{ "file_id": "dr_SM1021", "total_codes": 130, "codes": [ { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I try and watch what I eat", "context": "Patient is aware of dietary management", "file_id": "dr_SM1021", "chunk_id": 0 }, { "code": "Self management", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "Try and stay away from a lot of sugars", "context": "Patient is actively managing diet", "file_id": "dr_SM1021", "chunk_id": 0 }, { "code": "Health awareness", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "frequency of the restroom at night", "context": "Patient is aware of symptoms to monitor", "file_id": "dr_SM1021", "chunk_id": 0 }, { "code": "Social Support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "we try and keep each other in check", "context": "Patient has a coworker with similar diabetes condition", "file_id": "dr_SM1021", "chunk_id": 1 }, { "code": "Reminder System", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Reminder systems", "quote": "reminds me", "context": "Coworker reminds patient to check their condition", "file_id": "dr_SM1021", "chunk_id": 1 }, { "code": "Social Support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "it's good to have someone, at least having similar experiences with you, around you at times", "context": "Patient finds comfort in having peers with similar experiences", "file_id": "dr_SM1021", "chunk_id": 2 }, { "code": "Healthcare System Support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "it's good to have someone there at work to check you", "context": "Patient appreciates having someone to monitor their condition", "file_id": "dr_SM1021", "chunk_id": 2 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "It just gets a, a darker shadow and people disappear", "context": "Patient describes vision loss without understanding its implications", "file_id": "dr_SM1021", "chunk_id": 3 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I'm a little bit more vigilant when I'm driving", "context": "Patient implies anxiety about vision loss and its consequences", "file_id": "dr_SM1021", "chunk_id": 3 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "They blame everything on sugar", "context": "Patient seems unsure about the relationship between diabetes and vision issues", "file_id": "dr_SM1021", "chunk_id": 4 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "They blame everything on sugar", "context": "Patient feels that provider oversimplifies the cause of their condition", "file_id": "dr_SM1021", "chunk_id": 4 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "And were you able to express the, those issues with your doctor?", "context": "Patient was able to discuss their concerns with their provider", "file_id": "dr_SM1021", "chunk_id": 4 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "They tested my A1C and all that", "context": "Patient received some form of health education about their diabetes management", "file_id": "dr_SM1021", "chunk_id": 4 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "They blame everything on sugar", "context": "Patient seems unsure about diabetes relationship with other health issues", "file_id": "dr_SM1021", "chunk_id": 5 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "after I gave up drinking, Dr. Pepper's and whatever", "context": "Patient made lifestyle changes after possibly receiving health education", "file_id": "dr_SM1021", "chunk_id": 5 }, { "code": "Health literacy", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "I used to drink a good bit of milk, all the breads and pastas and stuff", "context": "Patient demonstrates understanding of dietary impacts on health", "file_id": "dr_SM1021", "chunk_id": 5 }, { "code": "Diabetes self-management", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "after I gave up drinking, Dr. Pepper's and whatever, things started improving", "context": "Patient took action to manage diabetes through lifestyle changes", "file_id": "dr_SM1021", "chunk_id": 5 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "it's not really an eye exam per se", "context": "Patient seems unclear about the purpose of their eye exams", "file_id": "dr_SM1021", "chunk_id": 6 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "Yeah. Yeah. Dr. G.", "context": "Patient has a regular provider for eye care", "file_id": "dr_SM1021", "chunk_id": 6 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "they, , talk to me", "context": "Patient reports that providers communicate with them during exams", "file_id": "dr_SM1021", "chunk_id": 6 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "it is hard for me to say, yeah, I should come in once a, once a year", "context": "Patient unsure about follow-up frequency", "file_id": "dr_SM1021", "chunk_id": 7 }, { "code": "Frequency concerns", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "Because they do it. They were doing it once a month. Now it's gonna be every two months,", "context": "Patient questions follow-up frequency", "file_id": "dr_SM1021", "chunk_id": 7 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "They bring me in, they talk to me, they get the eye pressures", "context": "Patient receives regular care from providers", "file_id": "dr_SM1021", "chunk_id": 7 }, { "code": "Regular scheduling", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Reminder systems", "quote": "every three months or so", "context": "Patient has regular follow-up schedule", "file_id": "dr_SM1021", "chunk_id": 7 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "They were doing it once a month. Now it's gonna be every two months", "context": "Patient experiences reduced frequency of exams", "file_id": "dr_SM1021", "chunk_id": 8 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "they numb them because they're gonna do the shots", "context": "Patient receives numbing treatment for comfort", "file_id": "dr_SM1021", "chunk_id": 8 }, { "code": "Healthcare System Support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "They were doing it once a month. Now it's gonna be every two months", "context": "Patient has regular exams with provider", "file_id": "dr_SM1021", "chunk_id": 8 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "they also put the Betadine in. To try and hopefully I won't get an infection in my eyes", "context": "Patient is informed about treatment procedures", "file_id": "dr_SM1021", "chunk_id": 8 }, { "code": "Fear of treatment", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "the injections, they just plain hurt", "context": "Patient expresses fear of pain from injections", "file_id": "dr_SM1021", "chunk_id": 9 }, { "code": "Lack of understanding about treatment", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "People say there's no pain in your eyes because you don't have a nerve. No, you get pain in your eyes", "context": "Patient corrects misconception about eye pain", "file_id": "dr_SM1021", "chunk_id": 9 }, { "code": "Emotional distress", "category": "BARRIER - Emotional/Psychological", "subcategory": "Feeling overwhelmed", "quote": "that doesn't do anything good for me", "context": "Patient expresses anxiety about seeing the needle", "file_id": "dr_SM1021", "chunk_id": 9 }, { "code": "Fear of treatment", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "if I catch a glimpse of the needle coming at me", "context": "Patient expresses fear of medical procedures", "file_id": "dr_SM1021", "chunk_id": 10 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider issues", "quote": "I'm an uncooperative patient", "context": "Patient implies difficulty with healthcare providers", "file_id": "dr_SM1021", "chunk_id": 10 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "I always wore more expensive sunglasses", "context": "Patient mentions financial investment in health-related items", "file_id": "dr_SM1021", "chunk_id": 10 }, { "code": "Emotional distress", "category": "BARRIER - Emotional/Psychological", "subcategory": "Diabetes distress", "quote": "That doesn't do anything good for me", "context": "Patient expresses emotional response to medical procedures", "file_id": "dr_SM1021", "chunk_id": 10 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "I couldn't afford to buy, ? A hundred and some dollar sunglasses or, or more.", "context": "Patient cannot afford expensive sunglasses", "file_id": "dr_SM1021", "chunk_id": 11 }, { "code": "Expensive treatments", "category": "BARRIER - Cost-Related Barriers", "subcategory": "Expensive treatments/surgery", "quote": "I couldn't afford to buy, ? A hundred and some dollar sunglasses or, or more.", "context": "Patient mentions expensive sunglasses as a financial burden", "file_id": "dr_SM1021", "chunk_id": 11 }, { "code": "Health education programs", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I tried to take care of my eyes that way and-", "context": "Patient attempts self-care, implying some level of health knowledge", "file_id": "dr_SM1021", "chunk_id": 11 }, { "code": "Access to healthcare", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "I used to wear $300 or $400 sunglasses.", "context": "Patient's past ability to afford expensive sunglasses may indicate current lack of access to necessary eye care", "file_id": "dr_SM1021", "chunk_id": 11 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I don't want to do something that's gonna-", "context": "Patient expresses fear of potential consequences", "file_id": "dr_SM1021", "chunk_id": 12 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I don't, I don't want to do something that's going to, . , there's always a chance.", "context": "Patient shows uncertainty about treatment effects", "file_id": "dr_SM1021", "chunk_id": 12 }, { "code": "Fear of infection", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I have been told that when you put something that in your eyes that you might get, , an infection or something.", "context": "Patient fears potential infection from treatment", "file_id": "dr_SM1021", "chunk_id": 12 }, { "code": "Lack of self-care", "category": "BARRIER - Emotional/Psychological", "subcategory": "Feeling overwhelmed", "quote": "I really am bad about that", "context": "Patient admits to neglecting eye care", "file_id": "dr_SM1021", "chunk_id": 12 }, { "code": "Recovery Time", "category": "BARRIER - Provider/System Issues", "subcategory": "Appointment scheduling difficulties", "quote": "it'll take me a day or two for, to recover from this", "context": "Patient needs time to recover after eye care visits", "file_id": "dr_SM1021", "chunk_id": 13 }, { "code": "Limited Scheduling", "category": "BARRIER - Provider/System Issues", "subcategory": "Appointment scheduling difficulties", "quote": "I try to only do Fridays", "context": "Patient has limited scheduling options for follow-up appointments", "file_id": "dr_SM1021", "chunk_id": 13 }, { "code": "Transportation assistance", "category": "FACILITATOR - Resources & Access", "subcategory": "Transportation assistance", "quote": "I can usually have her take me home or take me to her house", "context": "Patient has help with transportation from girlfriend", "file_id": "dr_SM1021", "chunk_id": 14 }, { "code": "Work schedule constraints", "category": "BARRIER - Social Determinants of Health (SDOH)", "subcategory": "Financial constraints", "quote": "it'll take me a day or two for, to recover from this. so it doesn't affect my work", "context": "Patient schedules appointments around work recovery time", "file_id": "dr_SM1021", "chunk_id": 14 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "Usually pretty good", "context": "Patient finds doctor's availability satisfactory", "file_id": "dr_SM1021", "chunk_id": 14 }, { "code": "Lack of trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "I feel they do what they can do for me", "context": "Patient's perception of provider's competence", "file_id": "dr_SM1021", "chunk_id": 15 }, { "code": "Poor outcomes", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of continuity of care", "quote": "It healed badly", "context": "Patient experienced complications after treatment", "file_id": "dr_SM1021", "chunk_id": 15 }, { "code": "Physical discomfort", "category": "BARRIER - Emotional/Psychological", "subcategory": "Feeling overwhelmed", "quote": "It's easier for me to sit here right now in this light", "context": "Patient experiences physical discomfort due to condition", "file_id": "dr_SM1021", "chunk_id": 15 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "I feel they do what they can do for me", "context": "Patient perceives provider as caring", "file_id": "dr_SM1021", "chunk_id": 15 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "It's not quite as bad as it was, so I don't know what happened", "context": "Patient unsure about their condition", "file_id": "dr_SM1021", "chunk_id": 16 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I just know that I'm gonna have this. , for a while. Yeah. And for the rest of my life", "context": "Patient anxious about lifelong condition", "file_id": "dr_SM1021", "chunk_id": 16 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "He says that the shots and all that stuff will hopefully correct a lot of it", "context": "Provider offers reassuring words", "file_id": "dr_SM1021", "chunk_id": 16 }, { "code": "Transportation issues", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "Just getting here and getting home", "context": "Patient faces challenges in receiving eye care due to transportation", "file_id": "dr_SM1021", "chunk_id": 17 }, { "code": "Lack of discussion about risks", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "2. Patient Beliefs & Perceptions", "quote": "I don't really think that we'd talk too much about it at all", "context": "Patient lacks understanding about vision loss or blindness due to diabetes", "file_id": "dr_SM1021", "chunk_id": 17 }, { "code": "Provider empathy", "category": "B. FACILITATORS TO FOLLOW-UP", "subcategory": "2. Provider Relationship", "quote": "he feels badly when my, you, he gives me a shot and it hurts", "context": "Patient perceives provider as caring and empathetic", "file_id": "dr_SM1021", "chunk_id": 17 }, { "code": "Accessible providers", "category": "B. FACILITATORS TO FOLLOW-UP", "subcategory": "1. Healthcare System Support", "quote": "they try and make it as painless as they can", "context": "Patient has a positive experience with healthcare provider", "file_id": "dr_SM1021", "chunk_id": 17 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "they, the course always wants you to try and keep up after your diabetes and stuff", "context": "Patient seems unclear about diabetes management", "file_id": "dr_SM1021", "chunk_id": 18 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "it depends on what you eat", "context": "Patient implies cost of food affects treatment adherence", "file_id": "dr_SM1021", "chunk_id": 18 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "he wants me to", "context": "Patient feels supported by provider", "file_id": "dr_SM1021", "chunk_id": 18 }, { "code": "Lost wages", "category": "BARRIER - Cost-Related Barriers", "subcategory": "Lost wages due to appointments", "quote": "I lost days of work because I couldn't...", "context": "Patient had to miss work due to treatment side effects", "file_id": "dr_SM1021", "chunk_id": 19 }, { "code": "Lack of self control", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "if you eat greasy foods, then you can't control yourself", "context": "Patient struggles with managing diet due to lack of self-control", "file_id": "dr_SM1021", "chunk_id": 19 }, { "code": "Fear of treatment side effects", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "Because I couldn't handle it", "context": "Patient stopped treatment due to inability to cope with side effects", "file_id": "dr_SM1021", "chunk_id": 19 }, { "code": "Lost wages", "category": "BARRIER - Cost-Related Barriers", "subcategory": "Out-of-pocket costs", "quote": "I lost days of work because I couldn't...", "context": "Patient misses work due to appointments", "file_id": "dr_SM1021", "chunk_id": 20 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "They say that it's something that, , you can get cancer from it or you can get whatever", "context": "Patient fears potential health consequences", "file_id": "dr_SM1021", "chunk_id": 20 }, { "code": "Lack of trust in treatment", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "pills that just seem to mask what's going on", "context": "Patient questions effectiveness of medication", "file_id": "dr_SM1021", "chunk_id": 21 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "watching and changing my diet", "context": "Patient takes initiative in health management", "file_id": "dr_SM1021", "chunk_id": 21 }, { "code": "Self management support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "I try and drink no matter what", "context": "Patient actively manages health through diet", "file_id": "dr_SM1021", "chunk_id": 21 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Access to healthcare", "quote": "if they can come up with something that would, ... help make food, - good, better food, . a little bit more accessible to people", "context": "Patient suggests making healthy food more accessible", "file_id": "dr_SM1021", "chunk_id": 22 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "if they could come up with something that would, ... help make food, - good, better food, . a little bit more accessible to people", "context": "Patient implies need for health education on diet", "file_id": "dr_SM1021", "chunk_id": 22 }, { "code": "Accessible resources", "category": "FACILITATOR - Resources & Access", "subcategory": "Adequate access to resources", "quote": "if they can come up with something with your diet. Or help make food, - good, better food, . a little bit more accessible to people", "context": "Patient suggests need for accessible resources", "file_id": "dr_SM1021", "chunk_id": 22 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "A little bit more accessible to people", "context": "Patient suggests that better accessibility would improve adherence", "file_id": "dr_SM1021", "chunk_id": 23 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "Better food, a little bit more accessible to people", "context": "Patient implies that health education could improve self-management", "file_id": "dr_SM1021", "chunk_id": 23 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I wish that I'd have caught it", "context": "Patient expresses regret over not catching condition earlier, implying fear of diagnosis", "file_id": "dr_SM1021", "chunk_id": 23 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I'm sure that's why what happened to me", "context": "Patient shows limited understanding of their condition and its progression", "file_id": "dr_SM1021", "chunk_id": 23 }, { "code": "Lack of awareness", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "Not that I know of. No.", "context": "Patient unsure about other conditions like glaucoma", "file_id": "dr_SM1021", "chunk_id": 24 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "I take care of two houses", "context": "Patient has financial responsibilities for multiple households", "file_id": "dr_SM1021", "chunk_id": 24 }, { "code": "Family History", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "My dad did. My mom had diabetes and she wore glasses and stuff.", "context": "Patient discusses family history of diabetes", "file_id": "dr_SM1021", "chunk_id": 25 }, { "code": "Outdoor Activities", "category": "BARRIER - Social Determinants of Health", "subcategory": "Education/health literacy barriers", "quote": "When I'm out in the sun a lot and I'm on the mower.", "context": "Patient mentions outdoor activities that may impact eye health", "file_id": "dr_SM1021", "chunk_id": 25 }, { "code": "Dry Eyes", "category": "BARRIER - Emotional/Psychological", "subcategory": "Feeling overwhelmed", "quote": "It drys my eye out quick.", "context": "Patient experiences dry eyes due to outdoor activities", "file_id": "dr_SM1021", "chunk_id": 25 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "it's accessible enough to me that I can get over here", "context": "Patient finds healthcare services easily accessible", "file_id": "dr_SM1021", "chunk_id": 26 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "it's accessible enough to me that I can get over here", "context": "Patient finds healthcare services easily accessible", "file_id": "dr_SM1021", "chunk_id": 27 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I feel Dr. G cares", "context": "Patient has a positive experience with their provider", "file_id": "dr_SM1021", "chunk_id": 27 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "he tries to be accommodating", "context": "Patient feels their provider is understanding and accommodating", "file_id": "dr_SM1021", "chunk_id": 27 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "he's very confident in what he does", "context": "Patient feels their provider communicates effectively", "file_id": "dr_SM1021", "chunk_id": 27 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "he's very confident in what he does", "context": "Patient feels comfortable with provider's confidence", "file_id": "dr_SM1021", "chunk_id": 28 }, { "code": "Accommodating provider", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "he tries to be accommodating", "context": "Patient appreciates provider's accommodating nature", "file_id": "dr_SM1021", "chunk_id": 28 }, { "code": "Lack of understanding about DR progression", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I was hoping that this eye would be fixed", "context": "Patient has unrealistic expectations about treatment outcomes", "file_id": "dr_SM1021", "chunk_id": 28 }, { "code": "Fear of diagnosis/treatment", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I worry that that was what happened with my wrinkle thing", "context": "Patient is anxious about potential complications", "file_id": "dr_SM1021", "chunk_id": 28 }, { "code": "Lack of social support", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Cultural beliefs about healthcare", "quote": "No, I don't have someone to help me with my daily diabetes care", "context": "Patient lacks support for daily care", "file_id": "dr_SM1021", "chunk_id": 29 }, { "code": "Patient confidence", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "Well, I try", "context": "Patient attempts self-care despite challenges", "file_id": "dr_SM1021", "chunk_id": 29 }, { "code": "Provider communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "And they were , 'Oh, you calm down. It's okay.'", "context": "Provider response to patient's awareness during procedure", "file_id": "dr_SM1021", "chunk_id": 29 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I worry that that was what happened with my, , that wrinkle thing", "context": "Patient's anxiety about medical procedure", "file_id": "dr_SM1021", "chunk_id": 29 }, { "code": "Lack of confidence", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I mean, I could do a lot better", "context": "Patient expresses self-doubt in managing diabetes", "file_id": "dr_SM1021", "chunk_id": 30 }, { "code": "Poor diet habits", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "Usually I eat trash at night", "context": "Patient admits to unhealthy eating habits", "file_id": "dr_SM1021", "chunk_id": 30 }, { "code": "Food accessibility", "category": "FACILITATOR - Resources & Access", "subcategory": "Adequate food supply", "quote": "I have a full kitchen of stuff for myself", "context": "Patient has access to groceries and food", "file_id": "dr_SM1021", "chunk_id": 30 }, { "code": "Convenient food options", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I'm stopping at Sheetz, or I'm stopping at, something I'm bringing home hot dogs or-", "context": "Patient relies on convenient but unhealthy food options", "file_id": "dr_SM1021", "chunk_id": 30 }, { "code": "Healthy food choices", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I try and have, some salad and I buy rotisserie chicken meat and things that", "context": "Patient makes effort to choose healthier food options at work", "file_id": "dr_SM1021", "chunk_id": 30 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "it's not really helping my vision", "context": "Patient unsure if healthy eating helps their vision", "file_id": "dr_SM1021", "chunk_id": 31 }, { "code": "Social support networks", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "Just Ed at work. We talk about stuff that a lot.", "context": "Patient has someone to share worries with", "file_id": "dr_SM1021", "chunk_id": 31 }, { "code": "Lack of education", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Education/health literacy barriers", "quote": "No, I haven't participated in a diabetes education class", "context": "Patient lacks formal diabetes education", "file_id": "dr_SM1021", "chunk_id": 32 }, { "code": "Self education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "I do watch a lot of, or look up a lot of stuff about it", "context": "Patient takes initiative to learn about diabetes", "file_id": "dr_SM1021", "chunk_id": 32 }, { "code": "Social support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "Just Ed at work. We talk about stuff that a lot", "context": "Patient has someone to share concerns with", "file_id": "dr_SM1021", "chunk_id": 32 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I do watch a lot of stuff about it", "context": "Patient seeks health information", "file_id": "dr_SM1021", "chunk_id": 33 }, { "code": "Food awareness", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "See if there's something that I would eat", "context": "Patient explores dietary options for health", "file_id": "dr_SM1021", "chunk_id": 33 }, { "code": "Self management", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "I've been trying to eat more beets", "context": "Patient actively manages diet for health", "file_id": "dr_SM1021", "chunk_id": 33 }, { "code": "Limited access due to eyesight", "category": "BARRIER - Social Determinants of Health", "subcategory": "Lack of access to healthcare", "quote": "My eyesight currently limit my ability to do things I want to do", "context": "Patient's eyesight affects daily activities", "file_id": "dr_SM1021", "chunk_id": 33 }, { "code": "Lack of understanding about DR progression", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I do watch a lot of stuff about it", "context": "Patient seeks information, possibly due to lack of understanding", "file_id": "dr_SM1021", "chunk_id": 33 }, { "code": "Education barriers", "category": "BARRIER - SDOH", "subcategory": "Education/health literacy barriers", "quote": "But a lot of jobs that I could do because of my education, I can't do with my eyes where they are", "context": "Patient's education does not help with current job due to eyesight", "file_id": "dr_SM1021", "chunk_id": 34 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "I don't make a ton of money", "context": "Patient has limited financial resources", "file_id": "dr_SM1021", "chunk_id": 34 }, { "code": "Feeling overwhelmed", "category": "BARRIER - Emotional/Psychological", "subcategory": "Feeling overwhelmed", "quote": "To a point. I mean, with, as anybody would do, but-", "context": "Patient feels discouraged by their situation", "file_id": "dr_SM1021", "chunk_id": 34 }, { "code": "Depression/anxiety", "category": "BARRIER - Emotional/Psychological", "subcategory": "Depression/anxiety", "quote": "To a point. I mean, with, as anybody would do, but-", "context": "Patient shows signs of emotional distress", "file_id": "dr_SM1021", "chunk_id": 34 }, { "code": "Healthcare System Support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I have a decent job. I mean, I'm, I'm okay. I'm comfortable enough that I'm-", "context": "Patient has access to necessary resources", "file_id": "dr_SM1021", "chunk_id": 34 }, { "code": "Social support networks", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "I'm, I'm okay. I'm comfortable enough that I'm-", "context": "Patient has a support system", "file_id": "dr_SM1021", "chunk_id": 34 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "I don't make a ton of money", "context": "Patient has limited financial resources", "file_id": "dr_SM1021", "chunk_id": 35 }, { "code": "Lack of enthusiasm", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of perceived urgency", "quote": "Get through it", "context": "Patient lacks motivation for follow-up visits", "file_id": "dr_SM1021", "chunk_id": 35 }, { "code": "Acceptance of condition", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "I know that I have to come in every month or every two months", "context": "Patient understands the importance of regular follow-ups", "file_id": "dr_SM1021", "chunk_id": 35 }, { "code": "Positive expectations", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "My eyes actually looked pretty decent for having gone", "context": "Patient has positive experience with healthcare provider", "file_id": "dr_SM1021", "chunk_id": 35 }, { "code": "Lack of perceived urgency", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "'I can see fine now'", "quote": "I could see a decline. And now I'm, I didn't see a decline this time.", "context": "Patient doesn't feel urgent need for follow-up when symptoms improve", "file_id": "dr_SM1021", "chunk_id": 36 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "he told me no new bleeding, no, nothing that.", "context": "Patient receives clear and reassuring communication from provider", "file_id": "dr_SM1021", "chunk_id": 36 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "So, I mean, I, I know that I have to come in every month or every two months", "context": "Patient has regular access to provider for follow-up appointments", "file_id": "dr_SM1021", "chunk_id": 36 }, { "code": "Flexible appointment scheduling", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Appointment scheduling difficulties", "quote": "So he said, 'Well, let's try every two.'", "context": "Provider accommodates patient's needs by adjusting appointment schedule", "file_id": "dr_SM1021", "chunk_id": 36 }, { "code": "Fear of treatment", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "I don't look forward to the needles", "context": "Patient expresses fear of treatment procedures", "file_id": "dr_SM1021", "chunk_id": 37 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "It depends on who you, who you get that helps you", "context": "Patient implies varying quality of care from different providers", "file_id": "dr_SM1021", "chunk_id": 37 }, { "code": "Rude or dismissive providers", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "There was one woman, she, if it was up to her, she'd grab on my eyeball and aim it", "context": "Patient describes uncomfortable experience with a provider", "file_id": "dr_SM1021", "chunk_id": 37 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "It depends on who you, who you get that helps you", "context": "Patient suggests some providers are more considerate than others", "file_id": "dr_SM1021", "chunk_id": 37 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "So I'm not having to come in every", "context": "Patient appreciates reduced frequency of appointments", "file_id": "dr_SM1021", "chunk_id": 37 }, { "code": "Rude providers", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "she'd grab on my eyeball and aim it", "context": "Patient had a negative experience with a provider", "file_id": "dr_SM1021", "chunk_id": 38 } ] }