", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I go to Dr. M all the time", "context": "Patient has a regular provider", "file_id": "dr_WS1217", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I go to Dr. M all the time", "context": "Patient has a regular and accessible provider", "file_id": "dr_WS1217", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I go to Dr. M all the time", "context": "Patient has a regular and trusting provider", "file_id": "dr_WS1217", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider recommendation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Dr. M says I should have it done once a year", "context": "Patient follows provider's advice for follow-up", "file_id": "dr_WS1217", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Previous experience", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I was prepared for it because I had it done quite a few times", "context": "Patient is empowered by previous experiences", "file_id": "dr_WS1217", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They were real good", "context": "Patient finds provider's availability satisfactory", "file_id": "dr_WS1217", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. M says I should have it done once a year", "context": "Patient mentions provider's recommendation, implying trust", "file_id": "dr_WS1217", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They just tell me watch what I do and stuff", "context": "Patient receives guidance from provider", "file_id": "dr_WS1217", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of challenges", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No.", "context": "Patient does not report any challenges", "file_id": "dr_WS1217", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No suggestions", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "None, really.", "context": "Patient has no suggestions for improvement", "file_id": "dr_WS1217", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Self care habits", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "get up every morning and check and make sure they're not red and stuff--", "context": "Patient takes initiative in monitoring eye health", "file_id": "dr_WS1217", "chunk_id": 6, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Use of protective glasses", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "These are tinted glasses that-- he has given me", "context": "Patient uses protective glasses as recommended", "file_id": "dr_WS1217", "chunk_id": 6, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Adherence to medication", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take, , vitamin B3. ... I take, , metformin.", "context": "Patient adheres to prescribed medications", "file_id": "dr_WS1217", "chunk_id": 6, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "And I couldn't afford it, to be honest with you", "context": "Patient cannot afford medication due to high cost", "file_id": "dr_WS1217", "chunk_id": 7, "original_category": "BARRIER - SDOH" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "The prices of that Jardiance is outrageous", "context": "Patient finds medication cost to be excessively high", "file_id": "dr_WS1217", "chunk_id": 7, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Out-of-pocket costs", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "it was $781 that I had to pay out of my pocket", "context": "Patient has high out-of-pocket expenses for medication", "file_id": "dr_WS1217", "chunk_id": 7, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Financial assistance programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Do they offer any , , programs to maybe lower the price?", "context": "Patient inquires about potential financial assistance for medication", "file_id": "dr_WS1217", "chunk_id": 7, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "And I can't afford it, to be honest with you.", "context": "Patient cannot afford medication", "file_id": "dr_WS1217", "chunk_id": 8, "original_category": "BARRIER - SDOH" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I haven't heard from anything--", "context": "Patient unaware of financial assistance programs", "file_id": "dr_WS1217", "chunk_id": 8, "original_category": "BARRIER - SDOH" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have to meet with her Tuesday, and I'll talk to her about it--", "context": "Patient plans to discuss concerns with doctor", "file_id": "dr_WS1217", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Yeah, with-- I don't know how to run a computer. I've never learned that yet.", "context": "Patient lacks knowledge about technology, possibly indicating need for education", "file_id": "dr_WS1217", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have to meet with her Tuesday", "context": "Patient has upcoming appointment with provider", "file_id": "dr_WS1217", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They haven't said much about it", "context": "Patient lacks knowledge about diabetes and vision loss", "file_id": "dr_WS1217", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "They haven't said much about it", "context": "Provider failed to educate patient about condition", "file_id": "dr_WS1217", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "'Cause I don't wanna lose my eyes", "context": "Patient fears losing vision due to diabetes", "file_id": "dr_WS1217", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education needs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "it does", "context": "Patient desires more knowledge about condition", "file_id": "dr_WS1217", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "'Cause I don't wanna lose my eyes", "context": "Patient expresses concern due to lack of knowledge", "file_id": "dr_WS1217", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I never talk too much about anything", "context": "Patient feels they don't communicate effectively with doctor", "file_id": "dr_WS1217", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "They quickly examine my eyes. I just come and let them do what they have to do and, and then leave", "context": "Patient doesn't feel comfortable discussing concerns with doctor", "file_id": "dr_WS1217", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I just asked him one time about how long would it-- I had to-- w-with these lenses, how long--", "context": "Patient has asked doctor a question in the past", "file_id": "dr_WS1217", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I just asked him one time about how long would it-- I had to-- w-with these lenses, how long--", "context": "Patient has limited interaction with doctor", "file_id": "dr_WS1217", "chunk_id": 11, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of vision loss", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I'd say about a 10", "context": "Patient is worried about diabetes causing vision loss", "file_id": "dr_WS1217", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Patient worry and anxiety", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "It worries me. , I'm a worrywart when things--", "context": "Patient experiences emotional distress related to health", "file_id": "dr_WS1217", "chunk_id": 11, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Effective patient-provider interaction", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I just asked him one time about how long would it-- I had to-- w-with these lenses, how long--", "context": "Patient feels comfortable asking doctor questions", "file_id": "dr_WS1217", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient health awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'd explain if I need any medication to use on them or not", "context": "Patient has some knowledge about their health condition", "file_id": "dr_WS1217", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "It worries me", "context": "Patient expresses worry about their condition", "file_id": "dr_WS1217", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I'm a worrywart when things-- happen that", "context": "Patient lacks clear understanding of their condition", "file_id": "dr_WS1217", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Trust me", "context": "Provider shows empathy towards patient's concerns", "file_id": "dr_WS1217", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of information", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Get, get more information from him would help", "context": "Patient wants more information to understand condition", "file_id": "dr_WS1217", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Worry about diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "It's, it's worrisome", "context": "Patient is worried about eye condition diagnosis", "file_id": "dr_WS1217", "chunk_id": 13, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Healthcare motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have to go because of my sugar and stuff", "context": "Patient is motivated to manage diabetes through healthcare", "file_id": "dr_WS1217", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Need for education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Get, get more information from him would help", "context": "Patient needs education to understand condition and manage worry", "file_id": "dr_WS1217", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of information", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Get, get more information from him would help", "context": "Patient wants more information to understand their condition", "file_id": "dr_WS1217", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Get, get more information from him would help", "context": "Patient values provider communication to alleviate worries", "file_id": "dr_WS1217", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have to go because of my sugar and stuff", "context": "Patient is motivated to manage their diabetes", "file_id": "dr_WS1217", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No discouragement", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No, mm-mm", "context": "Patient does not experience discouragement from using eye care services", "file_id": "dr_WS1217", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Self management confidence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yeah", "context": "Patient feels confident in managing their diabetes care", "file_id": "dr_WS1217", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I've been trying to get out of classes and stuff", "context": "Patient shows disinterest in diabetes education", "file_id": "dr_WS1217", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, with my sisters. They're always around", "context": "Patient has supportive family members", "file_id": "dr_WS1217", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access to help", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "My sisters help out", "context": "Patient has help with daily chores and transportation", "file_id": "dr_WS1217", "chunk_id": 15, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My sisters help out", "context": "Patient has family support for daily tasks", "file_id": "dr_WS1217", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health Advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I call my neighbor. She's a nurse here at the university", "context": "Patient has access to medical advice through neighbor", "file_id": "dr_WS1217", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Family Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My sisters help out", "context": "Patient has family support for daily tasks", "file_id": "dr_WS1217", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access to Healthcare", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have a niece. She's a nurse over at the university too", "context": "Patient has access to medical professionals through family", "file_id": "dr_WS1217", "chunk_id": 16, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a niece. She's a nurse over at the university too.", "context": "Patient has a supportive family member with medical knowledge", "file_id": "dr_WS1217", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare Access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have a niece. She's a nurse over at the university too.", "context": "Patient has potential access to medical advice through their niece", "file_id": "dr_WS1217", "chunk_id": 17, "original_category": "FACILITATOR - Resources & Access" }, { "code": "No Perceived Urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Not much, but n-- but now, it's just-- this worries me because I can't-- at nighttime, it- it's bu-- bothers me when I'm driving.", "context": "Patient is not overly concerned about their eyesight limitations", "file_id": "dr_WS1217", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Wake up, no", "context": "Patient seems unsure or lacks knowledge about diabetes management", "file_id": "dr_MF0618", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I take Mounjaro once a week and that's about the only thing I'm on now", "context": "Patient is taking medication, indicating some level of health education", "file_id": "dr_MF0618", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Weight management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "losing weight", "context": "Patient prioritizes weight loss, showing awareness of its importance in diabetes management", "file_id": "dr_MF0618", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My wife", "context": "Patient mentions their wife, indicating a support system", "file_id": "dr_MF0618", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "what are some things that you watch out to tell you that your diabetes is getting worse?", "context": "Patient unsure of indicators for worsening diabetes", "file_id": "dr_MF0618", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "every 10 days you gotta rip the thing off", "context": "Patient mentions cost or hassle of replacing device", "file_id": "dr_MF0618", "chunk_id": 1, "original_category": "BARRIER - SDOH" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what are some things that you watch out to tell you that your diabetes is getting worse?", "context": "Patient seeking knowledge about diabetes management", "file_id": "dr_MF0618", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible devices", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have the Dexcom 7 now", "context": "Patient using technology for health monitoring", "file_id": "dr_MF0618", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "None", "context": "No relevant quote, but context implies potential distrust due to inconsistent readings", "file_id": "dr_MF0618", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Inconsistent readings", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "The readings were different than-", "context": "Patient experiences inconsistent glucose readings, potentially affecting trust in healthcare system", "file_id": "dr_MF0618", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've learned that, don't feel it. Go do the finger stick.", "context": "Patient demonstrates understanding of glucose monitoring and takes proactive steps", "file_id": "dr_MF0618", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've learned that, don't feel it. Go do the finger stick.", "context": "Patient takes initiative in managing glucose levels", "file_id": "dr_MF0618", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "But I never rely solely on the numbers I get on here", "context": "Patient questions accuracy of medical device", "file_id": "dr_MF0618", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And I use this to monitor where my A1C is and where my average sugar levels are", "context": "Patient uses device to track health metrics", "file_id": "dr_MF0618", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So if it beeps and it's , 'Oh, you're 300.' Okay, what did I have that jumped up?", "context": "Patient understands device readings and takes action", "file_id": "dr_MF0618", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "You can't go by that", "context": "Patient questioning the reliability of medical device", "file_id": "dr_MF0618", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "If I was 42 I'd be in a coma", "context": "Patient expressing fear of severe hypoglycemia", "file_id": "dr_MF0618", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She pricked her finger and she was , 'It's actually not that low.'", "context": "Patient receiving clear information from friend", "file_id": "dr_MF0618", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible technology", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have it on my phone", "context": "Patient using mobile device to monitor friend's glucose levels", "file_id": "dr_MF0618", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "It woke you up with the alarm?", "context": "Patient receiving alerts from medical device", "file_id": "dr_MF0618", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "if I was 42 I'd be in a coma", "context": "Patient shows confusion about blood glucose levels", "file_id": "dr_MF0618", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "you could go into a coma and...", "context": "Patient expresses fear about potential health consequences", "file_id": "dr_MF0618", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I said, you could go into a coma and...", "context": "Patient shows some understanding of health risks", "file_id": "dr_MF0618", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible technology", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have it on my phone, and that's the one thing you can't turn off, low alerts", "context": "Patient uses mobile device for health monitoring", "file_id": "dr_MF0618", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I never really thought it does", "context": "Patient lacks awareness of diabetes impact on eyes", "file_id": "dr_MF0618", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "See, I never really thought it does", "context": "Patient unsure of diabetes impact on eyes", "file_id": "dr_MF0618", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family-related issues", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "a lot of it is family-related and stuff", "context": "Patient mentions family as a factor", "file_id": "dr_MF0618", "chunk_id": 7, "original_category": "BARRIER - SDOH" }, { "code": "Specialist access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So I see my glaucoma specialist every year, my retinal specialist every year", "context": "Patient has regular access to specialists", "file_id": "dr_MF0618", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They want me to see an optometrist, 'cause they're , , 'That's a different realm'", "context": "Providers communicate and coordinate care", "file_id": "dr_MF0618", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Regular follow-up", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So I see my glaucoma specialist every year, my retinal specialist every year", "context": "Patient has regular scheduled appointments", "file_id": "dr_MF0618", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "'Cause unfortunately with COVID, I missed a year of being able to see doctors", "context": "Patient missed appointments due to COVID", "file_id": "dr_MF0618", "chunk_id": 8, "original_category": "BARRIER - SDOH" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "They just say I am getting cataracts and glaucoma, which unfortunately is also a sign of age", "context": "Patient anxious about diagnosis", "file_id": "dr_MF0618", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Well, basically , , to look out for the floaters and , sudden vision changes, the blurry visions and all that stuff", "context": "Doctor explained condition to patient", "file_id": "dr_MF0618", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Regular appointments", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "and I think I go almost every six months sometimes with a glaucoma doctor", "context": "Patient has regular check-ups", "file_id": "dr_MF0618", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Monitoring and testing", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "where they're doing the pressure testing and all that stuff", "context": "Healthcare system provides regular monitoring", "file_id": "dr_MF0618", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "You're a little bit high, we'll watch it.", "context": "Patient seems unsure about their condition", "file_id": "dr_MF0618", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And then after a year, did laser surgery in both eyes.", "context": "Patient received timely and effective treatment", "file_id": "dr_MF0618", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular follow-up", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I go about every six months, what- Six months to a year.", "context": "Patient has regular follow-up appointments", "file_id": "dr_MF0618", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Here.", "context": "Patient receives care at a convenient location", "file_id": "dr_MF0618", "chunk_id": 9, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "(laughs)", "context": "Provider shows empathy and builds rapport with patient", "file_id": "dr_MF0618", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of recall", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "February or March? Speaker 2: May.", "context": "Patient has difficulty remembering last appointment", "file_id": "dr_MF0618", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Good medical plan", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have a good medical plan, so.", "context": "Patient has adequate insurance coverage for eye exams", "file_id": "dr_MF0618", "chunk_id": 10, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Multiple appointments", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I got so many doctor things going on", "context": "Patient has multiple appointments to manage", "file_id": "dr_MF0618", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Good medical plan", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have a good medical plan, so", "context": "Patient has adequate insurance coverage", "file_id": "dr_MF0618", "chunk_id": 11, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Easy scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Pretty easy", "context": "Patient finds scheduling appointments easy", "file_id": "dr_MF0618", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Light sensitivity", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I cannot take sunlight at all", "context": "Patient experiences discomfort due to light sensitivity after eye dilation", "file_id": "dr_MF0618", "chunk_id": 11, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Accessible location", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "because I live in Morgantown... and everything's here in Morgantown", "context": "Patient finds it easy to receive eye care due to proximity to medical hub", "file_id": "dr_MF0618", "chunk_id": 12, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Good provider availability", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It's usually pretty good", "context": "Patient finds doctor's availability satisfactory", "file_id": "dr_MF0618", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Sometimes there's no choice", "context": "Patient implies difficulty with transportation at night", "file_id": "dr_MF0618", "chunk_id": 13, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "Sometimes there's no choice", "context": "Patient may be implying lack of access to transportation", "file_id": "dr_MF0618", "chunk_id": 13, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Then I'm blind", "context": "Patient expresses fear or anxiety about vision loss", "file_id": "dr_MF0618", "chunk_id": 13, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "You're near a hub of medical... information and things that", "context": "Patient is aware of available health resources", "file_id": "dr_MF0618", "chunk_id": 13, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "'cause I can see better at night except when a car comes at me. Then I'm blind.", "context": "Patient lacks understanding of their condition", "file_id": "dr_MF0618", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "'cause I can see better at night except when a car comes at me. Then I'm blind.", "context": "Patient does not perceive their condition as urgent", "file_id": "dr_MF0618", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, pretty freeing with 'em", "context": "Patient feels comfortable discussing eye issues with doctor", "file_id": "dr_MF0618", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, pretty freeing with 'em", "context": "Patient feels comfortable discussing eye issues with doctor", "file_id": "dr_MF0618", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "So I asked my doctor, I said, 'Okay, is this-'", "context": "Patient able to express concerns and ask questions", "file_id": "dr_MF0618", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Because it's derived from iguanas... And they said that it deteriorates your eyes", "context": "Patient has misconceptions about medication and eye health", "file_id": "dr_MF0618", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I think things have changed", "context": "Patient believes diabetes treatment has improved over time", "file_id": "dr_MF0618", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't think I'm there yet", "context": "Patient does not feel at risk for vision loss", "file_id": "dr_MF0618", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "as long as I can see basically things in front of me and stuff that, then I'm happy", "context": "Patient feels they can see well enough", "file_id": "dr_MF0618", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of surgery", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I'm holding off on surgery for both", "context": "Patient is hesitant about undergoing surgery", "file_id": "dr_MF0618", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Monitoring by provider", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "But they're monitoring it, so", "context": "Provider is actively monitoring patient's condition", "file_id": "dr_MF0618", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I was a little leery on the laser surgery", "context": "Patient expresses fear about undergoing laser surgery", "file_id": "dr_MF0618", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my wife had it", "context": "Patient mentions spouse's experience as a source of support", "file_id": "dr_MF0618", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I was a little leery on the laser surgery", "context": "Patient is hesitant about undergoing laser surgery", "file_id": "dr_MF0618", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "that hurt. So little leery if I have to go through it again, that's why I'm holding off, hoping-", "context": "Patient lacks understanding of treatment and its effects", "file_id": "dr_MF0618", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of complications", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "what if they're doing that and they sneeze and it's , 'Ope, we gotta do a corneal transplant.'", "context": "Patient fears potential complications of treatment", "file_id": "dr_MF0618", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Waiting for technology improvement", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "hoping- ... that technology gets a little bit better.", "context": "Patient is waiting for advancements in treatment technology", "file_id": "dr_MF0618", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "what if they're doing that and they sneeze and it's , 'Ope, we gotta do a corneal transplant.'", "context": "Patient expresses fear of potential complications from treatment", "file_id": "dr_MF0618", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Adequate insurance coverage", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "my wife has a good, , medical plan. So cost isn't really much of a factor.", "context": "Patient's wife has good medical insurance, reducing financial burden", "file_id": "dr_MF0618", "chunk_id": 21, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Accessible location", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the proximity of everything here. Is good.", "context": "Patient finds clinic location convenient and accessible", "file_id": "dr_MF0618", "chunk_id": 21, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Convenient location", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And with everything being around here, it's convenient", "context": "Patient finds healthcare services conveniently located", "file_id": "dr_MF0618", "chunk_id": 22, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "if the doctor says, 'I advise you to do this, this'", "context": "Patient values doctor's advice and guidance", "file_id": "dr_MF0618", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible healthcare system", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "If nobody's around, I go to the Medi Center", "context": "Patient has access to alternative healthcare services", "file_id": "dr_MF0618", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Efficient referral process", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they sent me right over to the ER and then...", "context": "Patient experiences efficient referral to emergency services", "file_id": "dr_MF0618", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "if you call up or even do an appointment, it's , you know, I just had to do one with the optometrist", "context": "Patient experiences difficulty with appointment scheduling", "file_id": "dr_MF0618", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "'Okay, the earliest one I get get you is August.'", "context": "Patient experiences long wait for appointment", "file_id": "dr_MF0618", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "'Put me on a wait list,' which is what happened with today's appointment.", "context": "Patient has to request waitlist for earlier appointment", "file_id": "dr_MF0618", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Wait list", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "'Put me on a wait list because I gotta see if there's an issue with the left eye.'", "context": "Patient uses waitlist to get earlier appointment", "file_id": "dr_MF0618", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "The first person I spoke to was , 'Yeah, lemme see what I could do. I'll call you back tomorrow.' And never called me back.", "context": "Patient experienced poor communication with healthcare staff", "file_id": "dr_MF0618", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "The first person I spoke to was , 'Yeah, lemme see what I could do. I'll call you back tomorrow.' And never called me back.", "context": "Patient had difficulty scheduling an appointment", "file_id": "dr_MF0618", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So I had called up and they said, 'Okay, well, let me talk to Dr. Paco's nurse,' and then gave me the appointment the next day.", "context": "Patient was able to access a provider after initial difficulty", "file_id": "dr_MF0618", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "So I had called up and they said, 'Okay, well, let me talk to Dr. Paco's nurse,' and then gave me the appointment the next day.", "context": "Patient experienced effective communication with healthcare staff after initial difficulty", "file_id": "dr_MF0618", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "today was a long appointment. I mean it was almost two hours and I heard a guy in the other room go, , I've been here for an hour and a half, when am I, , gonna see the doctor.", "context": "Patient experiences long wait time at clinic", "file_id": "dr_MF0618", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "So there should be a way of putting somebody in.", "context": "Patient suggests improvement for scheduling appointments", "file_id": "dr_MF0618", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Frustration with wait times", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "That does get frustrating.", "context": "Patient expresses frustration due to long wait times", "file_id": "dr_MF0618", "chunk_id": 25, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Understanding of vision issues", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "If it's a specific issue, I can't really see outta my left eye, I want to know if there's an issue.", "context": "Patient shows awareness of their vision health", "file_id": "dr_MF0618", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So there should be a way of putting somebody in.", "context": "Patient suggests improvement for accessing providers", "file_id": "dr_MF0618", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "It might be an hour, two hours", "context": "Patient experiences long wait times", "file_id": "dr_MF0618", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "at least have, say, even a nurse practitioner", "context": "Patient suggests having accessible providers for quicker appointments", "file_id": "dr_MF0618", "chunk_id": 26, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Priority scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "there should be some type of... on-ramp to... get you in", "context": "Patient suggests having a priority scheduling system", "file_id": "dr_MF0618", "chunk_id": 26, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "to say 2, 3, 4 months- ... to even be seen", "context": "Patient experiences long wait times for appointments", "file_id": "dr_MF0618", "chunk_id": 27, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "to say 2, 3, 4 months- ... to even be seen", "context": "Patient has difficulty accessing healthcare services", "file_id": "dr_MF0618", "chunk_id": 27, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "There's a doctor here, I'll get him when I can get 'em in", "context": "Patient experiences poor communication from healthcare providers", "file_id": "dr_MF0618", "chunk_id": 27, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "at least have, say, even a nurse practitioner", "context": "Patient suggests having accessible providers for timely care", "file_id": "dr_MF0618", "chunk_id": 27, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "You do it yourself?", "context": "Patient takes responsibility for their own diabetes care", "file_id": "dr_MF0618", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of social support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I do most of the stuff around the house, the cooking, the cleaning, the shopping", "context": "Patient lacks help with daily tasks", "file_id": "dr_MF0618", "chunk_id": 28, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Over $100,000 later after being in the hospital", "context": "Patient experienced high medical expenses", "file_id": "dr_MF0618", "chunk_id": 28, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I just need to lay down", "context": "Patient experiences physical and emotional exhaustion", "file_id": "dr_MF0618", "chunk_id": 28, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Social support network", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My wife knows that there are times where I just do not feel right", "context": "Patient has a supportive spouse", "file_id": "dr_MF0618", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Had nothing to do with my sugar", "context": "Patient believes their condition is unrelated to sugar levels", "file_id": "dr_MF0618", "chunk_id": 29, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So she at least listened to me", "context": "Patient feels heard by their provider", "file_id": "dr_MF0618", "chunk_id": 29, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I can tell when I'm high, when I'm low", "context": "Patient has knowledge of their condition and can self-manage", "file_id": "dr_MF0618", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Because I've taken enough different classes", "context": "Patient has taken education courses to manage diabetes", "file_id": "dr_MF0618", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I know what I can eat, what I can't eat, I know what I can splurge", "context": "Patient has learned to manage diabetes through education", "file_id": "dr_MF0618", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I know what I can eat, what I can't eat", "context": "Patient understands how to manage diet for diabetes", "file_id": "dr_MF0618", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "Just wish they'd have more", "context": "Patient desires more resources or services", "file_id": "dr_MF0618", "chunk_id": 31, "original_category": "BARRIER - SDOH" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So you had a lot of people with, 'Oh, well, I did this,' 'Oh, did you try this?'", "context": "Patient benefits from peer support and discussion", "file_id": "dr_MF0618", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "it teach, talk, , it was a little bit of everything", "context": "Patient receives educational content", "file_id": "dr_MF0618", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Emotional support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Your wife listens to you", "context": "Patient has a supportive partner", "file_id": "dr_MF0618", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of podiatrist", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I don't have a podiatrist anymore", "context": "Patient mentions not having a podiatrist", "file_id": "dr_MF0618", "chunk_id": 32, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Specialist access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have a PCP, a glaucoma doctor, immunologist, dermatologist", "context": "Patient has access to multiple specialists", "file_id": "dr_MF0618", "chunk_id": 32, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Do you feel comfortable sharing any worries that you have about your vision or your diabetes care with her?", "context": "Patient is asked about comfort level with provider", "file_id": "dr_MF0618", "chunk_id": 32, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "It, it... Moderate.", "context": "Patient seems uncertain about their condition", "file_id": "dr_MF0618", "chunk_id": 33, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "None mentioned in this chunk", "context": "No direct mention, but could be inferred from glasses and potential costs", "file_id": "dr_MF0618", "chunk_id": 33, "original_category": "BARRIER - SDOH" }, { "code": "Health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "Percentage wise?", "context": "Patient seems unsure about how to answer question about eyesight limitation", "file_id": "dr_MF0618", "chunk_id": 33, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So if I have an issue, , call dermatology, .", "context": "Patient mentions ability to contact dermatology, implying accessible care", "file_id": "dr_MF0618", "chunk_id": 33, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "None mentioned in this chunk", "context": "No direct mention, but could be inferred from patient's understanding of their condition", "file_id": "dr_MF0618", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "You gotta wait until... they clear", "context": "Patient experiences delay in accessing care", "file_id": "dr_MF0618", "chunk_id": 34, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "get over glasses for sunglasses", "context": "Patient implies cost concerns for prescription glasses", "file_id": "dr_MF0618", "chunk_id": 34, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "You gotta wait until... they clear", "context": "Patient lacks clarity on appointment process", "file_id": "dr_MF0618", "chunk_id": 34, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I get really annoyed", "context": "Patient expresses frustration with care experience", "file_id": "dr_MF0618", "chunk_id": 34, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm , man, I might as well just not do anything", "context": "Patient feels overwhelmed by daily tasks", "file_id": "dr_MF0618", "chunk_id": 34, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "what was your expectation for your visit today?", "context": "Patient expects accessible care from provider", "file_id": "dr_MF0618", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "Seven years ago that would've been", "context": "Patient implies limited access to specialized care", "file_id": "dr_MF0618", "chunk_id": 35, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "So he wanted me to see an optometrist", "context": "Patient was referred without clear explanation", "file_id": "dr_MF0618", "chunk_id": 35, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "set up an appointment with the optometrist", "context": "Patient was able to get a referral to a specialist", "file_id": "dr_MF0618", "chunk_id": 35, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So that's when he said, 'That's not really our realm'", "context": "Provider shows understanding of patient's concern", "file_id": "dr_MF0618", "chunk_id": 35, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "'cause August appointment, so", "context": "Patient experiences difficulty with scheduling follow-up appointments", "file_id": "dr_MF0618", "chunk_id": 36, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "So he wanted me to see an optometrist", "context": "Patient is referred to another provider, indicating potential lack of continuity", "file_id": "dr_MF0618", "chunk_id": 36, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "No they’re pretty good here", "context": "Patient expresses satisfaction with their healthcare providers", "file_id": "dr_MF0618", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I still have an ongoing condition- ... that needs to be improved before I can get glasses", "context": "Patient cannot get new glasses due to unresolved condition", "file_id": "dr_SR0511(part2)", "chunk_id": 0, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I still have an ongoing condition- ... that needs to be improved before I can get glasses", "context": "Patient implies cost or treatment limitations due to unresolved condition", "file_id": "dr_SR0511(part2)", "chunk_id": 0, "original_category": "BARRIER - SDOH" }, { "code": "Frustration", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "is frustrating", "context": "Patient feels frustrated about vision and treatment limitations", "file_id": "dr_SR0511(part2)", "chunk_id": 0, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Limited control", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "So yes, I am aware of it. But right now there's nothing I can do", "context": "Patient feels helpless about current vision and treatment", "file_id": "dr_SR0511(part2)", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So, , I am aware of, of my vision", "context": "Patient is receiving some level of care and monitoring", "file_id": "dr_SR0511(part2)", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Family history of diabetes", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "diabetes is in my family", "context": "Patient aware of family medical history", "file_id": "dr_SR0511(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of family history of glaucoma", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Not that I'm aware", "context": "Patient unaware of potential genetic links to eye conditions", "file_id": "dr_SR0511(part2)", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Personal experience with diabetes", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I do have the diabetes", "context": "Patient has personal experience managing chronic condition", "file_id": "dr_SR0511(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family health history", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "and heart condition is on my other side of my family", "context": "Patient discusses family medical history", "file_id": "dr_SR0511(part2)", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I feel very positive", "context": "Patient describes overall experience with eye care", "file_id": "dr_SR0511(part2)", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm very happy with him", "context": "Patient expresses satisfaction with doctor", "file_id": "dr_SR0511(part2)", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Efficient care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they don't waste my time", "context": "Patient appreciates timely service at clinic", "file_id": "dr_SR0511(part2)", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I feel very positive", "context": "Patient feels heard and understood by doctor", "file_id": "dr_SR0511(part2)", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "my phone and my, my, my calendar. Mm-hmm. Respondent: Just the reminders and I do those reminders.", "context": "Patient uses reminders to keep up with appointments", "file_id": "dr_SR0511(part2)", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they don't waste my time. Good.", "context": "Patient feels provider is efficient and respectful of their time", "file_id": "dr_SR0511(part2)", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And I feel very good about it.", "context": "Patient has a positive feeling towards their provider", "file_id": "dr_SR0511(part2)", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. Fregali told me that the medication doesn't work at night.", "context": "Patient feels informed and guided by their provider", "file_id": "dr_SR0511(part2)", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "It's very expensive. Expensive? Yeah. I just paid a $700 bill yesterday", "context": "Patient finds healthcare services costly", "file_id": "dr_SR0511(part2)", "chunk_id": 5, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've been very happy with it", "context": "Patient has a positive experience with their healthcare provider", "file_id": "dr_SR0511(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have not been discouraged at all. Okay. I've been very happy with it", "context": "Patient finds healthcare services accessible and supportive", "file_id": "dr_SR0511(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "It's very expensive. I just paid a $700 bill yesterday.", "context": "Patient finds healthcare costs to be high", "file_id": "dr_SR0511(part2)", "chunk_id": 6, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "I feel that my PEIA is not fabulous.", "context": "Patient has concerns about their insurance coverage", "file_id": "dr_SR0511(part2)", "chunk_id": 6, "original_category": "BARRIER - SDOH" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "It's very expensive. I just paid a $700 bill yesterday.", "context": "Patient finds treatment costs to be high", "file_id": "dr_SR0511(part2)", "chunk_id": 6, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Adequate insurance coverage", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I mean, I know that the bill I paid would've been almost $5,000 if I didn't have it.", "context": "Patient appreciates having insurance to reduce costs", "file_id": "dr_SR0511(part2)", "chunk_id": 6, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I mean, I know that the bill I paid would've been almost $5,000 if I didn't have it.", "context": "Patient benefits from having insurance to lower costs", "file_id": "dr_SR0511(part2)", "chunk_id": 6, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Cost burden", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "But the cost is still a burden.", "context": "Patient finds cost of treatment a significant burden", "file_id": "dr_SR0511(part2)", "chunk_id": 7, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "the cost would be, but I,", "context": "Patient mentions cost as a concern", "file_id": "dr_SR0511(part2)", "chunk_id": 7, "original_category": "BARRIER - SDOH" }, { "code": "Accessible parking", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the parking's great.", "context": "Patient appreciates convenient parking at clinic", "file_id": "dr_SR0511(part2)", "chunk_id": 7, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Easy access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the access to this facility is right on ground floor", "context": "Patient finds the clinic easily accessible", "file_id": "dr_SR0511(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Convenient location", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "getting here is easy to, to get here", "context": "Patient finds the clinic location convenient", "file_id": "dr_SR0511(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of knowledge", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't know they had them", "context": "Patient unaware of diabetes education classes", "file_id": "dr_SR0511(part2)", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No diabetes education", "context": "Patient lacks formal diabetes education", "file_id": "dr_SR0511(part2)", "chunk_id": 9, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare access barriers", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "Not knowing about it", "context": "Patient unaware of available resources", "file_id": "dr_SR0511(part2)", "chunk_id": 9, "original_category": "BARRIER - SDOH" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "If it was something you knew about", "context": "Patient interested in diabetes education", "file_id": "dr_SR0511(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Other than myself looking things up and asking questions", "context": "Patient takes initiative to learn about diabetes", "file_id": "dr_SR0511(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of knowledge", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Not knowing about it", "context": "Patient unaware of available resources", "file_id": "dr_SR0511(part2)", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "So I wouldn't have to physically go someplace", "context": "Patient prefers not to travel for appointments", "file_id": "dr_SR0511(part2)", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Convenience", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "if it was just, , , you could pick and choose when you wanted to go", "context": "Patient values flexibility in scheduling", "file_id": "dr_SR0511(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Telehealth options", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And if it would be a webinar, that would be even better", "context": "Patient prefers online appointments", "file_id": "dr_SR0511(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessibility", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "making it more accessible by putting on online", "context": "Patient values ease of access to care", "file_id": "dr_SR0511(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Because, it's an hour drive here. It's an hour drive home.", "context": "Patient mentions long commute to clinic", "file_id": "dr_SR0511(part2)", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Time constraints", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "To be in here 20 minutes. (laughs) ... But it's still two hour-", "context": "Patient highlights time spent traveling to clinic", "file_id": "dr_SR0511(part2)", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible services", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So making it more accessible by putting on online-", "context": "Patient suggests online services for convenience", "file_id": "dr_SR0511(part2)", "chunk_id": 11, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yes. Do you have people you can share your worries or fears with about your diabetes and eyesight? Respondent: Yes", "context": "Patient has support network for emotional needs", "file_id": "dr_SR0511(part2)", "chunk_id": 11, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "But it's still two hour-", "context": "Patient mentions time it takes to get to appointment", "file_id": "dr_SR0511(part2)", "chunk_id": 12, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a very good doctor", "context": "Patient expresses satisfaction with their doctor", "file_id": "dr_SR0511(part2)", "chunk_id": 12, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I feel Dr. Fregali would be able to listen", "context": "Patient feels heard by their doctor", "file_id": "dr_SR0511(part2)", "chunk_id": 12, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My family. Your family? Respondent: I have friends that I can share that with", "context": "Patient has people to share worries and fears with", "file_id": "dr_SR0511(part2)", "chunk_id": 12, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Transportation assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yeah. Who, who's that? Respondent: I feel - my mom", "context": "Patient has someone to help with daily chores, including transportation", "file_id": "dr_SR0511(part2)", "chunk_id": 12, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I feel - my mom. Or even my sisters.", "context": "Patient has family members to rely on for help", "file_id": "dr_SR0511(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare Advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I could talk to my doctor, Dr. Nair.", "context": "Patient has a doctor they can consult for advice", "file_id": "dr_SR0511(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Professional Network", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have students who are doctors now that, that I feel if I needed to, I could talk to them.", "context": "Patient has a network of medical professionals for guidance", "file_id": "dr_SR0511(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I would probably call my sisters. They're both pharmacists.", "context": "Patient has family members with medical expertise to consult", "file_id": "dr_SR0511(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I don't, don't driving at night anymore", "context": "Patient has difficulty driving due to eyesight", "file_id": "dr_SR0511(part2)", "chunk_id": 14, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of enjoyment", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "driving at night is something I would say that I no longer enjoy", "context": "Patient's perception of eyesight affecting daily activities", "file_id": "dr_SR0511(part2)", "chunk_id": 14, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Age related issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I think part of that is my age", "context": "Patient attributes eyesight issues to age", "file_id": "dr_SR0511(part2)", "chunk_id": 14, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Social support network", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah. I feel that there's people out there that I could, yes", "context": "Patient has a supportive network", "file_id": "dr_SR0511(part2)", "chunk_id": 14, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of motivation", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Motivation & Self-Care Barriers", "quote": "But I don't feel that my eyesight is what stops me from doing that. Right. Respondent: I think the fact of any, not, just not wanting to is probably why I don't.", "context": "Patient lacks motivation due to perceived lack of vision problems", "file_id": "dr_SR0511(part2)", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I expected to get in and out. Mm-hmm. Respondent: And I did.", "context": "Patient had a positive experience with the healthcare provider", "file_id": "dr_SR0511(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective appointment scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I expected to get in and out. Mm-hmm. Respondent: And I did.", "context": "Patient had a smooth appointment scheduling experience", "file_id": "dr_SR0511(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Telehealth options", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "if they can give me a shot from my computer, it'd be perfect", "context": "Patient expresses desire for remote healthcare services", "file_id": "dr_SR0511(part2)", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "", "context": "No direct quote, but implied lack of understanding", "file_id": "dr_SR0511(part2)", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "", "context": "No direct quote, interview chunk does not provide specific information", "file_id": "dr_SR0511(part2)", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "", "context": "No direct quote, interview chunk lacks specific details", "file_id": "dr_SR0511(part2)", "chunk_id": 17, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "try to stick to, just seeing what different recipes are out there", "context": "Patient seeks health information for diabetes management", "file_id": "dr_HD1103(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Dietary management", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "follow a strict diet, watch your calorie intake", "context": "Patient prioritizes dietary control for diabetes care", "file_id": "dr_HD1103(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health priorities", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "the biggest priority is to stay as healthy as I possibly can", "context": "Patient understands importance of overall health in diabetes management", "file_id": "dr_HD1103(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Exercise routine", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I walk, I try to exercise as much as I possibly can", "context": "Patient engages in physical activity for diabetes control", "file_id": "dr_HD1103(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "what are some things that your doctor has discussed with you", "context": "Patient values provider guidance for diabetes care", "file_id": "dr_HD1103(part1)", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "to follow a strict diet, watch your car-- , calorie intake", "context": "Patient discusses importance of health education for diabetes management", "file_id": "dr_HD1103(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider discussion", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "what are some things that your doctor has discussed with you", "context": "Patient mentions discussing important topics with their doctor", "file_id": "dr_HD1103(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I try to keep everything, , at bay", "context": "Patient emphasizes importance of self-managing their condition", "file_id": "dr_HD1103(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm in tune to, , , how high my sugar runs or how low", "context": "Patient demonstrates understanding of their condition and its management", "file_id": "dr_HD1103(part1)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know", "context": "Patient unsure about diabetes effects on eyes", "file_id": "dr_HD1103(part1)", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they really haven't", "context": "Doctors didn't explain diabetes effects on eyes", "file_id": "dr_HD1103(part1)", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "some of it I've read online", "context": "Patient educates self about diabetes and eyes", "file_id": "dr_HD1103(part1)", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider explanation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "from what I understood from what the doctors explained to me over the years", "context": "Doctors provided some information about diabetes and eyes", "file_id": "dr_HD1103(part1)", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't know", "context": "Patient lacks understanding about diabetes effects on eyes", "file_id": "dr_HD1103(part1)", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "from what I understood about how diabetes affects your eyes", "context": "Patient is trying to understand the relationship between diabetes and eye health", "file_id": "dr_HD1103(part1)", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "so, so they're pretty informative", "context": "Patient finds online resources informative about diabetes and eye health", "file_id": "dr_HD1103(part1)", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider explanation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "from what I understood from what the doctors explained to me over the years", "context": "Patient values provider's explanation of diabetes and eye health", "file_id": "dr_HD1103(part1)", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Access to care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And where do you typically get your eye exams? Is it here at the Eye Institute or somewhere else where you regularly go?", "context": "Patient has access to multiple providers for eye care", "file_id": "dr_HD1103(part1)", "chunk_id": 3, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "my retinal doctor is at UPMC", "context": "Patient has access to a specialist", "file_id": "dr_HD1103(part1)", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. H", "context": "Patient mentions doctor by name, implying a relationship", "file_id": "dr_HD1103(part1)", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they check for-- , , they check my-- , you know, the, the-- my retina and so on, the nerves of my eye", "context": "Patient seems unsure about the exam procedures", "file_id": "dr_HD1103(part1)", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "The tech usually makes me read the chart", "context": "Patient mentions a familiar and possibly comfortable procedure with the technician", "file_id": "dr_HD1103(part1)", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I believe eye exams should be at least every six months", "context": "Patient shows awareness of recommended follow-up frequency", "file_id": "dr_HD1103(part1)", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Overwhelming experience", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Sometimes, to me, that's just very overwhelming", "context": "Patient feels overwhelmed by multiple medical students examining them", "file_id": "dr_HD1103(part1)", "chunk_id": 6, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Provider issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "when you have everybody shining a light in your eye", "context": "Patient is bothered by multiple medical students examining them", "file_id": "dr_HD1103(part1)", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "when one doctor comes in, does examination and leave", "context": "Patient prefers a single, consistent provider", "file_id": "dr_HD1103(part1)", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I scheduled an appointment to see Dr. M. And I can't get an appointment with him till December.", "context": "Patient experiences long wait for doctor's appointment", "file_id": "dr_HD1103(part1)", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "it's scary because it's-- it seems , , the doctor's appointments are so far out right now.", "context": "Patient finds scheduling process challenging", "file_id": "dr_HD1103(part1)", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Sometimes, to me, that's just very overwhelming.", "context": "Patient feels overwhelmed by their situation", "file_id": "dr_HD1103(part1)", "chunk_id": 7, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I wish they could squeeze you in quicker, .", "context": "Patient desires more accessible healthcare providers", "file_id": "dr_HD1103(part1)", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I just wish they could squeeze you in quicker", "context": "Patient experiences long wait times for appointments", "file_id": "dr_HD1103(part1)", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I wish there was more open appointments and-- , , and availability", "context": "Patient has difficulty scheduling appointments", "file_id": "dr_HD1103(part1)", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "I know my doctor is up in years. Maybe he's gonna retire. Maybe he's cutting back", "context": "Patient is concerned about potential changes in their healthcare provider", "file_id": "dr_HD1103(part1)", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I just wish they could squeeze you in quicker", "context": "Patient desires more accessible providers for timely care", "file_id": "dr_HD1103(part1)", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular maintenance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you gotta-- you gotta keep everything in tune to make sure everything remains healthy", "context": "Patient understands importance of regular maintenance for health", "file_id": "dr_HD1103(part1)", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "I am on, , my insurance.", "context": "Patient is concerned about insurance coverage", "file_id": "dr_HD1103(part1)", "chunk_id": 9, "original_category": "BARRIER - SDOH" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "just regular common sense things", "context": "Patient demonstrates understanding of self-care", "file_id": "dr_HD1103(part1)", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "And I don't have-- , as I understand, there's no, no insurance, and it doesn't cover your eyeglasses", "context": "Patient lacks adequate insurance coverage for eye care", "file_id": "dr_HD1103(part1)", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "And the out-of-pocket expense for supplement insurance is incredible", "context": "Patient faces high costs for supplemental insurance", "file_id": "dr_HD1103(part1)", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Out-of-pocket costs", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "And the out-of-pocket expense for supplement insurance is incredible", "context": "Patient faces high out-of-pocket expenses", "file_id": "dr_HD1103(part1)", "chunk_id": 10, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Lost wages due to appointments", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "you've really gotta budget yourself, and you-- that's when you find yourself going to a food bank for food", "context": "Patient experiences financial hardship due to appointment-related expenses", "file_id": "dr_HD1103(part1)", "chunk_id": 10, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Adequate insurance coverage", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And I don't have-- , as I understand, there's no, no insurance, and it doesn't cover your eyeglasses", "context": "Patient lacks adequate insurance coverage, implying its importance", "file_id": "dr_HD1103(part1)", "chunk_id": 10, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial assistance programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I'm on that threshold too, where I have too much money where I don't qualify for, , , assistance", "context": "Patient is aware of financial assistance programs but does not qualify", "file_id": "dr_HD1103(part1)", "chunk_id": 10, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "what can I cut back on and still be able to afford my eyeglasses?", "context": "Patient struggles with budgeting for healthcare expenses", "file_id": "dr_HD1103(part1)", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "if you're in that doughnut hole where, either you make just a little bit over and they, they will deny you", "context": "Patient faces challenges with insurance coverage", "file_id": "dr_HD1103(part1)", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Cost-related stress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it's taxing, and those are my concerns. And, and it gets scary", "context": "Patient experiences emotional distress due to financial worries", "file_id": "dr_HD1103(part1)", "chunk_id": 11, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "being that, you know, Fayette County is a depressed area", "context": "Patient highlights limited healthcare resources in their area", "file_id": "dr_HD1103(part1)", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I wish the system was better, but hopefully, with this research and things that, we can work to, provide you guys more solutions", "context": "Researcher acknowledges need for improved healthcare system support", "file_id": "dr_HD1103(part1)", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "there has to be something, some type of help for you to get new glasses or get proper eye care", "context": "Patient expresses difficulty accessing necessary eye care", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Medicare doesn't cover a lot of that", "context": "Patient faces financial barriers due to limited insurance coverage", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "Medicare doesn't cover a lot of that", "context": "Patient experiences limitations in insurance coverage for necessary care", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "BARRIER - SDOH" }, { "code": "Lack of resources", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "it seems the-- I know I'm looking for a handout, but there has to be something, some type of help", "context": "Patient lacks knowledge about available resources for eye care", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "BARRIER - SDOH" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it's tearful, it's scary", "context": "Patient expresses emotional distress related to potential diagnosis", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare system gaps", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "there's not enough programs out there available", "context": "Patient perceives shortcomings in the healthcare system", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Cost-related barriers", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Medicare doesn't cover a lot of that", "context": "Patient faces financial burden due to out-of-pocket expenses", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it's tearful, it's scary", "context": "Patient experiences emotional distress related to health concerns", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "you said, when you're on the other side of the desk, you just see the person", "context": "Patient values provider empathy and understanding", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Resources and access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "there has to be something, some type of help for you to get new glasses or get proper eye care", "context": "Patient seeks resources to improve access to necessary care", "file_id": "dr_HD1103(part1)", "chunk_id": 12, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "to eat healthy, , vegetables, produce, and everything else is just so expensive", "context": "Patient finds healthy food unaffordable", "file_id": "dr_HD1103(part1)", "chunk_id": 13, "original_category": "BARRIER - SDOH" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "there's not enough programs out there available", "context": "Patient perceives lack of available health programs", "file_id": "dr_HD1103(part1)", "chunk_id": 13, "original_category": "BARRIER - SDOH" }, { "code": "Food insecurity", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I had to rely on Food Bank--", "context": "Patient relies on food bank for nutrition", "file_id": "dr_HD1103(part1)", "chunk_id": 13, "original_category": "BARRIER - SDOH" }, { "code": "Limited resources", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "there's not good nourishable food", "context": "Patient lacks access to nutritious food", "file_id": "dr_HD1103(part1)", "chunk_id": 13, "original_category": "BARRIER - SDOH" }, { "code": "Pride in asking for help", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "you hate to ask for a handout, but what are you supposed to do, ?", "context": "Patient feels ashamed to ask for assistance", "file_id": "dr_HD1103(part1)", "chunk_id": 13, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Systemic barriers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "the system shouldn't make you do that", "context": "Patient criticizes healthcare system for inadequate support", "file_id": "dr_HD1103(part1)", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "you hate to ask for a handout, but what are you supposed to do", "context": "Patient struggles with financial difficulties", "file_id": "dr_HD1103(part1)", "chunk_id": 14, "original_category": "BARRIER - SDOH" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "produce should be more affordable", "context": "Patient finds treatments unaffordable", "file_id": "dr_HD1103(part1)", "chunk_id": 14, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "the system shouldn't make you do that", "context": "Patient feels the system hinders access to care", "file_id": "dr_HD1103(part1)", "chunk_id": 14, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "it's not only people on Medicare", "context": "Patient mentions insurance coverage problems", "file_id": "dr_HD1103(part1)", "chunk_id": 14, "original_category": "BARRIER - SDOH" }, { "code": "Financial assistance needed", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "what are you supposed to do", "context": "Patient implies need for financial help", "file_id": "dr_HD1103(part1)", "chunk_id": 14, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I just wish the appointments more readily available", "context": "Patient desires more accessible appointment scheduling", "file_id": "dr_HD1103(part1)", "chunk_id": 15, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "cost actually with your copays when you go in to see the doctor", "context": "Patient is concerned about copay costs", "file_id": "dr_HD1103(part1)", "chunk_id": 15, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "I fall in that doughnut hole to where I-- lot of times I can't afford an appointment because I can't afford the copay", "context": "Patient experiences financial difficulties due to insurance coverage gaps", "file_id": "dr_HD1103(part1)", "chunk_id": 15, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "you have-- you have-- you have a great institution. West Virginia University is fantastic", "context": "Patient praises the healthcare institution", "file_id": "dr_HD1103(part1)", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I just wish the appointments more readily available", "context": "Patient experiences difficulty scheduling appointments", "file_id": "dr_HD1103(part1)", "chunk_id": 15, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Out-of-pocket costs", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "cost actually with your copays when you go in to see the doctor", "context": "Patient is concerned about out-of-pocket expenses", "file_id": "dr_HD1103(part1)", "chunk_id": 15, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Cost constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I fall in that doughnut hole to where I-- lot of times I can't afford an appointment because I can't afford the copay", "context": "Patient cannot afford copays for appointments", "file_id": "dr_HD1103(part1)", "chunk_id": 16, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I fall in that doughnut hole to where I-- lot of times I can't afford an appointment because I can't afford the copay", "context": "Patient faces financial difficulties due to copays", "file_id": "dr_HD1103(part1)", "chunk_id": 16, "original_category": "BARRIER - SDOH" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I just wish that, , the, the appointments could be more, , more generous", "context": "Patient finds appointment scheduling inflexible", "file_id": "dr_HD1103(part1)", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of provider time", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I don't think doctors are given enough time-- to, to sit there and talk to you", "context": "Patient feels providers are rushed and lack time for discussion", "file_id": "dr_HD1103(part1)", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Need for patient navigation services", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I just wish there was some type of, , help at times to help me get through and, , so I could keep the appointment and make it", "context": "Patient desires support for navigating healthcare system", "file_id": "dr_HD1103(part1)", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Need for financial assistance programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "there's all-- there's a lot of, -- , if, if there would be more grants or something that you could go after and see if, -- to make it a better way", "context": "Patient suggests need for financial assistance programs", "file_id": "dr_HD1103(part1)", "chunk_id": 16, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Caring providers", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "we need more professionals, , to good professionals, caring professionals, knowledgeable, that are able to listen to what I have to say, absorb it, and then treat it and understand the full person", "context": "Patient values providers who are caring and empathetic", "file_id": "dr_HD1103(part1)", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of research", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "there's not enough studies for retinal repair, retinal nerve eye, , repair or anything that", "context": "Patient expresses frustration with limited research on retinal repair", "file_id": "dr_HD1103(part1)", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Tell me-- be upfront and be honest with me. Tell me, , , , how-- , , rub your crystal ball, , tell me what's going on", "context": "Patient values honesty and openness from their provider", "file_id": "dr_HD1103(part1)", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I've always had doctors mention about good eye care, good dietary, , ways, and to make sure your eyes-- there's vi-- eye vitamins, there's AREDS", "context": "Patient has received health education from their providers", "file_id": "dr_HD1103(part1)", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I'm comfortable. , , , , I'll tell you what's going on with me", "context": "Patient feels comfortable communicating with their provider", "file_id": "dr_HD1103(part1)", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of research", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "there's not enough studies for retinal repair, retinal nerve eye, repair or anything that", "context": "Patient feels there is insufficient research on retinal repair", "file_id": "dr_HD1103(part1)", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "insurance doesn't cover a lot of it because it's experimental", "context": "Patient mentions insurance not covering experimental treatments", "file_id": "dr_HD1103(part1)", "chunk_id": 18, "original_category": "BARRIER - SDOH" }, { "code": "Regulatory barriers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "the FDA puts the kibosh on a lot of different things, and it just takes too long for something to come about", "context": "Patient feels FDA regulations hinder progress in treatment development", "file_id": "dr_HD1103(part1)", "chunk_id": 18, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Experimental treatment access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "insurance doesn't cover a lot of it because it's experimental", "context": "Patient highlights limited access to experimental treatments due to cost", "file_id": "dr_HD1103(part1)", "chunk_id": 18, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "every time I go in, I tell them-- I ask them what's going on, how things are going", "context": "Patient values open communication with their doctor", "file_id": "dr_HD1103(part1)", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "either they listen or they don't", "context": "Patient questions provider's responsiveness", "file_id": "dr_HD1103(part1)", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "it just seems it's-- it is absorbed. They just give you the vanilla answer and then move on", "context": "Patient feels provider doesn't fully address concerns", "file_id": "dr_HD1103(part1)", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I always ask them, , what's new on the horizon? Are we making, , gains forward?", "context": "Patient actively engages with provider", "file_id": "dr_HD1103(part1)", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I always ask them, , what's new on the horizon? Are we making, , gains forward?", "context": "Patient and provider have open dialogue", "file_id": "dr_HD1103(part1)", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it's not only your eyesight. It, it affects every, , perspective of your body.", "context": "Patient discusses the impact of diabetes on overall health", "file_id": "dr_HD1103(part1)", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I always ask, , if there's anything new on horizon in care.", "context": "Patient seeks information about new treatments and care options", "file_id": "dr_HD1103(part1)", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Shared decision-making", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Oh, I do. I do that all the time. , , I've, I've learned-- my-- both of my parents were in nursing homes and I learned one thing, you have to advocate for yourself on everything", "context": "Patient advocates for themselves and engages in shared decision-making", "file_id": "dr_HD1103(part1)", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "you have to, -- they, they, they don't-- they have a short window. They have 15 minutes to-- you-- and you gotta-- and you gotta share your past six months or a year with them.", "context": "Patient emphasizes the importance of effective communication with healthcare providers", "file_id": "dr_HD1103(part1)", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you have to advocate for yourself on everything, no matter who it is, no matter what the doctor, how good or bad the physician-- not bad, but how, -- how good the physician is that day", "context": "Patient takes an active role in their care and advocates for themselves", "file_id": "dr_HD1103(part1)", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of time", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "they have a short window. They have 15 minutes to-- you-- and you gotta-- and you gotta share your past six months or a year with them.", "context": "Patient feels rushed during appointments", "file_id": "dr_HD1103(part1)", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they don't-- they have a short window. They have 15 minutes to-- you-- and you gotta-- and you gotta share your past six months or a year with them.", "context": "Patient feels providers do not listen", "file_id": "dr_HD1103(part1)", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've learned-- my-- both of my parents were in nursing homes and I learned one thing, you have to advocate for yourself on everything", "context": "Patient takes initiative in healthcare", "file_id": "dr_HD1103(part1)", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self advocacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you have to advocate for yourself on everything, no matter who it is, no matter what the doctor", "context": "Patient understands importance of self-advocacy", "file_id": "dr_HD1103(part1)", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I'm very fearful of that. You hear about the blue light and so on from computer screens and everything.", "context": "Patient has fear related to eye health", "file_id": "dr_HD1103(part1)", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm a firm believer in that. And yes, I do wear sunglasses, and I do watch-- you know, sometimes you get flashed, . , you see a shiny thing, , it'll set your vision off a little bit.", "context": "Patient has knowledge about protective measures", "file_id": "dr_HD1103(part1)", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't think-- I don't think as a, -- our diets or our food when it's processed has enough, , nutrients in it to keep us healthy", "context": "Patient lacks knowledge about nutrition and eye health", "file_id": "dr_HD1103(part1)", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I've always believed in, , vitamins and, , fish oil and so on--", "context": "Patient values health knowledge and preventive measures", "file_id": "dr_HD1103(part1)", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self care practices", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I do follow protective measures", "context": "Patient takes proactive steps for eye health", "file_id": "dr_HD1103(part1)", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive health beliefs", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I believe it's there for a reason", "context": "Patient has positive attitude towards supplements and vitamins", "file_id": "dr_HD1103(part1)", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "have more time", "context": "Patient desires more time with doctor", "file_id": "dr_HD1103(part1)", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "maybe spend a little bit more time with me when I come in", "context": "Patient wants more interaction with doctor", "file_id": "dr_HD1103(part1)", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "have more time", "context": "Patient values provider availability", "file_id": "dr_HD1103(part1)", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "maybe spend a little bit more time with me when I come in", "context": "Patient seeks stronger provider bond", "file_id": "dr_HD1103(part1)", "chunk_id": 23, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of time", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "have more time", "context": "Patient feels provider does not spend enough time with them", "file_id": "dr_HD1103(part1)", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "explain it to me, as on layman terms", "context": "Patient wants provider to explain things in a way they can understand", "file_id": "dr_HD1103(part1)", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "not all of us are college scholars", "context": "Patient implies that medical explanations can be too complex", "file_id": "dr_HD1103(part1)", "chunk_id": 24, "original_category": "BARRIER - SDOH" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "explain it to me, as on layman terms", "context": "Patient values clear and simple communication from provider", "file_id": "dr_HD1103(part1)", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "spend a little bit more time with me when I come in", "context": "Patient wants provider to be more attentive and caring", "file_id": "dr_HD1103(part1)", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what's new on the horizon, what's latest and greatest in eye care", "context": "Patient is interested in learning more about their condition and treatment options", "file_id": "dr_HD1103(part1)", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I think it's-- I, I-- in any, , , adult onset is terrible because you don't know how long you've been a diabetic and how long you're-- it has affected your eyes.", "context": "Patient discusses uncertainty about diabetes impact on vision", "file_id": "dr_HD1103(part1)", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't think I'll lose my vision to diabetes.", "context": "Patient believes they won't lose vision due to diabetes", "file_id": "dr_HD1103(part1)", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive outlook", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think there's a lot to behold with that as well.", "context": "Patient shows awareness of their condition", "file_id": "dr_HD1103(part1)", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective self-management", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I see very well. I, I don't have no issues.", "context": "Patient reports successful management of their condition", "file_id": "dr_HD1103(part1)", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm able to function. I'm able to get along fine.", "context": "Patient feels no immediate need for follow-up due to current ability to function", "file_id": "dr_HD1103(part1)", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of mention", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Just--", "context": "Patient seems to lack detailed understanding of their diabetes care", "file_id": "dr_WL1011", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "Trying to keep my sugar low", "context": "Patient prioritizes health monitoring", "file_id": "dr_WL1011", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access to technology", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They gave me a Dexcom 7", "context": "Patient has access to technology for health monitoring", "file_id": "dr_WL1011", "chunk_id": 0, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take four shots a day", "context": "Patient engages in self-management activities", "file_id": "dr_WL1011", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Equipment issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "once in a while it will not read", "context": "Patient experiences technical problems with Dexcom 7", "file_id": "dr_WL1011", "chunk_id": 1, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Device malfunction", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "wouldn't recognize", "context": "Dexcom 7 sensor fails to function properly", "file_id": "dr_WL1011", "chunk_id": 1, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Frustration with devices", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "So that's the biggest problem with the Dexcom is-- the monitors", "context": "Patient expresses frustration with Dexcom 7", "file_id": "dr_WL1011", "chunk_id": 1, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't know it was gone", "context": "Patient unaware of vision loss in right eye", "file_id": "dr_WL1011", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "because, I can see with my left eye", "context": "Patient feels no need to address right eye issue due to adequate vision in left eye", "file_id": "dr_WL1011", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't know it was gone-- because, , I can see with my left eye", "context": "Patient unaware of vision loss in one eye", "file_id": "dr_WL1011", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "She didn't say a thing. Just -- gone", "context": "Healthcare provider did not communicate effectively", "file_id": "dr_WL1011", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "He says, 'Well, she said she had a high reading, so let me check to see if she was right.'", "context": "Patient feels doctor did not clearly explain their condition", "file_id": "dr_WL1011", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "He says, 'Yep. She was right.'", "context": "Patient seems to be questioning doctor's expertise", "file_id": "dr_WL1011", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Went back the next morning at 8:30.", "context": "Patient had easy access to provider for follow-up appointment", "file_id": "dr_WL1011", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He says, 'Go home. Get back here 8:30 tomorrow morning, and we'll see if the pressure went down.'", "context": "Doctor clearly explained instructions to patient", "file_id": "dr_WL1011", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider explained risks", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They told me that I needed to keep my sugar down.", "context": "Patient reports doctor discussed diabetes impact on eyes", "file_id": "dr_WL1011", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider prescribed treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "They put me on eye drops.", "context": "Patient received medical treatment for eye issue", "file_id": "dr_WL1011", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They come and get me, and I check in out front", "context": "Patient describes ease of access to care", "file_id": "dr_WL1011", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "put a-- t-talk to me and ask me how-- if I'm-- have any problems", "context": "Patient reports provider initiates conversation about concerns", "file_id": "dr_WL1011", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Reminder systems not mentioned", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "None", "context": "Patient does not mention receiving reminders for appointments", "file_id": "dr_WL1011", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And he says, 'Everything's fine. It looks good.'", "context": "Patient receives reassuring communication from doctor", "file_id": "dr_WL1011", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And he says, 'Everything's fine. It looks good.'", "context": "Patient receives clear information from doctor", "file_id": "dr_WL1011", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And then they come and get me and put me in a room, and the doctor comes in and talks to me.", "context": "Patient has access to healthcare provider", "file_id": "dr_WL1011", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "And he says, 'Everything's fine. It looks good.'", "context": "Patient may not feel urgent need for follow-up due to positive diagnosis", "file_id": "dr_WL1011", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "there's a lady here that takes care of all the VAs", "context": "Patient has access to a dedicated VA staff member for scheduling", "file_id": "dr_WL1011", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "she'll call me and say, in a month or so and say, 'Your next appointment is at such and such a date, such and such a time'", "context": "Patient receives reminders for upcoming appointments", "file_id": "dr_WL1011", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He's been here every time I've been here", "context": "Patient has a consistent and reliable provider", "file_id": "dr_WL1011", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "a couple times I've come from my appointment, and I've had to wait and wait and wait", "context": "Patient experiences long wait times at appointments", "file_id": "dr_WL1011", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "And he says, 'I can't do anything about it.'", "context": "Patient feels doctor is unhelpful in addressing wait time concerns", "file_id": "dr_WL1011", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "He's been here every time I've been here", "context": "Patient appreciates consistent provider availability", "file_id": "dr_WL1011", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "she'll call me and say, in a month or so and say, 'Your next appointment is at such and such a date, such and such a time'", "context": "Patient benefits from reminder calls for appointments", "file_id": "dr_WL1011", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "back-to-back", "context": "Patient experiences long wait times due to back-to-back appointments", "file_id": "dr_WL1011", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of provider empathy", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I talked to the doctor about it, and he says, 'I can't do anything about it'", "context": "Patient feels dismissed by provider", "file_id": "dr_WL1011", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "I'm 20-- 22 miles", "context": "Patient travels a distance for appointments", "file_id": "dr_WL1011", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Time constraints", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "taking up your day", "context": "Patient's daily schedule is affected by appointments", "file_id": "dr_WL1011", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "we don't have ca-cable where we live", "context": "Patient mentions lack of services in their area", "file_id": "dr_WL1011", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "If you don't take care of your eyes, you're not go-- you're gonna go blind.", "context": "Patient is fearful of going blind due to diabetes", "file_id": "dr_WL1011", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "All I know is it, it gets worse.", "context": "Patient lacks knowledge about diabetic retinopathy", "file_id": "dr_WL1011", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor explanation", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "No. S1: 09:29 No? You're not s-- do you-- do anything about it?", "context": "Provider did not explain diabetic retinopathy", "file_id": "dr_WL1011", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Comfortable communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Fine. S1: 09:43 Very comfortable? S2: 09:44 I Dr. G.", "context": "Patient feels comfortable talking to doctor", "file_id": "dr_WL1011", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, yeah", "context": "Patient feels doctor was receptive to concerns", "file_id": "dr_WL1011", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "he said, 'You got floaters.' I says, 'No. I don't have anything floating.'", "context": "Patient and doctor discussed symptoms", "file_id": "dr_WL1011", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I, I don't have any problem with, with him", "context": "Patient has a good relationship with doctor", "file_id": "dr_WL1011", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm content with the way he does things", "context": "Patient expresses satisfaction with doctor", "file_id": "dr_WL1011", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Perceived severity of diabetes", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It's very serious", "context": "Patient understands the seriousness of diabetes", "file_id": "dr_WL1011", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Trust in provider recommendations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "if I need-- he says if I need the shots, they'll go back to giving me the shots", "context": "Patient trusts doctor's treatment plan", "file_id": "dr_WL1011", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "out of the 12, so far that I know of, six of us have diabetes", "context": "Patient is aware of family history of diabetes", "file_id": "dr_WL1011", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Adherence motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "If I don't pay attention to the doctor, it's probably very s-- very possible", "context": "Patient is motivated to follow doctor's advice", "file_id": "dr_WL1011", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "If I don't pay attention to the doctor, it's probably very possible", "context": "Patient lacks understanding of diabetes impact on vision", "file_id": "dr_WL1011", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider reassurance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "But he says, 'Today everything's fine'", "context": "Patient feels reassured by provider's words", "file_id": "dr_WL1011", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Trust in provider", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "if I need-- he says if I need the shots, they'll go back to giving me the shots", "context": "Patient trusts provider's treatment decisions", "file_id": "dr_WL1011", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of vision loss", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "If I don't pay attention to the doctor, it's probably very possible", "context": "Patient fears losing vision due to diabetes", "file_id": "dr_WL1011", "chunk_id": 16, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I just can't tell how close I am", "context": "Patient unsure about their condition", "file_id": "dr_WL1011", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I lost my right eye", "context": "Patient experienced a negative outcome", "file_id": "dr_WL1011", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Access to healthcare", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They took those out", "context": "Patient received necessary treatment", "file_id": "dr_WL1011", "chunk_id": 17, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Effective treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "They took the other-- right one out, and then I got the left one done two years ago", "context": "Patient received timely and effective care", "file_id": "dr_WL1011", "chunk_id": 17, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I don't wanna have to pay for it", "context": "Patient prefers VA care to avoid paying", "file_id": "dr_WL1011", "chunk_id": 18, "original_category": "BARRIER - SDOH" }, { "code": "Adequate insurance coverage", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "since I'm a veteran, I go to the VA for-- everything that I can go to the VA for", "context": "Patient utilizes VA services due to coverage", "file_id": "dr_WL1011", "chunk_id": 18, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I don't wanna have to pay for it", "context": "Patient avoids paying for healthcare services", "file_id": "dr_WL1011", "chunk_id": 19, "original_category": "BARRIER - SDOH" }, { "code": "Cost issues", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "The cost", "context": "Patient is discouraged by high costs of healthcare", "file_id": "dr_WL1011", "chunk_id": 19, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "it just seems to keep going up and up and up and up", "context": "Patient is concerned about rising healthcare costs", "file_id": "dr_WL1011", "chunk_id": 19, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I go to the VA for everything that I can", "context": "Patient has access to preferred healthcare provider", "file_id": "dr_WL1011", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "if I-- if I had one that wasn't-- I wasn't happy with, I'd be saying, 'I need another doctor.'", "context": "Patient values a good relationship with their provider", "file_id": "dr_WL1011", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Just pay attention to what the doctor tells you.", "context": "Patient emphasizes importance of clear communication from providers", "file_id": "dr_WL1011", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of health literacy", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I says, 'I'm 35 years old. Ain't nobody telling me what I can eat and what I can't eat.'", "context": "Patient resists dietary advice due to lack of understanding", "file_id": "dr_WL1011", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "we had to scrimp and pinch", "context": "Patient experienced financial difficulties in the past", "file_id": "dr_WL1011", "chunk_id": 21, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "If I'd have listened in '94, I'd have still had my left foot. I'd have had my right eye.", "context": "Patient realizes too late the consequences of not managing diabetes", "file_id": "dr_WL1011", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "If I'd have listened in '94", "context": "Patient acknowledges the importance of health education and advice", "file_id": "dr_WL1011", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "If I'd have listened in '94, I'd have still had my left foot. I'd have had my right eye.", "context": "Patient expresses regret over not taking care of diabetes earlier", "file_id": "dr_WL1011", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She tries the best she can.", "context": "Patient's wife helps with diabetes care", "file_id": "dr_WL1011", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient stubbornness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm still stubborn. She'll fix me something to eat, and if I don't like it, I'll eat a little bit of it, but I won't--", "context": "Patient admits to being stubborn about food choices", "file_id": "dr_WL1011", "chunk_id": 22, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Emotional support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, yeah. Yeah.", "context": "Patient feels comfortable sharing worries and fears with wife", "file_id": "dr_WL1011", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She'll fix me something to eat", "context": "Patient receives help from a family member", "file_id": "dr_WL1011", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health Education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "she got on the computer and started looking up--", "context": "Patient's family member helps them learn about diabetes", "file_id": "dr_WL1011", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive Provider Relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She, she knows more about diabetes than I do", "context": "Patient trusts and values their provider's knowledge", "file_id": "dr_WL1011", "chunk_id": 23, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack Of Understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "sometimes I listened, and sometimes I didn't", "context": "Patient may not fully understand their condition", "file_id": "dr_WL1011", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "No specific quote, but context implies potential issue", "context": "Patient has a prosthetic and mentions sweating and rubbing, potentially implying mobility or transportation challenges", "file_id": "dr_WL1011", "chunk_id": 24, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "biggest expectation was whether I was gonna have to get another shot or not", "context": "Patient's expectation for care implies a lack of perceived urgency for follow-up", "file_id": "dr_WL1011", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Doc come in, and he says, No. You don't need one.", "context": "Patient reports clear communication from provider", "file_id": "dr_WL1011", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Doc come in, and he says, No. You don't need one.", "context": "Patient has access to a provider for follow-up care", "file_id": "dr_WL1011", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Clear expectations", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "he says, I'll see you in two months, and we'll see how it's doing then", "context": "Provider sets clear expectations for follow-up care", "file_id": "dr_WL1011", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "'cause they are not comfortable", "context": "Patient expresses discomfort with shots", "file_id": "dr_WL1011", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "And he says, 'I'll see you in two months, and we'll see how it's doing then.'", "context": "Patient reports provider's communication about follow-up", "file_id": "dr_WL1011", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And I said, 'I'd rather not--'", "context": "Patient reports provider's response to their concerns", "file_id": "dr_WL1011", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I went to diabetes education classes at Mon General with April Lombardi", "context": "Patient participated in diabetes education classes", "file_id": "dr_DA1010_Part2", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider expertise", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "for somebody to teach diabetes and to tell you what to eat and they don't have diabetes", "context": "Patient questions provider's credibility due to lack of personal experience with diabetes", "file_id": "dr_DA1010_Part2", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Access to dieticians", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And I've talked to numerous dieticians", "context": "Patient has access to multiple dieticians for support", "file_id": "dr_DA1010_Part2", "chunk_id": 0, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Perceived helpfulness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Well, you're gonna learn a little bit from all of 'em", "context": "Patient finds education classes somewhat helpful", "file_id": "dr_DA1010_Part2", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "for somebody to teach diabetes and to tell you what to eat and they don't have diabetes", "context": "Patient questions provider's credibility due to lack of personal experience with diabetes", "file_id": "dr_DA1010_Part2", "chunk_id": 1, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Health education barriers", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it's just book learning. I can do that, I can do that from the internet", "context": "Patient feels health education is insufficient or not personalized", "file_id": "dr_DA1010_Part2", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've got a very, very special friend. And she's the head dietician down here in campus", "context": "Patient has a supportive friend who is a healthcare professional", "file_id": "dr_DA1010_Part2", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And she's helped me with a lot of stuff", "context": "Patient has access to a helpful and supportive healthcare provider", "file_id": "dr_DA1010_Part2", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Personal relationship", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I didn't want that to be a factor", "context": "Patient stopped attending appointments due to personal relationship with dietician", "file_id": "dr_DA1010_Part2", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And she's very good", "context": "Patient praises the dietician, indicating a positive relationship", "file_id": "dr_DA1010_Part2", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I met her through an appointment", "context": "Patient had access to the dietician through an appointment", "file_id": "dr_DA1010_Part2", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't, I don't know", "context": "Patient expresses uncertainty about treatment", "file_id": "dr_DA1010_Part2", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Well, how in the hell can it?", "context": "Patient expresses frustration and uncertainty about treatment outcome", "file_id": "dr_DA1010_Part2", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "No more. No more.", "context": "Patient expresses fear of needle procedure for eye treatment", "file_id": "dr_DA1010_Part2", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Painful experience", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It wasn't no picnic.", "context": "Patient describes previous treatment experience as painful", "file_id": "dr_DA1010_Part2", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Painful experience", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It wasn't no road, it wasn't no, , picnic. It was, it was, it was painful.", "context": "Patient had a painful experience during treatment", "file_id": "dr_DA1010_Part2", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "So what they put in this eye was different than what they put in that eye.", "context": "Patient seems unsure about treatment differences", "file_id": "dr_DA1010_Part2", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Whenever I feel jumping up and running.", "context": "Patient feels anxious during treatment", "file_id": "dr_DA1010_Part2", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "It seems you come in to get one problem fixed and they create two others", "context": "Patient expresses distrust in healthcare providers", "file_id": "dr_DA1010_Part2", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "It seems you come in to get one problem fixed and they create two others", "context": "Patient implies poor communication from healthcare providers", "file_id": "dr_DA1010_Part2", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Negative expectations", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It seems you come in to get one problem fixed and they create two others", "context": "Patient has negative expectations about healthcare visits", "file_id": "dr_DA1010_Part2", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Routine exam", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Well, today was just a routine exam", "context": "Patient attends regular check-ups", "file_id": "dr_DA1010_Part2", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he's happy", "context": "Patient seems satisfied with provider's attitude", "file_id": "dr_DA1010_Part2", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "he checked the retinas to make sure it was still staying attached", "context": "Patient understands what provider did during exam", "file_id": "dr_DA1010_Part2", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "today was just a routine exam", "context": "Patient had easy access to scheduled appointment", "file_id": "dr_DA1010_Part2", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I just do regular things. I don't do things about my diabetes.", "context": "Patient lacks awareness about diabetes self-care", "file_id": "dr_RJ0619", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I just do regular things. I don't do things about my diabetes.", "context": "Patient does not prioritize diabetes care", "file_id": "dr_RJ0619", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education needed", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I just do regular things. I don't do things about my diabetes.", "context": "Patient requires health education to manage diabetes", "file_id": "dr_RJ0619", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Medication adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take my medication.", "context": "Patient is adherent to medication regimen", "file_id": "dr_RJ0619", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "My, , lips beginning to get stuck", "context": "Patient describes vague symptoms indicating potential lack of understanding about diabetes progression", "file_id": "dr_RJ0619", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Stop eating sweets and, , start curbing down on my sugar intake", "context": "Patient describes self-management strategies indicating some level of health education", "file_id": "dr_RJ0619", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Stop eating sweets and, , start curbing down on my sugar intake", "context": "Patient demonstrates understanding of diabetes management through diet", "file_id": "dr_RJ0619", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Stop eating sweets and, , start curbing down on my sugar intake", "context": "Patient describes actions taken to manage diabetes", "file_id": "dr_RJ0619", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "My, , lips beginning to get stuck", "context": "Patient describes vague symptoms", "file_id": "dr_RJ0619", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Especially when my mouth and get dry and stuff", "context": "Patient expresses anxiety about symptoms", "file_id": "dr_RJ0619", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I just can feel", "context": "Patient lacks clear understanding of condition", "file_id": "dr_RJ0619", "chunk_id": 2, "original_category": "BARRIER - SDOH" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Hard for me to say things because- my mouth all glued up", "context": "Patient expresses frustration with symptoms", "file_id": "dr_RJ0619", "chunk_id": 2, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "So the dry mouth", "context": "Patient learns about diabetes symptoms", "file_id": "dr_RJ0619", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they were not gonna be 100%, ? 'Cause the damage has been so bad because of the blood sugar", "context": "Patient lacks clear understanding of their condition", "file_id": "dr_RJ0619", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they gave, they, at one point they was working on it and they're getting better", "context": "Patient feels supported by their doctor", "file_id": "dr_RJ0619", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what has your doctor told you about how diabetes, , that has affected or might have affected your eyes?", "context": "Patient receives guidance from their doctor", "file_id": "dr_RJ0619", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the damage has been so bad because of the blood sugar", "context": "Patient is concerned about their condition", "file_id": "dr_RJ0619", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "what has your doctor told you about how diabetes, , that has affected or might have affected your eyes?", "context": "Patient and doctor communicate effectively", "file_id": "dr_RJ0619", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "But it is not getting any worse", "context": "Patient seems unaware of potential diabetes complications", "file_id": "dr_RJ0619", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Here at the Eye Institute", "context": "Patient has easy access to eye care services", "file_id": "dr_RJ0619", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They'll go in and they'll do, , the pressure and then, , every so often, maybe about two or three times, they'll do the... where they take the pictures", "context": "Patient understands procedures and feels informed", "file_id": "dr_RJ0619", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "because I drive,", "context": "Patient mentions driving themselves to appointments", "file_id": "dr_RJ0619", "chunk_id": 5, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "At least once a year", "context": "Patient implies potential lack of access to more frequent care", "file_id": "dr_RJ0619", "chunk_id": 5, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "No perceived urgency", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "At least once a year", "context": "Patient may not see the need for more frequent follow-ups", "file_id": "dr_RJ0619", "chunk_id": 5, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I go in, I check in", "context": "Patient has easy access to care", "file_id": "dr_RJ0619", "chunk_id": 5, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Other than that, it's, it's not a problem", "context": "Patient has a positive experience with their care", "file_id": "dr_RJ0619", "chunk_id": 5, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of scheduling issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It's pretty, pretty, pretty easy", "context": "Patient finds scheduling process to be easy", "file_id": "dr_RJ0619", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Occasional scheduling difficulty", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Every, every so often I can't get the day or the time I want", "context": "Patient occasionally has trouble getting desired schedule", "file_id": "dr_RJ0619", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "people here... Pretty, , well about what they do, so it's not a, not difficult at all", "context": "Patient finds providers to be accessible and knowledgeable", "file_id": "dr_RJ0619", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Flexible scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "But they normally get it around where I can work with", "context": "Patient appreciates flexibility in scheduling", "file_id": "dr_RJ0619", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "Every, every so often I can't get the day or the time I want", "context": "Patient experiences difficulty scheduling appointments at preferred times", "file_id": "dr_RJ0619", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "Yeah. No", "context": "Patient denies experiencing long wait times, but question implies it could be a concern", "file_id": "dr_RJ0619", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Other than the shots that they tell me, ... They don't tell me do this, do that", "context": "Patient feels providers do not communicate effectively about eye care recommendations", "file_id": "dr_RJ0619", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Yeah, they get me in pretty quick", "context": "Patient appreciates prompt access to providers", "file_id": "dr_RJ0619", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of challenges", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't quite know", "context": "Patient doesn't perceive any challenges", "file_id": "dr_RJ0619", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Top quality care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I believe I'm getting top quality care", "context": "Patient is satisfied with their care", "file_id": "dr_RJ0619", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "No suggested changes", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Nothing that I would change", "context": "Patient has a positive experience with provider", "file_id": "dr_RJ0619", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I'm an over-the-road truck driver", "context": "Patient's job as a truck driver may impact ability to attend follow-up appointments", "file_id": "dr_RJ0619", "chunk_id": 9, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Before the shots, he told me that I'm looked I was goin', goin' progression blind", "context": "Patient's initial lack of understanding about disease progression", "file_id": "dr_RJ0619", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Very close. Very comfortable", "context": "Patient feels comfortable with their doctor", "file_id": "dr_RJ0619", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Very comfortable", "context": "Patient can express concerns to their doctor", "file_id": "dr_RJ0619", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "you have to wait to get exam here", "context": "Patient mentions waiting time for exams", "file_id": "dr_RJ0619", "chunk_id": 11, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Very comfortable", "context": "Patient feels comfortable talking to doctor", "file_id": "dr_RJ0619", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They just gave me a new prescription", "context": "Patient receives timely care from provider", "file_id": "dr_RJ0619", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I asked, bout my glasses", "context": "Patient openly discusses concerns with doctor", "file_id": "dr_RJ0619", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't know it was a serious, , serious, but now with the eye care I'm getting, I know now that it is very serious", "context": "Patient initially lacked understanding of diabetes severity", "file_id": "dr_RJ0619", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I follow what they say", "context": "Patient trusts and follows provider recommendations", "file_id": "dr_RJ0619", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "now with the eye care I'm getting, I know now that it is very serious", "context": "Patient received health education through eye care", "file_id": "dr_RJ0619", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I follow what they say", "context": "Patient has a positive and trusting relationship with provider", "file_id": "dr_RJ0619", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't think I'm gonna lose my vision", "context": "Patient feels current treatment is effective, reducing concern about vision loss", "file_id": "dr_RJ0619", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Now that I'm doing what I'm doing with, with all these doctors...", "context": "Patient implies trust in healthcare providers due to collaborative care", "file_id": "dr_RJ0619", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Now that I'm doing what I'm doing with, with all these doctors...", "context": "Patient suggests awareness and engagement in health management through doctor interactions", "file_id": "dr_RJ0619", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Whatever. He said that will probably stopped the need for shots.", "context": "Patient seems unclear about treatment options", "file_id": "dr_RJ0619", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Whatever. He said that will probably stopped the need for shots.", "context": "Patient's nonchalant attitude may indicate fear or avoidance", "file_id": "dr_RJ0619", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He said that will probably stopped the need for shots.", "context": "Provider is explaining treatment in a reassuring manner", "file_id": "dr_RJ0619", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they're doing a marvelous job at what they do", "context": "Patient expresses satisfaction with healthcare providers", "file_id": "dr_RJ0619", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I'm very informed about my eye care", "context": "Patient feels informed about their eye care", "file_id": "dr_RJ0619", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they're doing a marvelous job at what they do", "context": "Patient has positive experience with healthcare system", "file_id": "dr_RJ0619", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "They tried, but I didn't go", "context": "Patient did not attend diabetes education classes", "file_id": "dr_RJ0619", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Food preference barriers", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "'cause I'm not going to eat that food", "context": "Patient's food preferences hindered attendance at diabetes education classes", "file_id": "dr_RJ0619", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No social support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No. Nobody? No family members that", "context": "Patient lacks social support for daily diabetes care", "file_id": "dr_RJ0619", "chunk_id": 16, "original_category": "BARRIER - SDOH" }, { "code": "Lack of motivation", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Motivation & Self-Care Barriers", "quote": "I'm gonna eat what I wanna eat", "context": "Patient shows lack of motivation to follow dietary advice", "file_id": "dr_RJ0619", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have people to talk to, yeah", "context": "Patient has friends to share worries and fears with", "file_id": "dr_RJ0619", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Resistance to advice", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't want them giving me no advice 'cause... hey", "context": "Patient resists advice from others, potentially due to lack of understanding", "file_id": "dr_RJ0619", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of social support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No. When you get sick, do you have someone to help you with your daily chores, food, transportation, and taking medications? Speaker 2: No.", "context": "Patient lacks support for daily tasks", "file_id": "dr_RJ0619", "chunk_id": 18, "original_category": "BARRIER - SDOH" }, { "code": "Desire for independence", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm sick, get out. Speaker 1: So you'd rather just take care of it? Speaker 2: Yeah, yeah. Be by myself.", "context": "Patient prefers self-care over seeking help", "file_id": "dr_RJ0619", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Limited health guidance", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "They, they might try to tell me something and I, I don't know.", "context": "Patient unsure about provider's advice", "file_id": "dr_RJ0619", "chunk_id": 18, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Available support system", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, but I, I don't", "context": "Patient has someone to call for advice", "file_id": "dr_RJ0619", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare access barriers", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "No. Have you ever needed somebody in those times? Speaker 2: No.", "context": "Patient lacks access to necessary care", "file_id": "dr_RJ0619", "chunk_id": 18, "original_category": "BARRIER - SDOH" }, { "code": "Lack of social support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm sick, get out. Yeah, yeah. Be by myself.", "context": "Patient prefers to be alone when dealing with health issues", "file_id": "dr_RJ0619", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "None. At all. None.", "context": "Patient does not feel their eyesight is currently limiting", "file_id": "dr_RJ0619", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive expectations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "To get my shots and to get, , my prescription.", "context": "Patient has clear expectations for their eye visit", "file_id": "dr_RJ0619", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Everything went well", "context": "Patient had a positive experience with their eye visit", "file_id": "dr_RJ0619", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Fear of pain", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "my expectation for them not to hurt me", "context": "Patient fears pain from shots", "file_id": "dr_RJ0619", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Everything went well. They gave me my shots. It was awesome.", "context": "Patient had a positive experience with healthcare provider", "file_id": "dr_RJ0619", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They gave me my shots. It was awesome.", "context": "Patient felt informed and communicated with by provider", "file_id": "dr_RJ0619", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "maybe your diabetes is getting worse or maybe your sugar's messed up a little bit", "context": "Patient unsure about diabetes progression", "file_id": "dr_KD0321", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Symptom awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "of course the blurry vision", "context": "Patient aware of symptoms indicating poor diabetes control", "file_id": "dr_KD0321", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "Anything... Any specific signs", "context": "Patient actively monitors diabetes symptoms", "file_id": "dr_KD0321", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know if it had anything to do with this retinal tear or not", "context": "Patient unsure about diabetes impact on eyes", "file_id": "dr_KD0321", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Uncertainty about diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't know if it had anything to do with this retinal tear or not", "context": "Patient unsure about diabetes impact on eyes", "file_id": "dr_KD0321", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know if it had anything to do with this retinal tear or not", "context": "Patient unsure about diabetes impact on eyes", "file_id": "dr_KD0321", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It hasn't affected my acuity, my visual acuity", "context": "Patient feels no immediate need for follow-up", "file_id": "dr_KD0321", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They, they have? What have they told you- ... about that? Anything specific?", "context": "Patient receives information from doctor", "file_id": "dr_KD0321", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Access to healthcare", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Ophthalmologist. Local. Bridgeport. Local", "context": "Patient has local access to eye care", "file_id": "dr_KD0321", "chunk_id": 3, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Local access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Local. Bridgeport.", "context": "Patient has local access to eye exams", "file_id": "dr_KD0321", "chunk_id": 4, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Ophthalmologist. Local. Bridgeport.", "context": "Patient has accessible provider for eye exams", "file_id": "dr_KD0321", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Good doctor", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I had a very good doctor", "context": "Patient appreciates their doctor", "file_id": "dr_KD0321", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "saw something, saw a red flag", "context": "Doctor effectively communicates concerns to patient", "file_id": "dr_KD0321", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "sent me here immediately, the same day", "context": "Patient received prompt referral to specialist", "file_id": "dr_KD0321", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Uneventful. Just- Uneventful?", "context": "Patient had a smooth and uneventful experience with dilation", "file_id": "dr_KD0321", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Transportation assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And I had a driver", "context": "Patient has access to transportation", "file_id": "dr_KD0321", "chunk_id": 6, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Having a driver", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And I had a driver", "context": "Patient has access to transportation", "file_id": "dr_KD0321", "chunk_id": 7, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Provider explanation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yeah. Which, , light. , bright light- Mm-hmm. ... and, , she provided the, , , darkening, , shield.", "context": "Provider explained process to patient", "file_id": "dr_KD0321", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive provider interaction", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They were very good about that. , yeah.", "context": "Patient has positive experience with provider", "file_id": "dr_KD0321", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "They're very backed up", "context": "Patient experiences long wait times for appointments", "file_id": "dr_KD0321", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "They're very backed up", "context": "Patient has difficulty scheduling appointments due to provider's busy schedule", "file_id": "dr_KD0321", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "They're very backed up", "context": "Patient experiences long wait times due to high patient volume", "file_id": "dr_KD0321", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "They're very backed up now, even with- Yeah", "context": "Patient has trouble scheduling appointments due to clinic's busy schedule", "file_id": "dr_KD0321", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider availability", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I think number of patients are- Mm.", "context": "Patient mentions issue with doctor's availability", "file_id": "dr_KD0321", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of providers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No, dozens. There aren't?", "context": "Patient notes scarcity of optometrists in the area", "file_id": "dr_KD0321", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "when you've had a family doctor for years and an- Mm-hmm.", "context": "Patient values long-term relationships with healthcare providers", "file_id": "dr_KD0321", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Do you have any recommendations about, , regarding your eye care? , any suggestions to improve the experience?", "context": "Patient seeks improvement in provider accessibility", "file_id": "dr_KD0321", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible facility", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "access to the facility is fine", "context": "Patient finds the clinic easily accessible", "file_id": "dr_KD0321", "chunk_id": 11, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Helpful staff", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "helpful people", "context": "Patient receives support from clinic staff", "file_id": "dr_KD0321", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of challenges", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No. ... care? No?", "context": "Patient reports no challenges with receiving care", "file_id": "dr_KD0321", "chunk_id": 12, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "So for example, do you wear sunglasses to r-", "context": "Patient is asked about self-care practices", "file_id": "dr_KD0321", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self care practices", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So what are some ways that you specifically take care of your eyes?", "context": "Patient is asked about eye care habits", "file_id": "dr_KD0321", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access to care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "None. That's good to hear.", "context": "Patient reports no issues with accessing care", "file_id": "dr_KD0321", "chunk_id": 12, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "No", "context": "Patient does not express concern for vision loss with diabetes", "file_id": "dr_KD0321", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "So a multivitamin?", "context": "Patient is taking supplements, indicating some health awareness", "file_id": "dr_KD0321", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Do you take any supplements for your eyes?", "context": "Interviewer is inquiring about patient's eye health, indicating accessible care", "file_id": "dr_KD0321", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my PCP is very good about giving me a global", "context": "Patient has a positive relationship with their primary care physician", "file_id": "dr_KD0321", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "we discuss it every time", "context": "Patient and provider have open and regular discussions about diabetes management", "file_id": "dr_KD0321", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my PCP is very good about giving me a global", "context": "Patient feels their provider is understanding and supportive", "file_id": "dr_KD0321", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Shared decision-making", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "we talk about all complications", "context": "Patient and provider work together to make informed decisions about diabetes management", "file_id": "dr_KD0321", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "availability of herself", "context": "Patient has easy access to their provider", "file_id": "dr_KD0321", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Bringing him- Yeah. ... to Morgantown for laser-", "context": "Patient mentions bringing a family member to another location for treatment, implying potential transportation challenges", "file_id": "dr_KD0321", "chunk_id": 15, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Honest communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "To be honest with me", "context": "Patient values honesty from doctor", "file_id": "dr_KD0321", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Trust in provider", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "give me the basic, honest truth", "context": "Patient wants trustworthy care from doctor", "file_id": "dr_KD0321", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "It would terrify me", "context": "Patient expresses fear of losing eyesight due to diabetes", "file_id": "dr_KD0321", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "give me the basic, honest truth", "context": "Patient desires clear and accurate information about their condition", "file_id": "dr_KD0321", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "never fear telling me the truth", "context": "Patient values honest communication with their provider", "file_id": "dr_KD0321", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't see it as threatening", "context": "Patient does not feel threatened by potential complications", "file_id": "dr_KD0321", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I am aware of what complications can occur", "context": "Patient has knowledge about potential complications", "file_id": "dr_KD0321", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Watching my diet", "context": "Patient takes control of their diet to manage condition", "file_id": "dr_KD0321", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't even know I had this tear. I had no clue.", "context": "Patient was unaware of their condition", "file_id": "dr_KD0321", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't see it as threatening.", "context": "Patient does not feel their condition is a threat", "file_id": "dr_KD0321", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So she was right on it. , right on- In- ... top of it", "context": "Provider was responsive and proactive", "file_id": "dr_KD0321", "chunk_id": 19, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She says, 'Wait a minute.' , 'I need you to go to Morgantown to, , have a more extensive exam.'", "context": "Provider clearly communicated the need for further examination", "file_id": "dr_KD0321", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So she was right on it.", "context": "Patient appreciates prompt provider action", "file_id": "dr_KD0321", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She says, 'Wait a minute.'", "context": "Provider clearly communicates need for further exam", "file_id": "dr_KD0321", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Desire longevity", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I want to have longevity and a quality of life to enjoy that longevity", "context": "Patient motivated by desire for long and healthy life", "file_id": "dr_KD0321", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Receptive doctor", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Very much so", "context": "Patient feels doctor is supportive of their goals", "file_id": "dr_KD0321", "chunk_id": 21, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She's quite an advocate for that", "context": "Patient feels supported by their doctor", "file_id": "dr_KD0321", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She's quite an advocate for that", "context": "Patient feels heard and understood by their doctor", "file_id": "dr_KD0321", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She's quite an advocate for that", "context": "Patient feels their doctor cares about their well-being", "file_id": "dr_KD0321", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "you've had such a good experience", "context": "Patient had a positive experience with their provider", "file_id": "dr_KD0321", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Allergy season", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It's allergy season", "context": "Patient mentions allergy season as a potential challenge", "file_id": "dr_KD0321", "chunk_id": 24, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Health Education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "More education", "context": "Patient appreciates educational content in waiting room", "file_id": "dr_KD0321", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider Education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "they're reaching out, in that way", "context": "Patient values provider's effort to educate", "file_id": "dr_KD0321", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Who's ever had enough education?", "context": "Patient expresses need for more education", "file_id": "dr_KD0321", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Provide education", "context": "Patient suggests providing education as a facilitator", "file_id": "dr_KD0321", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "self-advocated", "context": "Patient mentions self-advocacy as a facilitator", "file_id": "dr_KD0321", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Reading more about diabetes", "context": "Patient takes initiative to learn about diabetes", "file_id": "dr_KD0321", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Community resources", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they do offer them in the community", "context": "Patient aware of community-based diabetes programs", "file_id": "dr_KD0321", "chunk_id": 27, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Positive staff", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "staff are very, patient-oriented", "context": "Patient praises clinic staff", "file_id": "dr_KD0321", "chunk_id": 28, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Smooth process", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Bangsolutely. Start to finish", "context": "Patient describes efficient clinic experience", "file_id": "dr_KD0321", "chunk_id": 28, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient-oriented staff", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "staff are very, patient-oriented", "context": "Patient appreciates the clinic's patient-centered approach", "file_id": "dr_KD0321", "chunk_id": 29, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "staff are very, patient-oriented", "context": "Patient values the positive interaction with clinic staff", "file_id": "dr_KD0321", "chunk_id": 29, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "nothing in particular. , I just take the medication that I'm supposed to.", "context": "Patient seems unaware of comprehensive diabetes management", "file_id": "dr_SS0921", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Disciplined patient", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I, I'm kind of disciplined. So I keep a very regular diet.", "context": "Patient takes initiative in managing diabetes through diet", "file_id": "dr_SS0921", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Regular diet", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "So I keep a very regular diet.", "context": "Patient prioritizes healthy eating for diabetes management", "file_id": "dr_SS0921", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health priorities", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "to keep it under control. That's number one.", "context": "Patient recognizes importance of controlling diabetes", "file_id": "dr_SS0921", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Flexible schedule", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'm lucky to have a very, lot of free time", "context": "Patient has ample free time for self-care", "file_id": "dr_SS0921", "chunk_id": 1, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Regular schedule", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I can keep a very regular schedule", "context": "Patient prioritizes routine for diet management", "file_id": "dr_SS0921", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "So that was very important. So I do that. I'm very particular in terms of what I eat.", "context": "Patient prioritizes diet due to health knowledge", "file_id": "dr_SS0921", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm very particular about my weight. I maintain my weight.", "context": "Patient actively manages weight for health", "file_id": "dr_SS0921", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of symptoms", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Not really. Nothing that makes you- No, nothing that, ...", "context": "Patient does not experience symptoms to prompt follow-up", "file_id": "dr_SS0921", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "this is based on my family history, so it is-", "context": "Patient is aware of family history and its implications", "file_id": "dr_SS0921", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I keep it under control, so..", "context": "Patient takes active role in managing diabetes", "file_id": "dr_SS0921", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Not really. Nothing that makes you- No, nothing that, ... , , , I, I've been, , pre-diabetic for last 15, 20 years.", "context": "Patient seems unaware of diabetes progression", "file_id": "dr_SS0921", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "my father had the same issues", "context": "Patient aware of hereditary component", "file_id": "dr_SS0921", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Not really. , I think one of my eyes, the right side, , is the one that is gonna create problems, I know that.", "context": "Patient lacks sense of urgency for follow-up", "file_id": "dr_SS0921", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know if this is, maybe this is of interest to you", "context": "Patient unsure about their condition", "file_id": "dr_SS0921", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Hereditary beliefs", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "my father had the same issues", "context": "Patient attributes condition to heredity", "file_id": "dr_SS0921", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I developed, , eye problems", "context": "Patient lacks knowledge about eye problems related to DR", "file_id": "dr_SS0921", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "my eyesight's improved a lot", "context": "Patient feels no need for follow-up due to improved eyesight", "file_id": "dr_SS0921", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "my eyesight's improved a lot", "context": "Patient feels their eyesight has improved, potentially reducing motivation for follow-up", "file_id": "dr_SS0921", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it improved, dramatically. And I had, I did not have to use glasses anymore.", "context": "Patient feels they can see well and may not prioritize follow-up", "file_id": "dr_SS0921", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "because of age, because I know that that is gonna happen again", "context": "Patient is aware of potential vision decline with age and may fear diagnosis", "file_id": "dr_SS0921", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I think it is-", "context": "Patient is aware of their condition, implying some level of health education", "file_id": "dr_SS0921", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive outlook", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "But, it is, I've been okay", "context": "Patient has a positive outlook on their condition, possibly due to health literacy", "file_id": "dr_SS0921", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "But, , it is, , I, I've been okay. ... In terms of eyesight.", "context": "Patient feels no urgent need for follow-up due to current stable eyesight", "file_id": "dr_SS0921", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Understanding of DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "But then, , diabetes, , pre, pre-diabetic, , that is going to create problems.", "context": "Patient has some awareness of potential diabetes-related eye issues but lacks detailed understanding", "file_id": "dr_SS0921", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "eventually, , , , glaucoma is a problem, potential problem", "context": "Patient has limited knowledge about diabetes effects on eyes", "file_id": "dr_SS0921", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "my parents have, both my father and mother have the, , what do you call that thing? ... Cataracts?", "context": "Patient is aware of family medical history", "file_id": "dr_SS0921", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "So I don't have any issues at all. In terms of eyesight.", "context": "Patient does not feel urgent need for follow-up", "file_id": "dr_SS0921", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Regular check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have regular check-ups, so I came for my check-up today", "context": "Patient attends regular follow-up appointments", "file_id": "dr_SS0921", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Nothing in particular, no", "context": "Patient seems unaware of potential diabetes-related complications", "file_id": "dr_SS0921", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "my parents have, both my father and mother have the, what do you call that thing? ... Cataracts", "context": "Patient is aware of family medical history", "file_id": "dr_SS0921", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Regular eye checks", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "we, I check my, eyes every four months", "context": "Patient prioritizes regular eye exams", "file_id": "dr_SS0921", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Regular check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have regular check-ups, so I came for my check-up today", "context": "Patient attends regular follow-up appointments", "file_id": "dr_SS0921", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider navigation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they take pictures- ... of my insides, retina and all that stuff", "context": "Patient receives guided care from providers", "file_id": "dr_SS0921", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible location", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "where do you typically get your routine eye exams? Is it here at the institute? ... This, this building", "context": "Patient has easy access to care location", "file_id": "dr_SS0921", "chunk_id": 12, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Routine screenings", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "typical visit is, , , we have the, , , nurse or, , what do you call, nursing aide, they do the check-up first", "context": "Patient receives regular screenings as part of follow-up care", "file_id": "dr_SS0921", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And then the physician", "context": "Patient interacts with multiple providers, suggesting a team-based approach to care", "file_id": "dr_SS0921", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of difficulties", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "The, nothing really", "context": "Patient experiences no issues with eye dilation", "file_id": "dr_SS0921", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular schedule", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "my recommendation, , recommended schedule is six months, every six months", "context": "Patient is aware of and follows recommended follow-up schedule", "file_id": "dr_SS0921", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "no. , okay. The, nothing really", "context": "Patient has a positive interaction with healthcare provider", "file_id": "dr_SS0921", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "because I have to drive after it is done", "context": "Patient mentions driving as an issue after eye dilation", "file_id": "dr_SS0921", "chunk_id": 14, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Your doctor's availability has been good", "context": "Patient finds it easy to schedule with their doctor", "file_id": "dr_SS0921", "chunk_id": 14, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Easy scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "We do it online. Or on the phone", "context": "Patient finds scheduling process convenient", "file_id": "dr_SS0921", "chunk_id": 14, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "your doctor's availability has been good. It hasn't been hard to find them", "context": "Patient finds it easy to access their doctor", "file_id": "dr_SS0921", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "No transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "No. Nothing that", "context": "Patient does not experience transportation barriers", "file_id": "dr_SS0921", "chunk_id": 15, "original_category": "BARRIER - SDOH" }, { "code": "No long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "No long wait times", "context": "Patient does not experience long wait times", "file_id": "dr_SS0921", "chunk_id": 15, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "No long wait times, it's hard to get here", "context": "Patient mentions difficulty getting to appointments", "file_id": "dr_SS0921", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "it's hard to get here", "context": "Patient has trouble accessing the clinic due to transportation", "file_id": "dr_SS0921", "chunk_id": 16, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Do what they, is it artificial tears or is it-", "context": "Patient shows confusion about treatment", "file_id": "dr_SS0921", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "Do what they, is it artificial tears or is it-", "context": "Patient lacks understanding of medical terms", "file_id": "dr_SS0921", "chunk_id": 17, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I can pull it up and tell you", "context": "Provider is willing to help patient find information", "file_id": "dr_SS0921", "chunk_id": 17, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I should be able to find it", "context": "Patient takes initiative to find medical information", "file_id": "dr_SS0921", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know", "context": "Patient unsure about eye care habits", "file_id": "dr_SS0921", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Cultural beliefs", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "because of our skin color", "context": "Patient mentions skin color as a factor", "file_id": "dr_SS0921", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Regular eye checkup", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Again, we have a regular eye checkup", "context": "Patient has regular eye exams", "file_id": "dr_SS0921", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "what does your eye doctor or your diabetes doctor told you", "context": "Patient receives information from providers", "file_id": "dr_SS0921", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Just the potential risk", "context": "Patient seems unsure about diabetes-related vision loss", "file_id": "dr_SS0921", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They've told you?", "context": "Patient indicates provider has informed them about risks", "file_id": "dr_SS0921", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient concern expression", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "can you talk about a time when you were able to express a concern", "context": "Patient is encouraged to ask questions and express concerns", "file_id": "dr_SS0921", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the only thing is about glaucoma", "context": "Patient mentions a specific concern, potentially indicating fear", "file_id": "dr_SS0921", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know. I mean, , maybe eventually.", "context": "Patient unsure about diabetes causing vision loss", "file_id": "dr_SS0921", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor patient-provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "No. It's okay. I, I, yeah, we, we, , anything I'm, I'm okay with any -", "context": "Patient struggles to express themselves to doctor", "file_id": "dr_SS0921", "chunk_id": 20, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Regular exams", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Well, , I think, , continue with the regular, , exam.", "context": "Patient values regular check-ups", "file_id": "dr_SS0921", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I don't know. I mean, , maybe eventually.", "context": "Patient lacks knowledge about diabetes and vision loss", "file_id": "dr_SS0921", "chunk_id": 20, "original_category": "BARRIER - Patient Empowerment" }, { "code": "Limited self-advocacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No, I don't have any issues. No problems, no.", "context": "Patient does not express needs or concerns to doctor", "file_id": "dr_SS0921", "chunk_id": 20, "original_category": "BARRIER - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know. I mean, , maybe eventually.", "context": "Patient unsure about diabetes impact on vision", "file_id": "dr_SS0921", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I have no problems. I don't have any issues.", "context": "Patient feels no current vision problems", "file_id": "dr_SS0921", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "continue with the regular, , exam.", "context": "Patient values regular exams from provider", "file_id": "dr_SS0921", "chunk_id": 21, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Family History", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "he did not have a glaucoma. He was primarily, diabetic.", "context": "Patient discusses family history of diabetes", "file_id": "dr_SS0921", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of Understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "age-related? Yeah, absolutely, because, I would say getting glasses, that is age-related.", "context": "Patient shows limited understanding of eye conditions", "file_id": "dr_SS0921", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "have you ever been diagnosed with the following eye conditions?", "context": "Provider inquires about patient's eye health", "file_id": "dr_SS0921", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient Empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Any changes recently that you've noticed? Even mild changes?", "context": "Provider educates patient on importance of monitoring eye health", "file_id": "dr_SS0921", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Regular follow up", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "when I check out, my next, visit is decided then", "context": "Patient appreciates scheduled follow-ups", "file_id": "dr_SS0921", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "treatment is all fine", "context": "Patient has positive experience with healthcare providers", "file_id": "dr_SS0921", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular follow up", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "when I check out, my next, visit is decided then", "context": "Patient appreciates scheduled follow-ups", "file_id": "dr_SS0921", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "High premiums", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "the amount of premiums that we pay. It is becoming ridiculous", "context": "Patient finds insurance premiums too expensive", "file_id": "dr_SS0921", "chunk_id": 25, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Financial investment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm paying a lot of money anyway, so-", "context": "Patient feels motivated to use services due to financial investment", "file_id": "dr_SS0921", "chunk_id": 25, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "$60. Now it is over $400.", "context": "Patient discusses significant increase in cost", "file_id": "dr_SS0921", "chunk_id": 26, "original_category": "BARRIER - SDOH" }, { "code": "Cost discouragement", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Sometimes you're , maybe, , the cost isn't worth it.", "context": "Patient considers cost as a potential deterrent", "file_id": "dr_SS0921", "chunk_id": 26, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Healthcare value perception", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No, I think it is, it is worth it.", "context": "Patient believes healthcare services are valuable despite costs", "file_id": "dr_SS0921", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family medical background", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "I have a family background in medicine, so I think that is part of the mix", "context": "Patient's family medical history influences their healthcare attitudes", "file_id": "dr_SS0921", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a family background in medicine", "context": "Patient's family has a medical background, potentially influencing their positive attitude towards healthcare", "file_id": "dr_SS0921", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Regular Appointments", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "regular appointments, regular screenings and checkups", "context": "Patient believes regular appointments are important for their care", "file_id": "dr_SS0921", "chunk_id": 27, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack Of Daily Care Support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "not really", "context": "Patient lacks support for daily diabetes care", "file_id": "dr_SS0921", "chunk_id": 27, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, I think, , what I said earlier, , regular appointments, regular screenings and checkups, I think that is what is important.", "context": "Patient seems to lack understanding of diabetes care beyond regular appointments", "file_id": "dr_SS0921", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Speaker 2: No. Speaker 1: , do you have people that you feel you can share about your worries and fears about your diabetes in your eyesight?", "context": "Patient has not participated in diabetes education classes", "file_id": "dr_SS0921", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Speaker 2: , , I have family.", "context": "Patient has family support for emotional needs", "file_id": "dr_SS0921", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of daily care support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "Actually, right now I'm living on my own. Speaker 1: Okay. Speaker 2: So not, not...", "context": "Patient lacks support for daily care", "file_id": "dr_SS0921", "chunk_id": 28, "original_category": "BARRIER - SDOH" }, { "code": "No navigation assistance", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Speaker 2: No. Speaker 1: , do you have someone to help you with your daily diabetes care? Speaker 2: , not really. Right now, no.", "context": "Patient does not have navigation assistance for care", "file_id": "dr_SS0921", "chunk_id": 28, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of social support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "Actually, right now I'm living on my own", "context": "Patient lacks daily support", "file_id": "dr_SS0921", "chunk_id": 29, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "first phone call is my primary care. Physician", "context": "Patient has a primary care physician for advice", "file_id": "dr_SS0921", "chunk_id": 29, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, sure. , family, friends, , , , I have family here", "context": "Patient has family and friends for healthcare advice", "file_id": "dr_SS0921", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support Networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I can call them", "context": "Patient has family and friends to seek advice from", "file_id": "dr_SS0921", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access To Healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they are in New Jersey, so...", "context": "Patient's support system is geographically distant", "file_id": "dr_SS0921", "chunk_id": 30, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare Advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I can even talk to them", "context": "Patient seeks healthcare advice from family physicians abroad", "file_id": "dr_SS0921", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No limitations, yeah.", "context": "Patient feels no current limitation in eyesight", "file_id": "dr_SS0921", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Nothing new. Nothing. No difference.", "context": "Patient expects no change or progression in condition", "file_id": "dr_SS0921", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Physical limitations", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I got bad knees", "context": "Patient has physical limitation due to knee issue", "file_id": "dr_HD0225", "chunk_id": 0, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Exercise barriers", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I can't do a lot because I got bad knees", "context": "Patient's physical limitation affects exercise routine", "file_id": "dr_HD0225", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Proper food", "context": "Patient prioritizes healthy eating", "file_id": "dr_HD0225", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Try to exercise every day", "context": "Patient attempts regular physical activity", "file_id": "dr_HD0225", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Dietary control", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "Eating right. Not eating-- control the amount", "context": "Patient understands importance of diet control", "file_id": "dr_HD0225", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of discussion", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "", "context": "No mention of doctor discussing follow-up appointments", "file_id": "dr_HD0225", "chunk_id": 1, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Medication adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Take your medications on a regular basis?", "context": "Patient understands importance of medication adherence", "file_id": "dr_HD0225", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And my wife prepares them every day", "context": "Patient has supportive family member helping with medication management", "file_id": "dr_HD0225", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "we have grandkids", "context": "Patient mentions family obligations", "file_id": "dr_HD0225", "chunk_id": 2, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "my wife tries to keep stuff that out of the house", "context": "Patient implies budgeting for snacks", "file_id": "dr_HD0225", "chunk_id": 2, "original_category": "BARRIER - SDOH" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I had to-- my wife tries to keep stuff that out of the house", "context": "Patient lacks knowledge about healthy snacks", "file_id": "dr_HD0225", "chunk_id": 2, "original_category": "BARRIER - SDOH" }, { "code": "Family support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my wife tries to keep stuff that out of the house", "context": "Patient has supportive family member", "file_id": "dr_HD0225", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I watch out for snacks", "context": "Patient is aware of healthy eating habits", "file_id": "dr_HD0225", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "No. No, the strawberries don't.", "context": "Patient seems unaware of how certain foods affect blood sugar", "file_id": "dr_HD0225", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I'm always trying to find stuff out.", "context": "Patient is proactive in learning about their condition", "file_id": "dr_HD0225", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm try-- , I'm always trying to find stuff out.", "context": "Patient is taking initiative to manage their diabetes", "file_id": "dr_HD0225", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Expensive food", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "It's expensive too. Yeah. I-it's fi-- 4 or 5 dollars a piece.", "context": "Patient finds healthy food options to be costly", "file_id": "dr_HD0225", "chunk_id": 6, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know why, but they are", "context": "Patient shows lack of understanding about certain foods", "file_id": "dr_HD0225", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "The diet is a big part of it", "context": "Patient recognizes importance of diet in managing condition", "file_id": "dr_HD0225", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider guidance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "both the doctors", "context": "Patient mentions receiving guidance from doctors", "file_id": "dr_HD0225", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they'll do stuff for me", "context": "Patient receives help from family members", "file_id": "dr_HD0225", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family Influence", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I'm trying to get my wife on board with", "context": "Patient's family member may not understand health importance", "file_id": "dr_HD0225", "chunk_id": 10, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "it's hard to keep enough food in the house", "context": "Patient struggles with financial stability", "file_id": "dr_HD0225", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "But it's tough. You got somebody in the house with diabetes.", "context": "Patient expresses difficulty managing diabetes", "file_id": "dr_HD0225", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Diabetes distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I've been struggling with it now for 10 years or more.", "context": "Patient expresses long-term struggle with diabetes", "file_id": "dr_HD0225", "chunk_id": 12, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They told me to take it in the evening or before I go to bed because your cholesterol-- on a normal person, cholesterol goes up when you're asleep, so.", "context": "Patient receives health education about medication timing", "file_id": "dr_HD0225", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "So I'm not worried about much of", "context": "Patient does not feel urgent need for follow-up", "file_id": "dr_HD0225", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "they don't even come back for four months", "context": "Patient may be avoiding follow-up due to fear", "file_id": "dr_HD0225", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Dr. C told me that", "context": "Patient receives clear information from provider", "file_id": "dr_HD0225", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "But my vision isn't that bad. But right now, it is because", "context": "Patient does not feel urgent need for follow-up due to current vision", "file_id": "dr_HD0225", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis/treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "And if she does the cataract surgery, it'll disturb that and make it worse", "context": "Patient is concerned about potential negative outcomes of treatment", "file_id": "dr_HD0225", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. C told me that", "context": "Patient mentions provider by name, implying a positive relationship", "file_id": "dr_HD0225", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't know anything about that", "context": "Patient lacked knowledge about diabetes effects on eyes", "file_id": "dr_HD0225", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "And, , I can still see-- my left eye is never gonna be any better", "context": "Patient feels no urgent need for follow-up", "file_id": "dr_HD0225", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't know anything about that", "context": "Patient lacked knowledge about their condition", "file_id": "dr_HD0225", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "my vision wasn't quite as good", "context": "Patient didn't feel urgent need for follow-up", "file_id": "dr_HD0225", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Dr. C said, 'Yeah, they're not real bad yet, but it is there'", "context": "Provider clearly communicated diagnosis to patient", "file_id": "dr_HD0225", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They told me that", "context": "Patient had access to provider for diagnosis and discussion", "file_id": "dr_HD0225", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it's not getting any worse", "context": "Patient seems to lack understanding of diabetes impact on retinas", "file_id": "dr_HD0225", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He says it's about the same", "context": "Provider effectively communicates diagnosis to patient", "file_id": "dr_HD0225", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Getting it down-- helps all that", "context": "Patient understands the importance of managing diabetes for overall health", "file_id": "dr_HD0225", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He says it's about the same, so it's not getting any worse", "context": "Provider shows empathy by reassuring patient about their condition", "file_id": "dr_HD0225", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it just blurred vision", "context": "Patient lacks detailed understanding of diabetes effects on eyes", "file_id": "dr_HD0225", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "my family doctor told me that years ago", "context": "Patient received health education from family doctor", "file_id": "dr_HD0225", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they said it-- , I knew from right from the beginning", "context": "Patient received clear information from healthcare provider", "file_id": "dr_HD0225", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I can still see real well", "context": "Patient perceives no immediate need for follow-up", "file_id": "dr_HD0225", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Limited understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it just blurred vision", "context": "Patient lacks comprehensive knowledge of DR effects", "file_id": "dr_HD0225", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know a whole lot", "context": "Patient lacks knowledge about diabetic retinopathy", "file_id": "dr_HD0225", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "that's why I got to keep my numbers down", "context": "Patient has some understanding of diabetes management", "file_id": "dr_HD0225", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he told me a while ago, two doctors did", "context": "Patient has trust in their healthcare providers", "file_id": "dr_HD0225", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "if, if I hadn't taken care of the diabetes, they would be worse", "context": "Patient shows some understanding of disease progression", "file_id": "dr_HD0225", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "She's the one referred me to come over here", "context": "Patient has a referral from another provider", "file_id": "dr_HD0225", "chunk_id": 21, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I take care of the diabetes", "context": "Patient is taking care of their diabetes, implying some level of health knowledge", "file_id": "dr_HD0225", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "She's the one referred me to come over here", "context": "Patient has a referral from a trusted provider", "file_id": "dr_HD0225", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She's the one that told me I had beginnings of glaucoma and cataracts", "context": "Patient has a positive interaction with their provider", "file_id": "dr_HD0225", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She's the one that told me I had beginnings of glaucoma and cataracts", "context": "Patient receives clear information from their provider", "file_id": "dr_HD0225", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "what I'm saying? I mean, you still got to see", "context": "Patient implies difficulty accessing care", "file_id": "dr_HD0225", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "and then she got me hooked up with come over here", "context": "Patient has access to a provider", "file_id": "dr_HD0225", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "and then she got me hooked up with come over here", "context": "Patient has a positive interaction with provider", "file_id": "dr_HD0225", "chunk_id": 23, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "what I'm saying? I mean, you still got to see", "context": "Patient is educated about importance of eye exams", "file_id": "dr_HD0225", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Easy scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I-it's good. Easy.", "context": "Patient finds scheduling process easy", "file_id": "dr_HD0225", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider availability", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Always-- he's always available.", "context": "Patient's doctor is always available", "file_id": "dr_HD0225", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "he's always available", "context": "Patient finds doctor's availability convenient", "file_id": "dr_HD0225", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Flexible scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It fits my schedule", "context": "Patient appreciates flexible appointment scheduling", "file_id": "dr_HD0225", "chunk_id": 25, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he's always available", "context": "Patient has a positive experience with their doctor", "file_id": "dr_HD0225", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "what do they tell you that you should be doing?", "context": "Patient receives clear guidance from their doctor", "file_id": "dr_HD0225", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Just take care of my diabetes", "context": "Patient receives health advice from their doctor", "file_id": "dr_HD0225", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of specific advice", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Just take care of my diabetes. That's the most important.", "context": "Patient receives general advice from doctors", "file_id": "dr_HD0225", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "'Yep,' pat me on the shoulders, says, 'Keep it up. Keep going.'", "context": "Patient feels encouraged by doctors", "file_id": "dr_HD0225", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "You got to eat the right stuff. That's the main thing is my eating.", "context": "Patient receives dietary advice from doctors", "file_id": "dr_HD0225", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I love to eat. I mean, I, I love buffets", "context": "Patient is aware of their eating habits", "file_id": "dr_HD0225", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Food preferences", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I love to eat. I mean, I, I love buffets.", "context": "Patient prioritizes food enjoyment over health", "file_id": "dr_HD0225", "chunk_id": 27, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family obligations", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "we-well, when I go-- we, we do go to buffets because look at those grandkids.", "context": "Patient's family responsibilities influence food choices", "file_id": "dr_HD0225", "chunk_id": 27, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "It cost you fortune", "context": "Patient mentions high costs of food or potentially other expenses", "file_id": "dr_HD0225", "chunk_id": 29, "original_category": "BARRIER - SDOH" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "It cost you fortune", "context": "Patient mentions high costs of treatment", "file_id": "dr_HD0225", "chunk_id": 30, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Out-of-pocket costs", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I come outta there 60 bucks for all four of us", "context": "Patient mentions high out-of-pocket expenses", "file_id": "dr_HD0225", "chunk_id": 30, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "It cost you fortune", "context": "Patient implies financial burden of treatment", "file_id": "dr_HD0225", "chunk_id": 30, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know exactly--what to do", "context": "Patient unsure about diet soda's impact on health", "file_id": "dr_HD0225", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I've heard it's good. I've heard it's bad", "context": "Patient lacks clear information about diet soda", "file_id": "dr_HD0225", "chunk_id": 31, "original_category": "BARRIER - SDOH" }, { "code": "No Transportation Issues", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No, my wife drives. I don't even drive over here. She does.", "context": "Patient has reliable transportation to clinic", "file_id": "dr_HD0225", "chunk_id": 32, "original_category": "FACILITATOR - Resources & Access" }, { "code": "No Wait Times Issues", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No", "context": "Patient does not experience long wait times", "file_id": "dr_HD0225", "chunk_id": 32, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive Provider Relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my doctor, I need to talk to him, I guess.", "context": "Patient has a positive and trusting relationship with their provider", "file_id": "dr_HD0225", "chunk_id": 32, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Transportation assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "my wife drives", "context": "Patient has reliable transportation to clinic", "file_id": "dr_HD0225", "chunk_id": 33, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I expect-- when I come here, they, believe it, look they're having a convention or something", "context": "Patient expects long wait times at clinic", "file_id": "dr_HD0225", "chunk_id": 33, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They cover all the basics and--", "context": "Patient perceives clinic as having accessible providers", "file_id": "dr_HD0225", "chunk_id": 33, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They cover all the basics", "context": "Patient feels informed about eye care", "file_id": "dr_HD0225", "chunk_id": 34, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They cover all the basics and--", "context": "Patient has positive experience with providers", "file_id": "dr_HD0225", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Wanna protect my eyes in the sun because the sun's harder in your eyes", "context": "Patient demonstrates understanding of eye protection", "file_id": "dr_HD0225", "chunk_id": 34, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of mention", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "because it shades your eyes", "context": "Patient discusses coping mechanism without mentioning follow-up", "file_id": "dr_HD0225", "chunk_id": 35, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "So that's, that's one thing I do", "context": "Patient shares self-care strategy, implying some health knowledge", "file_id": "dr_HD0225", "chunk_id": 35, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Supplement use", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take vitamin C every day", "context": "Patient takes supplements, indicating proactive approach to health", "file_id": "dr_HD0225", "chunk_id": 35, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I take that every day. That and C, and that's it.", "context": "Patient seems unsure about medications", "file_id": "dr_HD0225", "chunk_id": 36, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take that every day. That and C, and that's it.", "context": "Patient is aware of daily supplements", "file_id": "dr_HD0225", "chunk_id": 36, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'm on it maybe an hour or so a day.", "context": "Patient has access to TV and possibly other resources", "file_id": "dr_HD0225", "chunk_id": 36, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "No, no, no, no.", "context": "Patient does not express concern for eye health", "file_id": "dr_HD0225", "chunk_id": 36, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Self care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I give my eyes a rest when I'm working on the computer for a long time or watching TV", "context": "Patient takes breaks to rest eyes", "file_id": "dr_HD0225", "chunk_id": 36, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Resource access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I use, -- what's it called? Artificial Tears, or?", "context": "Patient has access to eye drops", "file_id": "dr_HD0225", "chunk_id": 36, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "You got to keep the sugar down", "context": "Patient's limited understanding of diabetes management", "file_id": "dr_HD0225", "chunk_id": 37, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Everybody that I've talked to has told me, 'Hey, you got to keep-- you got to keep an eye on this stuff'", "context": "Patient receives clear guidance from healthcare providers", "file_id": "dr_HD0225", "chunk_id": 37, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "You got to keep the sugar down", "context": "Patient receives health education on diabetes management", "file_id": "dr_HD0225", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Everybody that I've talked to has told me, 'Hey, you got to keep-- you got to keep an eye on this stuff'", "context": "Patient feels supported by healthcare providers", "file_id": "dr_HD0225", "chunk_id": 37, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of cure", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "there's no money in the cures. There's money in treatment.", "context": "Patient believes there is no financial incentive for a cure", "file_id": "dr_HD0225", "chunk_id": 38, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Resignation", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it's just something I live with.", "context": "Patient feels resigned to their condition", "file_id": "dr_HD0225", "chunk_id": 38, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Acceptance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm not mad about it. Not angry about it.", "context": "Patient has accepted their condition and is empowered to manage it", "file_id": "dr_HD0225", "chunk_id": 38, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Everybody that I've talked to has told me, 'Hey, you got to keep-- you got to keep an eye on this stuff.'", "context": "Patient receives guidance from healthcare providers", "file_id": "dr_HD0225", "chunk_id": 38, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Family History Awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "my grandfather had it", "context": "Patient is aware of family history of diabetes", "file_id": "dr_HD0225", "chunk_id": 39, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Personal Experience", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "it's just something I do", "context": "Patient has personal experience with diabetes management", "file_id": "dr_HD0225", "chunk_id": 39, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health Awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you have to-- it's, it's on your mind", "context": "Patient is aware of the importance of diabetes management", "file_id": "dr_HD0225", "chunk_id": 39, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "You have to be", "context": "Patient has a positive outlook on managing their condition", "file_id": "dr_HD0225", "chunk_id": 40, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No issues with provider", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It's fine. It don't bother me that", "context": "Patient feels comfortable discussing their concerns with their doctor", "file_id": "dr_HD0225", "chunk_id": 40, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Limited treatment options", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "when they tell you, there's only certain things they can do", "context": "Patient feels limited by the treatments available for their condition", "file_id": "dr_HD0225", "chunk_id": 40, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "It's fine. It don't bother me that--", "context": "Patient feels comfortable talking to their doctor", "file_id": "dr_HD0225", "chunk_id": 41, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They know that I'm working with it.", "context": "Patient feels heard and understood by their doctor", "file_id": "dr_HD0225", "chunk_id": 41, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "what you eat and all this other stuff. It's still up to me, most of it.", "context": "Patient takes responsibility for their health", "file_id": "dr_HD0225", "chunk_id": 41, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Shared decision-making", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "But it's a two way street.", "context": "Patient feels involved in their care decisions", "file_id": "dr_HD0225", "chunk_id": 41, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I never tell", "context": "Patient does not express concerns to doctor", "file_id": "dr_HD0225", "chunk_id": 42, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I never tell", "context": "Patient does not communicate effectively with doctor", "file_id": "dr_HD0225", "chunk_id": 42, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Just give me lists of stuff to do", "context": "Patient seeks guidance on self-management", "file_id": "dr_HD0225", "chunk_id": 42, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "you wanna know if it's progressing-- getting better, staying the same", "context": "Patient asks questions and seeks information from doctor", "file_id": "dr_HD0225", "chunk_id": 42, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They were happy with it", "context": "Doctor shows positive attitude towards patient's progress", "file_id": "dr_HD0225", "chunk_id": 42, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I don't-- never-- I never tell.", "context": "Patient hesitant to share information with doctor", "file_id": "dr_HD0225", "chunk_id": 43, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Just give me lists of stuff to do. Give me lists of stuff to eat.", "context": "Patient desires clear instructions from doctor", "file_id": "dr_HD0225", "chunk_id": 43, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "She gave me this whole big, long thing of food on it.", "context": "Patient finds health education from counselor helpful", "file_id": "dr_HD0225", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient-provider trust", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My other doctor, the woman in there, she's a counselor.", "context": "Patient has positive relationship with counselor", "file_id": "dr_HD0225", "chunk_id": 43, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Understanding of DR progression", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "It's very serious. Because I only have the one eye--", "context": "Patient understands severity of diabetes on vision", "file_id": "dr_HD0225", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "You don't realize it until you don't have it anymore", "context": "Patient lacks full understanding of vision loss impact", "file_id": "dr_HD0225", "chunk_id": 44, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my main doctor and everybody over here, they've told me that, . You got to stay on top of it", "context": "Patient feels supported by healthcare providers", "file_id": "dr_HD0225", "chunk_id": 44, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They've told me that, . You got to stay on top of it", "context": "Patient receives health education from providers", "file_id": "dr_HD0225", "chunk_id": 44, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Perceived importance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "To me, vision is the most precious thing in the world", "context": "Patient understands importance of vision preservation", "file_id": "dr_HD0225", "chunk_id": 44, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I've noticed a difference", "context": "Patient is starting to see changes in vision but lacks full understanding", "file_id": "dr_HD0225", "chunk_id": 45, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "if it can change that much-- it can get worse", "context": "Patient is worried about vision getting worse", "file_id": "dr_HD0225", "chunk_id": 45, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my main doctor and everybody over here, they've told me that, . You got to stay on top of it", "context": "Patient feels supported by provider", "file_id": "dr_HD0225", "chunk_id": 45, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They-- , my main doctor and everybody over here, they've told me that, . You got to stay on top of it", "context": "Patient is receiving health education from provider", "file_id": "dr_HD0225", "chunk_id": 45, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it's steady. Not getting any worse.", "context": "Patient feels their vision is stable", "file_id": "dr_HD0225", "chunk_id": 46, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Not getting mu-much any better", "context": "Patient lacks awareness of potential vision decline", "file_id": "dr_HD0225", "chunk_id": 46, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education/health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "a lot of fine print or whatever", "context": "Patient struggles with reading small text", "file_id": "dr_HD0225", "chunk_id": 47, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I can watch it without glasses", "context": "Patient may not fully understand vision limitations", "file_id": "dr_HD0225", "chunk_id": 47, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "read everything on it and everything else", "context": "Patient is able to read and understand information", "file_id": "dr_HD0225", "chunk_id": 47, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "Now I can't do that much anymore", "context": "Patient's limited ability to perform tasks due to vision", "file_id": "dr_HD0225", "chunk_id": 48, "original_category": "BARRIER - SDOH" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "Because everything anymore is so tiny", "context": "Patient's difficulty understanding their condition", "file_id": "dr_HD0225", "chunk_id": 48, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I used to work on cars, car work, all that stuff. Now I can't do that much anymore", "context": "Patient's reduced income due to vision limitations", "file_id": "dr_HD0225", "chunk_id": 48, "original_category": "BARRIER - SDOH" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "It looks to me it is", "context": "Patient's uncertain understanding of their condition", "file_id": "dr_HD0225", "chunk_id": 48, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "So it's, I mean, it's restricted a little bit", "context": "Patient's emotional response to vision limitations", "file_id": "dr_HD0225", "chunk_id": 48, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have to get magnifying glass out", "context": "Patient's use of assistive devices, implying accessible care", "file_id": "dr_HD0225", "chunk_id": 48, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Because everything anymore is so tiny", "context": "Patient's awareness of their vision limitations, implying some level of health education", "file_id": "dr_HD0225", "chunk_id": 48, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I actually thought I could see better", "context": "Patient believes their vision has improved", "file_id": "dr_HD0225", "chunk_id": 49, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know about that, but--", "context": "Patient shows uncertainty about age-related eyesight decline", "file_id": "dr_HD0225", "chunk_id": 50, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm not ready to give up", "context": "Patient shows determination and motivation", "file_id": "dr_HD0225", "chunk_id": 50, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "That attitude makes all the difference", "context": "Provider shows understanding and support", "file_id": "dr_HD0225", "chunk_id": 50, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know about that", "context": "Patient shows lack of knowledge about age-related eyesight decline", "file_id": "dr_HD0225", "chunk_id": 51, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "My grandfather had, and I guess my dad had it", "context": "Patient is aware of family history of diabetes", "file_id": "dr_HD0225", "chunk_id": 51, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it's scary", "context": "Patient expresses fear after being diagnosed with eye issues", "file_id": "dr_HD0225", "chunk_id": 52, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "If I can do something to make something better--that's what you do", "context": "Patient shows proactive approach to managing health", "file_id": "dr_HD0225", "chunk_id": 52, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of concern", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "It's fine", "context": "Patient seems unconcerned about follow-ups and treatment plans", "file_id": "dr_HD0225", "chunk_id": 52, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible Transportation", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I always got transportation. I can either-- she can bring me or I can bring myself", "context": "Patient has reliable transportation to clinic", "file_id": "dr_HD0225", "chunk_id": 53, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Positive Attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "It's just-- it's just something I have to do", "context": "Patient is motivated to attend follow-ups", "file_id": "dr_HD0225", "chunk_id": 53, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective Healthcare System", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It's fine. No issues at all?", "context": "Patient has positive experience with healthcare system", "file_id": "dr_HD0225", "chunk_id": 53, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder Systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "MyChart helpful", "context": "Patient uses digital tools to stay on track with appointments", "file_id": "dr_HD0225", "chunk_id": 53, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I always got transportation. I can either-- she can bring me or I can bring myself.", "context": "Patient has reliable transportation to clinic", "file_id": "dr_HD0225", "chunk_id": 54, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Under $10,000", "context": "Patient is price-sensitive when making a purchase", "file_id": "dr_HD0225", "chunk_id": 55, "original_category": "BARRIER - SDOH" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "Four-wheel drive", "context": "Patient is discussing vehicle features, potentially related to transportation needs", "file_id": "dr_HD0225", "chunk_id": 55, "original_category": "BARRIER - SDOH" }, { "code": "Financial assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they got money in the bank", "context": "Patient has access to financial resources", "file_id": "dr_HD0225", "chunk_id": 55, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Anyway, she's got a car sitting in the yard", "context": "Patient mentions having a car, implying potential resolution to transportation issues", "file_id": "dr_HD0225", "chunk_id": 57, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Insurance coverage", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "they're getting insurance on it for me and my wife", "context": "Patient mentions insurance, which could be a barrier or facilitator to healthcare access", "file_id": "dr_HD0225", "chunk_id": 57, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible transportation", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Anyway, she's got a car sitting in the yard", "context": "Patient has access to a vehicle, facilitating transportation to appointments", "file_id": "dr_HD0225", "chunk_id": 57, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No, not really.", "context": "Patient reports no discouragement from using healthcare services", "file_id": "dr_HD0225", "chunk_id": 58, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Because I love healthcare services.", "context": "Patient has a positive perception of healthcare services", "file_id": "dr_HD0225", "chunk_id": 58, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Emotional benefit", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Because it makes me feel better.", "context": "Patient feels healthcare services have a positive impact on their well-being", "file_id": "dr_HD0225", "chunk_id": 58, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They try to help me, and I try to cooperate", "context": "Patient feels supported by healthcare providers", "file_id": "dr_HD0225", "chunk_id": 59, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "If I come over here, it's always-- I always come out of here with a, a good attitude", "context": "Patient has easy access to healthcare services", "file_id": "dr_HD0225", "chunk_id": 59, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They try to help me, and I try to cooperate", "context": "Patient feels heard and understood by providers", "file_id": "dr_HD0225", "chunk_id": 59, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "it looked it had a convention out here in the hallway", "context": "Patient observes busy clinic environment", "file_id": "dr_HD0225", "chunk_id": 60, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They try to help me, and I try to cooperate", "context": "Patient expresses cooperation with providers", "file_id": "dr_HD0225", "chunk_id": 60, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'm impressed with the whole deal", "context": "Patient praises clinic experience", "file_id": "dr_HD0225", "chunk_id": 60, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm impressed-- with the whole deal. S2: 29:32 Thank you. S1: 29:33 --with the doctors, you, everybody.", "context": "Patient expresses satisfaction with healthcare providers", "file_id": "dr_HD0225", "chunk_id": 61, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah. We-well, the kids, just they did this morning, she goes, 'They'll get checked of sugar.'", "context": "Patient receives help from family members with diabetes care", "file_id": "dr_HD0225", "chunk_id": 61, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Reminders and assistance", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Oh, they, they, they had-- they're on top of it, the grandkids, .", "context": "Patient's family members provide reminders and assistance with diabetes care", "file_id": "dr_HD0225", "chunk_id": 61, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I'm impressed-- with the whole deal. S2: 29:32 Thank you. S1: 29:33 --with the doctors, you, everybody.", "context": "Patient expresses satisfaction with accessibility of healthcare providers", "file_id": "dr_HD0225", "chunk_id": 61, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "she takes care of me in that regard", "context": "Patient receives help from family member", "file_id": "dr_HD0225", "chunk_id": 62, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family Assistance", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "Sometimes it's already on the-- on the island ready", "context": "Patient receives practical help from family", "file_id": "dr_HD0225", "chunk_id": 62, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, I doubt if I would, because it's just something else.", "context": "Patient shows lack of interest in diabetes education", "file_id": "dr_HD0225", "chunk_id": 63, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No health education offered", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "No. S2: 30:53 No, it's never offered?", "context": "Patient reports not being offered diabetes education", "file_id": "dr_HD0225", "chunk_id": 63, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "If somebody cares enough.", "context": "Patient values caring providers", "file_id": "dr_HD0225", "chunk_id": 63, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She's a counselor. S1: 31:09 She had-- , I used to look to her when I first got on diabetes stuff.", "context": "Patient has a supportive counselor", "file_id": "dr_HD0225", "chunk_id": 63, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "you got to read the stuff", "context": "Patient emphasizes importance of reading health information", "file_id": "dr_HD0225", "chunk_id": 64, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She really helped me a lot", "context": "Patient appreciates counselor's support", "file_id": "dr_HD0225", "chunk_id": 64, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "But you got to listen to her", "context": "Patient values listening to counselor's advice", "file_id": "dr_HD0225", "chunk_id": 64, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of social support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Because she got enough on her plate-- with the grandkids and everything else", "context": "Patient feels unable to share worries with wife due to her responsibilities", "file_id": "dr_HD0225", "chunk_id": 65, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My wife", "context": "Patient has someone to share worries with, but limited due to her plate", "file_id": "dr_HD0225", "chunk_id": 65, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family responsibilities", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "Because she got enough on her plate-- with the grandkids and everything else", "context": "Patient's wife has family responsibilities limiting support", "file_id": "dr_HD0225", "chunk_id": 65, "original_category": "BARRIER - SDOH" }, { "code": "Age-related concerns", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "She's 68", "context": "Patient's wife is older and may have limited ability to handle stress", "file_id": "dr_HD0225", "chunk_id": 65, "original_category": "BARRIER - SDOH" }, { "code": "Limited emotional support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "She no spring-- she's 68", "context": "Patient's wife has limited ability to handle patient's worries", "file_id": "dr_HD0225", "chunk_id": 65, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "everybody has chores to do", "context": "Patient has family help with daily tasks", "file_id": "dr_HD0225", "chunk_id": 66, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family Assistance", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "Kids help her with that", "context": "Patient's children assist with household responsibilities", "file_id": "dr_HD0225", "chunk_id": 66, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Emotional Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think so. I really do. I think so", "context": "Patient feels supported by family members", "file_id": "dr_HD0225", "chunk_id": 66, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of social support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, not really", "context": "Patient lacks family or friends to ask for advice on health and eye problems", "file_id": "dr_HD0225", "chunk_id": 67, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Yeah, i-if I have a problem, I call the doctor", "context": "Patient has easy access to their doctor for advice", "file_id": "dr_HD0225", "chunk_id": 67, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "my mind is just as good probably as it ever was", "context": "Patient seems to downplay potential health issues", "file_id": "dr_HD0225", "chunk_id": 68, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "my mind is just as good probably as it ever was", "context": "Patient does not see the need for follow-up", "file_id": "dr_HD0225", "chunk_id": 68, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my wife questions this", "context": "Patient has a supportive family member", "file_id": "dr_HD0225", "chunk_id": 68, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "people gets, , dementia and all that other stuff, they don't know", "context": "Patient lacks knowledge about disease progression", "file_id": "dr_HD0225", "chunk_id": 69, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "No, you're nuts", "context": "Patient expresses fear of being told they have a problem", "file_id": "dr_HD0225", "chunk_id": 69, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm trying to keep an eye on that", "context": "Patient takes initiative to monitor their health", "file_id": "dr_HD0225", "chunk_id": 69, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm aware of things", "context": "Patient shows awareness and willingness to take control", "file_id": "dr_HD0225", "chunk_id": 69, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "keep a good attitude", "context": "Patient believes having a positive attitude helps", "file_id": "dr_HD0225", "chunk_id": 70, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Good attitude", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "keep an att-- a good attitude, a positive attitude", "context": "Patient emphasizes the importance of attitude in management", "file_id": "dr_HD0225", "chunk_id": 70, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm aware of things", "context": "Patient is knowledgeable about their condition", "file_id": "dr_HD0225", "chunk_id": 70, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "positive attitude. Positive influence. Everything.", "context": "Patient mentions importance of positive attitude", "file_id": "dr_HD0225", "chunk_id": 71, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I didn't know what was going on", "context": "Patient unsure about their condition", "file_id": "dr_HD0225", "chunk_id": 72, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I was in the fog--because I didn't know what was going on", "context": "Patient anxious about unknown diagnosis", "file_id": "dr_HD0225", "chunk_id": 72, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "You have to be positive", "context": "Patient emphasizes importance of positivity", "file_id": "dr_HD0225", "chunk_id": 72, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "because I didn't know what was going on", "context": "Patient initially lacked knowledge about their condition", "file_id": "dr_HD0225", "chunk_id": 73, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they do-- , I ask them questions, they answer them", "context": "Patient experiences open communication with providers", "file_id": "dr_HD0225", "chunk_id": 73, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I feel great when I come here", "context": "Patient has a positive experience with their healthcare providers", "file_id": "dr_HD0225", "chunk_id": 73, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the woman over at Walmart, , ch-checks my eyes", "context": "Patient has access to convenient eye care services", "file_id": "dr_HD0225", "chunk_id": 73, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Blood work alone can cost you $1,000", "context": "Patient mentions high cost of medical tests", "file_id": "dr_HD0225", "chunk_id": 74, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I know it's expensive to go to a doctor for blood tests, blood work", "context": "Patient highlights expense of healthcare", "file_id": "dr_HD0225", "chunk_id": 74, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare costs", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Healthcare is expensive", "context": "Patient and interviewer discuss high cost of healthcare", "file_id": "dr_HD0225", "chunk_id": 74, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Healthcare is expensive. Yeah. Blood work alone can cost you $1,000.", "context": "Patient discusses high costs of healthcare", "file_id": "dr_HD0225", "chunk_id": 75, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "But there aren't enough people that know about it--that have it.", "context": "Patient mentions lack of awareness about diabetes", "file_id": "dr_HD0225", "chunk_id": 75, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Adequate insurance coverage", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Of course, luckily, now I've got insurance--that pays for it.", "context": "Patient has insurance that covers healthcare costs", "file_id": "dr_HD0225", "chunk_id": 75, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "that's $100", "context": "Patient mentions cost as a concern for doctor visits", "file_id": "dr_HD0225", "chunk_id": 76, "original_category": "BARRIER - SDOH" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "They ain't going to a damn doctor", "context": "Patient implies that some people do not visit the doctor", "file_id": "dr_HD0225", "chunk_id": 76, "original_category": "BARRIER - SDOH" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "But you got to take care of yourself", "context": "Patient emphasizes self-care and personal responsibility", "file_id": "dr_HD0225", "chunk_id": 76, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "But I don't see a lot of stuff on TV about it. Not enough. Awareness.", "context": "Patient mentions lack of public awareness about diabetic retinopathy", "file_id": "dr_HD0225", "chunk_id": 77, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Self care importance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "You got to take care of yourself. Nobody else is gonna do it for you.", "context": "Patient emphasizes personal responsibility for health", "file_id": "dr_HD0225", "chunk_id": 77, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Personal motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Number one comes first. And you got to take care of yourself.", "context": "Patient prioritizes self-care and health", "file_id": "dr_HD0225", "chunk_id": 77, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "there's not enough of it. People don't know about it.", "context": "Patient believes lack of awareness is a major issue", "file_id": "dr_HD0225", "chunk_id": 78, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "Awareness. That's the key word right there.", "context": "Patient emphasizes importance of awareness and education", "file_id": "dr_HD0225", "chunk_id": 78, "original_category": "BARRIER - SDOH" }, { "code": "Lack of self care", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "He's not taking care of it", "context": "Patient describes someone who doesn't take care of their health", "file_id": "dr_HD0225", "chunk_id": 79, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fatalistic beliefs", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "He thinks he's just making a fatal stab at it", "context": "Patient describes someone with fatalistic views on health", "file_id": "dr_HD0225", "chunk_id": 79, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of health motivation", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Motivation & Self-Care Barriers", "quote": "Don't want it. I'll take care of himself", "context": "Patient describes someone who lacks motivation to manage their health", "file_id": "dr_HD0225", "chunk_id": 79, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I spent $500", "context": "Patient mentions high initial cost of insulin", "file_id": "dr_HD0225", "chunk_id": 80, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "the one plan I had there a while back, it was free", "context": "Patient discusses variability in insurance coverage", "file_id": "dr_HD0225", "chunk_id": 80, "original_category": "BARRIER - SDOH" }, { "code": "Adequate insurance coverage", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "it was free", "context": "Patient has access to free medication through insurance", "file_id": "dr_HD0225", "chunk_id": 80, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial assistance programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I just go to the drug store, and then they-- whatever", "context": "Patient implies access to financial assistance for medication", "file_id": "dr_HD0225", "chunk_id": 80, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "I didn't have part B. Medicare-- for a long time.", "context": "Patient lacked necessary insurance coverage", "file_id": "dr_HD0225", "chunk_id": 81, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "It's almost everything I get free-- 12, 13 prescriptions.", "context": "Patient implies reliance on free or low-cost services due to financial limitations", "file_id": "dr_HD0225", "chunk_id": 81, "original_category": "BARRIER - SDOH" }, { "code": "Adequate insurance coverage", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I didn't have part B. Medicare-- for a long time. Didn't have it. Had Part A.", "context": "Patient eventually obtained necessary insurance coverage, facilitating access to care", "file_id": "dr_HD0225", "chunk_id": 81, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Cost me 300 something dollars a month", "context": "Patient mentions expensive insurance costs", "file_id": "dr_HD0225", "chunk_id": 82, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "Had Part A", "context": "Patient had limited insurance coverage initially", "file_id": "dr_HD0225", "chunk_id": 82, "original_category": "BARRIER - SDOH" }, { "code": "Cost-related barriers", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "Cost me 300 something dollars a month", "context": "Patient mentions expensive monthly insurance costs", "file_id": "dr_HD0225", "chunk_id": 82, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Financial assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It's worth it", "context": "Patient considers insurance cost worthwhile, implying financial assistance is helpful", "file_id": "dr_HD0225", "chunk_id": 82, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "she don't wanna spend that money", "context": "Patient hesitant to spend money on healthcare", "file_id": "dr_HD0225", "chunk_id": 83, "original_category": "BARRIER - SDOH" }, { "code": "Cost concerns", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "But we're not rich", "context": "Patient considers financial situation when deciding on healthcare spending", "file_id": "dr_HD0225", "chunk_id": 83, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "She can't hear half the time", "context": "Patient experiences poor communication due to provider's hearing issues", "file_id": "dr_HD0225", "chunk_id": 84, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "That makes her nervous", "context": "Patient feels nervous, indicating potential lack of trust in provider", "file_id": "dr_HD0225", "chunk_id": 84, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of recall", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I wouldn't remember anyway", "context": "Patient has difficulty recalling previous eye exams", "file_id": "dr_MA1103(Part2)", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emergency visit", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I started coming here because of an emergency", "context": "Patient's initial visit was due to an emergency, potentially indicating difficulty with scheduled appointments", "file_id": "dr_MA1103(Part2)", "chunk_id": 0, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of recent exams", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "it's been a couple years", "context": "Patient has not had regular eye exams, indicating potential lack of understanding about importance of follow-up", "file_id": "dr_MA1103(Part2)", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Follow-up care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So coming here today was just a follow-up to make sure that's-", "context": "Patient is receiving follow-up care, indicating access to healthcare services", "file_id": "dr_MA1103(Part2)", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "just made sure everything was healing properly and, , that they didn't see any complications", "context": "Patient's provider is actively monitoring their condition, facilitating follow-up care", "file_id": "dr_MA1103(Part2)", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I just ... I slacked", "context": "Patient doesn't feel urgent need for regular check-ups", "file_id": "dr_MA1103(Part2)", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Busy schedule", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Life gets busy", "context": "Patient's busy life interferes with regular check-ups", "file_id": "dr_MA1103(Part2)", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Annual check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It should probably be an annual thing, I would think", "context": "Patient has some understanding of recommended check-up frequency", "file_id": "dr_MA1103(Part2)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Importance of regular checks", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "then it needs to be done more often", "context": "Patient recognizes need for more frequent check-ups with age", "file_id": "dr_MA1103(Part2)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I got the reminders", "context": "Patient received reminders for follow-up appointment", "file_id": "dr_MA1103(Part2)", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible scheduling", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Any difficulties with trying to schedule at that time? Speaker 1: No", "context": "Patient did not experience difficulty scheduling appointment", "file_id": "dr_MA1103(Part2)", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I've been thrilled here with ... I thought I was going lose vision in that eye.", "context": "Patient finds provider accessible and helpful", "file_id": "dr_MA1103(Part2)", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So it just, yeah, I got the reminders.", "context": "Patient receives reminders for follow-up appointments", "file_id": "dr_MA1103(Part2)", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've been thrilled here with ... I thought I was going lose vision in that eye.", "context": "Patient has a positive relationship with their provider", "file_id": "dr_MA1103(Part2)", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "This really has been a really good experience", "context": "Patient reports positive interaction with healthcare system", "file_id": "dr_MA1103(Part2)", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "No challenges", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No, not really", "context": "Patient does not face challenges in receiving eye care", "file_id": "dr_MA1103(Part2)", "chunk_id": 4, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "because of the- Mm-hmm. ... the diabetes and the veins", "context": "Patient seems unclear about relationship between diabetes and vision loss", "file_id": "dr_MA1103(Part2)", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "The doctor's amazing", "context": "Patient feels comfortable with their eye doctor", "file_id": "dr_MA1103(Part2)", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I guess just through this whole process. ... being able to ...", "context": "Patient feels able to express concerns to their doctor", "file_id": "dr_MA1103(Part2)", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "They both mentioned that because of the-", "context": "Patient is informed about their risk of vision loss", "file_id": "dr_MA1103(Part2)", "chunk_id": 6, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No hesitation to discuss concerns", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I don't feel any hesitation-", "context": "Patient feels comfortable discussing their diabetes and eye problems", "file_id": "dr_MA1103(Part2)", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "The doctor's amazing", "context": "Patient expresses admiration for their doctor", "file_id": "dr_MA1103(Part2)", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Anything you felt you weren't able to express? Speaker 1: No. Not at all.", "context": "Patient feels heard and able to express themselves", "file_id": "dr_MA1103(Part2)", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "do you ever tell your doctors what you feel is good for you? So , advocating for yourself?", "context": "Patient takes an active role in their care", "file_id": "dr_MA1103(Part2)", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self advocacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "yeah. Speaker 2: What kinds of things do you make sure to point out to them? Speaker 1: , any changes or anything.", "context": "Patient is proactive in discussing their health with their doctor", "file_id": "dr_MA1103(Part2)", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I'm not sure what they should do", "context": "Patient unsure of expectations from healthcare providers", "file_id": "dr_MA1103(Part2)", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Just the, the communication", "context": "Patient values clear communication with providers", "file_id": "dr_MA1103(Part2)", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Efficient system", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It's really efficient", "context": "Patient appreciates efficient healthcare system", "file_id": "dr_MA1103(Part2)", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Just being here, the way things operate", "context": "Patient feels comfortable with providers and system", "file_id": "dr_MA1103(Part2)", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I was gonna pass out all the time", "context": "Patient experienced adverse reaction to medication", "file_id": "dr_MA1103(Part2)", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I have no idea what the-", "context": "Patient unsure about diabetes-related vision loss odds", "file_id": "dr_MA1103(Part2)", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Nobody's gotten to that point", "context": "Patient feels providers haven't discussed vision loss likelihood", "file_id": "dr_MA1103(Part2)", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Yeah, it's fine.", "context": "Patient does not feel urgent need for follow-up", "file_id": "dr_MA1103(Part2)", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No vision problems", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No. No. None of the, weird images or, stuff floating around.", "context": "Patient is unaware of potential vision problems", "file_id": "dr_MA1103(Part2)", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Aging concerns", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I think aging ... Actually now that you mentioned that though, I have been ... I don't know if it's an aging thing or-", "context": "Patient attributes vision issues to aging", "file_id": "dr_MA1103(Part2)", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Night vision difficulties", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've been having a harder and harder time seeing at night", "context": "Patient recognizes need for follow-up due to vision difficulties", "file_id": "dr_MA1103(Part2)", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Yeah, I can say well enough to get through life basically", "context": "Patient does not perceive their vision as a significant issue", "file_id": "dr_MA1103(Part2)", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I forgot today", "context": "Patient did not discuss their night vision issues with their provider", "file_id": "dr_MA1103(Part2)", "chunk_id": 11, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "It's been, it's actually been awesome", "context": "Patient describes overall positive experience with eye care", "file_id": "dr_MA1103(Part2)", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Easy follow-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yeah. Yeah", "context": "Patient implies follow-up appointments are easy to manage", "file_id": "dr_MA1103(Part2)", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "It's all been- ... a good experience", "context": "Patient has positive experience with healthcare system", "file_id": "dr_MA1103(Part2)", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And the way that you guys can shift information around to each other", "context": "Patient appreciates provider communication and coordination", "file_id": "dr_MA1103(Part2)", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient navigation services", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And the way that you guys can shift information around to each other", "context": "Patient benefits from healthcare system's navigation and coordination", "file_id": "dr_MA1103(Part2)", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "You got to take this on a piece of paper and get file", "context": "Patient mentions difficulty with paperwork and accessibility", "file_id": "dr_MA1103(Part2)", "chunk_id": 14, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "It's very hard to read on the screen", "context": "Patient implies that communication methods are outdated and ineffective", "file_id": "dr_MA1103(Part2)", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessibility issues", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "We still do fax stuff to people", "context": "Patient highlights outdated communication methods as a barrier", "file_id": "dr_MA1103(Part2)", "chunk_id": 14, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Working here in West Virginia, it was, we were in early '90s", "context": "Patient mentions past experience with healthcare system, implying some level of support", "file_id": "dr_MA1103(Part2)", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "because there were quite a ways away", "context": "Patient mentions distance as an issue, implying transportation concerns", "file_id": "dr_MA1103(Part2)", "chunk_id": 15, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of motivation", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Motivation & Self-Care Barriers", "quote": "Getting older", "context": "Patient's motivation for keeping up with healthcare services", "file_id": "dr_MA1103(Part2)", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Past negative experiences", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "never saw a doctor", "context": "Patient's history of not seeking medical care", "file_id": "dr_MA1103(Part2)", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No discouraging factors", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Oh, not really", "context": "Patient does not experience anything that discourages them from using healthcare services", "file_id": "dr_MA1103(Part2)", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Aging as motivator", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Getting older", "context": "Patient's motivation for keeping up with healthcare services", "file_id": "dr_MA1103(Part2)", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "never saw a doctor", "context": "Patient has limited experience with healthcare services", "file_id": "dr_MA1103(Part2)", "chunk_id": 17, "original_category": "BARRIER - SDOH" }, { "code": "No transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "No, nothing that", "context": "Patient does not experience transportation barriers", "file_id": "dr_MA1103(Part2)", "chunk_id": 17, "original_category": "BARRIER - SDOH" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Has been awesome", "context": "Patient has a positive experience with primary care doctor", "file_id": "dr_MA1103(Part2)", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Has been awesome", "context": "Patient values effective communication with healthcare provider", "file_id": "dr_MA1103(Part2)", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Hopeful attitude", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Little more hopeful", "context": "Patient feels more positive about managing diabetes and eye care", "file_id": "dr_MA1103(Part2)", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Little more hopeful. Less doubt.", "context": "Patient feels hopeful about managing diabetes", "file_id": "dr_MA1103(Part2)", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "me and my brother", "context": "Patient has family support for daily diabetes care", "file_id": "dr_MA1103(Part2)", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Satisfactory care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I wouldn't change anything here.", "context": "Patient is satisfied with current healthcare services", "file_id": "dr_MA1103(Part2)", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "me and my brother", "context": "Patient has a supportive family member", "file_id": "dr_MA1103(Part2)", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of Education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No", "context": "Patient has not participated in diabetes education classes", "file_id": "dr_MA1103(Part2)", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "have people that you feel you can share if you have worries and fears about your diabetes and eye care", "context": "Patient has people to talk to about concerns", "file_id": "dr_MA1103(Part2)", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare Access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "actually have a friend who's a doctor", "context": "Patient has access to medical expertise through a friend", "file_id": "dr_MA1103(Part2)", "chunk_id": 19, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, yeah. , actually have a friend who's a doctor.", "context": "Patient has a supportive friend who is a doctor", "file_id": "dr_MA1103(Part2)", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They're my regular doctor and ... For some reason a bunch of nurses.", "context": "Patient has access to regular doctor and nurses", "file_id": "dr_MA1103(Part2)", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Emotional Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "When you share your worries with them, do you feel that they understand you and support you, , in the things that you do to get better? Speaker 1: Oh, yeah.", "context": "Patient feels supported by healthcare providers", "file_id": "dr_MA1103(Part2)", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack Of Daily Support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I live alone, so. Speaker 2: So sure. Sure. Speaker 1: So there's nobody there.", "context": "Patient lacks daily support due to living alone", "file_id": "dr_MA1103(Part2)", "chunk_id": 20, "original_category": "BARRIER - SDOH" }, { "code": "Family Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "But yeah, I can call my brother. Speaker 2: Okay. Speaker 1: One of my brothers", "context": "Patient has supportive family members", "file_id": "dr_MA1103(Part2)", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I can call my brother", "context": "Patient mentions calling family for advice on health issues", "file_id": "dr_MA1103(Part2)", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health Literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "friends who are RNs", "context": "Patient has friends who are medical professionals, potentially providing health advice", "file_id": "dr_MA1103(Part2)", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access to Advice", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "friends a doctor", "context": "Patient has access to medical professional friends for advice", "file_id": "dr_MA1103(Part2)", "chunk_id": 21, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Just my blood pressure maybe", "context": "Patient shows uncertainty about medical condition", "file_id": "dr_MA1103(Part2)", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "the whatever diastolic", "context": "Patient demonstrates limited medical knowledge", "file_id": "dr_MA1103(Part2)", "chunk_id": 22, "original_category": "BARRIER - SDOH" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "friends a doctor, a bunch of friends who are RNs", "context": "Patient has access to informal medical advice", "file_id": "dr_MA1103(Part2)", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "None", "context": "No direct quote, but implied by discussion of eye care visit", "file_id": "dr_MA1103(Part2)", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "Vision limitations", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "because I don't see as well as I should", "context": "Patient experiences vision problems", "file_id": "dr_MA1103(Part2)", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Driving difficulties", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "driving at night's becoming more of a problem", "context": "Patient experiences vision problems affecting daily activities", "file_id": "dr_MA1103(Part2)", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So you have people to call", "context": "Patient has access to healthcare providers", "file_id": "dr_MA1103(Part2)", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of expectations", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I didn't really have any set expectations", "context": "Patient lacks understanding of eye care visit purpose", "file_id": "dr_MA1103(Part2)", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of expectations", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I didn't really have any set expectations", "context": "Patient had no clear goals for the eye care visit", "file_id": "dr_MA1103(Part2)", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Hope for no worsening", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Hoping that, nothing was worse than before", "context": "Patient is informed about potential progression of DR", "file_id": "dr_MA1103(Part2)", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Met expectations", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yeah. Those were answered and things that", "context": "Patient felt heard and understood by the provider", "file_id": "dr_MA1103(Part2)", "chunk_id": 24, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Self-monitoring awareness", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I could tell that there was something wrong with my blood sugar because- ... of my vision was changing", "context": "Patient is aware of the link between blood sugar and vision changes", "file_id": "dr_MA1103(Part2)", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "of my vision was changing", "context": "Patient experienced vision changes but didn't prioritize follow-up", "file_id": "dr_MA1103(Part2)", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "my regular doctor, yeah", "context": "Patient has open communication with their doctor", "file_id": "dr_MA1103(Part2)", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "", "context": "No direct quote, insufficient data", "file_id": "dr_MA1103(Part2)", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "", "context": "No direct quote, insufficient data", "file_id": "dr_MA1103(Part2)", "chunk_id": 26, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "", "context": "No direct quote, insufficient data", "file_id": "dr_MA1103(Part2)", "chunk_id": 26, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of questions", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No", "context": "Patient does not have questions about their care", "file_id": "dr_DL0111", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective medication management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "just take my-- take my medications. I count carbs--", "context": "Patient is managing their diabetes through medication and carb counting", "file_id": "dr_DL0111", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible treatment options", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I started Ozempic", "context": "Patient has access to effective treatment options like Ozempic", "file_id": "dr_DL0111", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive health outcomes", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My A1C in January of last year was 15.8... now I'm , I think, 7.7 or 7.8", "context": "Patient has experienced improved health outcomes through effective management", "file_id": "dr_DL0111", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Easy treatment adjustment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "The Ozempic made it really easy", "context": "Patient found it easy to adjust to new treatment with provider support", "file_id": "dr_DL0111", "chunk_id": 0, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I wish I had it five years ago", "context": "Patient expresses regret over delayed access to effective treatment", "file_id": "dr_DL0111", "chunk_id": 1, "original_category": "BARRIER - SDOH" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "The Ozempic made it really easy", "context": "Patient appreciates provider's prescription of effective medication", "file_id": "dr_DL0111", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Just making sure this is working, the-- Dexcom", "context": "Patient uses technology to manage condition, indicating some level of health education", "file_id": "dr_DL0111", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "The Ozempic made it really easy", "context": "Patient has access to effective treatment, implying accessible providers", "file_id": "dr_DL0111", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I ran out", "context": "Patient experienced issues with sensor supply", "file_id": "dr_DL0111", "chunk_id": 2, "original_category": "BARRIER - SDOH" }, { "code": "Device issues", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "he kept saying I was low reading, low reading, and I was pricking my fingers", "context": "Patient experienced faulty readings from device", "file_id": "dr_DL0111", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health literacy", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I just don't prick my finger every day", "context": "Patient uses backup method for blood glucose monitoring", "file_id": "dr_DL0111", "chunk_id": 2, "original_category": "BARRIER - SDOH" }, { "code": "Provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "we just-- actually, this is, the second month I've been using this", "context": "Patient discussed device issues with doctor", "file_id": "dr_DL0111", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Device support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I always have the backup for the one touch barrier that I, I check against it", "context": "Patient has access to alternative monitoring method", "file_id": "dr_DL0111", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they didn't have any Libre 3s", "context": "Patient faced issues with availability of medical devices", "file_id": "dr_DL0111", "chunk_id": 3, "original_category": "BARRIER - SDOH" }, { "code": "Equipment issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "the sensors were supposed to last 15 days, and they were only lasting sometimes between 6 and 11", "context": "Patient experienced problems with medical equipment", "file_id": "dr_DL0111", "chunk_id": 3, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they put-- they-- gave me the Dexcom 7", "context": "Patient received alternative solution from healthcare provider", "file_id": "dr_DL0111", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And they said, 'Do you wanna try it?'", "context": "Patient felt supported by healthcare provider's offer to try alternative device", "file_id": "dr_DL0111", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of assistance", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I have to have somebody else do it", "context": "Patient needs help with medical device", "file_id": "dr_DL0111", "chunk_id": 4, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Fear of hypoglycemia", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "my main concern, is that it drops too low", "context": "Patient worries about low blood sugar", "file_id": "dr_DL0111", "chunk_id": 4, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Self monitoring skills", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I'll finger stick for two or three days, and then I'll put it back on", "context": "Patient demonstrates ability to manage diabetes", "file_id": "dr_DL0111", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have to have somebody else do it", "context": "Patient has someone to help with medical tasks", "file_id": "dr_DL0111", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "my sight was really, really bad", "context": "Patient mentions vision problems but doesn't elaborate on understanding of DR", "file_id": "dr_DL0111", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I thought I wet the bed", "context": "Patient expresses fear and anxiety related to diabetes symptoms", "file_id": "dr_DL0111", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I get very tired", "context": "Patient experiences emotional and physical distress due to diabetes", "file_id": "dr_DL0111", "chunk_id": 5, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Self management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I always keep little candies beside my bed", "context": "Patient has developed strategies to manage diabetes", "file_id": "dr_DL0111", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I'm very-- I get very tired when it goes too low", "context": "Patient has some understanding of diabetes symptoms and management", "file_id": "dr_DL0111", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "when the numbers are high-- even now, -- I-- there's a little slight difference in my, my-- with my sugar being 300. I don't know why it's 300 right now", "context": "Patient seems unsure about relationship between blood sugar and vision", "file_id": "dr_DL0111", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "The cataract removal and, I think, because of the, the Ozempic and-- numbers coming down", "context": "Patient attributes improved vision to successful treatment", "file_id": "dr_DL0111", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive outcome", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I haven't seen this well since, -- I was probably 11, 12 years old--", "context": "Patient experiences improved vision, possibly due to better disease management", "file_id": "dr_DL0111", "chunk_id": 6, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know why it's 300 right now", "context": "Patient unsure about blood sugar levels", "file_id": "dr_DL0111", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "when the numbers are high-- even now", "context": "Patient anxious about high blood sugar levels", "file_id": "dr_DL0111", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "since the vision's changed?", "context": "Patient aware of vision changes due to diabetes", "file_id": "dr_DL0111", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "if it's below 140, I-I'm fine", "context": "Patient managing blood sugar levels", "file_id": "dr_DL0111", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "not really anything", "context": "Patient reports doctor hasn't discussed vision changes", "file_id": "dr_DL0111", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "not really anything", "context": "Patient lacks information from doctor about vision changes", "file_id": "dr_DL0111", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "you can go blind from it", "context": "Patient aware of potential severe consequences of diabetes", "file_id": "dr_DL0111", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "watch your sugar levels", "context": "Patient understands importance of managing blood sugar", "file_id": "dr_DL0111", "chunk_id": 9, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they're impressed that", "context": "Patient feels valued by healthcare provider", "file_id": "dr_DL0111", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the chances are that you-- that I- - that I could lose my sight altogether", "context": "Patient fears losing sight due to DR", "file_id": "dr_DL0111", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider Referral", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And that's when, , Dr. L sent me to Dr. P,", "context": "Patient was referred to another provider by their current doctor", "file_id": "dr_DL0111", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they don't do the contact exams here", "context": "Patient has to go elsewhere for special eye care needs", "file_id": "dr_DL0111", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I get them here, all of the--", "context": "Patient has access to eye care at the current location", "file_id": "dr_DL0111", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "your dilated eye exam is important? Yes, because-- she shows me the pictures of what's-- she's looking for", "context": "Patient seems to understand importance after provider explanation", "file_id": "dr_DL0111", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "--she shows me the pictures of what's-- she's looking for", "context": "Patient feels informed by provider", "file_id": "dr_DL0111", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Regular check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "for the last year, I've been going every four weeks", "context": "Patient is aware of regular check-up schedule", "file_id": "dr_DL0111", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "--she shows me the pictures of what's-- she's looking for", "context": "Patient trusts provider's explanations", "file_id": "dr_DL0111", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they said there's something with capillaries", "context": "Patient lacks clear understanding of diabetes-related eye conditions", "file_id": "dr_DL0111", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "zapping-- that's what I call it, zapping, --", "context": "Patient uses informal language to describe treatment, possibly indicating fear or apprehension", "file_id": "dr_DL0111", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "no, she, --", "context": "Patient struggles to recall specific information from doctor, possibly due to poor communication", "file_id": "dr_DL0111", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they said there's something with capillaries", "context": "Doctor explained condition in terms patient could understand, facilitating follow-up", "file_id": "dr_DL0111", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "they said there's something with capillaries", "context": "Patient received some level of health education, empowering them to manage condition", "file_id": "dr_DL0111", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "What do you mean they're not bad? I'm looking through a prism sometimes--", "context": "Patient expresses confusion about diagnosis", "file_id": "dr_DL0111", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Oh, you got the cataracts, but they're not bad. They're not bad.", "context": "Patient receives unclear information from provider", "file_id": "dr_DL0111", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "As soon as Dr. L saw them, she sent me to Dr. P.", "context": "Patient receives attentive care from providers", "file_id": "dr_DL0111", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And P-P was, 'Yep, they're coming off.'", "context": "Patient receives clear information from provider", "file_id": "dr_DL0111", "chunk_id": 14, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Second opinion", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And as soon as Dr. L saw them, she sent me to Dr. P.", "context": "Patient receives additional care from specialist", "file_id": "dr_DL0111", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "If something's wrong, I tell them", "context": "Patient feels comfortable discussing issues with doctor", "file_id": "dr_DL0111", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "If something's wrong, I tell them", "context": "Patient communicates openly with doctor", "file_id": "dr_DL0111", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I had a tear in the retina--", "context": "Patient has knowledge of diabetes-related eye problems", "file_id": "dr_DL0111", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "If something's wrong, I tell them", "context": "Patient takes initiative in discussing health issues", "file_id": "dr_DL0111", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust him 100%", "context": "Patient expresses high level of trust in doctor", "file_id": "dr_DL0111", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Dr. P, this is what's going on", "context": "Patient uses messaging system to communicate with doctor", "file_id": "dr_DL0111", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "MyChart's my best friend", "context": "Patient finds online portal helpful for communication and access", "file_id": "dr_DL0111", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust him 100%.", "context": "Patient expresses high level of trust in their doctor", "file_id": "dr_DL0111", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "speaking with the diabetic educators and, , my family doctor and the pharmacy team has opened my eyes a lot more.", "context": "Patient values open communication with healthcare team", "file_id": "dr_DL0111", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I didn't feel I was getting anywhere with, , endocrinology--", "context": "Patient felt unheard by previous healthcare provider", "file_id": "dr_DL0111", "chunk_id": 17, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "speaking with the diabetic educators... has opened my eyes a lot more.", "context": "Patient benefits from health education", "file_id": "dr_DL0111", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they got me to counting carbs", "context": "Patient receives support for managing diabetes", "file_id": "dr_DL0111", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "they got me to counting carbs", "context": "Patient received health education on carb counting", "file_id": "dr_DL0111", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective medication", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm not hungry all the time", "context": "Patient experiences positive effects from Ozempic medication", "file_id": "dr_DL0111", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "If you were to ask me that a year ago, I would've said, '100%, I think I'll lose it.'", "context": "Patient previously had poor understanding of diabetes impact on vision", "file_id": "dr_DL0111", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I wish I would've known about it six years ago, and maybe I would still have my leg.", "context": "Patient expresses regret over not knowing about treatment options sooner, implying fear of diagnosis", "file_id": "dr_DL0111", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive outlook", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "now I'm, I'm fairly comfortable with it, and I think it's-- if I can keep maintaining what I'm doing--", "context": "Patient feels empowered to manage condition after learning more", "file_id": "dr_DL0111", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Okay. I'm coming up on a year next month--", "context": "Patient mentions timing of next appointment, implying they don't feel urgent need", "file_id": "dr_DL0111", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Family influence", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "my stepmom, she had the cataracts, but she's not diabetic, so", "context": "Patient mentions family member's experience with eye health", "file_id": "dr_DL0111", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Personal experience", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "she just now had to go get an eye exam and get glasses again", "context": "Patient learns from family member's experience with eye exams", "file_id": "dr_DL0111", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Very scary at first", "context": "Patient describes initial reaction to diagnosis", "file_id": "dr_DL0111", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of worry", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I haven't-- had any problems", "context": "Patient doesn't perceive follow-ups as urgent", "file_id": "dr_DL0111", "chunk_id": 22, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Trust in provider", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I don't have to worry about what's gonna happen", "context": "Patient trusts their provider", "file_id": "dr_DL0111", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "everybody's , 'Y-you live an hour and a half away. Why do you keep coming here?'", "context": "Patient finds the healthcare system accessible despite distance", "file_id": "dr_DL0111", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Continuity of care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Everybody knows, so they can see it", "context": "Patient appreciates the continuity of care in the healthcare system", "file_id": "dr_DL0111", "chunk_id": 22, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "Y-you live an hour and a half away", "context": "Patient faces transportation challenges due to distance", "file_id": "dr_DL0111", "chunk_id": 22, "original_category": "BARRIER - SDOH" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "But I don't trust them", "context": "Patient expresses distrust in local healthcare providers", "file_id": "dr_DL0111", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Perceived better care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "The care is better here", "context": "Patient believes care is better at the current facility", "file_id": "dr_DL0111", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Negative provider experience", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "All you guys did was put lipstick on a pig", "context": "Patient had a negative experience with local healthcare staff", "file_id": "dr_DL0111", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "All you guys did was put lipstick on a pig. You're making those buildings look beautiful, but you need to change the staff.", "context": "Patient expresses dissatisfaction with provider behavior", "file_id": "dr_DL0111", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "All you guys did was put lipstick on a pig. You're making those buildings look beautiful, but you need to change the staff.", "context": "Patient implies poor communication from providers", "file_id": "dr_DL0111", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I'm talking about the doctors because--", "context": "Patient expresses concern about doctor's behavior", "file_id": "dr_DL0111", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "The care is better here.", "context": "Patient perceives better care at current facility", "file_id": "dr_DL0111", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "they were gonna give me fluids. I begged them for water and never got it", "context": "Patient experienced lack of access to basic care during emergency visit", "file_id": "dr_DL0111", "chunk_id": 25, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they kept saying they were gonna give me fluids. I begged them for water and never got it", "context": "Patient experienced poor communication from healthcare providers", "file_id": "dr_DL0111", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "we were there for 14 hours", "context": "Patient experienced long wait time during emergency visit", "file_id": "dr_DL0111", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "they did all this within the first three hours. And they kept saying they were gonna give me fluids", "context": "Patient experienced distrust due to unfulfilled promises by healthcare providers", "file_id": "dr_DL0111", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "I'll drive myself", "context": "Patient considered driving themselves to another hospital due to lack of transportation options", "file_id": "dr_DL0111", "chunk_id": 25, "original_category": "BARRIER - SDOH" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I begged them for water and never got it", "context": "Patient felt neglected by healthcare staff", "file_id": "dr_DL0111", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Well, we don't know what to do with you, so we're going-- we're going to get an ambulance and take you to W-- to Ruby", "context": "Patient experienced unclear communication from providers", "file_id": "dr_DL0111", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "They didn't give me anything", "context": "Patient distrusts provider's actions and decisions", "file_id": "dr_DL0111", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And they started giving me fluids", "context": "Patient received timely care from responsive providers", "file_id": "dr_DL0111", "chunk_id": 26, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Were you-- sorry. Were you able to, , express those concerns when you were here? , did they-- were they responsive of--", "context": "Patient had open dialogue with provider about concerns", "file_id": "dr_DL0111", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they said, 'Well, we'd to give you another, , bag of fluids, but we can't because Reynolds has already charted that they did do.'", "context": "Patient experienced poor communication with healthcare providers", "file_id": "dr_DL0111", "chunk_id": 27, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "They didn't do anything, so--", "context": "Patient distrusts provider's actions", "file_id": "dr_DL0111", "chunk_id": 27, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they did because they said, 'Well, we'd to give you another, , bag of fluids, but we can't because Reynolds has already charted that they did do.'", "context": "Providers attempted to address patient concerns", "file_id": "dr_DL0111", "chunk_id": 27, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And I-- and I know that one of the things for blood pressure low is to drink water to increase it, so.", "context": "Patient takes initiative in managing health", "file_id": "dr_DL0111", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No Transportation Issues", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So it doesn't bother me to drive down here", "context": "Patient has no issues with driving to appointments", "file_id": "dr_DL0111", "chunk_id": 28, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Provider Instruction", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "a doctor said, 'This is when you come back,' so that's when I come back", "context": "Patient follows provider's instructions for follow-up", "file_id": "dr_DL0111", "chunk_id": 28, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Self Awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I'm just always been one that I know when something's wrong with me", "context": "Patient is aware of their health and takes action", "file_id": "dr_DL0111", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider Empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "a doctor said, 'This is when you come back,'", "context": "Patient values provider's instruction and care", "file_id": "dr_DL0111", "chunk_id": 29, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient Empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I know when something's wrong with me", "context": "Patient takes initiative in seeking help", "file_id": "dr_DL0111", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective Communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "a doctor said, 'This is when you come back,'", "context": "Clear instruction from provider facilitates follow-up", "file_id": "dr_DL0111", "chunk_id": 29, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient Autonomy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I argued with the doctors in the emergency--", "context": "Patient takes active role in healthcare decisions", "file_id": "dr_DL0111", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I had my dad take me", "context": "Family support facilitates access to care", "file_id": "dr_DL0111", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "Most guys would just let it burst", "context": "Patient questions doctor's decision", "file_id": "dr_DL0111", "chunk_id": 30, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I know my body", "context": "Patient takes initiative in healthcare", "file_id": "dr_DL0111", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And the doctor asked me", "context": "Doctor involves patient in decision-making", "file_id": "dr_DL0111", "chunk_id": 30, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a nurse friend", "context": "Patient has supportive relationships", "file_id": "dr_DL0111", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a friend who's a nurse, so we're still good friends", "context": "Patient has a supportive friend who is a nurse", "file_id": "dr_DL0111", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare Advice", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "She told me, she said, 'Ask them for HIDA scan'", "context": "Patient received healthcare advice from a nurse friend", "file_id": "dr_DL0111", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "sometimes I, I will plan it, and I'll say, 'Okay. I, I need somebody to drive me home.'", "context": "Patient needs someone to drive them home after appointments", "file_id": "dr_DL0111", "chunk_id": 32, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "We were so in tune to each other that, , we could actually have a conversation and not say a word.", "context": "Patient feels connected with their provider", "file_id": "dr_DL0111", "chunk_id": 32, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Trust in providers", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "if your doctor's suggesting it, follow through with it-- , because it-- they're the professionals, and they know best.", "context": "Patient trusts their provider's expertise", "file_id": "dr_DL0111", "chunk_id": 32, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "because I wasn't paying attention and I wasn't doing anything", "context": "Patient initially lacked awareness of disease progression", "file_id": "dr_DL0111", "chunk_id": 33, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "when Dr. L started doing the, the lasers on my eyes", "context": "Patient's fear of treatment procedures", "file_id": "dr_DL0111", "chunk_id": 33, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. L started doing the, the lasers on my eyes and, and I was coming back and she goes, 'They're coming back. They're, they're growing faster, and I can zap them away'", "context": "Patient feels comforted by provider's explanation", "file_id": "dr_DL0111", "chunk_id": 33, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my mom lives next door. And the first thing she says when she see me, 'Did you take your meds?'", "context": "Patient receives support from family member", "file_id": "dr_DL0111", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I need to follow through with getting my sugars down and getting--everything down", "context": "Patient learns about importance of managing blood sugar", "file_id": "dr_DL0111", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my mom lives next door. And the first thing she says when she see me, 'Did you take your meds?'", "context": "Patient has family support for daily diabetes care", "file_id": "dr_DL0111", "chunk_id": 34, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family Involvement", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "And she actually comes over and checks to make sure that I've filled up my weekly pill bottle.", "context": "Patient's family member helps with medication management", "file_id": "dr_DL0111", "chunk_id": 34, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare Team Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "'Cause I got the ha-- the, the pharmacy team-- and Dr", "context": "Patient has support from healthcare team", "file_id": "dr_DL0111", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they message me and say, 'Hey, how's this going? How's--'", "context": "Patient feels supported by provider", "file_id": "dr_DL0111", "chunk_id": 35, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they message me and say, 'Hey, how's this going? How's--'", "context": "Patient receives regular updates from provider", "file_id": "dr_DL0111", "chunk_id": 35, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I got the ha-- the, the pharmacy team-- and Dr. P--", "context": "Patient has access to multiple healthcare professionals", "file_id": "dr_DL0111", "chunk_id": 35, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They sent me a message yesterday. 'So we're checking up about the Jardiance.'", "context": "Patient receives reminders from healthcare team", "file_id": "dr_DL0111", "chunk_id": 35, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "That feels more personal, .", "context": "Patient values personal connection with provider", "file_id": "dr_DL0111", "chunk_id": 35, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "That feels more personal", "context": "Patient appreciates personalized care from provider", "file_id": "dr_DL0111", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Feeling comfortable with provider", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I feel comfortable with them", "context": "Patient feels at ease with healthcare team", "file_id": "dr_DL0111", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "If you can't laugh about it--", "context": "Patient uses humor to cope with health issues", "file_id": "dr_DL0111", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I will call here", "context": "Patient has easy access to healthcare providers", "file_id": "dr_DL0111", "chunk_id": 37, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Dr. M came in, the surgeon, saw me in recovery", "context": "Patient receives clear communication from healthcare provider", "file_id": "dr_DL0111", "chunk_id": 37, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Coping mechanisms", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It is what it is. I'm-- I gotta live with it, so", "context": "Patient uses coping mechanisms to deal with health issues", "file_id": "dr_DL0111", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I will call here", "context": "Patient has access to healthcare services", "file_id": "dr_DL0111", "chunk_id": 37, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "And i-it's hard to get an appointment-- that quick anyways", "context": "Patient finds it challenging to schedule appointments quickly", "file_id": "dr_DL0111", "chunk_id": 38, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I will call here", "context": "Patient has easy access to healthcare providers via phone or messaging", "file_id": "dr_DL0111", "chunk_id": 38, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Hey, this is going on. What should I do, or any suggestions?", "context": "Patient experiences open and effective communication with healthcare providers", "file_id": "dr_DL0111", "chunk_id": 38, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "You mentioned earlier that you did, , diabetes education classes, right--", "context": "Patient participates in diabetes education classes for empowerment", "file_id": "dr_DL0111", "chunk_id": 38, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "it's hard to get an appointment-- that quick anyways", "context": "Patient finds it challenging to schedule appointments quickly", "file_id": "dr_DL0111", "chunk_id": 39, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "diabetes education classes", "context": "Patient participated in diabetes education classes", "file_id": "dr_DL0111", "chunk_id": 39, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "the diabetic educators. A lot of it was when I was hospitalized. They'd come in and talk to me", "context": "Patient had access to diabetic educators during hospitalization", "file_id": "dr_DL0111", "chunk_id": 39, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "someone from family medicine would come in and talk to me", "context": "Patient received communication from family medicine providers", "file_id": "dr_DL0111", "chunk_id": 39, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "when I started counting carbs and I learned how to count carbs", "context": "Patient received education on carb counting", "file_id": "dr_DL0111", "chunk_id": 40, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I saw a big difference", "context": "Patient experienced positive outcomes from self-management", "file_id": "dr_DL0111", "chunk_id": 40, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of side effects", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I am not having any side effects on them", "context": "Patient is empowered by lack of side effects from medication", "file_id": "dr_DL0111", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And I tell people all the time", "context": "Patient has social support from friends", "file_id": "dr_DL0111", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of side effects", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I am not having any side effects on them", "context": "Patient is aware of medication side effects", "file_id": "dr_DL0111", "chunk_id": 44, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive treatment experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm happy with it", "context": "Patient has positive experience with medication", "file_id": "dr_DL0111", "chunk_id": 44, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I live, an hour a half away up", "context": "Patient mentions living far from the clinic", "file_id": "dr_DL0111", "chunk_id": 45, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Telehealth options", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've done that a couple of times, not with the eye doctor, but", "context": "Patient has experience with telemedicine", "file_id": "dr_DL0111", "chunk_id": 45, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Telemedicine limitations", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "if it was for eyes-- them being able to visually see my eyes-- and look into them and-- see what they're looking at when they're-- using that", "context": "Patient concerned about telemedicine limitations for eye exams", "file_id": "dr_DL0111", "chunk_id": 46, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "couldn't get down here to it", "context": "Patient had difficulty traveling to clinic during COVID", "file_id": "dr_DL0111", "chunk_id": 46, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "that's how I got through COVID 'cause I-- couldn't get down here to it", "context": "Patient used telemedicine as an alternative to in-person visits", "file_id": "dr_DL0111", "chunk_id": 46, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider Relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, no, we do that", "context": "Patient has a established relationship with primary care provider", "file_id": "dr_DL0111", "chunk_id": 46, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "--couldn't get down here to it", "context": "Patient had difficulty traveling to the clinic", "file_id": "dr_DL0111", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "--couldn't get down here to it", "context": "Patient had difficulty accessing healthcare due to location", "file_id": "dr_DL0111", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "--We told you there's nothing wrong with you. Why do you keep coming here?", "context": "Patient experienced rude treatment from healthcare providers", "file_id": "dr_DL0111", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "--We told you there's nothing wrong with you. Why do you keep coming here?", "context": "Patient experienced poor communication from healthcare providers", "file_id": "dr_DL0111", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I actually tried changing my PCP to a local, and that was a disaster", "context": "Patient lacked trust in their healthcare provider", "file_id": "dr_DL0111", "chunk_id": 47, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "\"We told you there's nothing wrong with you. Why do you keep coming here?\"", "context": "Patient feels dismissed by provider", "file_id": "dr_DL0111", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "\"We told you you had Lyme disease.\" But they admitted me every time for one night.", "context": "Patient experiences inconsistent messaging from providers", "file_id": "dr_DL0111", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "And the person who was supposed-- doctor who's supposed to be my PCP, walk past the room every time I was in the hospital but never stepped in to see me.", "context": "Patient feels neglected by their PCP", "file_id": "dr_DL0111", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I'd make a P-- appointment with PCP, and then they tell me I didn't have an appointment, or they cancel it or change it.", "context": "Patient experiences issues with scheduling appointments", "file_id": "dr_DL0111", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "And the person who was supposed-- doctor who's supposed to be my PCP, walk past the room every time I was in the hospital but never stepped in to see me.", "context": "Patient lacks consistent care from their PCP", "file_id": "dr_DL0111", "chunk_id": 48, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "She goes, 'Oh, somebody screwed up,' and that's all she said and slid the window u-- down.", "context": "Patient experiences poor communication with healthcare staff", "file_id": "dr_DL0111", "chunk_id": 49, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "And he just look-looked at me, and I just got up and walked away.", "context": "Patient lacks trust in healthcare provider", "file_id": "dr_DL0111", "chunk_id": 49, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "They're -- she's, 'No, you don't. We, we don't have appointments on Friday.'", "context": "Patient experiences difficulty with appointment scheduling", "file_id": "dr_DL0111", "chunk_id": 49, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "She goes, 'Oh, somebody screwed up,' and that's all she said and slid the window u-- down.", "context": "Patient experiences rude behavior from healthcare staff", "file_id": "dr_DL0111", "chunk_id": 49, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And I called, -- as I was walking out the door, I called Dr", "context": "Patient seeks care from a trusted provider", "file_id": "dr_DL0111", "chunk_id": 49, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I don't have an appointment for-- , I don't have anything available until August something.", "context": "Patient faces difficulty in getting an appointment", "file_id": "dr_DL0111", "chunk_id": 50, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Nobody will listen to me at all.", "context": "Patient feels unheard by healthcare providers", "file_id": "dr_DL0111", "chunk_id": 50, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "She has this lovely Thursday night office hours.", "context": "Patient appreciates flexible office hours", "file_id": "dr_DL0111", "chunk_id": 50, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And she said, 'I'll find it.' And she kept looking and looking", "context": "Patient feels heard and helped by provider", "file_id": "dr_DL0111", "chunk_id": 50, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And she said, 'I'll find it.' And she kept looking and looking", "context": "Patient experiences effective communication with provider", "file_id": "dr_DL0111", "chunk_id": 50, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "nobody will listen to me in, in Glendale. Nobody--will listen to me at all.", "context": "Patient felt unheard by previous providers", "file_id": "dr_DL0111", "chunk_id": 51, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust her", "context": "Patient has a trusting relationship with current provider", "file_id": "dr_DL0111", "chunk_id": 51, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "she likes very thorough, da, da, da.", "context": "Provider is described as thorough and attentive", "file_id": "dr_DL0111", "chunk_id": 51, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust her", "context": "Patient feels comfortable with provider", "file_id": "dr_DL0111", "chunk_id": 52, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust her. I trust--", "context": "Patient has established trust with provider", "file_id": "dr_DL0111", "chunk_id": 52, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they'll ask me, 'Do you mind if--'", "context": "Provider communicates clearly and respectfully with patient", "file_id": "dr_DL0111", "chunk_id": 52, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So, but, -- so I trust her", "context": "Patient feels comfortable with provider", "file_id": "dr_DL0111", "chunk_id": 53, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And it's good that you felt comfortable enough to express that to her", "context": "Patient and provider have open communication", "file_id": "dr_DL0111", "chunk_id": 53, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient-provider trust", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "So, but, -- so I trust her", "context": "Patient has established trust with provider", "file_id": "dr_DL0111", "chunk_id": 53, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of diagnosis/treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the first two, , I was in pain, and it felt he was pushing the needle", "context": "Patient experienced pain during treatment", "file_id": "dr_DL0111", "chunk_id": 53, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I pretty much just go with whatever she suggests", "context": "Patient trusts doctor's suggestions", "file_id": "dr_DL0111", "chunk_id": 54, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "If it's something that I'm not familiar with or something's changing", "context": "Patient feels comfortable asking questions", "file_id": "dr_DL0111", "chunk_id": 54, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Shared decision-making", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "how you and your doctor make decisions about your care together", "context": "Patient discusses collaborative decision-making with doctor", "file_id": "dr_DL0111", "chunk_id": 54, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "You're crazy", "context": "Patient expresses distrust in doctor's diagnosis", "file_id": "dr_DL0111", "chunk_id": 54, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I'm not going back", "context": "Patient lost trust in providers due to poor experience", "file_id": "dr_DL0111", "chunk_id": 55, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "nobody came in", "context": "Patient felt neglected by healthcare staff", "file_id": "dr_DL0111", "chunk_id": 55, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "You're crazy", "context": "Patient felt disrespected by provider", "file_id": "dr_DL0111", "chunk_id": 55, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of continuity of care", "group": "BARRIERS - Systems & Provider Issues", "theme": "Continuity of Care Issues", "quote": "the doctors changed at midnight", "context": "Patient experienced change in providers during care", "file_id": "dr_DL0111", "chunk_id": 55, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they talk to me, not down to me or at me", "context": "Patient feels respected by providers", "file_id": "dr_DL0111", "chunk_id": 56, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they will explain it so that I understand it", "context": "Patient feels heard and understood by providers", "file_id": "dr_DL0111", "chunk_id": 56, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've been with Dr", "context": "Patient has established a relationship with their doctor", "file_id": "dr_DL0111", "chunk_id": 56, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've been with Dr. P since she was a resident", "context": "Patient has long-term relationship with provider", "file_id": "dr_DL0111", "chunk_id": 57, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Could you explain that so I can understand it?", "context": "Patient asks for clarification from provider", "file_id": "dr_DL0111", "chunk_id": 57, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah. I do", "context": "Patient feels respected by provider", "file_id": "dr_DL0111", "chunk_id": 57, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "everybody needs to learn to count carbs", "context": "Patient emphasizes importance of health education", "file_id": "dr_DL0111", "chunk_id": 58, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. P and I made the decision", "context": "Patient feels supported by provider in decision-making", "file_id": "dr_DL0111", "chunk_id": 58, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She said, 'Yeah?' And I was, 'It is-- the--' what do I want to say? 'The side effects-- the, the benefits far outweigh the side effects.'", "context": "Patient has open and effective communication with provider", "file_id": "dr_DL0111", "chunk_id": 58, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Shared decision-making", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Dr. P and I made the decision", "context": "Patient and provider collaborate in decision-making", "file_id": "dr_DL0111", "chunk_id": 58, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She said, 'Are you sure?' And I'm , 'Yep.' She said, 'Okay.'", "context": "Patient feels heard and understood by provider", "file_id": "dr_DL0111", "chunk_id": 59, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I told her, I said, 'Yeah.' I was , 'I think the, the side effects-- the benefits are-- far outweigh the side effects.'", "context": "Patient and provider discuss treatment options", "file_id": "dr_DL0111", "chunk_id": 59, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I think the, the side effects-- the benefits are-- far outweigh the side effects.", "context": "Patient makes informed decision about treatment", "file_id": "dr_DL0111", "chunk_id": 59, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Regular follow-up", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "follow with my PCP regularly", "context": "Patient prioritizes regular follow-up with primary care provider", "file_id": "dr_CJ0406", "chunk_id": 0, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "Monitor my glucose with the Dexcom G7 sensor", "context": "Patient actively monitors their health using a glucose sensor", "file_id": "dr_CJ0406", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Medication adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Novolog, Tresiba, and Ozempic", "context": "Patient takes their prescribed medications regularly", "file_id": "dr_CJ0406", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Proactive care", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "If I have a problem, I get ahold of it", "context": "Patient takes initiative to address health problems promptly", "file_id": "dr_CJ0406", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I usually tell people I call myself when I'm lonely at home", "context": "Patient has a social support network to cope with loneliness", "file_id": "dr_CJ0406", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "If I have problems with my feet", "context": "Patient unsure what to watch out for regarding diabetes progression", "file_id": "dr_CJ0406", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "using the sensors and make sure that, , we made sure we were on a good insulin regimen", "context": "Patient learned about managing diabetes through health education", "file_id": "dr_CJ0406", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he put me on Ozempic, , to keep it lower and slower instead of spiking", "context": "Patient feels provider cares about their well-being", "file_id": "dr_CJ0406", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "what are some things your doctor has discussed with you that's important for you, you to do regarding your diabetes?", "context": "Patient and provider have open discussion about diabetes management", "file_id": "dr_CJ0406", "chunk_id": 1, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "If I have problems with my feet", "context": "Patient unsure of diabetes effects beyond foot problems", "file_id": "dr_CJ0406", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "then I need to get a hold of him or somebody right away", "context": "Patient anxious about addressing potential issues", "file_id": "dr_CJ0406", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare access", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I usually do blood work every three months", "context": "Patient has regular access to healthcare services", "file_id": "dr_CJ0406", "chunk_id": 2, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "then I need to get a hold of him or somebody right away", "context": "Patient values provider support and responsiveness", "file_id": "dr_CJ0406", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "If I have problems with my feet", "context": "Patient monitors condition through self-education", "file_id": "dr_CJ0406", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I really didn't really notice a problem in my eyes", "context": "Patient was unaware of eye problems", "file_id": "dr_CJ0406", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it could've just bleeding really bad and-", "context": "Patient fears potential complications", "file_id": "dr_CJ0406", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "My car was still tied... I had a house in Pennsylvania", "context": "Patient had car registration issues due to out-of-state ownership", "file_id": "dr_CJ0406", "chunk_id": 4, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I lived in Pennsylvania most of my life", "context": "Patient had to adapt to new healthcare system after moving", "file_id": "dr_CJ0406", "chunk_id": 4, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Education/health literacy barriers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I really didn't really notice a problem in my eyes", "context": "Patient lacked awareness of eye problems", "file_id": "dr_CJ0406", "chunk_id": 4, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I went down to DMV in Elkins", "context": "Patient was able to access local services", "file_id": "dr_CJ0406", "chunk_id": 4, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I couldn't see it", "context": "Patient's initial lack of awareness about vision problems", "file_id": "dr_CJ0406", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And they said, 'You need to go get your eye exam'", "context": "Healthcare provider shows concern for patient's condition", "file_id": "dr_CJ0406", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I saw Dr. Goria", "context": "Patient has access to a healthcare provider", "file_id": "dr_CJ0406", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Appointment scheduling", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "They told me to come back in April. May, somewhere around there", "context": "Patient experiences uncertainty with appointment scheduling", "file_id": "dr_CJ0406", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "they told me to come back in April. May, somewhere around there", "context": "Patient had to wait several months for follow-up appointment", "file_id": "dr_CJ0406", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And he said, 'Everything looks good. We'll see you in June.'", "context": "Patient receives clear and reassuring communication from provider", "file_id": "dr_CJ0406", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So we set up appointment and I went... Actually, I went to see him in April", "context": "Patient is able to schedule and attend follow-up appointments with provider", "file_id": "dr_CJ0406", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "the blood vessels start blowing out your eyes- ... because the sugar get... , everything's too thick and it blows out the capillaries in your eyes", "context": "Patient describes their understanding of diabetes effects on eyes", "file_id": "dr_CJ0406", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "you could go blind from it if you don't maintain it", "context": "Patient expresses fear of potential blindness due to diabetes", "file_id": "dr_CJ0406", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I usually go to, , places LensCrafters or someplace that", "context": "Patient mentions going to accessible eye exam locations", "file_id": "dr_CJ0406", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Difficulty scheduling", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It was tough getting an eye exam quickly", "context": "Patient had difficulty scheduling an eye exam", "file_id": "dr_CJ0406", "chunk_id": 7, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "It was tough getting an eye exam quickly", "context": "Patient had difficulty accessing timely eye exams", "file_id": "dr_CJ0406", "chunk_id": 8, "original_category": "BARRIER - SDOH" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "I usually go to places LensCrafters or someplace that", "context": "Patient may have transportation limitations for eye exams", "file_id": "dr_CJ0406", "chunk_id": 8, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I was able to get into Spectrum Eye in Bridgeport", "context": "Patient found a provider with available appointments", "file_id": "dr_CJ0406", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He's the one that told me, 'You got bleeding in the back of your eyes'", "context": "Provider clearly communicated patient's condition", "file_id": "dr_CJ0406", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "And, eventually you could go blind from it if you don't maintain it", "context": "Patient has some knowledge about their condition", "file_id": "dr_CJ0406", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "My sugar was good, my A1C was good, but it is spiking too much", "context": "Patient seems unsure about diabetes management", "file_id": "dr_CJ0406", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He told me I needed to...", "context": "Provider clearly explained treatment plan", "file_id": "dr_CJ0406", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They give the routine eye exam", "context": "Patient has access to regular eye exams", "file_id": "dr_CJ0406", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of issues", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No. Anything?", "context": "Patient reports no problems with their eye exam experience", "file_id": "dr_CJ0406", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular checkups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "every six months", "context": "Patient is aware of the recommended frequency for eye exams", "file_id": "dr_CJ0406", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "No. Anything?", "context": "Patient has a positive interaction with their provider", "file_id": "dr_CJ0406", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Just you can't see for shit", "context": "Patient expresses lack of understanding about their condition", "file_id": "dr_CJ0406", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "The laser is discomfort. It's pressure", "context": "Patient expresses fear or discomfort with treatment", "file_id": "dr_CJ0406", "chunk_id": 11, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Mm-hmm", "context": "Interviewer shows empathy towards patient's experience", "file_id": "dr_CJ0406", "chunk_id": 11, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And then I come back, , two or three weeks later, have the other eye done", "context": "Patient has access to follow-up care", "file_id": "dr_CJ0406", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he... him and I were talking, he said, 'Most patients try to talk me out doing this.'", "context": "Patient has a conversation with the doctor, indicating a positive relationship", "file_id": "dr_CJ0406", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He said, 'You're looking good.' He said, 'But I would recommend touching it up.'", "context": "Doctor clearly communicates with the patient about their condition and treatment", "file_id": "dr_CJ0406", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I don't want it getting worse.", "context": "Patient takes an active role in their care, indicating a sense of empowerment", "file_id": "dr_CJ0406", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible scheduling", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Easy.", "context": "Patient finds the scheduling process easy, indicating accessible scheduling", "file_id": "dr_CJ0406", "chunk_id": 12, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider recommendation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "He said, 'If you've got time, we can do it today.'", "context": "Doctor involves the patient in the decision-making process", "file_id": "dr_CJ0406", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "they said, 'We're taking 'em for after January, we're booked up.'", "context": "Patient experienced long wait time for appointment", "file_id": "dr_CJ0406", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They got me in pretty quickly.", "context": "Patient had a positive experience with provider availability", "file_id": "dr_CJ0406", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "they said, 'We're taking 'em for after January, we're booked up.'", "context": "Patient faced challenges scheduling an appointment", "file_id": "dr_CJ0406", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider navigation services", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "When a doctor calls, they got you, they get you in pretty quick", "context": "Patient benefited from provider's ability to navigate the system", "file_id": "dr_CJ0406", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "they said, 'We're taking 'em for after January, we're booked up.'", "context": "Patient experienced long wait time for appointment", "file_id": "dr_CJ0406", "chunk_id": 14, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Well, when a doctor calls, they got you, they get you in pretty quick.", "context": "Patient found provider to be accessible and responsive", "file_id": "dr_CJ0406", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "And you got eye drops. You gotta take three different eye drops that you have to take.", "context": "Patient seems unclear about treatment regimen", "file_id": "dr_CJ0406", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Complex treatment regimen", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "One you take for a week, three times or four times a day for a week. One you take for four weeks, , you take it four times a day.", "context": "Patient describes complicated medication schedule", "file_id": "dr_CJ0406", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Frequent appointments", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "You see the cataract surgeon three times per eye.", "context": "Patient mentions multiple follow-up visits", "file_id": "dr_CJ0406", "chunk_id": 15, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They check you and check you and just make sure.", "context": "Patient describes provider's attentive follow-up care", "file_id": "dr_CJ0406", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular follow-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "But they, they want to do- they wanna follow up while you... It works, excuse me, it works out, you know?", "context": "Patient mentions provider's emphasis on regular follow-ups", "file_id": "dr_CJ0406", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Helpful providers", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they're very, very, helpful", "context": "Patient praises provider's helpfulness", "file_id": "dr_CJ0406", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they explain everything", "context": "Patient appreciates clear explanations from providers", "file_id": "dr_CJ0406", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he said, 'You're doing really well today'", "context": "Patient feels supported by provider's positive feedback", "file_id": "dr_CJ0406", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Helpful providers", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "they're very, very, helpful", "context": "Patient finds providers to be supportive", "file_id": "dr_CJ0406", "chunk_id": 17, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they explain everything", "context": "Patient feels informed by provider", "file_id": "dr_CJ0406", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "if you call an independent doctor of optometry and you need an eye exam and you're a diabetic they need to get you an ASAP", "context": "Patient has access to timely care", "file_id": "dr_CJ0406", "chunk_id": 17, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "And that lady is a space cadet and she's just all over the place", "context": "Patient had a negative experience with Dr. Chen", "file_id": "dr_CJ0406", "chunk_id": 18, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "And I had... I got fed up with the way she handled everything", "context": "Patient felt Dr. Chen did not communicate effectively", "file_id": "dr_CJ0406", "chunk_id": 18, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They don't put you off for a month. These people, once you're a patient down here and they confirm you have an eye problem, they don't put you off", "context": "Patient appreciates prompt attention from other providers", "file_id": "dr_CJ0406", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They, they make sure that they do whatever they gotta do and they really, really, really do a great job", "context": "Patient values clear communication from providers", "file_id": "dr_CJ0406", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I had got fed up with the way she handled everything", "context": "Patient frustrated with PCP's handling of their care", "file_id": "dr_CJ0406", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "And they said this won't affect it. You can have it done whenever. And she put me off for a month for no reason", "context": "Patient feels provider did not communicate effectively", "file_id": "dr_CJ0406", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "the insurance don't pay for 'em", "context": "Patient's insurance does not cover certain expenses", "file_id": "dr_CJ0406", "chunk_id": 19, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "These are $140 a piece", "context": "Patient faces financial burden due to expensive medical devices", "file_id": "dr_CJ0406", "chunk_id": 19, "original_category": "BARRIER - SDOH" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "the insurance don't pay for 'em", "context": "Patient's insurance does not cover certain treatments", "file_id": "dr_CJ0406", "chunk_id": 20, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "These are $140 a piece", "context": "Patient faces high out-of-pocket costs for treatment", "file_id": "dr_CJ0406", "chunk_id": 20, "original_category": "BARRIER - SDOH" }, { "code": "Provider hassle", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "They gave me a hassle", "context": "Patient experiences difficulty with provider communication", "file_id": "dr_CJ0406", "chunk_id": 20, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And I had no- none of these issues", "context": "Patient has positive experience with new provider", "file_id": "dr_CJ0406", "chunk_id": 20, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "They told me the day before they wanted me on an all-liquid diet.", "context": "Patient feels provider's instructions were unclear or last-minute", "file_id": "dr_CJ0406", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I said, 'Oh, I beg to differ with ya . I'm d- I'm drinking it.'", "context": "Patient resists provider's advice, indicating mistrust", "file_id": "dr_CJ0406", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "They wanted me to not shave for two days... And I said, 'Well, I'll show you what's-' 'We don't care. You're not drinking it.'", "context": "Patient feels provider is dismissive of their concerns", "file_id": "dr_CJ0406", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "Which was stupid. I mean, just made no sense.", "context": "Patient expresses frustration with provider's instructions", "file_id": "dr_CJ0406", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "She tried to talk me out of it. She said I didn't need 'em.", "context": "Patient feels provider is not listening to their concerns", "file_id": "dr_CJ0406", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "She tried to talk me out of it. She said I didn't need 'em.", "context": "Patient feels provider is dismissive of their needs", "file_id": "dr_CJ0406", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Jordan saw me.", "context": "Patient mentions provider by name, indicating a positive relationship", "file_id": "dr_CJ0406", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I said, 'They're bothering me.'", "context": "Patient is able to express their concerns to the provider", "file_id": "dr_CJ0406", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "She talks 90 miles a minute and she acts she's doing you a favor", "context": "Patient had negative experience with Dr. Chen", "file_id": "dr_CJ0406", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "She talks 90 miles a minute", "context": "Patient felt Dr. Chen did not communicate effectively", "file_id": "dr_CJ0406", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I want nothing to do with that woman", "context": "Patient lost trust in Dr. Chen due to negative experience", "file_id": "dr_CJ0406", "chunk_id": 23, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "She talks 90 miles a minute and she acts she's doing you a favor", "context": "Patient describes negative experience with provider", "file_id": "dr_CJ0406", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I want nothing to do with that woman", "context": "Patient expresses distrust and dislike for provider", "file_id": "dr_CJ0406", "chunk_id": 24, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider Communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "they just said...", "context": "Patient's experience with doctor's response to concern", "file_id": "dr_CJ0406", "chunk_id": 25, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Patient Engagement", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Oh, they've covered that quite well.", "context": "Patient feels informed about diabetes and eye care", "file_id": "dr_CJ0406", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive Provider Relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I brought it up with the doctor", "context": "Patient feels comfortable discussing concerns with doctor", "file_id": "dr_CJ0406", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "you might as well talk to the wall 'cause they didn't do a thing about it", "context": "Patient feels unheard by patient advocacy", "file_id": "dr_CJ0406", "chunk_id": 26, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They explain everything quite well", "context": "Patient appreciates clear explanations from eye doctor", "file_id": "dr_CJ0406", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient-provider trust", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They're usually very upfront", "context": "Patient trusts eye doctor's honesty", "file_id": "dr_CJ0406", "chunk_id": 26, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Self-advocacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Oh, yeah. We discuss-", "context": "Patient actively discusses needs with doctor", "file_id": "dr_CJ0406", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "They explain everything quite well", "context": "Patient feels informed by provider", "file_id": "dr_CJ0406", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Oh, yeah. We discuss-", "context": "Patient advocates for themselves", "file_id": "dr_CJ0406", "chunk_id": 27, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She looked at me, she said, 'I don't think you need the surgery.' And I said, 'I'm having trouble with light.'", "context": "Patient feels heard by provider", "file_id": "dr_CJ0406", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Shared decision-making", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "And she goes... Well, then she agreed to do it.", "context": "Patient and provider collaborate on care", "file_id": "dr_CJ0406", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "once you're a patient down here, they keep up with you and they make sure that everything is handled", "context": "Patient feels supported by healthcare system", "file_id": "dr_CJ0406", "chunk_id": 28, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "If there's a question all I have to do is just call down and they get me the answer and call me back", "context": "Patient appreciates open communication with provider", "file_id": "dr_CJ0406", "chunk_id": 28, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have good vision", "context": "Patient is aware of their current health status", "file_id": "dr_CJ0406", "chunk_id": 28, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "once you're a patient down here, they keep up with you and they make sure that everything is handled", "context": "Patient feels valued by healthcare provider", "file_id": "dr_CJ0406", "chunk_id": 28, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I have good vision", "context": "Patient may not see immediate need for follow-up", "file_id": "dr_CJ0406", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I have good vision. , I need glasses to see far.", "context": "Patient believes their current vision is good, reducing motivation for follow-up", "file_id": "dr_CJ0406", "chunk_id": 29, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education/health literacy barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I don't think I will lose my eyesight partially or fully because of diabetes", "context": "Patient lacks understanding about potential vision loss due to diabetes", "file_id": "dr_CJ0406", "chunk_id": 29, "original_category": "BARRIER - SDOH" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "you really don't notice it a lot of the times because, , it, it is just such a gradual thing, , you never really think about it", "context": "Patient describes gradual nature of vision loss", "file_id": "dr_CJ0406", "chunk_id": 30, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "kinda makes you wonder", "context": "Patient expresses concern after being told to see an eye doctor", "file_id": "dr_CJ0406", "chunk_id": 30, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "they didn't want to take your insurance", "context": "Patient had trouble finding a provider that accepted their insurance", "file_id": "dr_CJ0406", "chunk_id": 31, "original_category": "BARRIER - SDOH" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "everybody was booked up", "context": "Patient had trouble scheduling an appointment due to providers being booked", "file_id": "dr_CJ0406", "chunk_id": 31, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they said, 'We'll get you in in a week.'", "context": "Patient was able to get an appointment with a provider relatively quickly", "file_id": "dr_CJ0406", "chunk_id": 31, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Insurance coverage issues", "group": "BARRIERS - Cost & Access", "theme": "Insurance & Coverage Issues", "quote": "they didn't want to take your insurance", "context": "Patient experiences difficulty with insurance coverage", "file_id": "dr_CJ0406", "chunk_id": 32, "original_category": "BARRIER - SDOH" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "they were backed up", "context": "Patient faces challenges in scheduling appointments", "file_id": "dr_CJ0406", "chunk_id": 32, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider availability", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "A lot of optometrists do not wanna play, they're too busy", "context": "Patient has trouble finding available providers", "file_id": "dr_CJ0406", "chunk_id": 32, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I don't wanna lose my sight", "context": "Patient's fear motivates them to seek care", "file_id": "dr_CJ0406", "chunk_id": 32, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And everything from that point went very smooth", "context": "Patient experiences positive interaction with provider", "file_id": "dr_CJ0406", "chunk_id": 32, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I don't wanna lose my sight", "context": "Patient motivated by fear of losing sight", "file_id": "dr_CJ0406", "chunk_id": 33, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They're always sending you notices or when you come in, 'We wanna see in three months.'", "context": "Patient receives reminders for follow-up appointments", "file_id": "dr_CJ0406", "chunk_id": 33, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They don't let you get into a problem. Once you have a problem-", "context": "Patient has easy access to healthcare providers", "file_id": "dr_CJ0406", "chunk_id": 33, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "You're seeing 'em at least twice a year, sometimes four times a year, depending on...", "context": "Patient has regular follow-up appointments scheduled", "file_id": "dr_CJ0406", "chunk_id": 33, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Reminder systems", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "And they send you reminders", "context": "Patient mentions receiving reminders from healthcare system", "file_id": "dr_CJ0406", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they don't let you fall through the cracks", "context": "Patient feels supported by healthcare system", "file_id": "dr_CJ0406", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. G, Dr. Goria", "context": "Patient mentions a positive experience with a specific provider", "file_id": "dr_CJ0406", "chunk_id": 34, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "When I met him for the first time", "context": "Patient implies a positive initial interaction with provider", "file_id": "dr_CJ0406", "chunk_id": 34, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And he's been... , I'm gla- I'm really appreciative of having him as one of my providers.", "context": "Patient expresses appreciation for their provider", "file_id": "dr_CJ0406", "chunk_id": 35, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "After he examined me, he was very upfront.", "context": "Provider communicated clearly with the patient", "file_id": "dr_CJ0406", "chunk_id": 35, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "the man's amazing", "context": "Patient praises Dr. Jordan", "file_id": "dr_CJ0406", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And the results are... speak for themselves", "context": "Patient implies Dr. Jordan communicated effectively", "file_id": "dr_CJ0406", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "Not with eye care, with her specifically", "context": "Patient had negative experience with Dr. Chen", "file_id": "dr_CJ0406", "chunk_id": 36, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "you don't realize it", "context": "Patient may not understand the severity of their condition", "file_id": "dr_CJ0406", "chunk_id": 37, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "or you can lose your sight", "context": "Patient fears losing their sight if they don't follow up", "file_id": "dr_CJ0406", "chunk_id": 37, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Procrastination", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "'I'll do it later'", "context": "Patient may put off follow-up appointments", "file_id": "dr_CJ0406", "chunk_id": 37, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Importance of follow-up", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you have to stay on top of it", "context": "Patient understands the importance of regular follow-up", "file_id": "dr_CJ0406", "chunk_id": 37, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Consequences of non-adherence", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "you could literally have damage in your eye", "context": "Patient is aware of the potential consequences of not following up", "file_id": "dr_CJ0406", "chunk_id": 37, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "you could literally have damage in your eye and you don't realize it", "context": "Patient lacks awareness of potential eye damage", "file_id": "dr_CJ0406", "chunk_id": 38, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No patient support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No, I do it myself", "context": "Patient has no one to help with daily diabetes care", "file_id": "dr_CJ0406", "chunk_id": 38, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Limited health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "they just basically tell you, 'Read labels and watch what you eat'", "context": "Patient received basic diabetes education 25 years ago", "file_id": "dr_CJ0406", "chunk_id": 38, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Yes, I participated in a diabetes education class", "context": "Patient attended a 2-day diabetes education class", "file_id": "dr_CJ0406", "chunk_id": 38, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I thought it was a joke", "context": "Patient initially didn't take health education seriously", "file_id": "dr_CJ0406", "chunk_id": 39, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Read labels and watch what you eat", "context": "Patient received basic health education", "file_id": "dr_CJ0406", "chunk_id": 39, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I thought it was a freaking joke", "context": "Patient felt initial health education was inadequate", "file_id": "dr_CJ0406", "chunk_id": 39, "original_category": "BARRIER - SDOH" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "You are what you eat", "context": "Patient gained basic understanding of healthy eating", "file_id": "dr_CJ0406", "chunk_id": 39, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of social support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, any friends and family you ever reach out to about- Speaker 2: No.", "context": "Patient does not have friends or family for support", "file_id": "dr_CJ0406", "chunk_id": 40, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My PCP. 110103_004 (Completed 06/14/25) Page 37 of 45 Transcript by Rev.com This transcript was exported on Jun 17, 2025 - view latest version here. Speaker 1: Okay. That's, , your main person that go? Speaker 2: Mm-hmm. That's your main contact.", "context": "Patient has a primary care provider they trust", "file_id": "dr_CJ0406", "chunk_id": 40, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I mean, you are what you eat. Speaker 1: Mm-hmm. Speaker 2: And if you're diabetic, it shows worse.", "context": "Patient has some understanding of diabetes management", "file_id": "dr_CJ0406", "chunk_id": 40, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "My PCP. 110103_004 (Completed 06/14/25) Page 37 of 45 Transcript by Rev.com This transcript was exported on Jun 17, 2025 - view latest version here. Speaker 1: Okay. That's, , your main person that go? Speaker 2: Mm-hmm. That's your main contact.", "context": "Patient has a primary care provider they can contact", "file_id": "dr_CJ0406", "chunk_id": 40, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "No. (when asked if eyesight limits ability to do things)", "context": "Patient seems unaware of potential vision limitations due to DR", "file_id": "dr_CJ0406", "chunk_id": 41, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He said, 'You wanna do both sides today?' I said, 'Why should I come back?'", "context": "Patient appreciates provider's willingness to accommodate their needs", "file_id": "dr_CJ0406", "chunk_id": 41, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He said, 'Right.' And he goes, 'I appreciate it.'", "context": "Provider communicates clearly and shows appreciation for patient's cooperation", "file_id": "dr_CJ0406", "chunk_id": 41, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I wanted to see how my eyes were doing.", "context": "Patient takes initiative to understand their eye health", "file_id": "dr_CJ0406", "chunk_id": 41, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Did well on the eye exam. Did well on the pictures.", "context": "Patient has access to timely and thorough eye care services", "file_id": "dr_CJ0406", "chunk_id": 41, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Denial of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Oh, it's not gonna happen to me. It's gonna happen to the other guy and I'll be fine.", "context": "Patient initially in denial about diabetes diagnosis", "file_id": "dr_CJ0406", "chunk_id": 42, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "maybe I didn't think this out", "context": "Patient lacks understanding of diabetes complications", "file_id": "dr_CJ0406", "chunk_id": 42, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He goes, 'I appreciate it.'", "context": "Patient appreciates provider's attitude", "file_id": "dr_CJ0406", "chunk_id": 42, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "You wanna do both sides today?", "context": "Provider communicates clearly with patient", "file_id": "dr_CJ0406", "chunk_id": 42, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I feel fine. There's nothing wrong with me.", "context": "Patient doesn't realize the damage of high blood sugar", "file_id": "dr_CJ0406", "chunk_id": 43, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I feel fine. There's nothing wrong with me.", "context": "Patient doesn't see the need for follow-up", "file_id": "dr_CJ0406", "chunk_id": 43, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "But they knocks you on your ass real good and you sit there and you think, 'Hm, maybe I didn't think this out'", "context": "Patient fears the consequences of diagnosis", "file_id": "dr_CJ0406", "chunk_id": 43, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education needed", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "You're doing damage, you don't realize.", "context": "Patient needs education on diabetes management", "file_id": "dr_CJ0406", "chunk_id": 43, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "And you don't know that?", "context": "Patient's lack of knowledge about diabetes complications", "file_id": "dr_CJ0406", "chunk_id": 44, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "He said, 'Oh, that? That?'", "context": "Patient's fear or denial of diagnosis", "file_id": "dr_CJ0406", "chunk_id": 44, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor health literacy", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I just thought I'd put stuff on it.", "context": "Patient lacks knowledge about proper wound care", "file_id": "dr_CJ0406", "chunk_id": 44, "original_category": "BARRIER - SDOH" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I said, 'Dude, you better get your ass to the ER.'", "context": "Patient receives support and advice from peer", "file_id": "dr_CJ0406", "chunk_id": 44, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I said, 'How long you been a diabetic?'", "context": "Patient educates peer about diabetes management", "file_id": "dr_CJ0406", "chunk_id": 44, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "He said, 'Oh, I stepped on something.' And I, I said, 'Oh, and you didn't go get a check...' 'I just thought I'd put stuff on it.'", "context": "Patient lacks understanding of proper wound care and importance of medical attention", "file_id": "dr_CJ0406", "chunk_id": 45, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "You don't know what an infection is? You've been a diabetic for a couple years-", "context": "Patient and possibly their spouse lack understanding of basic health concepts", "file_id": "dr_CJ0406", "chunk_id": 45, "original_category": "BARRIER - SDOH" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "'You gotta be kidding me.'", "context": "Patient expresses fear or disbelief about the severity of their condition and necessary treatment", "file_id": "dr_CJ0406", "chunk_id": 45, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "You have no idea what, what's, what you got.", "context": "Patient lacks knowledge about their condition and its management", "file_id": "dr_CJ0406", "chunk_id": 45, "original_category": "BARRIER - Patient Empowerment" }, { "code": "Support from others", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "His wife comes up and she goes, 'What's wrong?'", "context": "Presence of supportive family members who encourage medical attention", "file_id": "dr_CJ0406", "chunk_id": 45, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Patient motivation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I said, 'Do you wanna see 56?' He goes, 'Yeah.'", "context": "Patient is motivated to take action for their health when presented with potential consequences", "file_id": "dr_CJ0406", "chunk_id": 45, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Oh, I'm fine.", "context": "Patient shows lack of awareness about their condition", "file_id": "dr_CJ0406", "chunk_id": 46, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "He lost his big toe.", "context": "Patient discusses severe consequences of untreated diabetes, implying fear", "file_id": "dr_CJ0406", "chunk_id": 46, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor patient education", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "He's got red streaks all up his leg and he", "context": "Patient seems unaware of proper wound care, suggesting inadequate education", "file_id": "dr_CJ0406", "chunk_id": 46, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Denial of condition", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Oh, I'm fine.", "context": "Patient downplays severity of their condition", "file_id": "dr_CJ0406", "chunk_id": 46, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "'Oh, I'm fine.'", "context": "Patient's friend had a severe complication but was unaware of the severity", "file_id": "dr_CJ0406", "chunk_id": 47, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "'Oh, I'm fine.'", "context": "Patient's friend was in denial about his condition", "file_id": "dr_CJ0406", "chunk_id": 47, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "We were at a wedding", "context": "Patient has a social network that provides emotional support", "file_id": "dr_CJ0406", "chunk_id": 47, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Financial incentive", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "you'll get a $20 gift card to Kroger", "context": "Patient receives financial compensation for participation", "file_id": "dr_FJ0620", "chunk_id": 0, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I try to avoid bad carbohydrates", "context": "Patient has knowledge about diabetes management", "file_id": "dr_FJ0620", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "fruit contains fructose, which is worse than glucose", "context": "Patient understands nutritional aspects of diabetes", "file_id": "dr_FJ0620", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of self monitoring", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I haven't measured in the last seven days, so I don't know", "context": "Patient not regularly monitoring blood glucose levels", "file_id": "dr_FJ0620", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I haven't felt anything out of the ordinary", "context": "Patient does not feel symptoms, so no urgency to follow up", "file_id": "dr_FJ0620", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Adherence to medication", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I always take my pills", "context": "Patient prioritizes taking medication as part of diabetes care", "file_id": "dr_FJ0620", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Importance of exercise", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "The highest priority actually is doing exercise", "context": "Patient recognizes exercise as key to managing diabetes", "file_id": "dr_FJ0620", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they still don't know", "context": "Patient unsure about diagnosis", "file_id": "dr_FJ0620", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Diabetes impact unclear", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I'm sure diabetes didn't help", "context": "Patient unsure about diabetes effect on vision", "file_id": "dr_FJ0620", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "If you let it go, you want to go blind", "context": "Patient implies lack of access to care can lead to severe consequences", "file_id": "dr_FJ0620", "chunk_id": 5, "original_category": "BARRIER - SDOH" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "If you let it go, you want to go blind – terrible thing to face", "context": "Patient expresses fear of potential diagnosis", "file_id": "dr_FJ0620", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Here", "context": "Patient mentions receiving care at a convenient location", "file_id": "dr_FJ0620", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Dr. Zane Dennison. He's my particular, my, , my doctor", "context": "Patient expresses familiarity and comfort with their provider", "file_id": "dr_FJ0620", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of recall", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "What am I saying? It's- there is an ophthalmologist. What's his name? Kier, Kaur? Oh, my lord. I can't remember.", "context": "Patient struggles to recall doctor's name", "file_id": "dr_FJ0620", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "There is an ophthalmologist. ... Tonya Umbel. She's ophthalmologist", "context": "Patient has access to a specialist", "file_id": "dr_FJ0620", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And thank God the pressure in my right- my left eye is normal.", "context": "Patient expresses relief and trust in care", "file_id": "dr_FJ0620", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of recall", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I can't remember", "context": "Patient has difficulty recalling details about their appointments", "file_id": "dr_FJ0620", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor memory", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I really don't know", "context": "Patient expresses uncertainty and lack of knowledge about their treatment", "file_id": "dr_FJ0620", "chunk_id": 7, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Easy scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yeah, it's easy- easy to schedule", "context": "Patient finds scheduling appointments easy", "file_id": "dr_FJ0620", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Limited morning availability", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "but not in the morning", "context": "Patient has limited availability for morning appointments", "file_id": "dr_FJ0620", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Retired flexibility", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I always have variability because I'm retired", "context": "Patient's retirement status provides scheduling flexibility", "file_id": "dr_FJ0620", "chunk_id": 8, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "We driving from- from Clark* Clarksburg", "context": "Patient mentions traveling from a different location for appointments", "file_id": "dr_FJ0620", "chunk_id": 9, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "during the winter, we couldn't come, we had to cancel certain appointments", "context": "Patient experienced scheduling issues due to seasonal constraints", "file_id": "dr_FJ0620", "chunk_id": 9, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Yeah, it's easy- easy to schedule, but not in the morning", "context": "Patient finds scheduling relatively easy", "file_id": "dr_FJ0620", "chunk_id": 9, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Flexible appointment times", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Afternoon, late afternoon. That's good for me", "context": "Patient appreciates having options for appointment timing", "file_id": "dr_FJ0620", "chunk_id": 9, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Informative doctors", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "the doctors have been very informative", "context": "Patient praises doctor's communication", "file_id": "dr_FJ0620", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Great service", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Great service", "context": "Patient appreciates overall care experience", "file_id": "dr_FJ0620", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "No complaints", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have no complaints", "context": "Patient expresses satisfaction with care", "file_id": "dr_FJ0620", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "No complaints", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have no complaints", "context": "Patient has no issues with healthcare system", "file_id": "dr_FJ0620", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Adheres to treatment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have to take those drops", "context": "Patient follows doctor's orders for eye care", "file_id": "dr_FJ0620", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self care practices", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I go and take a nap", "context": "Patient takes initiative to rest eyes when needed", "file_id": "dr_FJ0620", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "No barriers mentioned", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No", "context": "Patient does not report any challenges in receiving eye care", "file_id": "dr_FJ0620", "chunk_id": 11, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They didn't have any retinopathy yet, but-", "context": "Patient seems unclear about their condition", "file_id": "dr_FJ0620", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Probably had to do with this crap now", "context": "Patient expresses concern about their condition", "file_id": "dr_FJ0620", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They have explained to me", "context": "Patient feels informed by their provider", "file_id": "dr_FJ0620", "chunk_id": 12, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They have explained to me", "context": "Patient receives education about their condition", "file_id": "dr_FJ0620", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "No, I don't have any", "context": "Patient feels comfortable discussing diabetes-related eye problems", "file_id": "dr_FJ0620", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "No, I don't have any", "context": "Patient is able to express comfort level with discussing eye problems", "file_id": "dr_FJ0620", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of concerns", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No, I don't have any", "context": "Patient does not have concerns about diabetes-related eye problems", "file_id": "dr_FJ0620", "chunk_id": 13, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They say women talk too much. She look at me.", "context": "Patient feels heard and understood by provider", "file_id": "dr_FJ0620", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "At this point? Not that serious.", "context": "Patient downplays diabetes severity", "file_id": "dr_FJ0620", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Perceived slow improvement", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I know that this improvement is very slow.", "context": "Patient has limited knowledge of disease progression", "file_id": "dr_FJ0620", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "At this point? Not that serious.", "context": "Patient underestimates diabetes severity", "file_id": "dr_FJ0620", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It's good for what I do.", "context": "Patient feels current vision is sufficient", "file_id": "dr_FJ0620", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It's good for what I do. I can watch TV with this patch here.", "context": "Patient feels their current vision is sufficient", "file_id": "dr_FJ0620", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Not really", "context": "Patient hasn't noticed changes in vision, indicating potential lack of awareness", "file_id": "dr_FJ0620", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of diagnosis info", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "They haven't told me yet, officially.", "context": "Patient unsure of official diagnosis", "file_id": "dr_FJ0620", "chunk_id": 17, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Family history of diabetes", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "My mother developed, , type two me.", "context": "Patient aware of family history of diabetes", "file_id": "dr_FJ0620", "chunk_id": 17, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "my mother developed, , type two me", "context": "Patient aware of family diabetes history", "file_id": "dr_FJ0620", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "it's good", "context": "Patient has positive experience with healthcare services", "file_id": "dr_FJ0620", "chunk_id": 18, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provided information", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Yes. they provided information", "context": "Patient receives adequate information from provider", "file_id": "dr_FJ0620", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "No discouragement", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "No", "context": "Patient not discouraged from using healthcare services", "file_id": "dr_FJ0620", "chunk_id": 18, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "if you have type one diabetes and your eyes are going to pot, it's not too much that a doctor can do", "context": "Patient expresses limited understanding of disease progression", "file_id": "dr_FJ0620", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider limitations", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "This guy is not Jesus here", "context": "Patient implies providers have limitations, affecting trust", "file_id": "dr_FJ0620", "chunk_id": 19, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "This guy is not Jesus here", "context": "Patient expresses distrust in healthcare provider", "file_id": "dr_FJ0620", "chunk_id": 20, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yes, my girlfriend", "context": "Patient has a supportive partner for daily diabetes care", "file_id": "dr_FJ0620", "chunk_id": 20, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I learn all by myself", "context": "Patient lacks formal diabetes education", "file_id": "dr_FJ0620", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "No social support", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "No. They know I have diabetes.", "context": "Patient has no one to share worries or fears with", "file_id": "dr_FJ0620", "chunk_id": 21, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Self education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I learn all by myself. I think I'm pretty well-versed, I hope.", "context": "Patient takes initiative to learn about diabetes", "file_id": "dr_FJ0620", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Comfortable sharing worries", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Oh, yes. Yes.", "context": "Patient is open to sharing concerns with others", "file_id": "dr_FJ0620", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Not really", "context": "Patient does not feel their eyesight is currently limiting", "file_id": "dr_FJ0620", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "maybe I can recover some of my vision within, I don't know, the next five years", "context": "Patient unsure about recovery timeline", "file_id": "dr_FJ0620", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive expectations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I hope that my- the- the eye pressure will go down", "context": "Patient has positive expectations for treatment outcome", "file_id": "dr_FJ0620", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "It went from 25 to 23 now so", "context": "Patient received timely and effective care", "file_id": "dr_FJ0620", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I try and watch what I eat", "context": "Patient is aware of dietary management", "file_id": "dr_SM1021", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Try and stay away from a lot of sugars", "context": "Patient is actively managing diet", "file_id": "dr_SM1021", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "frequency of the restroom at night", "context": "Patient is aware of symptoms to monitor", "file_id": "dr_SM1021", "chunk_id": 0, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "we try and keep each other in check", "context": "Patient has a coworker with similar diabetes condition", "file_id": "dr_SM1021", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Reminder System", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "reminds me", "context": "Coworker reminds patient to check their condition", "file_id": "dr_SM1021", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "it's good to have someone, at least having similar experiences with you, around you at times", "context": "Patient finds comfort in having peers with similar experiences", "file_id": "dr_SM1021", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "it's good to have someone there at work to check you", "context": "Patient appreciates having someone to monitor their condition", "file_id": "dr_SM1021", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "It just gets a, a darker shadow and people disappear", "context": "Patient describes vision loss without understanding its implications", "file_id": "dr_SM1021", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I'm a little bit more vigilant when I'm driving", "context": "Patient implies anxiety about vision loss and its consequences", "file_id": "dr_SM1021", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They blame everything on sugar", "context": "Patient seems unsure about the relationship between diabetes and vision issues", "file_id": "dr_SM1021", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "They blame everything on sugar", "context": "Patient feels that provider oversimplifies the cause of their condition", "file_id": "dr_SM1021", "chunk_id": 4, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "And were you able to express the, those issues with your doctor?", "context": "Patient was able to discuss their concerns with their provider", "file_id": "dr_SM1021", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "They tested my A1C and all that", "context": "Patient received some form of health education about their diabetes management", "file_id": "dr_SM1021", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "They blame everything on sugar", "context": "Patient seems unsure about diabetes relationship with other health issues", "file_id": "dr_SM1021", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "after I gave up drinking, Dr. Pepper's and whatever", "context": "Patient made lifestyle changes after possibly receiving health education", "file_id": "dr_SM1021", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I used to drink a good bit of milk, all the breads and pastas and stuff", "context": "Patient demonstrates understanding of dietary impacts on health", "file_id": "dr_SM1021", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "after I gave up drinking, Dr. Pepper's and whatever, things started improving", "context": "Patient took action to manage diabetes through lifestyle changes", "file_id": "dr_SM1021", "chunk_id": 5, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it's not really an eye exam per se", "context": "Patient seems unclear about the purpose of their eye exams", "file_id": "dr_SM1021", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Yeah. Yeah. Dr. G.", "context": "Patient has a regular provider for eye care", "file_id": "dr_SM1021", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they, , talk to me", "context": "Patient reports that providers communicate with them during exams", "file_id": "dr_SM1021", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it is hard for me to say, yeah, I should come in once a, once a year", "context": "Patient unsure about follow-up frequency", "file_id": "dr_SM1021", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Frequency concerns", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Because they do it. They were doing it once a month. Now it's gonna be every two months,", "context": "Patient questions follow-up frequency", "file_id": "dr_SM1021", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "They bring me in, they talk to me, they get the eye pressures", "context": "Patient receives regular care from providers", "file_id": "dr_SM1021", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "every three months or so", "context": "Patient has regular follow-up schedule", "file_id": "dr_SM1021", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "They were doing it once a month. Now it's gonna be every two months", "context": "Patient experiences reduced frequency of exams", "file_id": "dr_SM1021", "chunk_id": 8, "original_category": "BARRIER - SDOH" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they numb them because they're gonna do the shots", "context": "Patient receives numbing treatment for comfort", "file_id": "dr_SM1021", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They were doing it once a month. Now it's gonna be every two months", "context": "Patient has regular exams with provider", "file_id": "dr_SM1021", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "they also put the Betadine in. To try and hopefully I won't get an infection in my eyes", "context": "Patient is informed about treatment procedures", "file_id": "dr_SM1021", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "the injections, they just plain hurt", "context": "Patient expresses fear of pain from injections", "file_id": "dr_SM1021", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding about treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "People say there's no pain in your eyes because you don't have a nerve. No, you get pain in your eyes", "context": "Patient corrects misconception about eye pain", "file_id": "dr_SM1021", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "that doesn't do anything good for me", "context": "Patient expresses anxiety about seeing the needle", "file_id": "dr_SM1021", "chunk_id": 9, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "if I catch a glimpse of the needle coming at me", "context": "Patient expresses fear of medical procedures", "file_id": "dr_SM1021", "chunk_id": 10, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I'm an uncooperative patient", "context": "Patient implies difficulty with healthcare providers", "file_id": "dr_SM1021", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I always wore more expensive sunglasses", "context": "Patient mentions financial investment in health-related items", "file_id": "dr_SM1021", "chunk_id": 10, "original_category": "BARRIER - SDOH" }, { "code": "Emotional distress", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "That doesn't do anything good for me", "context": "Patient expresses emotional response to medical procedures", "file_id": "dr_SM1021", "chunk_id": 10, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I couldn't afford to buy, ? A hundred and some dollar sunglasses or, or more.", "context": "Patient cannot afford expensive sunglasses", "file_id": "dr_SM1021", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Expensive treatments", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I couldn't afford to buy, ? A hundred and some dollar sunglasses or, or more.", "context": "Patient mentions expensive sunglasses as a financial burden", "file_id": "dr_SM1021", "chunk_id": 11, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I tried to take care of my eyes that way and-", "context": "Patient attempts self-care, implying some level of health knowledge", "file_id": "dr_SM1021", "chunk_id": 11, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access to healthcare", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I used to wear $300 or $400 sunglasses.", "context": "Patient's past ability to afford expensive sunglasses may indicate current lack of access to necessary eye care", "file_id": "dr_SM1021", "chunk_id": 11, "original_category": "BARRIER - SDOH" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I don't want to do something that's gonna-", "context": "Patient expresses fear of potential consequences", "file_id": "dr_SM1021", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't, I don't want to do something that's going to, . , there's always a chance.", "context": "Patient shows uncertainty about treatment effects", "file_id": "dr_SM1021", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of infection", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I have been told that when you put something that in your eyes that you might get, , an infection or something.", "context": "Patient fears potential infection from treatment", "file_id": "dr_SM1021", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of self-care", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I really am bad about that", "context": "Patient admits to neglecting eye care", "file_id": "dr_SM1021", "chunk_id": 12, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Recovery Time", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it'll take me a day or two for, to recover from this", "context": "Patient needs time to recover after eye care visits", "file_id": "dr_SM1021", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Limited Scheduling", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I try to only do Fridays", "context": "Patient has limited scheduling options for follow-up appointments", "file_id": "dr_SM1021", "chunk_id": 13, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I can usually have her take me home or take me to her house", "context": "Patient has help with transportation from girlfriend", "file_id": "dr_SM1021", "chunk_id": 14, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Work schedule constraints", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "it'll take me a day or two for, to recover from this. so it doesn't affect my work", "context": "Patient schedules appointments around work recovery time", "file_id": "dr_SM1021", "chunk_id": 14, "original_category": "BARRIER - Social Determinants of Health (SDOH)" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Usually pretty good", "context": "Patient finds doctor's availability satisfactory", "file_id": "dr_SM1021", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "I feel they do what they can do for me", "context": "Patient's perception of provider's competence", "file_id": "dr_SM1021", "chunk_id": 15, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Poor outcomes", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "It healed badly", "context": "Patient experienced complications after treatment", "file_id": "dr_SM1021", "chunk_id": 15, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Physical discomfort", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It's easier for me to sit here right now in this light", "context": "Patient experiences physical discomfort due to condition", "file_id": "dr_SM1021", "chunk_id": 15, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I feel they do what they can do for me", "context": "Patient perceives provider as caring", "file_id": "dr_SM1021", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "It's not quite as bad as it was, so I don't know what happened", "context": "Patient unsure about their condition", "file_id": "dr_SM1021", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I just know that I'm gonna have this. , for a while. Yeah. And for the rest of my life", "context": "Patient anxious about lifelong condition", "file_id": "dr_SM1021", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He says that the shots and all that stuff will hopefully correct a lot of it", "context": "Provider offers reassuring words", "file_id": "dr_SM1021", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Just getting here and getting home", "context": "Patient faces challenges in receiving eye care due to transportation", "file_id": "dr_SM1021", "chunk_id": 17, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of discussion about risks", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "I don't really think that we'd talk too much about it at all", "context": "Patient lacks understanding about vision loss or blindness due to diabetes", "file_id": "dr_SM1021", "chunk_id": 17, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he feels badly when my, you, he gives me a shot and it hurts", "context": "Patient perceives provider as caring and empathetic", "file_id": "dr_SM1021", "chunk_id": 17, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "they try and make it as painless as they can", "context": "Patient has a positive experience with healthcare provider", "file_id": "dr_SM1021", "chunk_id": 17, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "they, the course always wants you to try and keep up after your diabetes and stuff", "context": "Patient seems unclear about diabetes management", "file_id": "dr_SM1021", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "it depends on what you eat", "context": "Patient implies cost of food affects treatment adherence", "file_id": "dr_SM1021", "chunk_id": 18, "original_category": "BARRIER - SDOH" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he wants me to", "context": "Patient feels supported by provider", "file_id": "dr_SM1021", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lost wages", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I lost days of work because I couldn't...", "context": "Patient had to miss work due to treatment side effects", "file_id": "dr_SM1021", "chunk_id": 19, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Lack of self control", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "if you eat greasy foods, then you can't control yourself", "context": "Patient struggles with managing diet due to lack of self-control", "file_id": "dr_SM1021", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of treatment side effects", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "Because I couldn't handle it", "context": "Patient stopped treatment due to inability to cope with side effects", "file_id": "dr_SM1021", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lost wages", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I lost days of work because I couldn't...", "context": "Patient misses work due to appointments", "file_id": "dr_SM1021", "chunk_id": 20, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "They say that it's something that, , you can get cancer from it or you can get whatever", "context": "Patient fears potential health consequences", "file_id": "dr_SM1021", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of trust in treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "pills that just seem to mask what's going on", "context": "Patient questions effectiveness of medication", "file_id": "dr_SM1021", "chunk_id": 21, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "watching and changing my diet", "context": "Patient takes initiative in health management", "file_id": "dr_SM1021", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I try and drink no matter what", "context": "Patient actively manages health through diet", "file_id": "dr_SM1021", "chunk_id": 21, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "if they can come up with something that would, ... help make food, - good, better food, . a little bit more accessible to people", "context": "Patient suggests making healthy food more accessible", "file_id": "dr_SM1021", "chunk_id": 22, "original_category": "BARRIER - SDOH" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "if they could come up with something that would, ... help make food, - good, better food, . a little bit more accessible to people", "context": "Patient implies need for health education on diet", "file_id": "dr_SM1021", "chunk_id": 22, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible resources", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "if they can come up with something with your diet. Or help make food, - good, better food, . a little bit more accessible to people", "context": "Patient suggests need for accessible resources", "file_id": "dr_SM1021", "chunk_id": 22, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "A little bit more accessible to people", "context": "Patient suggests that better accessibility would improve adherence", "file_id": "dr_SM1021", "chunk_id": 23, "original_category": "BARRIER - SDOH" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Better food, a little bit more accessible to people", "context": "Patient implies that health education could improve self-management", "file_id": "dr_SM1021", "chunk_id": 23, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I wish that I'd have caught it", "context": "Patient expresses regret over not catching condition earlier, implying fear of diagnosis", "file_id": "dr_SM1021", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I'm sure that's why what happened to me", "context": "Patient shows limited understanding of their condition and its progression", "file_id": "dr_SM1021", "chunk_id": 23, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "Not that I know of. No.", "context": "Patient unsure about other conditions like glaucoma", "file_id": "dr_SM1021", "chunk_id": 24, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I take care of two houses", "context": "Patient has financial responsibilities for multiple households", "file_id": "dr_SM1021", "chunk_id": 24, "original_category": "BARRIER - SDOH" }, { "code": "Family History", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "My dad did. My mom had diabetes and she wore glasses and stuff.", "context": "Patient discusses family history of diabetes", "file_id": "dr_SM1021", "chunk_id": 25, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Outdoor Activities", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "When I'm out in the sun a lot and I'm on the mower.", "context": "Patient mentions outdoor activities that may impact eye health", "file_id": "dr_SM1021", "chunk_id": 25, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Dry Eyes", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "It drys my eye out quick.", "context": "Patient experiences dry eyes due to outdoor activities", "file_id": "dr_SM1021", "chunk_id": 25, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "it's accessible enough to me that I can get over here", "context": "Patient finds healthcare services easily accessible", "file_id": "dr_SM1021", "chunk_id": 26, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "it's accessible enough to me that I can get over here", "context": "Patient finds healthcare services easily accessible", "file_id": "dr_SM1021", "chunk_id": 27, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I feel Dr. G cares", "context": "Patient has a positive experience with their provider", "file_id": "dr_SM1021", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he tries to be accommodating", "context": "Patient feels their provider is understanding and accommodating", "file_id": "dr_SM1021", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "he's very confident in what he does", "context": "Patient feels their provider communicates effectively", "file_id": "dr_SM1021", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he's very confident in what he does", "context": "Patient feels comfortable with provider's confidence", "file_id": "dr_SM1021", "chunk_id": 28, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accommodating provider", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "he tries to be accommodating", "context": "Patient appreciates provider's accommodating nature", "file_id": "dr_SM1021", "chunk_id": 28, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I was hoping that this eye would be fixed", "context": "Patient has unrealistic expectations about treatment outcomes", "file_id": "dr_SM1021", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis/treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I worry that that was what happened with my wrinkle thing", "context": "Patient is anxious about potential complications", "file_id": "dr_SM1021", "chunk_id": 28, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of social support", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, I don't have someone to help me with my daily diabetes care", "context": "Patient lacks support for daily care", "file_id": "dr_SM1021", "chunk_id": 29, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Patient confidence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Well, I try", "context": "Patient attempts self-care despite challenges", "file_id": "dr_SM1021", "chunk_id": 29, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "And they were , 'Oh, you calm down. It's okay.'", "context": "Provider response to patient's awareness during procedure", "file_id": "dr_SM1021", "chunk_id": 29, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I worry that that was what happened with my, , that wrinkle thing", "context": "Patient's anxiety about medical procedure", "file_id": "dr_SM1021", "chunk_id": 29, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of confidence", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I mean, I could do a lot better", "context": "Patient expresses self-doubt in managing diabetes", "file_id": "dr_SM1021", "chunk_id": 30, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor diet habits", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Usually I eat trash at night", "context": "Patient admits to unhealthy eating habits", "file_id": "dr_SM1021", "chunk_id": 30, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Food accessibility", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I have a full kitchen of stuff for myself", "context": "Patient has access to groceries and food", "file_id": "dr_SM1021", "chunk_id": 30, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Convenient food options", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm stopping at Sheetz, or I'm stopping at, something I'm bringing home hot dogs or-", "context": "Patient relies on convenient but unhealthy food options", "file_id": "dr_SM1021", "chunk_id": 30, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthy food choices", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I try and have, some salad and I buy rotisserie chicken meat and things that", "context": "Patient makes effort to choose healthier food options at work", "file_id": "dr_SM1021", "chunk_id": 30, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it's not really helping my vision", "context": "Patient unsure if healthy eating helps their vision", "file_id": "dr_SM1021", "chunk_id": 31, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Just Ed at work. We talk about stuff that a lot.", "context": "Patient has someone to share worries with", "file_id": "dr_SM1021", "chunk_id": 31, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "No, I haven't participated in a diabetes education class", "context": "Patient lacks formal diabetes education", "file_id": "dr_SM1021", "chunk_id": 32, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Self education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I do watch a lot of, or look up a lot of stuff about it", "context": "Patient takes initiative to learn about diabetes", "file_id": "dr_SM1021", "chunk_id": 32, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Just Ed at work. We talk about stuff that a lot", "context": "Patient has someone to share concerns with", "file_id": "dr_SM1021", "chunk_id": 32, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I do watch a lot of stuff about it", "context": "Patient seeks health information", "file_id": "dr_SM1021", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Food awareness", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "See if there's something that I would eat", "context": "Patient explores dietary options for health", "file_id": "dr_SM1021", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self management", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I've been trying to eat more beets", "context": "Patient actively manages diet for health", "file_id": "dr_SM1021", "chunk_id": 33, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Limited access due to eyesight", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "My eyesight currently limit my ability to do things I want to do", "context": "Patient's eyesight affects daily activities", "file_id": "dr_SM1021", "chunk_id": 33, "original_category": "BARRIER - Social Determinants of Health" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I do watch a lot of stuff about it", "context": "Patient seeks information, possibly due to lack of understanding", "file_id": "dr_SM1021", "chunk_id": 33, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Education barriers", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "But a lot of jobs that I could do because of my education, I can't do with my eyes where they are", "context": "Patient's education does not help with current job due to eyesight", "file_id": "dr_SM1021", "chunk_id": 34, "original_category": "BARRIER - SDOH" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I don't make a ton of money", "context": "Patient has limited financial resources", "file_id": "dr_SM1021", "chunk_id": 34, "original_category": "BARRIER - SDOH" }, { "code": "Feeling overwhelmed", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "To a point. I mean, with, as anybody would do, but-", "context": "Patient feels discouraged by their situation", "file_id": "dr_SM1021", "chunk_id": 34, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Depression/anxiety", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "To a point. I mean, with, as anybody would do, but-", "context": "Patient shows signs of emotional distress", "file_id": "dr_SM1021", "chunk_id": 34, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a decent job. I mean, I'm, I'm okay. I'm comfortable enough that I'm-", "context": "Patient has access to necessary resources", "file_id": "dr_SM1021", "chunk_id": 34, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm, I'm okay. I'm comfortable enough that I'm-", "context": "Patient has a support system", "file_id": "dr_SM1021", "chunk_id": 34, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I don't make a ton of money", "context": "Patient has limited financial resources", "file_id": "dr_SM1021", "chunk_id": 35, "original_category": "BARRIER - SDOH" }, { "code": "Lack of enthusiasm", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Get through it", "context": "Patient lacks motivation for follow-up visits", "file_id": "dr_SM1021", "chunk_id": 35, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Acceptance of condition", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I know that I have to come in every month or every two months", "context": "Patient understands the importance of regular follow-ups", "file_id": "dr_SM1021", "chunk_id": 35, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive expectations", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "My eyes actually looked pretty decent for having gone", "context": "Patient has positive experience with healthcare provider", "file_id": "dr_SM1021", "chunk_id": 35, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I could see a decline. And now I'm, I didn't see a decline this time.", "context": "Patient doesn't feel urgent need for follow-up when symptoms improve", "file_id": "dr_SM1021", "chunk_id": 36, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he told me no new bleeding, no, nothing that.", "context": "Patient receives clear and reassuring communication from provider", "file_id": "dr_SM1021", "chunk_id": 36, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So, I mean, I, I know that I have to come in every month or every two months", "context": "Patient has regular access to provider for follow-up appointments", "file_id": "dr_SM1021", "chunk_id": 36, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Flexible appointment scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "So he said, 'Well, let's try every two.'", "context": "Provider accommodates patient's needs by adjusting appointment schedule", "file_id": "dr_SM1021", "chunk_id": 36, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Fear of treatment", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I don't look forward to the needles", "context": "Patient expresses fear of treatment procedures", "file_id": "dr_SM1021", "chunk_id": 37, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "It depends on who you, who you get that helps you", "context": "Patient implies varying quality of care from different providers", "file_id": "dr_SM1021", "chunk_id": 37, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Rude or dismissive providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "There was one woman, she, if it was up to her, she'd grab on my eyeball and aim it", "context": "Patient describes uncomfortable experience with a provider", "file_id": "dr_SM1021", "chunk_id": 37, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "It depends on who you, who you get that helps you", "context": "Patient suggests some providers are more considerate than others", "file_id": "dr_SM1021", "chunk_id": 37, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So I'm not having to come in every", "context": "Patient appreciates reduced frequency of appointments", "file_id": "dr_SM1021", "chunk_id": 37, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Rude providers", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "she'd grab on my eyeball and aim it", "context": "Patient had a negative experience with a provider", "file_id": "dr_SM1021", "chunk_id": 38, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Vision loss", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "vision loss", "context": "Patient mentions vision loss as a concern", "file_id": "dr_BN1103", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Blurry vision", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Some blurry vision", "context": "Patient experiences blurry vision due to diabetes", "file_id": "dr_BN1103", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Floaters", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I've had some floaters", "context": "Patient experiences floaters as a symptom", "file_id": "dr_BN1103", "chunk_id": 0, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Expensive surgeries", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "I've had a couple of surgeries", "context": "Patient has undergone costly surgeries for diabetes-related eye issues", "file_id": "dr_BN1103", "chunk_id": 0, "original_category": "BARRIER - Cost-Related Barriers" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it was due to having a sickle cell trait and also diabetes not under control", "context": "Patient lacks clear understanding of diabetes impact on eyes", "file_id": "dr_BN1103", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Importance of exams", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Very", "context": "Patient values regular eye exams", "file_id": "dr_BN1103", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "The Fairmont Clinic", "context": "Patient has access to a clinic for eye exams", "file_id": "dr_BN1103", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "At least once a year", "context": "Patient believes in regular eye check-ups", "file_id": "dr_BN1103", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "at this point, my vision is stable", "context": "Patient may not fully understand the risks of vision loss", "file_id": "dr_BN1103", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust her with my life", "context": "Patient has a strong trust in their doctor", "file_id": "dr_BN1103", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "whenever I had a blood vessel bust in my eye, I couldn't see out of it, and she was able to get me right in", "context": "Patient feels heard and helped by their doctor", "file_id": "dr_BN1103", "chunk_id": 2, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Just a better, , view of the eye", "context": "Patient has some understanding of the importance of eye exams", "file_id": "dr_BN1103", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Risk of vision loss", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Of course, there's always the risk of losing my vision", "context": "Patient is aware of the potential risks of not managing their diabetes", "file_id": "dr_BN1103", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I trust her with my life", "context": "Patient expresses high level of trust in doctor", "file_id": "dr_BN1103", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "what questions you typically ask your doctor", "context": "Patient actively engages with doctor through questioning", "file_id": "dr_BN1103", "chunk_id": 3, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "when will the next injection be, or will I be able to fully see again?", "context": "Patient seeks information about treatment and prognosis", "file_id": "dr_BN1103", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "My mom had it, my dad had it, my brother has it", "context": "Patient is aware of family history of diabetes", "file_id": "dr_BN1103", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Family history awareness", "group": "FACILITATORS", "theme": "Social Support Networks", "quote": "My mom had it, my dad had it, my brother has it.", "context": "Patient aware of family diabetes history", "file_id": "dr_BN1103", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "it was scary at first", "context": "Patient initially fearful of diagnosis", "file_id": "dr_BN1103", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "she was able to get me right in because she was worried about it as well", "context": "Patient values provider's concern and prompt attention", "file_id": "dr_BN1103", "chunk_id": 4, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "she was able to get me right in", "context": "Patient appreciates timely access to healthcare services", "file_id": "dr_BN1103", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Perceived importance of follow-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "just knowing that we're trying to stay on top of things", "context": "Patient understands value of regular follow-ups", "file_id": "dr_BN1103", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Self-management motivation", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "just knowing that I know what I have to do", "context": "Patient motivated to manage condition through regular appointments", "file_id": "dr_BN1103", "chunk_id": 4, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I think the wait times are a little long sometimes, but.", "context": "Patient experiences long wait times at the clinic", "file_id": "dr_BN1103", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of updates", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "at least, leave or give people updates-- on how long they'll be sitting in there.", "context": "Patient suggests providing updates to improve experience", "file_id": "dr_BN1103", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation issues", "group": "BARRIERS - Cost & Access", "theme": "Transportation Barriers", "quote": "Driving at night is the biggest challenge.", "context": "Patient faces challenges with driving at night", "file_id": "dr_BN1103", "chunk_id": 5, "original_category": "BARRIER - SDOH" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "she was able to get me right in because she was worried about it as well.", "context": "Patient appreciates provider's prompt attention", "file_id": "dr_BN1103", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "how long they'll be sitting in there", "context": "Patient is concerned about waiting time at the clinic", "file_id": "dr_BN1103", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of updates", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "leave or give people updates", "context": "Patient suggests providing updates to improve experience", "file_id": "dr_BN1103", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Social support networks", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Family. S1: 07:46 Family, okay.", "context": "Patient has a support system in their family", "file_id": "dr_BN1103", "chunk_id": 6, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "getting, glaucoma or even kidney disease", "context": "Patient fears potential complications of diabetes", "file_id": "dr_BN1103", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of complications", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "being a diabetic, you're always worried about getting, , glaucoma or even kidney disease", "context": "Patient expresses fear of diabetes-related complications", "file_id": "dr_BN1103", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they always wanna go to appointments with me, or they'll have questions that maybe I didn't think of", "context": "Patient receives support from family/friends", "file_id": "dr_BN1103", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible provider communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I always reach out on MyChart", "context": "Patient uses online portal to communicate with provider", "file_id": "dr_BN1103", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "MyChart is, , a good point of access for you to speak with your-- with your provider", "context": "Patient values online communication with provider", "file_id": "dr_BN1103", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "I participated in a diabetes education class", "context": "Patient received diabetes education", "file_id": "dr_BN1103", "chunk_id": 7, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Connection issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "there's no signal or low signal, , , connection issues", "context": "Patient mentions potential technical barriers to telemedicine", "file_id": "dr_BN1103", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Telehealth options", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I actually this. S1: 09:48 You telemedicine? Okay. S2: 09:49 Mm-hmm.", "context": "Patient expresses comfort with using telemedicine for follow-ups", "file_id": "dr_BN1103", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Very good", "context": "Patient describes interactions with eye doctor as very good", "file_id": "dr_BN1103", "chunk_id": 8, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "carb counting", "context": "Patient mentions attending a class on carb counting, indicating health education", "file_id": "dr_BN1103", "chunk_id": 8, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I'm comfortable with her", "context": "Patient feels at ease with their eye doctor", "file_id": "dr_BN1103", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She'll normally tell me what she thinks is best or gimme options and let me choose from there", "context": "Patient's eye doctor communicates clearly and involves patient in decision-making", "file_id": "dr_BN1103", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She respects me", "context": "Patient feels respected by their eye doctor", "file_id": "dr_BN1103", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Shared decision-making", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "let me choose from there", "context": "Patient is involved in making decisions about their eye care", "file_id": "dr_BN1103", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "No rushing communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "I don't think she rushes", "context": "Patient's eye doctor takes time to communicate effectively", "file_id": "dr_BN1103", "chunk_id": 9, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Clear explanations", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She's good at explaining", "context": "Patient's eye doctor explains results and recommendations clearly", "file_id": "dr_BN1103", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider Empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "she explained, yeah, my pressure was high in the eye, and what we could do to lower that", "context": "Patient feels understood by provider", "file_id": "dr_BN1103", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive Patient-Provider Relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "No, she respects me", "context": "Patient feels respected by provider", "file_id": "dr_BN1103", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective Communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "she explained, yeah, my pressure was high in the eye, and what we could do to lower that", "context": "Provider clearly explains patient's condition", "file_id": "dr_BN1103", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of pancreas", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't have a pancreas", "context": "Patient discusses their medical condition", "file_id": "dr_WD0321(part2)", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Dependence on insulin", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I'm totally dependent on insulin", "context": "Patient explains their reliance on medication", "file_id": "dr_WD0321(part2)", "chunk_id": 1, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Self management efforts", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "watch my carbs", "context": "Patient discusses their self-care routine", "file_id": "dr_WD0321(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Medication adherence", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take two different types of insulin", "context": "Patient explains their medication regimen", "file_id": "dr_WD0321(part2)", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I can't really say specifically anything that", "context": "Patient unsure of diabetes progression indicators", "file_id": "dr_WD0321(part2)", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Health monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "keep a check on my sugar", "context": "Patient actively monitors blood sugar levels", "file_id": "dr_WD0321(part2)", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "keep a close lid on to what I", "context": "Patient attempts to manage diabetes through self-regulation", "file_id": "dr_WD0321(part2)", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "keeping my numbers low. Keep my A1C good", "context": "Patient has knowledge of diabetes management goals", "file_id": "dr_WD0321(part2)", "chunk_id": 2, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't think. I'm not sure.", "context": "Patient unsure if diabetes affects eyes", "file_id": "dr_WD0321(part2)", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I don't think. I'm not sure.", "context": "Patient hesitant to acknowledge potential eye issues", "file_id": "dr_WD0321(part2)", "chunk_id": 3, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "that's what started me coming up here, so.", "context": "Patient has been attending follow-up appointments", "file_id": "dr_WD0321(part2)", "chunk_id": 3, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient Empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I try to keep, , a close watch. That's my main thing, keeping a close watch on my GCN.", "context": "Patient taking initiative to monitor health", "file_id": "dr_WD0321(part2)", "chunk_id": 3, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "it's all a big mismash", "context": "Patient is unsure about the impact of diabetes on their eyes", "file_id": "dr_WD0321(part2)", "chunk_id": 4, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Regular check-ups", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I have the diabetic eye exam every year", "context": "Patient has regular eye exams to monitor their condition", "file_id": "dr_WD0321(part2)", "chunk_id": 4, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Access to care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Most of the time up here, but sometimes I get, , I'll get it in Cumberland", "context": "Patient has access to multiple healthcare locations", "file_id": "dr_WD0321(part2)", "chunk_id": 4, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of detail", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "the retina and stuff that", "context": "Patient lacks detailed understanding of their condition", "file_id": "dr_WD0321(part2)", "chunk_id": 5, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "There's a place in town that will do this", "context": "Patient has access to local healthcare providers", "file_id": "dr_WD0321(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Transportation flexibility", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Most of the time up here, but sometimes I get, I'll get it in Cumberland", "context": "Patient has options for receiving care in different locations", "file_id": "dr_WD0321(part2)", "chunk_id": 5, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I don't go to Cumberland too often unless I have an issue", "context": "Patient implies limited access to care", "file_id": "dr_WD0321(part2)", "chunk_id": 6, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare system support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And then I come see her next month again, so", "context": "Patient has a scheduled follow-up appointment", "file_id": "dr_WD0321(part2)", "chunk_id": 6, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And that would've been back, in the last November. Speaker 1: Okay. Patient WD-0321: Yeah. Last-", "context": "Patient seems to have a comfortable relationship with Dr. Lagson", "file_id": "dr_WD0321(part2)", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I don't go to Cumberland too often unless I have an issue", "context": "Patient implies limited access to care", "file_id": "dr_WD0321(part2)", "chunk_id": 7, "original_category": "BARRIER - SDOH" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I come see Dr. Lagson twice a year, and I see Dr. Palko twice a year", "context": "Patient has regular appointments with multiple providers", "file_id": "dr_WD0321(part2)", "chunk_id": 7, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Provider Relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I come see her next month again", "context": "Patient has a scheduled follow-up with a provider", "file_id": "dr_WD0321(part2)", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Adequate provider availability", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Oh, yeah. Yeah. Especially up here.", "context": "Patient feels doctor has adequate availability", "file_id": "dr_WD0321(part2)", "chunk_id": 8, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Limited eye doctors", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I guess per capita, there's not that many eye doctors.", "context": "Patient notes limited availability of eye doctors", "file_id": "dr_WD0321(part2)", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I guess per capita, there's not that many eye doctors", "context": "Patient mentions limited availability of eye doctors", "file_id": "dr_WD0321(part2)", "chunk_id": 9, "original_category": "BARRIER - SDOH" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "Well, we can't see you for two weeks", "context": "Patient experiences delay in getting an appointment", "file_id": "dr_WD0321(part2)", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I called up here that afternoon the same day", "context": "Patient finds alternative provider with shorter wait time", "file_id": "dr_WD0321(part2)", "chunk_id": 9, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "getting scheduled in up here works out great", "context": "Patient praises ease of scheduling appointments", "file_id": "dr_WD0321(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "The care I receive up here? Oh, I think it's excellent", "context": "Patient expresses satisfaction with care received", "file_id": "dr_WD0321(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "So I called my doctor in Cumberland, 'Come see me.' Next day I went to see him", "context": "Patient reports prompt communication with provider", "file_id": "dr_WD0321(part2)", "chunk_id": 10, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "And they said, 'Well, we can't see you for two weeks'", "context": "Patient experiences delay in scheduling appointment", "file_id": "dr_WD0321(part2)", "chunk_id": 10, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "it's an hour and 10 minutes", "context": "Patient mentions long drive time to receive eye care", "file_id": "dr_WD0321(part2)", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of health education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't wear sunglasses", "context": "Patient lacks knowledge about eye protection", "file_id": "dr_WD0321(part2)", "chunk_id": 12, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Access to prescribed treatment", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I use the eyedrops that are prescribed to me", "context": "Patient has access to necessary medication", "file_id": "dr_WD0321(part2)", "chunk_id": 12, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Health literacy", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I take four different types of eyedrops", "context": "Patient understands and manages their medication regimen", "file_id": "dr_WD0321(part2)", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of clarity on medication", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "Or no, I take, I'm sorry", "context": "Patient seems uncertain about their medication regimen", "file_id": "dr_WD0321(part2)", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Complex medication regimen", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I take three for glaucoma", "context": "Patient has a complex medication schedule", "file_id": "dr_WD0321(part2)", "chunk_id": 13, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible provider", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Speaker 1: Mm-hmm", "context": "Provider is engaged and responsive to patient's concerns", "file_id": "dr_WD0321(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Speaker 1: Okay", "context": "Provider is actively listening to patient", "file_id": "dr_WD0321(part2)", "chunk_id": 13, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't do much of TV or a computer", "context": "Patient may not fully understand the importance of eye care", "file_id": "dr_WD0321(part2)", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Financial constraints", "group": "BARRIERS - Cost & Access", "theme": "Financial Barriers", "quote": "None mentioned explicitly, but multiple eyedrops imply potential cost burden", "context": "Patient is taking multiple medications, potentially incurring significant costs", "file_id": "dr_WD0321(part2)", "chunk_id": 14, "original_category": "BARRIER - SDOH" }, { "code": "Health literacy", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "I take two drops of brimonidine, and I take two drops of timolol for the glaucoma", "context": "Patient seems to understand their medication regimen, but may not fully comprehend the underlying conditions", "file_id": "dr_WD0321(part2)", "chunk_id": 14, "original_category": "BARRIER - SDOH" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "None mentioned explicitly", "context": "No mention of provider accessibility, but patient is able to manage their condition with multiple medications", "file_id": "dr_WD0321(part2)", "chunk_id": 14, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Patient self-management", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I'll look at it for about 10 minutes and I say, okay, I can't take none, so I'll set it down because it makes my eyes tired", "context": "Patient is taking steps to manage their eye health by resting their eyes", "file_id": "dr_WD0321(part2)", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I've just heard that it can do, it can cause you blindness, but not really how that works. I, I, I don't know. I really don't know.", "context": "Patient lacks knowledge about diabetes-related vision loss", "file_id": "dr_WD0321(part2)", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Oh, perfectly comfortable", "context": "Patient feels at ease discussing concerns with doctor", "file_id": "dr_WD0321(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Yeah, I actually, today I asked Dr. Palko because he put a shunt in eye", "context": "Patient is able to express concerns and ask questions to doctor", "file_id": "dr_WD0321(part2)", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He said, 'Just let me know, we'll do it.'", "context": "Patient feels supported by provider's willingness to accommodate their needs", "file_id": "dr_WD0321(part2)", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "He said, 'I think you're doing well with the drops'", "context": "Provider clearly explains patient's condition and treatment", "file_id": "dr_WD0321(part2)", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He said, 'Anytime you feel , or we see a change in that, we, we can do that for you.'", "context": "Provider shows understanding and adaptability to patient's needs", "file_id": "dr_WD0321(part2)", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of detailed explanations", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "I wish they would be more detailed with explanations or something that", "context": "Patient desires more comprehensive information from provider", "file_id": "dr_WD0321(part2)", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "They take their time", "context": "Patient feels heard and understood by providers", "file_id": "dr_WD0321(part2)", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't think about it", "context": "Patient lacks awareness of diabetes-related vision loss", "file_id": "dr_WD0321(part2)", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Anytime I ask a question of the doctors up here, they tell me", "context": "Patient receives clear explanations from providers", "file_id": "dr_WD0321(part2)", "chunk_id": 17, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "No perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't think about it", "context": "Patient does not prioritize follow-up due to lack of symptoms", "file_id": "dr_WD0321(part2)", "chunk_id": 17, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "because, because everything seems to be going good for me", "context": "Patient does not think about vision loss due to current good health", "file_id": "dr_WD0321(part2)", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And I know that the doctors up here keep a good check on my eye", "context": "Patient feels cared for by healthcare providers", "file_id": "dr_WD0321(part2)", "chunk_id": 18, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding about DR progression", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't think about it", "context": "Patient lacks awareness of diabetes-related vision loss", "file_id": "dr_WD0321(part2)", "chunk_id": 18, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of perceived urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I think my vision's good. Really good.", "context": "Patient does not feel urgent need for follow-up", "file_id": "dr_WD0321(part2)", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He said, 'You're one of the few that have done this well.'", "context": "Patient feels supported by doctor's positive comment", "file_id": "dr_WD0321(part2)", "chunk_id": 19, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "She said something about my glasses. I said, 'Well, I can see better with my glasses off than I can on.'", "context": "Patient is discussing their vision with a healthcare provider", "file_id": "dr_WD0321(part2)", "chunk_id": 19, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I do, but I think it's psychosomatic.", "context": "Patient is hesitant to acknowledge potential vision problems", "file_id": "dr_WD0321(part2)", "chunk_id": 19, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't know if any of my siblings do, but I know two of my siblings had diabetes", "context": "Patient shows lack of understanding about family history and its relation to their condition", "file_id": "dr_WD0321(part2)", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I had a Fuchs dystrophy is actually why I ended up having to have cornea transplants", "context": "Patient's experience with previous diagnosis and treatment may influence their perception of follow-up appointments", "file_id": "dr_WD0321(part2)", "chunk_id": 20, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "He said, 'You're one of the few that have done this well'", "context": "Patient receives positive feedback from provider, potentially strengthening their relationship", "file_id": "dr_WD0321(part2)", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "You are, you are. You're fine. If you're not, I'll just ask a question", "context": "Provider shows understanding and reassures patient, demonstrating effective communication", "file_id": "dr_WD0321(part2)", "chunk_id": 20, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of access", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "Because there weren't my", "context": "Patient implies lack of access to care", "file_id": "dr_WD0321(part2)", "chunk_id": 21, "original_category": "BARRIER - SDOH" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "And then when they said, come back in two weeks when I was already having problems", "context": "Patient feels communication about follow-up was inadequate", "file_id": "dr_WD0321(part2)", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Appointment scheduling difficulties", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "And then when they said, come back in two weeks", "context": "Patient had issues with follow-up appointment scheduling", "file_id": "dr_WD0321(part2)", "chunk_id": 21, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "So that's when I started coming here", "context": "Patient found a more accessible provider", "file_id": "dr_WD0321(part2)", "chunk_id": 21, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "it's , nah", "context": "Patient had a bad experience with previous provider", "file_id": "dr_WD0321(part2)", "chunk_id": 22, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "She talked me through it, and she said it'll be okay", "context": "Patient had a positive experience with current provider", "file_id": "dr_WD0321(part2)", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "She reaffirmed to me", "context": "Patient felt comforted by provider's approach", "file_id": "dr_WD0321(part2)", "chunk_id": 22, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive provider approach", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "But the way she approached it", "context": "Patient appreciates provider's empathetic approach", "file_id": "dr_WD0321(part2)", "chunk_id": 23, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective treatment outcome", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "The shunt that he put in, Dr. Palko put in, to relieve the pressure, that's turned out great", "context": "Patient experiences positive outcome from treatment", "file_id": "dr_WD0321(part2)", "chunk_id": 23, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Good patient-provider interaction", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "She reaffirmed to me and then she, she did the shots", "context": "Patient values clear communication with provider", "file_id": "dr_WD0321(part2)", "chunk_id": 23, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive experience", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I think the whole system is great up here", "context": "Patient expresses satisfaction with healthcare system", "file_id": "dr_WD0321(part2)", "chunk_id": 24, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my wife. she would help me if I need it", "context": "Patient has a supportive family member", "file_id": "dr_WD0321(part2)", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Emotional support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yeah, what about if you were to have a worry or fear, do you feel you could share that with her also? Yeah", "context": "Patient feels comfortable sharing concerns with spouse", "file_id": "dr_WD0321(part2)", "chunk_id": 24, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "she would help me if I need it", "context": "Patient feels supported by provider", "file_id": "dr_WD0321(part2)", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Yeah. So, , what about if you were to have a worry or fear, do you feel you could share that with her also?", "context": "Patient feels comfortable sharing concerns with provider", "file_id": "dr_WD0321(part2)", "chunk_id": 25, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "Oh, yeah. Yeah. In Cumberland I've done them", "context": "Patient has participated in diabetes education programs", "file_id": "dr_WD0321(part2)", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Diabetes self-management support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I've been to two and I have another one that's coming up, so I had three hours into it this year", "context": "Patient is engaged in ongoing diabetes education", "file_id": "dr_WD0321(part2)", "chunk_id": 25, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of health literacy", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I don't eat vegetables, and I don't eat salads, and I love ice cream", "context": "Patient lacks understanding of healthy diet", "file_id": "dr_WD0321(part2)", "chunk_id": 26, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Patient empowerment", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "It gives me insight and perspective and things that I'm doing, well-", "context": "Patient feels empowered by health education", "file_id": "dr_WD0321(part2)", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Health education support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I, I do still try to keep a little up-", "context": "Patient receives support for diabetes management", "file_id": "dr_WD0321(part2)", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Limited access to care", "group": "BARRIERS - Cost & Access", "theme": "Healthcare Access Barriers", "quote": "I had to work on my diet because I'm not a vegetable, I don't eat vegetables, and I don't eat salads, and I love ice cream", "context": "Patient has limited access to healthy food options", "file_id": "dr_WD0321(part2)", "chunk_id": 26, "original_category": "BARRIER - SDOH" }, { "code": "Positive patient attitude", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I, I, I had to work on my diet", "context": "Patient has positive attitude towards health changes", "file_id": "dr_WD0321(part2)", "chunk_id": 26, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of urgency", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "But in the evening- ... a lamp won't do it because a lamp's up here.", "context": "Patient perceives their vision as sufficient", "file_id": "dr_WD0321(part2)", "chunk_id": 27, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And he reaffirmed, he said, 'Well, we can do it.'", "context": "Patient feels supported by their provider", "file_id": "dr_WD0321(part2)", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Provider empathy", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "And he said, 'But think about it'", "context": "Provider shows understanding and consideration", "file_id": "dr_WD0321(part2)", "chunk_id": 27, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "he said, 'Well, we can do it.' But he said, 'I think you're doing well with the drops and stuff.'", "context": "Patient feels supported by provider", "file_id": "dr_WD0321(part2)", "chunk_id": 28, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Shared decision-making", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "He said, 'And I will do it if you want it done.'", "context": "Patient is involved in treatment decisions", "file_id": "dr_WD0321(part2)", "chunk_id": 28, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "he reaffirmed, he said, 'Well, we can do it.'", "context": "Patient understands provider's message", "file_id": "dr_WD0321(part2)", "chunk_id": 28, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I do now", "context": "Patient currently receives care at the clinic", "file_id": "dr_RA0605", "chunk_id": 1, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Regular monitoring", "group": "FACILITATORS", "theme": "Self-Management Behaviors", "quote": "I just keep monitoring that", "context": "Patient uses CGM to track diabetes", "file_id": "dr_RA0605", "chunk_id": 1, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "we find an available date and--", "context": "Patient finds scheduling process easy", "file_id": "dr_RA0605", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of awareness", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "It was fine", "context": "Patient seems unaware of potential complications", "file_id": "dr_RA0605", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "That distracted me", "context": "Patient experiences distraction during conversation", "file_id": "dr_RA0605", "chunk_id": 2, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Effective scheduling", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Just at the front desk, we find an available date and--", "context": "Patient finds scheduling process easy", "file_id": "dr_RA0605", "chunk_id": 2, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Lack of patient engagement", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "I never really pay attention to that", "context": "Patient shows lack of interest in doctor's availability", "file_id": "dr_RA0605", "chunk_id": 2, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "when I come in for a shot, I have to tell them I can only accept a shot in one of the eyes 'cause you gotta use the other one to drive home with", "context": "Patient needs to drive themselves home after appointment", "file_id": "dr_RA0605", "chunk_id": 3, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Appointment scheduling ease", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Just at the front desk, we find an available date and--", "context": "Patient finds scheduling process to be straightforward", "file_id": "dr_RA0605", "chunk_id": 3, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Provider accommodation", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I just tell them I'm only available for Monday, Wednesday, and Friday", "context": "Patient's schedule is accommodated by provider", "file_id": "dr_RA0605", "chunk_id": 3, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "some people, they have to drive a far distance", "context": "Patient mentions transportation as a challenge for others", "file_id": "dr_RA0605", "chunk_id": 4, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Transportation constraints", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "you gotta use the other one to drive home with", "context": "Patient has to consider transportation after treatment", "file_id": "dr_RA0605", "chunk_id": 4, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Rude provider", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "'You're not the doctor. I am.'", "context": "Patient experienced rude behavior from a healthcare provider", "file_id": "dr_RA0605", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of patient-provider trust", "group": "BARRIERS - Systems & Provider Issues", "theme": "Provider-Patient Relationship Issues", "quote": "'You're not the doctor. I am.'", "context": "Patient lost trust in their provider due to rude behavior", "file_id": "dr_RA0605", "chunk_id": 5, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I went and found another doctor", "context": "Patient sought a new provider with a better relationship", "file_id": "dr_RA0605", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "Yes", "context": "Patient feels comfortable discussing diabetes-related problems with their current doctor", "file_id": "dr_RA0605", "chunk_id": 5, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "is it progressing-- is it getting worse--", "context": "Patient expresses concern about disease progression", "file_id": "dr_RA0605", "chunk_id": 6, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider disagreement", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "the doctor said, 'Well, the in-- they don't have one to do with the other.' I said, 'Oh, yes, they do. They most certainly do.'", "context": "Patient disagrees with provider's assessment", "file_id": "dr_RA0605", "chunk_id": 6, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Symptom variability", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "there are days when, when the floaters are heavier--", "context": "Patient experiences fluctuating symptoms", "file_id": "dr_RA0605", "chunk_id": 6, "original_category": "BARRIER - Emotional/Psychological" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "the doctor said, 'Well, the in-- they don't have one to do with the other.' I said, 'Oh, yes, they do. They most certainly do.'", "context": "Patient engages in open discussion with provider", "file_id": "dr_RA0605", "chunk_id": 6, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "since I've been receiving the shots, they seem to think my eyes are getting better.", "context": "Patient receives treatment and observes improvement", "file_id": "dr_RA0605", "chunk_id": 6, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I guess if I li-live long enough, it'll happen", "context": "Patient shows limited understanding of disease progression", "file_id": "dr_RA0605", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "that at all. I'm gonna be very sad", "context": "Patient expresses fear of potential vision loss", "file_id": "dr_RA0605", "chunk_id": 7, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Positive provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "they seem to be optimistic", "context": "Patient feels reassured by provider's optimism", "file_id": "dr_RA0605", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Effective communication", "group": "FACILITATORS", "theme": "Effective Communication", "quote": "just from what your doctors explained to you", "context": "Patient feels informed by provider's explanations", "file_id": "dr_RA0605", "chunk_id": 7, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I thought it was diabetic neuropathy", "context": "Patient misunderstands their diagnosis", "file_id": "dr_RA0605", "chunk_id": 8, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Provider communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "the doctor seemed to be-- this is my old doctor-- more concerned with macular degeneration", "context": "Patient experiences unclear provider communication", "file_id": "dr_RA0605", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Healthcare system issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "this is my old doctor", "context": "Patient has changed doctors, indicating potential lack of continuity", "file_id": "dr_RA0605", "chunk_id": 8, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "No one had ever said anything about that before", "context": "Patient was not informed about cataracts previously", "file_id": "dr_RA0605", "chunk_id": 9, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Poor communication", "group": "BARRIERS - Systems & Provider Issues", "theme": "Communication Issues", "quote": "No one had ever said anything about that before", "context": "Patient was not properly communicated with by providers", "file_id": "dr_RA0605", "chunk_id": 9, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Fear of vision loss", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "I really don't wanna lose my vision", "context": "Patient motivated by fear of vision loss", "file_id": "dr_RA0605", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Access to specialty care", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "Morgantown is a transplant hospital for kidneys", "context": "Patient has access to specialized care", "file_id": "dr_RA0605", "chunk_id": 10, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Health management skills", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "Just being able to manage them", "context": "Patient has ability to manage health", "file_id": "dr_RA0605", "chunk_id": 10, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "In King George, Virginia", "context": "Patient lives far from the clinic", "file_id": "dr_RA0605", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Lack of access to healthcare", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "Morgantown is a transplant hospital for kidneys", "context": "Patient has to travel for specialized care", "file_id": "dr_RA0605", "chunk_id": 11, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Healthcare System Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Morgantown is a transplant hospital for kidneys", "context": "Patient has access to specialized care", "file_id": "dr_RA0605", "chunk_id": 11, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Social Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I have a sister", "context": "Patient has family support for daily tasks and transportation", "file_id": "dr_RA0605", "chunk_id": 12, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Transportation Assistance", "group": "FACILITATORS", "theme": "Other Facilitators", "quote": "my-- sister drove me here today", "context": "Patient received help with transportation to the clinic", "file_id": "dr_RA0605", "chunk_id": 12, "original_category": "FACILITATOR - Resources & Access" }, { "code": "Transportation issues", "group": "BARRIERS - Systems & Provider Issues", "theme": "Other System Barriers", "quote": "Because I can't drive because of this.", "context": "Patient cannot drive due to their condition", "file_id": "dr_RA0605", "chunk_id": 13, "original_category": "A. BARRIERS TO FOLLOW-UP" }, { "code": "Social support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "my-- sister drove me here today.", "context": "Patient has family support for transportation", "file_id": "dr_RA0605", "chunk_id": 13, "original_category": "B. FACILITATORS TO FOLLOW-UP" }, { "code": "Family Caregiving Burden", "group": "BARRIERS - Cost & Access", "theme": "Other SDOH Barriers", "quote": "My sister's the only fully functioning adult", "context": "Patient's family member has caregiving responsibilities", "file_id": "dr_RA0605", "chunk_id": 14, "original_category": "BARRIER - SDOH" }, { "code": "Lack Of Diabetes Education", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Other Belief Barriers", "quote": "not really. No", "context": "Patient hasn't participated in diabetes education classes", "file_id": "dr_RA0605", "chunk_id": 14, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Emotional Support", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "Yes. She's receptive of that", "context": "Patient has emotional support from sister", "file_id": "dr_RA0605", "chunk_id": 14, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "No quote directly supports this, but the conversation implies a lack of discussion about disease progression", "context": "Patient doesn't discuss their understanding of DR", "file_id": "dr_RA0605", "chunk_id": 15, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "I generally would call the doctor's office or something", "context": "Patient has a means to contact their healthcare provider", "file_id": "dr_RA0605", "chunk_id": 15, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I generally would call the doctor's office or something", "context": "Patient implies a comfortable relationship with their provider by planning to call them", "file_id": "dr_RA0605", "chunk_id": 15, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "No direct quote, but the discussion about eyesight and reading implies some level of health awareness", "context": "Patient shows awareness of their condition's impact on daily activities", "file_id": "dr_RA0605", "chunk_id": 15, "original_category": "FACILITATOR - Patient Empowerment" }, { "code": "Lack of understanding", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Knowledge & Understanding Barriers", "quote": "I don't really know what's going on with my eyes", "context": "Patient lacks knowledge about DR", "file_id": "dr_RA0605", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Fear of diagnosis", "group": "BARRIERS - Beliefs & Perceptions", "theme": "Emotional & Psychological Barriers", "quote": "I'm scared of what the doctor might say", "context": "Patient fears bad news from doctor", "file_id": "dr_RA0605", "chunk_id": 16, "original_category": "BARRIER - Patient Beliefs & Perceptions" }, { "code": "Long wait times", "group": "BARRIERS - Systems & Provider Issues", "theme": "Access & Scheduling Barriers", "quote": "I have to wait too long at the clinic", "context": "Patient experiences long wait times", "file_id": "dr_RA0605", "chunk_id": 16, "original_category": "BARRIER - Provider/System Issues" }, { "code": "Accessible providers", "group": "FACILITATORS", "theme": "Healthcare System Support", "quote": "My doctor is always available to answer questions", "context": "Patient has easy access to provider", "file_id": "dr_RA0605", "chunk_id": 16, "original_category": "FACILITATOR - Healthcare System Support" }, { "code": "Positive patient-provider relationship", "group": "FACILITATORS", "theme": "Positive Provider Relationships", "quote": "I really like my doctor, she's very nice", "context": "Patient has good relationship with provider", "file_id": "dr_RA0605", "chunk_id": 16, "original_category": "FACILITATOR - Provider Relationship" }, { "code": "Health education programs", "group": "FACILITATORS", "theme": "Health Education & Empowerment", "quote": "The classes I took really helped me understand my diabetes", "context": "Patient benefits from health education", "file_id": "dr_RA0605", "chunk_id": 16, "original_category": "FACILITATOR - Patient Empowerment" } ] }