{ "file_id": "dr_DL0111", "total_codes": 212, "codes": [ { "code": "Lack of questions", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "No", "context": "Patient does not have questions about their care", "file_id": "dr_DL0111", "chunk_id": 0 }, { "code": "Effective medication management", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "just take my-- take my medications. I count carbs--", "context": "Patient is managing their diabetes through medication and carb counting", "file_id": "dr_DL0111", "chunk_id": 0 }, { "code": "Accessible treatment options", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I started Ozempic", "context": "Patient has access to effective treatment options like Ozempic", "file_id": "dr_DL0111", "chunk_id": 0 }, { "code": "Positive health outcomes", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "My A1C in January of last year was 15.8... now I'm , I think, 7.7 or 7.8", "context": "Patient has experienced improved health outcomes through effective management", "file_id": "dr_DL0111", "chunk_id": 0 }, { "code": "Easy treatment adjustment", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "The Ozempic made it really easy", "context": "Patient found it easy to adjust to new treatment with provider support", "file_id": "dr_DL0111", "chunk_id": 0 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "I wish I had it five years ago", "context": "Patient expresses regret over delayed access to effective treatment", "file_id": "dr_DL0111", "chunk_id": 1 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "The Ozempic made it really easy", "context": "Patient appreciates provider's prescription of effective medication", "file_id": "dr_DL0111", "chunk_id": 1 }, { "code": "Health education programs", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "Just making sure this is working, the-- Dexcom", "context": "Patient uses technology to manage condition, indicating some level of health education", "file_id": "dr_DL0111", "chunk_id": 1 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "The Ozempic made it really easy", "context": "Patient has access to effective treatment, implying accessible providers", "file_id": "dr_DL0111", "chunk_id": 1 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "I ran out", "context": "Patient experienced issues with sensor supply", "file_id": "dr_DL0111", "chunk_id": 2 }, { "code": "Device issues", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "he kept saying I was low reading, low reading, and I was pricking my fingers", "context": "Patient experienced faulty readings from device", "file_id": "dr_DL0111", "chunk_id": 2 }, { "code": "Health literacy", "category": "BARRIER - SDOH", "subcategory": "Education/health literacy barriers", "quote": "I just don't prick my finger every day", "context": "Patient uses backup method for blood glucose monitoring", "file_id": "dr_DL0111", "chunk_id": 2 }, { "code": "Provider communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "we just-- actually, this is, the second month I've been using this", "context": "Patient discussed device issues with doctor", "file_id": "dr_DL0111", "chunk_id": 2 }, { "code": "Device support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I always have the backup for the one touch barrier that I, I check against it", "context": "Patient has access to alternative monitoring method", "file_id": "dr_DL0111", "chunk_id": 2 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "they didn't have any Libre 3s", "context": "Patient faced issues with availability of medical devices", "file_id": "dr_DL0111", "chunk_id": 3 }, { "code": "Equipment issues", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of continuity of care", "quote": "the sensors were supposed to last 15 days, and they were only lasting sometimes between 6 and 11", "context": "Patient experienced problems with medical equipment", "file_id": "dr_DL0111", "chunk_id": 3 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "they put-- they-- gave me the Dexcom 7", "context": "Patient received alternative solution from healthcare provider", "file_id": "dr_DL0111", "chunk_id": 3 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "And they said, 'Do you wanna try it?'", "context": "Patient felt supported by healthcare provider's offer to try alternative device", "file_id": "dr_DL0111", "chunk_id": 3 }, { "code": "Lack of assistance", "category": "BARRIER - Social Determinants of Health (SDOH)", "subcategory": "Education/health literacy barriers", "quote": "I have to have somebody else do it", "context": "Patient needs help with medical device", "file_id": "dr_DL0111", "chunk_id": 4 }, { "code": "Fear of hypoglycemia", "category": "BARRIER - Emotional/Psychological", "subcategory": "Diabetes distress", "quote": "my main concern, is that it drops too low", "context": "Patient worries about low blood sugar", "file_id": "dr_DL0111", "chunk_id": 4 }, { "code": "Self monitoring skills", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "I'll finger stick for two or three days, and then I'll put it back on", "context": "Patient demonstrates ability to manage diabetes", "file_id": "dr_DL0111", "chunk_id": 4 }, { "code": "Social support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "I have to have somebody else do it", "context": "Patient has someone to help with medical tasks", "file_id": "dr_DL0111", "chunk_id": 4 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "my sight was really, really bad", "context": "Patient mentions vision problems but doesn't elaborate on understanding of DR", "file_id": "dr_DL0111", "chunk_id": 5 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I thought I wet the bed", "context": "Patient expresses fear and anxiety related to diabetes symptoms", "file_id": "dr_DL0111", "chunk_id": 5 }, { "code": "Emotional distress", "category": "BARRIER - Emotional/Psychological", "subcategory": "Diabetes distress", "quote": "I get very tired", "context": "Patient experiences emotional and physical distress due to diabetes", "file_id": "dr_DL0111", "chunk_id": 5 }, { "code": "Self management support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "I always keep little candies beside my bed", "context": "Patient has developed strategies to manage diabetes", "file_id": "dr_DL0111", "chunk_id": 5 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I'm very-- I get very tired when it goes too low", "context": "Patient has some understanding of diabetes symptoms and management", "file_id": "dr_DL0111", "chunk_id": 5 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "when the numbers are high-- even now, -- I-- there's a little slight difference in my, my-- with my sugar being 300. I don't know why it's 300 right now", "context": "Patient seems unsure about relationship between blood sugar and vision", "file_id": "dr_DL0111", "chunk_id": 6 }, { "code": "Effective treatment", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "The cataract removal and, I think, because of the, the Ozempic and-- numbers coming down", "context": "Patient attributes improved vision to successful treatment", "file_id": "dr_DL0111", "chunk_id": 6 }, { "code": "Positive outcome", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I haven't seen this well since, -- I was probably 11, 12 years old--", "context": "Patient experiences improved vision, possibly due to better disease management", "file_id": "dr_DL0111", "chunk_id": 6 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I don't know why it's 300 right now", "context": "Patient unsure about blood sugar levels", "file_id": "dr_DL0111", "chunk_id": 7 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "when the numbers are high-- even now", "context": "Patient anxious about high blood sugar levels", "file_id": "dr_DL0111", "chunk_id": 7 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "since the vision's changed?", "context": "Patient aware of vision changes due to diabetes", "file_id": "dr_DL0111", "chunk_id": 7 }, { "code": "Self management", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "if it's below 140, I-I'm fine", "context": "Patient managing blood sugar levels", "file_id": "dr_DL0111", "chunk_id": 7 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "not really anything", "context": "Patient reports doctor hasn't discussed vision changes", "file_id": "dr_DL0111", "chunk_id": 8 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "not really anything", "context": "Patient lacks information from doctor about vision changes", "file_id": "dr_DL0111", "chunk_id": 9 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "you can go blind from it", "context": "Patient aware of potential severe consequences of diabetes", "file_id": "dr_DL0111", "chunk_id": 9 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "watch your sugar levels", "context": "Patient understands importance of managing blood sugar", "file_id": "dr_DL0111", "chunk_id": 9 }, { "code": "Positive provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "they're impressed that", "context": "Patient feels valued by healthcare provider", "file_id": "dr_DL0111", "chunk_id": 9 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "the chances are that you-- that I- - that I could lose my sight altogether", "context": "Patient fears losing sight due to DR", "file_id": "dr_DL0111", "chunk_id": 10 }, { "code": "Provider Referral", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "And that's when, , Dr. L sent me to Dr. P,", "context": "Patient was referred to another provider by their current doctor", "file_id": "dr_DL0111", "chunk_id": 10 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "they don't do the contact exams here", "context": "Patient has to go elsewhere for special eye care needs", "file_id": "dr_DL0111", "chunk_id": 11 }, { "code": "Healthcare System Support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I get them here, all of the--", "context": "Patient has access to eye care at the current location", "file_id": "dr_DL0111", "chunk_id": 11 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "your dilated eye exam is important? Yes, because-- she shows me the pictures of what's-- she's looking for", "context": "Patient seems to understand importance after provider explanation", "file_id": "dr_DL0111", "chunk_id": 12 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "--she shows me the pictures of what's-- she's looking for", "context": "Patient feels informed by provider", "file_id": "dr_DL0111", "chunk_id": 12 }, { "code": "Regular check-ups", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "for the last year, I've been going every four weeks", "context": "Patient is aware of regular check-up schedule", "file_id": "dr_DL0111", "chunk_id": 12 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "--she shows me the pictures of what's-- she's looking for", "context": "Patient trusts provider's explanations", "file_id": "dr_DL0111", "chunk_id": 12 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "they said there's something with capillaries", "context": "Patient lacks clear understanding of diabetes-related eye conditions", "file_id": "dr_DL0111", "chunk_id": 13 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "zapping-- that's what I call it, zapping, --", "context": "Patient uses informal language to describe treatment, possibly indicating fear or apprehension", "file_id": "dr_DL0111", "chunk_id": 13 }, { "code": "Provider communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "no, she, --", "context": "Patient struggles to recall specific information from doctor, possibly due to poor communication", "file_id": "dr_DL0111", "chunk_id": 13 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "they said there's something with capillaries", "context": "Doctor explained condition in terms patient could understand, facilitating follow-up", "file_id": "dr_DL0111", "chunk_id": 13 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "they said there's something with capillaries", "context": "Patient received some level of health education, empowering them to manage condition", "file_id": "dr_DL0111", "chunk_id": 13 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "What do you mean they're not bad? I'm looking through a prism sometimes--", "context": "Patient expresses confusion about diagnosis", "file_id": "dr_DL0111", "chunk_id": 14 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "Oh, you got the cataracts, but they're not bad. They're not bad.", "context": "Patient receives unclear information from provider", "file_id": "dr_DL0111", "chunk_id": 14 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "As soon as Dr. L saw them, she sent me to Dr. P.", "context": "Patient receives attentive care from providers", "file_id": "dr_DL0111", "chunk_id": 14 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "And P-P was, 'Yep, they're coming off.'", "context": "Patient receives clear information from provider", "file_id": "dr_DL0111", "chunk_id": 14 }, { "code": "Second opinion", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "And as soon as Dr. L saw them, she sent me to Dr. P.", "context": "Patient receives additional care from specialist", "file_id": "dr_DL0111", "chunk_id": 14 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "If something's wrong, I tell them", "context": "Patient feels comfortable discussing issues with doctor", "file_id": "dr_DL0111", "chunk_id": 15 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "If something's wrong, I tell them", "context": "Patient communicates openly with doctor", "file_id": "dr_DL0111", "chunk_id": 15 }, { "code": "Health education programs", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I had a tear in the retina--", "context": "Patient has knowledge of diabetes-related eye problems", "file_id": "dr_DL0111", "chunk_id": 15 }, { "code": "Patient empowerment", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "If something's wrong, I tell them", "context": "Patient takes initiative in discussing health issues", "file_id": "dr_DL0111", "chunk_id": 15 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I trust him 100%", "context": "Patient expresses high level of trust in doctor", "file_id": "dr_DL0111", "chunk_id": 16 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "Dr. P, this is what's going on", "context": "Patient uses messaging system to communicate with doctor", "file_id": "dr_DL0111", "chunk_id": 16 }, { "code": "Healthcare System Support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "MyChart's my best friend", "context": "Patient finds online portal helpful for communication and access", "file_id": "dr_DL0111", "chunk_id": 16 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I trust him 100%.", "context": "Patient expresses high level of trust in their doctor", "file_id": "dr_DL0111", "chunk_id": 17 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "speaking with the diabetic educators and, , my family doctor and the pharmacy team has opened my eyes a lot more.", "context": "Patient values open communication with healthcare team", "file_id": "dr_DL0111", "chunk_id": 17 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "I didn't feel I was getting anywhere with, , endocrinology--", "context": "Patient felt unheard by previous healthcare provider", "file_id": "dr_DL0111", "chunk_id": 17 }, { "code": "Health education programs", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "speaking with the diabetic educators... has opened my eyes a lot more.", "context": "Patient benefits from health education", "file_id": "dr_DL0111", "chunk_id": 17 }, { "code": "Diabetes self-management support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "they got me to counting carbs", "context": "Patient receives support for managing diabetes", "file_id": "dr_DL0111", "chunk_id": 17 }, { "code": "Health education programs", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "they got me to counting carbs", "context": "Patient received health education on carb counting", "file_id": "dr_DL0111", "chunk_id": 18 }, { "code": "Effective medication", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible treatments", "quote": "I'm not hungry all the time", "context": "Patient experiences positive effects from Ozempic medication", "file_id": "dr_DL0111", "chunk_id": 18 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "If you were to ask me that a year ago, I would've said, '100%, I think I'll lose it.'", "context": "Patient previously had poor understanding of diabetes impact on vision", "file_id": "dr_DL0111", "chunk_id": 19 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I wish I would've known about it six years ago, and maybe I would still have my leg.", "context": "Patient expresses regret over not knowing about treatment options sooner, implying fear of diagnosis", "file_id": "dr_DL0111", "chunk_id": 19 }, { "code": "Positive outlook", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "now I'm, I'm fairly comfortable with it, and I think it's-- if I can keep maintaining what I'm doing--", "context": "Patient feels empowered to manage condition after learning more", "file_id": "dr_DL0111", "chunk_id": 19 }, { "code": "Lack of urgency", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "I can see fine now", "quote": "Okay. I'm coming up on a year next month--", "context": "Patient mentions timing of next appointment, implying they don't feel urgent need", "file_id": "dr_DL0111", "chunk_id": 20 }, { "code": "Family influence", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "my stepmom, she had the cataracts, but she's not diabetic, so", "context": "Patient mentions family member's experience with eye health", "file_id": "dr_DL0111", "chunk_id": 20 }, { "code": "Personal experience", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "she just now had to go get an eye exam and get glasses again", "context": "Patient learns from family member's experience with eye exams", "file_id": "dr_DL0111", "chunk_id": 20 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "Very scary at first", "context": "Patient describes initial reaction to diagnosis", "file_id": "dr_DL0111", "chunk_id": 21 }, { "code": "Lack of worry", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "No perceived urgency", "quote": "I haven't-- had any problems", "context": "Patient doesn't perceive follow-ups as urgent", "file_id": "dr_DL0111", "chunk_id": 22 }, { "code": "Trust in provider", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I don't have to worry about what's gonna happen", "context": "Patient trusts their provider", "file_id": "dr_DL0111", "chunk_id": 22 }, { "code": "Accessible care", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "everybody's , 'Y-you live an hour and a half away. Why do you keep coming here?'", "context": "Patient finds the healthcare system accessible despite distance", "file_id": "dr_DL0111", "chunk_id": 22 }, { "code": "Continuity of care", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Lack of continuity of care", "quote": "Everybody knows, so they can see it", "context": "Patient appreciates the continuity of care in the healthcare system", "file_id": "dr_DL0111", "chunk_id": 22 }, { "code": "Transportation issues", "category": "BARRIER - SDOH", "subcategory": "Transportation issues", "quote": "Y-you live an hour and a half away", "context": "Patient faces transportation challenges due to distance", "file_id": "dr_DL0111", "chunk_id": 22 }, { "code": "Lack of trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "But I don't trust them", "context": "Patient expresses distrust in local healthcare providers", "file_id": "dr_DL0111", "chunk_id": 23 }, { "code": "Perceived better care", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "The care is better here", "context": "Patient believes care is better at the current facility", "file_id": "dr_DL0111", "chunk_id": 23 }, { "code": "Negative provider experience", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "All you guys did was put lipstick on a pig", "context": "Patient had a negative experience with local healthcare staff", "file_id": "dr_DL0111", "chunk_id": 23 }, { "code": "Rude providers", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "All you guys did was put lipstick on a pig. You're making those buildings look beautiful, but you need to change the staff.", "context": "Patient expresses dissatisfaction with provider behavior", "file_id": "dr_DL0111", "chunk_id": 24 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "All you guys did was put lipstick on a pig. You're making those buildings look beautiful, but you need to change the staff.", "context": "Patient implies poor communication from providers", "file_id": "dr_DL0111", "chunk_id": 24 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "I'm talking about the doctors because--", "context": "Patient expresses concern about doctor's behavior", "file_id": "dr_DL0111", "chunk_id": 24 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "The care is better here.", "context": "Patient perceives better care at current facility", "file_id": "dr_DL0111", "chunk_id": 24 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "they were gonna give me fluids. I begged them for water and never got it", "context": "Patient experienced lack of access to basic care during emergency visit", "file_id": "dr_DL0111", "chunk_id": 25 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "they kept saying they were gonna give me fluids. I begged them for water and never got it", "context": "Patient experienced poor communication from healthcare providers", "file_id": "dr_DL0111", "chunk_id": 25 }, { "code": "Long wait times", "category": "BARRIER - Provider/System Issues", "subcategory": "Long wait times", "quote": "we were there for 14 hours", "context": "Patient experienced long wait time during emergency visit", "file_id": "dr_DL0111", "chunk_id": 25 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "they did all this within the first three hours. And they kept saying they were gonna give me fluids", "context": "Patient experienced distrust due to unfulfilled promises by healthcare providers", "file_id": "dr_DL0111", "chunk_id": 25 }, { "code": "Transportation issues", "category": "BARRIER - SDOH", "subcategory": "Transportation issues", "quote": "I'll drive myself", "context": "Patient considered driving themselves to another hospital due to lack of transportation options", "file_id": "dr_DL0111", "chunk_id": 25 }, { "code": "Rude providers", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "I begged them for water and never got it", "context": "Patient felt neglected by healthcare staff", "file_id": "dr_DL0111", "chunk_id": 26 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "Well, we don't know what to do with you, so we're going-- we're going to get an ambulance and take you to W-- to Ruby", "context": "Patient experienced unclear communication from providers", "file_id": "dr_DL0111", "chunk_id": 26 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "They didn't give me anything", "context": "Patient distrusts provider's actions and decisions", "file_id": "dr_DL0111", "chunk_id": 26 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "And they started giving me fluids", "context": "Patient received timely care from responsive providers", "file_id": "dr_DL0111", "chunk_id": 26 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "Were you-- sorry. Were you able to, , express those concerns when you were here? , did they-- were they responsive of--", "context": "Patient had open dialogue with provider about concerns", "file_id": "dr_DL0111", "chunk_id": 26 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "they said, 'Well, we'd to give you another, , bag of fluids, but we can't because Reynolds has already charted that they did do.'", "context": "Patient experienced poor communication with healthcare providers", "file_id": "dr_DL0111", "chunk_id": 27 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "They didn't do anything, so--", "context": "Patient distrusts provider's actions", "file_id": "dr_DL0111", "chunk_id": 27 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Healthcare System Support", "quote": "they did because they said, 'Well, we'd to give you another, , bag of fluids, but we can't because Reynolds has already charted that they did do.'", "context": "Providers attempted to address patient concerns", "file_id": "dr_DL0111", "chunk_id": 27 }, { "code": "Patient empowerment", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Patient Empowerment", "quote": "And I-- and I know that one of the things for blood pressure low is to drink water to increase it, so.", "context": "Patient takes initiative in managing health", "file_id": "dr_DL0111", "chunk_id": 27 }, { "code": "No Transportation Issues", "category": "FACILITATOR - Resources & Access", "subcategory": "Transportation assistance", "quote": "So it doesn't bother me to drive down here", "context": "Patient has no issues with driving to appointments", "file_id": "dr_DL0111", "chunk_id": 28 }, { "code": "Provider Instruction", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "a doctor said, 'This is when you come back,' so that's when I come back", "context": "Patient follows provider's instructions for follow-up", "file_id": "dr_DL0111", "chunk_id": 28 }, { "code": "Self Awareness", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "I'm just always been one that I know when something's wrong with me", "context": "Patient is aware of their health and takes action", "file_id": "dr_DL0111", "chunk_id": 28 }, { "code": "Provider Empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "a doctor said, 'This is when you come back,'", "context": "Patient values provider's instruction and care", "file_id": "dr_DL0111", "chunk_id": 29 }, { "code": "Patient Empowerment", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "I know when something's wrong with me", "context": "Patient takes initiative in seeking help", "file_id": "dr_DL0111", "chunk_id": 29 }, { "code": "Effective Communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "a doctor said, 'This is when you come back,'", "context": "Clear instruction from provider facilitates follow-up", "file_id": "dr_DL0111", "chunk_id": 29 }, { "code": "Patient Autonomy", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I argued with the doctors in the emergency--", "context": "Patient takes active role in healthcare decisions", "file_id": "dr_DL0111", "chunk_id": 29 }, { "code": "Social Support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "I had my dad take me", "context": "Family support facilitates access to care", "file_id": "dr_DL0111", "chunk_id": 29 }, { "code": "Lack of trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "Most guys would just let it burst", "context": "Patient questions doctor's decision", "file_id": "dr_DL0111", "chunk_id": 30 }, { "code": "Patient empowerment", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I know my body", "context": "Patient takes initiative in healthcare", "file_id": "dr_DL0111", "chunk_id": 30 }, { "code": "Positive provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "And the doctor asked me", "context": "Doctor involves patient in decision-making", "file_id": "dr_DL0111", "chunk_id": 30 }, { "code": "Social support networks", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "I have a nurse friend", "context": "Patient has supportive relationships", "file_id": "dr_DL0111", "chunk_id": 30 }, { "code": "Social Support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "I have a friend who's a nurse, so we're still good friends", "context": "Patient has a supportive friend who is a nurse", "file_id": "dr_DL0111", "chunk_id": 31 }, { "code": "Healthcare Advice", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "She told me, she said, 'Ask them for HIDA scan'", "context": "Patient received healthcare advice from a nurse friend", "file_id": "dr_DL0111", "chunk_id": 31 }, { "code": "Transportation issues", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "sometimes I, I will plan it, and I'll say, 'Okay. I, I need somebody to drive me home.'", "context": "Patient needs someone to drive them home after appointments", "file_id": "dr_DL0111", "chunk_id": 32 }, { "code": "Provider empathy", "category": "B. FACILITATORS TO FOLLOW-UP", "subcategory": "2. Provider Relationship", "quote": "We were so in tune to each other that, , we could actually have a conversation and not say a word.", "context": "Patient feels connected with their provider", "file_id": "dr_DL0111", "chunk_id": 32 }, { "code": "Trust in providers", "category": "B. FACILITATORS TO FOLLOW-UP", "subcategory": "2. Provider Relationship", "quote": "if your doctor's suggesting it, follow through with it-- , because it-- they're the professionals, and they know best.", "context": "Patient trusts their provider's expertise", "file_id": "dr_DL0111", "chunk_id": 32 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "because I wasn't paying attention and I wasn't doing anything", "context": "Patient initially lacked awareness of disease progression", "file_id": "dr_DL0111", "chunk_id": 33 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "when Dr. L started doing the, the lasers on my eyes", "context": "Patient's fear of treatment procedures", "file_id": "dr_DL0111", "chunk_id": 33 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "Dr. L started doing the, the lasers on my eyes and, and I was coming back and she goes, 'They're coming back. They're, they're growing faster, and I can zap them away'", "context": "Patient feels comforted by provider's explanation", "file_id": "dr_DL0111", "chunk_id": 33 }, { "code": "Social support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "my mom lives next door. And the first thing she says when she see me, 'Did you take your meds?'", "context": "Patient receives support from family member", "file_id": "dr_DL0111", "chunk_id": 33 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I need to follow through with getting my sugars down and getting--everything down", "context": "Patient learns about importance of managing blood sugar", "file_id": "dr_DL0111", "chunk_id": 33 }, { "code": "Social Support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "my mom lives next door. And the first thing she says when she see me, 'Did you take your meds?'", "context": "Patient has family support for daily diabetes care", "file_id": "dr_DL0111", "chunk_id": 34 }, { "code": "Family Involvement", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "And she actually comes over and checks to make sure that I've filled up my weekly pill bottle.", "context": "Patient's family member helps with medication management", "file_id": "dr_DL0111", "chunk_id": 34 }, { "code": "Healthcare Team Support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "'Cause I got the ha-- the, the pharmacy team-- and Dr", "context": "Patient has support from healthcare team", "file_id": "dr_DL0111", "chunk_id": 34 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "they message me and say, 'Hey, how's this going? How's--'", "context": "Patient feels supported by provider", "file_id": "dr_DL0111", "chunk_id": 35 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "they message me and say, 'Hey, how's this going? How's--'", "context": "Patient receives regular updates from provider", "file_id": "dr_DL0111", "chunk_id": 35 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I got the ha-- the, the pharmacy team-- and Dr. P--", "context": "Patient has access to multiple healthcare professionals", "file_id": "dr_DL0111", "chunk_id": 35 }, { "code": "Reminder systems", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Reminder systems", "quote": "They sent me a message yesterday. 'So we're checking up about the Jardiance.'", "context": "Patient receives reminders from healthcare team", "file_id": "dr_DL0111", "chunk_id": 35 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "That feels more personal, .", "context": "Patient values personal connection with provider", "file_id": "dr_DL0111", "chunk_id": 35 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "That feels more personal", "context": "Patient appreciates personalized care from provider", "file_id": "dr_DL0111", "chunk_id": 36 }, { "code": "Feeling comfortable with provider", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "I feel comfortable with them", "context": "Patient feels at ease with healthcare team", "file_id": "dr_DL0111", "chunk_id": 36 }, { "code": "Positive attitude", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "If you can't laugh about it--", "context": "Patient uses humor to cope with health issues", "file_id": "dr_DL0111", "chunk_id": 37 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I will call here", "context": "Patient has easy access to healthcare providers", "file_id": "dr_DL0111", "chunk_id": 37 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "Dr. M came in, the surgeon, saw me in recovery", "context": "Patient receives clear communication from healthcare provider", "file_id": "dr_DL0111", "chunk_id": 37 }, { "code": "Coping mechanisms", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "It is what it is. I'm-- I gotta live with it, so", "context": "Patient uses coping mechanisms to deal with health issues", "file_id": "dr_DL0111", "chunk_id": 37 }, { "code": "Healthcare access", "category": "FACILITATOR - Resources & Access", "subcategory": "Adequate insurance coverage", "quote": "I will call here", "context": "Patient has access to healthcare services", "file_id": "dr_DL0111", "chunk_id": 37 }, { "code": "Appointment scheduling difficulties", "category": "BARRIER - Provider/System Issues", "subcategory": "Appointment scheduling difficulties", "quote": "And i-it's hard to get an appointment-- that quick anyways", "context": "Patient finds it challenging to schedule appointments quickly", "file_id": "dr_DL0111", "chunk_id": 38 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I will call here", "context": "Patient has easy access to healthcare providers via phone or messaging", "file_id": "dr_DL0111", "chunk_id": 38 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "Hey, this is going on. What should I do, or any suggestions?", "context": "Patient experiences open and effective communication with healthcare providers", "file_id": "dr_DL0111", "chunk_id": 38 }, { "code": "Health education programs", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "You mentioned earlier that you did, , diabetes education classes, right--", "context": "Patient participates in diabetes education classes for empowerment", "file_id": "dr_DL0111", "chunk_id": 38 }, { "code": "Appointment scheduling difficulties", "category": "BARRIER - Provider/System Issues", "subcategory": "Appointment scheduling difficulties", "quote": "it's hard to get an appointment-- that quick anyways", "context": "Patient finds it challenging to schedule appointments quickly", "file_id": "dr_DL0111", "chunk_id": 39 }, { "code": "Health education programs", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "diabetes education classes", "context": "Patient participated in diabetes education classes", "file_id": "dr_DL0111", "chunk_id": 39 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "the diabetic educators. A lot of it was when I was hospitalized. They'd come in and talk to me", "context": "Patient had access to diabetic educators during hospitalization", "file_id": "dr_DL0111", "chunk_id": 39 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "someone from family medicine would come in and talk to me", "context": "Patient received communication from family medicine providers", "file_id": "dr_DL0111", "chunk_id": 39 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "when I started counting carbs and I learned how to count carbs", "context": "Patient received education on carb counting", "file_id": "dr_DL0111", "chunk_id": 40 }, { "code": "Effective self management", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "I saw a big difference", "context": "Patient experienced positive outcomes from self-management", "file_id": "dr_DL0111", "chunk_id": 40 }, { "code": "Lack of side effects", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I am not having any side effects on them", "context": "Patient is empowered by lack of side effects from medication", "file_id": "dr_DL0111", "chunk_id": 43 }, { "code": "Social support networks", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "And I tell people all the time", "context": "Patient has social support from friends", "file_id": "dr_DL0111", "chunk_id": 43 }, { "code": "Lack of side effects", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I am not having any side effects on them", "context": "Patient is aware of medication side effects", "file_id": "dr_DL0111", "chunk_id": 44 }, { "code": "Positive treatment experience", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "I'm happy with it", "context": "Patient has positive experience with medication", "file_id": "dr_DL0111", "chunk_id": 44 }, { "code": "Transportation issues", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "I live, an hour a half away up", "context": "Patient mentions living far from the clinic", "file_id": "dr_DL0111", "chunk_id": 45 }, { "code": "Telehealth options", "category": "B. FACILITATORS TO FOLLOW-UP", "subcategory": "1. Healthcare System Support", "quote": "I've done that a couple of times, not with the eye doctor, but", "context": "Patient has experience with telemedicine", "file_id": "dr_DL0111", "chunk_id": 45 }, { "code": "Telemedicine limitations", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of continuity of care", "quote": "if it was for eyes-- them being able to visually see my eyes-- and look into them and-- see what they're looking at when they're-- using that", "context": "Patient concerned about telemedicine limitations for eye exams", "file_id": "dr_DL0111", "chunk_id": 46 }, { "code": "Transportation issues", "category": "BARRIER - SDOH", "subcategory": "Transportation issues", "quote": "couldn't get down here to it", "context": "Patient had difficulty traveling to clinic during COVID", "file_id": "dr_DL0111", "chunk_id": 46 }, { "code": "Healthcare System Support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Telehealth options", "quote": "that's how I got through COVID 'cause I-- couldn't get down here to it", "context": "Patient used telemedicine as an alternative to in-person visits", "file_id": "dr_DL0111", "chunk_id": 46 }, { "code": "Provider Relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "Oh, no, we do that", "context": "Patient has a established relationship with primary care provider", "file_id": "dr_DL0111", "chunk_id": 46 }, { "code": "Transportation issues", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "--couldn't get down here to it", "context": "Patient had difficulty traveling to the clinic", "file_id": "dr_DL0111", "chunk_id": 47 }, { "code": "Lack of access to healthcare", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "--couldn't get down here to it", "context": "Patient had difficulty accessing healthcare due to location", "file_id": "dr_DL0111", "chunk_id": 47 }, { "code": "Rude or dismissive providers", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "3. Provider/System Issues", "quote": "--We told you there's nothing wrong with you. Why do you keep coming here?", "context": "Patient experienced rude treatment from healthcare providers", "file_id": "dr_DL0111", "chunk_id": 47 }, { "code": "Poor communication", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "3. Provider/System Issues", "quote": "--We told you there's nothing wrong with you. Why do you keep coming here?", "context": "Patient experienced poor communication from healthcare providers", "file_id": "dr_DL0111", "chunk_id": 47 }, { "code": "Lack of patient-provider trust", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "3. Provider/System Issues", "quote": "I actually tried changing my PCP to a local, and that was a disaster", "context": "Patient lacked trust in their healthcare provider", "file_id": "dr_DL0111", "chunk_id": 47 }, { "code": "Rude providers", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "\"We told you there's nothing wrong with you. Why do you keep coming here?\"", "context": "Patient feels dismissed by provider", "file_id": "dr_DL0111", "chunk_id": 48 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "\"We told you you had Lyme disease.\" But they admitted me every time for one night.", "context": "Patient experiences inconsistent messaging from providers", "file_id": "dr_DL0111", "chunk_id": 48 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "And the person who was supposed-- doctor who's supposed to be my PCP, walk past the room every time I was in the hospital but never stepped in to see me.", "context": "Patient feels neglected by their PCP", "file_id": "dr_DL0111", "chunk_id": 48 }, { "code": "Appointment scheduling difficulties", "category": "BARRIER - Provider/System Issues", "subcategory": "Appointment scheduling difficulties", "quote": "I'd make a P-- appointment with PCP, and then they tell me I didn't have an appointment, or they cancel it or change it.", "context": "Patient experiences issues with scheduling appointments", "file_id": "dr_DL0111", "chunk_id": 48 }, { "code": "Lack of continuity of care", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of continuity of care", "quote": "And the person who was supposed-- doctor who's supposed to be my PCP, walk past the room every time I was in the hospital but never stepped in to see me.", "context": "Patient lacks consistent care from their PCP", "file_id": "dr_DL0111", "chunk_id": 48 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "She goes, 'Oh, somebody screwed up,' and that's all she said and slid the window u-- down.", "context": "Patient experiences poor communication with healthcare staff", "file_id": "dr_DL0111", "chunk_id": 49 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "And he just look-looked at me, and I just got up and walked away.", "context": "Patient lacks trust in healthcare provider", "file_id": "dr_DL0111", "chunk_id": 49 }, { "code": "Appointment scheduling difficulties", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "They're -- she's, 'No, you don't. We, we don't have appointments on Friday.'", "context": "Patient experiences difficulty with appointment scheduling", "file_id": "dr_DL0111", "chunk_id": 49 }, { "code": "Rude or dismissive providers", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "She goes, 'Oh, somebody screwed up,' and that's all she said and slid the window u-- down.", "context": "Patient experiences rude behavior from healthcare staff", "file_id": "dr_DL0111", "chunk_id": 49 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Healthcare System Support", "quote": "And I called, -- as I was walking out the door, I called Dr", "context": "Patient seeks care from a trusted provider", "file_id": "dr_DL0111", "chunk_id": 49 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "I don't have an appointment for-- , I don't have anything available until August something.", "context": "Patient faces difficulty in getting an appointment", "file_id": "dr_DL0111", "chunk_id": 50 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "Nobody will listen to me at all.", "context": "Patient feels unheard by healthcare providers", "file_id": "dr_DL0111", "chunk_id": 50 }, { "code": "Accessible provider", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "She has this lovely Thursday night office hours.", "context": "Patient appreciates flexible office hours", "file_id": "dr_DL0111", "chunk_id": 50 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "And she said, 'I'll find it.' And she kept looking and looking", "context": "Patient feels heard and helped by provider", "file_id": "dr_DL0111", "chunk_id": 50 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "And she said, 'I'll find it.' And she kept looking and looking", "context": "Patient experiences effective communication with provider", "file_id": "dr_DL0111", "chunk_id": 50 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "nobody will listen to me in, in Glendale. Nobody--will listen to me at all.", "context": "Patient felt unheard by previous providers", "file_id": "dr_DL0111", "chunk_id": 51 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I trust her", "context": "Patient has a trusting relationship with current provider", "file_id": "dr_DL0111", "chunk_id": 51 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "she likes very thorough, da, da, da.", "context": "Provider is described as thorough and attentive", "file_id": "dr_DL0111", "chunk_id": 51 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "I trust her", "context": "Patient feels comfortable with provider", "file_id": "dr_DL0111", "chunk_id": 52 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I trust her. I trust--", "context": "Patient has established trust with provider", "file_id": "dr_DL0111", "chunk_id": 52 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "they'll ask me, 'Do you mind if--'", "context": "Provider communicates clearly and respectfully with patient", "file_id": "dr_DL0111", "chunk_id": 52 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "So, but, -- so I trust her", "context": "Patient feels comfortable with provider", "file_id": "dr_DL0111", "chunk_id": 53 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "And it's good that you felt comfortable enough to express that to her", "context": "Patient and provider have open communication", "file_id": "dr_DL0111", "chunk_id": 53 }, { "code": "Patient-provider trust", "category": "FACILITATOR - Provider Relationship", "subcategory": "Lack of patient-provider trust", "quote": "So, but, -- so I trust her", "context": "Patient has established trust with provider", "file_id": "dr_DL0111", "chunk_id": 53 }, { "code": "Fear of diagnosis/treatment", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "the first two, , I was in pain, and it felt he was pushing the needle", "context": "Patient experienced pain during treatment", "file_id": "dr_DL0111", "chunk_id": 53 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "I pretty much just go with whatever she suggests", "context": "Patient trusts doctor's suggestions", "file_id": "dr_DL0111", "chunk_id": 54 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "If it's something that I'm not familiar with or something's changing", "context": "Patient feels comfortable asking questions", "file_id": "dr_DL0111", "chunk_id": 54 }, { "code": "Shared decision-making", "category": "FACILITATOR - Provider Relationship", "subcategory": "Shared decision-making", "quote": "how you and your doctor make decisions about your care together", "context": "Patient discusses collaborative decision-making with doctor", "file_id": "dr_DL0111", "chunk_id": 54 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "You're crazy", "context": "Patient expresses distrust in doctor's diagnosis", "file_id": "dr_DL0111", "chunk_id": 54 }, { "code": "Lack of trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "I'm not going back", "context": "Patient lost trust in providers due to poor experience", "file_id": "dr_DL0111", "chunk_id": 55 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "nobody came in", "context": "Patient felt neglected by healthcare staff", "file_id": "dr_DL0111", "chunk_id": 55 }, { "code": "Rude providers", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "You're crazy", "context": "Patient felt disrespected by provider", "file_id": "dr_DL0111", "chunk_id": 55 }, { "code": "Lack of continuity of care", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of continuity of care", "quote": "the doctors changed at midnight", "context": "Patient experienced change in providers during care", "file_id": "dr_DL0111", "chunk_id": 55 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "they talk to me, not down to me or at me", "context": "Patient feels respected by providers", "file_id": "dr_DL0111", "chunk_id": 56 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "they will explain it so that I understand it", "context": "Patient feels heard and understood by providers", "file_id": "dr_DL0111", "chunk_id": 56 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I've been with Dr", "context": "Patient has established a relationship with their doctor", "file_id": "dr_DL0111", "chunk_id": 56 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "I've been with Dr. P since she was a resident", "context": "Patient has long-term relationship with provider", "file_id": "dr_DL0111", "chunk_id": 57 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "Could you explain that so I can understand it?", "context": "Patient asks for clarification from provider", "file_id": "dr_DL0111", "chunk_id": 57 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "Yeah. I do", "context": "Patient feels respected by provider", "file_id": "dr_DL0111", "chunk_id": 57 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "everybody needs to learn to count carbs", "context": "Patient emphasizes importance of health education", "file_id": "dr_DL0111", "chunk_id": 58 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "Dr. P and I made the decision", "context": "Patient feels supported by provider in decision-making", "file_id": "dr_DL0111", "chunk_id": 58 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "She said, 'Yeah?' And I was, 'It is-- the--' what do I want to say? 'The side effects-- the, the benefits far outweigh the side effects.'", "context": "Patient has open and effective communication with provider", "file_id": "dr_DL0111", "chunk_id": 58 }, { "code": "Shared decision-making", "category": "FACILITATOR - Provider Relationship", "subcategory": "Shared decision-making", "quote": "Dr. P and I made the decision", "context": "Patient and provider collaborate in decision-making", "file_id": "dr_DL0111", "chunk_id": 58 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "She said, 'Are you sure?' And I'm , 'Yep.' She said, 'Okay.'", "context": "Patient feels heard and understood by provider", "file_id": "dr_DL0111", "chunk_id": 59 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "I told her, I said, 'Yeah.' I was , 'I think the, the side effects-- the benefits are-- far outweigh the side effects.'", "context": "Patient and provider discuss treatment options", "file_id": "dr_DL0111", "chunk_id": 59 }, { "code": "Patient empowerment", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I think the, the side effects-- the benefits are-- far outweigh the side effects.", "context": "Patient makes informed decision about treatment", "file_id": "dr_DL0111", "chunk_id": 59 } ] }