{ "file_id": "dr_TK0914", "total_codes": 133, "codes": [ { "code": "Lack of awareness", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I don't know what else there is to ...", "context": "Patient unsure about comprehensive diabetic care", "file_id": "dr_TK0914", "chunk_id": 0 }, { "code": "Health literacy", "category": "BARRIER - SDOH", "subcategory": "Education/health literacy barriers", "quote": "I don't know what else there is to ...", "context": "Patient lacks knowledge about diabetes management", "file_id": "dr_TK0914", "chunk_id": 0 }, { "code": "Self-monitoring", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "I scan my blood sugar at least five, 10 times a day", "context": "Patient actively monitors blood sugar levels", "file_id": "dr_TK0914", "chunk_id": 0 }, { "code": "Adherence to medication", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Diabetes self-management support", "quote": "I'll take my medications", "context": "Patient prioritizes taking prescribed medications", "file_id": "dr_TK0914", "chunk_id": 0 }, { "code": "Proactive care", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "check my blood sugar level multiple times", "context": "Patient engages in proactive diabetic care activities", "file_id": "dr_TK0914", "chunk_id": 0 }, { "code": "Lack of symptoms", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "No perceived urgency", "quote": "None. Speaker 1: None? Okay. , has your doctor said anything, , regarding your eyes and no diabetes? Speaker 3: No.", "context": "Patient hasn't noticed any changes in their eyes", "file_id": "dr_TK0914", "chunk_id": 1 }, { "code": "Provider advice", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I mean, they, they of course say, , you gotta keep it under control.", "context": "Patient receives guidance from their doctor", "file_id": "dr_TK0914", "chunk_id": 1 }, { "code": "Self monitoring", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I scan my blood sugar at least five, 10 times a day so I don't have to look for symptoms 'cause this tells me.", "context": "Patient actively manages their diabetes", "file_id": "dr_TK0914", "chunk_id": 1 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "my eye problems are not related to diabetes", "context": "Patient believes their eye issues are unrelated to diabetes", "file_id": "dr_TK0914", "chunk_id": 2 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "they let me know how important that is", "context": "Patient feels informed by their provider", "file_id": "dr_TK0914", "chunk_id": 2 }, { "code": "Access to healthcare", "category": "FACILITATOR - Resources & Access", "subcategory": "Adequate access to care", "quote": "I see two different doctors here", "context": "Patient has access to multiple specialists", "file_id": "dr_TK0914", "chunk_id": 2 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "the neuro ophthalmologist is Dr. Chaudhary and she tea- treats me for non-arteritic anterior ischemic optic neuropathy", "context": "Patient seems unsure about their condition", "file_id": "dr_TK0914", "chunk_id": 3 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I see two different doctors here", "context": "Patient has access to multiple specialists", "file_id": "dr_TK0914", "chunk_id": 3 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "the neuro ophthalmologist is Dr. Chaudhary and she tea- treats me for non-arteritic anterior ischemic optic neuropathy", "context": "Patient understands their treatment", "file_id": "dr_TK0914", "chunk_id": 3 }, { "code": "Thorough eye exam", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "they do a vision field, they do pictures, and they do an eye exam, a thorough eye exam", "context": "Patient receives comprehensive care", "file_id": "dr_TK0914", "chunk_id": 3 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "Well, I don't understand what you wanna know", "context": "Patient expresses lack of understanding about their eye exams", "file_id": "dr_TK0914", "chunk_id": 4 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "(laughs) ... how has the experience for you?", "context": "Patient and provider share a laugh, indicating a positive relationship", "file_id": "dr_TK0914", "chunk_id": 4 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "Each doctor sees me twice a year", "context": "Patient has regular access to their healthcare providers", "file_id": "dr_TK0914", "chunk_id": 4 }, { "code": "Transportation issues", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "Since I can't drive", "context": "Patient cannot drive due to eye dilation", "file_id": "dr_TK0914", "chunk_id": 5 }, { "code": "Lack of access", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "on the way home, it's a trip", "context": "Patient experiences difficulty traveling after eye dilation", "file_id": "dr_TK0914", "chunk_id": 5 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "central scheduling kept calling me because they said I was scheduled with the wrong doctor.", "context": "Patient experiences issues with scheduling process due to poor communication", "file_id": "dr_TK0914", "chunk_id": 6 }, { "code": "Appointment scheduling difficulties", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "I did try to change doctors recently and I was successful at doing it, but central scheduling kept calling me", "context": "Patient faces challenges with scheduling appointments", "file_id": "dr_TK0914", "chunk_id": 6 }, { "code": "Patient liaison support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Healthcare System Support", "quote": "a liaison, a patient liaison called me- ... and then that was the end of it", "context": "Patient receives helpful support from patient liaison", "file_id": "dr_TK0914", "chunk_id": 6 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "problems with communication", "context": "Patient experienced issues with communication", "file_id": "dr_TK0914", "chunk_id": 7 }, { "code": "Appointment scheduling difficulties", "category": "BARRIER - Provider/System Issues", "subcategory": "Appointment scheduling difficulties", "quote": "that's where you had a big problem", "context": "Patient had issues with central scheduling", "file_id": "dr_TK0914", "chunk_id": 7 }, { "code": "Long wait times", "category": "BARRIER - Provider/System Issues", "subcategory": "Long wait times", "quote": "once or twice I've had to wait", "context": "Patient experienced wait times on some occasions", "file_id": "dr_TK0914", "chunk_id": 7 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I think it's fine", "context": "Patient generally finds it easy to access care", "file_id": "dr_TK0914", "chunk_id": 7 }, { "code": "Reminder systems", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Reminder systems", "quote": "a liaison, a patient liaison called me", "context": "Patient received support from a patient liaison", "file_id": "dr_TK0914", "chunk_id": 7 }, { "code": "Easy scheduling", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "for the most part it's been pretty easy- ... and you can get right in?", "context": "Patient finds scheduling appointments to be easy", "file_id": "dr_TK0914", "chunk_id": 8 }, { "code": "Positive provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I'm very satisfied with Dr. Chaudhary. She's very thorough", "context": "Patient has a positive relationship with their provider", "file_id": "dr_TK0914", "chunk_id": 8 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "they tell me there's nothing they can do and they're sorry", "context": "Patient feels that providers communicate effectively", "file_id": "dr_TK0914", "chunk_id": 8 }, { "code": "Thorough care", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "She's very thorough", "context": "Patient receives thorough care from their provider", "file_id": "dr_TK0914", "chunk_id": 8 }, { "code": "Transportation issues", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "Getting here.", "context": "Patient mentions difficulty getting to appointments", "file_id": "dr_TK0914", "chunk_id": 9 }, { "code": "Transportation barriers", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "we're a ... more than an hour away", "context": "Patient lives far from the clinic, making transportation difficult", "file_id": "dr_TK0914", "chunk_id": 9 }, { "code": "Lack of access", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "I can't drive", "context": "Patient's lack of driving ability limits access to clinic", "file_id": "dr_TK0914", "chunk_id": 9 }, { "code": "Family support", "category": "B. FACILITATORS TO FOLLOW-UP", "subcategory": "3. Patient Empowerment", "quote": "my husband brings me", "context": "Patient has family support for transportation to appointments", "file_id": "dr_TK0914", "chunk_id": 9 }, { "code": "Transportation issues", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "1. Social Determinants of Health (SDOH)", "quote": "I can't drive", "context": "Patient has difficulty with transportation due to inability to drive", "file_id": "dr_TK0914", "chunk_id": 10 }, { "code": "Scheduling difficulties", "category": "A. BARRIERS TO FOLLOW-UP", "subcategory": "3. Provider/System Issues", "quote": "I try and schedule on days that he has off", "context": "Patient has to work around schedules to make appointments", "file_id": "dr_TK0914", "chunk_id": 10 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I can see fine now", "context": "Patient doesn't perceive urgency for follow-up", "file_id": "dr_TK0914", "chunk_id": 11 }, { "code": "Feeling overwhelmed", "category": "BARRIER - Emotional/Psychological", "subcategory": "Feeling overwhelmed", "quote": "I just get tired", "context": "Patient feels overwhelmed with daily activities", "file_id": "dr_TK0914", "chunk_id": 11 }, { "code": "Health literacy", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "I have a magnifier that's really good", "context": "Patient uses tools to manage condition, indicating some health literacy", "file_id": "dr_TK0914", "chunk_id": 11 }, { "code": "Accessible resources", "category": "FACILITATOR - Resources & Access", "subcategory": "Adequate resources", "quote": "I have a magnifier that's really good", "context": "Patient has access to tools that help with daily activities", "file_id": "dr_TK0914", "chunk_id": 11 }, { "code": "Feeling overwhelmed", "category": "BARRIER - Emotional/Psychological", "subcategory": "Emotional/Psychological", "quote": "but I just get tired", "context": "Patient expresses emotional exhaustion", "file_id": "dr_TK0914", "chunk_id": 12 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I don't", "context": "Patient doesn't have additional information to share about vision loss risk", "file_id": "dr_TK0914", "chunk_id": 12 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "Very comfortable", "context": "Patient feels at ease discussing diabetes-related eye problems with doctor", "file_id": "dr_TK0914", "chunk_id": 12 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I'm one of those people that thinks of doctors as, they put their pants on the same way as you and I every morning.", "context": "Patient feels comfortable with doctor", "file_id": "dr_TK0914", "chunk_id": 13 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "I don't hesitate to talk to 'em about any problem I might have.", "context": "Patient feels open with doctor", "file_id": "dr_TK0914", "chunk_id": 13 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "They're there to help me.", "context": "Patient perceives doctor as helpful", "file_id": "dr_TK0914", "chunk_id": 13 }, { "code": "Positive provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "Dr. Chaudhary is so thorough", "context": "Patient appreciates their eye doctor's thoroughness", "file_id": "dr_TK0914", "chunk_id": 14 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "I don't hesitate to talk to 'em about any problem I might have", "context": "Patient feels comfortable discussing problems with their doctor", "file_id": "dr_TK0914", "chunk_id": 14 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "Dr. Chaudhary is so thorough", "context": "Patient implies their eye doctor is caring and attentive", "file_id": "dr_TK0914", "chunk_id": 14 }, { "code": "Rude or dismissive providers", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "Dr. Halenda doesn't, ... His personage does not allow for chitchat", "context": "Patient describes a doctor as not allowing for conversation", "file_id": "dr_TK0914", "chunk_id": 14 }, { "code": "Provider empathy", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "And they're doing a good job", "context": "Patient feels providers are competent and caring", "file_id": "dr_TK0914", "chunk_id": 15 }, { "code": "Trust in provider", "category": "FACILITATOR - Provider Relationship", "subcategory": "Provider empathy", "quote": "I am not going to question them", "context": "Patient has trust in their healthcare providers", "file_id": "dr_TK0914", "chunk_id": 15 }, { "code": "Perceived severity", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I think it's extremely serious", "context": "Patient understands the seriousness of diabetes-related vision loss", "file_id": "dr_TK0914", "chunk_id": 15 }, { "code": "Acceptance of condition", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I've already lost my eyesight", "context": "Patient has experienced vision loss due to diabetes", "file_id": "dr_TK0914", "chunk_id": 15 }, { "code": "Satisfaction with care", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "Fully satisfactory", "context": "Patient is satisfied with their current eye care", "file_id": "dr_TK0914", "chunk_id": 15 }, { "code": "Lack of understanding", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I think there's a 50/50 chance- ... that I'll get retinopathy", "context": "Patient unsure about disease progression", "file_id": "dr_TK0914", "chunk_id": 16 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "the worst that could happen is that I would have total vision loss", "context": "Patient fears potential outcome", "file_id": "dr_TK0914", "chunk_id": 16 }, { "code": "Positive outlook", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "I think it's extremely serious", "context": "Patient acknowledges disease severity", "file_id": "dr_TK0914", "chunk_id": 16 }, { "code": "Social support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "I have a good friend with retinopathy", "context": "Patient has supportive social network", "file_id": "dr_TK0914", "chunk_id": 16 }, { "code": "Lack of urgency", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "I can see fine now", "quote": "You don't see it making any worse, but there's always the possibility", "context": "Patient does not perceive immediate need for follow-up", "file_id": "dr_TK0914", "chunk_id": 17 }, { "code": "Fear of diagnosis", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Fear of diagnosis/treatment", "quote": "the worst that could happen is that I would have total vision loss", "context": "Patient fears potential consequences of diagnosis", "file_id": "dr_TK0914", "chunk_id": 17 }, { "code": "Positive attitude", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "People say, You have a good attitude. Well, what are you gonna do?", "context": "Patient maintains positive outlook despite challenges", "file_id": "dr_TK0914", "chunk_id": 17 }, { "code": "Social support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "I've got 22 grandkids. Come on", "context": "Patient has strong social support system", "file_id": "dr_TK0914", "chunk_id": 17 }, { "code": "Lack of awareness", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "It's just poor", "context": "Patient seems unaware of potential vision changes due to DR", "file_id": "dr_TK0914", "chunk_id": 18 }, { "code": "Pre-existing conditions", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I have non-arteritic, anterior ischemic optic neuropathy- ... probable glaucoma", "context": "Patient has multiple eye conditions that may impact perception of DR", "file_id": "dr_TK0914", "chunk_id": 18 }, { "code": "Family history", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "glaucoma", "context": "Patient's family history may motivate them to prioritize eye health", "file_id": "dr_TK0914", "chunk_id": 18 }, { "code": "Thorough care", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "very thorough", "context": "Patient describes positive experience with eye doctors", "file_id": "dr_TK0914", "chunk_id": 19 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "they did everything", "context": "Patient feels informed about treatment plan", "file_id": "dr_TK0914", "chunk_id": 19 }, { "code": "Health literacy", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Education/health literacy barriers", "quote": "I'm smart enough to know the outcome-", "context": "Patient implies understanding of health information", "file_id": "dr_TK0914", "chunk_id": 20 }, { "code": "Family influence", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "I was raised you go to the eye doctor, you go to the dentist", "context": "Patient mentions family upbringing as a factor", "file_id": "dr_TK0914", "chunk_id": 20 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "Intelligence. I mean, that's the truth. I'm smart enough to know the outcome-", "context": "Patient values knowledge and understanding of health", "file_id": "dr_TK0914", "chunk_id": 20 }, { "code": "Provider Issues", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "I did not find that person to be helpful, nor did I find them to give a darn", "context": "Patient had negative experience with new doctor after original doctor retired", "file_id": "dr_TK0914", "chunk_id": 21 }, { "code": "Positive Upbringing", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I was raised you go to the eye doctor, you go to the dentist", "context": "Patient's upbringing encouraged regular health checkups", "file_id": "dr_TK0914", "chunk_id": 21 }, { "code": "Lack of Provider Continuity", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of continuity of care", "quote": "when my original doctor retired", "context": "Patient experienced disruption in care due to doctor's retirement", "file_id": "dr_TK0914", "chunk_id": 21 }, { "code": "Rude provider", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "I did not find that person to be helpful, nor did I find them to give a darn", "context": "Patient had negative experience with new doctor", "file_id": "dr_TK0914", "chunk_id": 22 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "he didn't dilate my eyes, he didn't do a vision field, he did nothing", "context": "Patient felt doctor did not communicate or perform proper examination", "file_id": "dr_TK0914", "chunk_id": 22 }, { "code": "Appointment scheduling difficulties", "category": "BARRIER - Provider/System Issues", "subcategory": "Appointment scheduling difficulties", "quote": "They canceled it, , because he was gonna be out of the office and they moved it four months", "context": "Patient's appointment was rescheduled without their input", "file_id": "dr_TK0914", "chunk_id": 22 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of patient-provider trust", "quote": "I did not find that person to be helpful, nor did I find them to give a darn", "context": "Patient lacks trust in new doctor", "file_id": "dr_TK0914", "chunk_id": 22 }, { "code": "Appointment scheduling difficulties", "category": "BARRIER - Provider/System Issues", "subcategory": "Appointment scheduling difficulties", "quote": "They canceled it, , because he was gonna be out of the office and they moved it four months", "context": "Patient's appointment was rescheduled without their input", "file_id": "dr_TK0914", "chunk_id": 23 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "Just they just didn't seem to understand (laughs) that I wanted to change", "context": "Patient had trouble communicating with staff about changing providers", "file_id": "dr_TK0914", "chunk_id": 23 }, { "code": "Rude or dismissive providers", "category": "BARRIER - Provider/System Issues", "subcategory": "Rude or dismissive providers", "quote": "he's just very curt", "context": "Patient perceived their previous provider as being unfriendly", "file_id": "dr_TK0914", "chunk_id": 23 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "I'm very happy with her", "context": "Patient is satisfied with their new provider, Dr. Chaudhary", "file_id": "dr_TK0914", "chunk_id": 23 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "I'm very happy with her", "context": "Patient has found a provider they like and can work with", "file_id": "dr_TK0914", "chunk_id": 23 }, { "code": "Accessible providers", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "find the right provider that works for you", "context": "Patient emphasizes importance of finding a suitable provider", "file_id": "dr_TK0914", "chunk_id": 24 }, { "code": "Positive patient-provider relationship", "category": "FACILITATOR - Provider Relationship", "subcategory": "Positive patient-provider relationship", "quote": "does the care that you expect", "context": "Patient values a positive and expectation-meeting provider relationship", "file_id": "dr_TK0914", "chunk_id": 24 }, { "code": "Scheduling difficulties", "category": "BARRIER - Provider/System Issues", "subcategory": "Appointment scheduling difficulties", "quote": "It was just a problem with the- ... with the scheduling and stuff", "context": "Patient experienced issues with scheduling appointments", "file_id": "dr_TK0914", "chunk_id": 25 }, { "code": "Provider preference", "category": "BARRIER - Provider/System Issues", "subcategory": "Lack of continuity of care", "quote": "I want to see Dr. Chaudhary", "context": "Patient has a preferred provider, indicating potential issue with assigned doctor", "file_id": "dr_TK0914", "chunk_id": 25 }, { "code": "Reminder systems", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Reminder systems", "quote": "They just kept either texting me or calling me and saying ... You're supposed to see Dr. (name)", "context": "Patient receives reminders from the healthcare system, facilitating follow-up", "file_id": "dr_TK0914", "chunk_id": 25 }, { "code": "Poor communication", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "they're not translating?", "context": "Patient experiences poor communication between providers", "file_id": "dr_TK0914", "chunk_id": 26 }, { "code": "Lack of patient-provider trust", "category": "BARRIER - Provider/System Issues", "subcategory": "Provider/System Issues", "quote": "I don't want to see him", "context": "Patient lacks trust in provider", "file_id": "dr_TK0914", "chunk_id": 26 }, { "code": "Social support networks", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Patient Empowerment", "quote": "My husband. He, he, he fixes my food", "context": "Patient has social support from husband", "file_id": "dr_TK0914", "chunk_id": 26 }, { "code": "Lack of adherence", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "Doesn't mean that I do it all the time", "context": "Patient knows what to do but doesn't always follow through", "file_id": "dr_TK0914", "chunk_id": 27 }, { "code": "Health education", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "I know it all. I mean, I do ... I researched a lot", "context": "Patient has received health education and researched diabetes management", "file_id": "dr_TK0914", "chunk_id": 27 }, { "code": "Social support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Social support networks", "quote": "He fixes my food", "context": "Patient receives help from husband with daily tasks", "file_id": "dr_TK0914", "chunk_id": 27 }, { "code": "Lack of time", "category": "BARRIER - SDOH", "subcategory": "Education/health literacy barriers", "quote": "a mother of 10 kids didn't have time to cook two plus", "context": "Patient had limited time due to family responsibilities", "file_id": "dr_TK0914", "chunk_id": 28 }, { "code": "Family responsibilities", "category": "BARRIER - SDOH", "subcategory": "Social Determinants of Health", "quote": "I was the mother of 10 children", "context": "Patient's family responsibilities impacted her ability to manage diabetes", "file_id": "dr_TK0914", "chunk_id": 28 }, { "code": "Health education needs", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "Maybe ... Well, a, a, a wild dream would be for there to be one plan that works for everybody", "context": "Patient suggests improvement in diabetic education classes", "file_id": "dr_TK0914", "chunk_id": 28 }, { "code": "Personalized care", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "one plan that works for everybody", "context": "Patient desires tailored approach to diabetes management", "file_id": "dr_TK0914", "chunk_id": 28 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "it makes it very difficult", "context": "Patient finds dietary management challenging due to family members' different needs", "file_id": "dr_TK0914", "chunk_id": 29 }, { "code": "Education barriers", "category": "BARRIER - SDOH", "subcategory": "Education/health literacy barriers", "quote": "a wild dream would be for there to be one plan that works for everybody", "context": "Patient desires a simplified diabetes management plan", "file_id": "dr_TK0914", "chunk_id": 29 }, { "code": "Healthcare system support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "Maybe ... Well, a, a, a wild dream would be for there to be one plan that works for everybody", "context": "Patient seeks standardized diabetes education", "file_id": "dr_TK0914", "chunk_id": 29 }, { "code": "Patient empowerment", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "Is there anything different you would to see with, , diabetic education classes?", "context": "Patient inquires about diabetes education", "file_id": "dr_TK0914", "chunk_id": 29 }, { "code": "Lack of practical support", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR management", "quote": "I'd to see something practical- that fits everybody", "context": "Patient seeking practical solutions for diabetes management", "file_id": "dr_TK0914", "chunk_id": 30 }, { "code": "Unhelpful advice", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "Don't eat this, don't eat that. Oh, no. You should eat that and you should eat that", "context": "Patient frustrated with unhelpful dietary advice from providers", "file_id": "dr_TK0914", "chunk_id": 30 }, { "code": "Need for inclusive support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "Just something that caters to everybody- and everybody's needs", "context": "Patient desires personalized and inclusive health education", "file_id": "dr_TK0914", "chunk_id": 30 }, { "code": "Misinformation barriers", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "So there's so much misinformation- ... that it's amazing that anybody can ever, ever figure things out.", "context": "Patient discusses the challenge of navigating conflicting health information", "file_id": "dr_TK0914", "chunk_id": 31 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "Is that a feasible thing? Are they affordable or, , the stuff they're saying in the education classes, if that's one of their barriers to implementation?", "context": "Patient discusses the cost of food plans and potential financial burden", "file_id": "dr_TK0914", "chunk_id": 31 }, { "code": "Education barriers", "category": "BARRIER - SDOH", "subcategory": "Education/health literacy barriers", "quote": "So there's so much misinformation- ... that it's amazing that anybody can ever, ever figure things out.", "context": "Patient highlights the issue of inadequate health education", "file_id": "dr_TK0914", "chunk_id": 31 }, { "code": "Health education support", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health education programs", "quote": "the stuff they're saying in the education classes", "context": "Patient mentions education classes as a potential resource for health information", "file_id": "dr_TK0914", "chunk_id": 31 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "raw vegetables are expensive", "context": "Patient mentions expense of healthy food", "file_id": "dr_TK0914", "chunk_id": 32 }, { "code": "Food cost barriers", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "I eat good meat. It's expensive", "context": "Patient discusses high cost of healthy food options", "file_id": "dr_TK0914", "chunk_id": 32 }, { "code": "Lack of access to healthcare", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "a lot of people in ... particularly in West Virginia are on food stamps", "context": "Patient implies limited access to healthy food due to socioeconomic factors", "file_id": "dr_TK0914", "chunk_id": 32 }, { "code": "Health education barriers", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "if that's one of their barriers to implementation", "context": "Patient discusses potential lack of understanding about healthy food choices", "file_id": "dr_TK0914", "chunk_id": 32 }, { "code": "Health literacy barriers", "category": "BARRIER - SDOH", "subcategory": "Education/health literacy barriers", "quote": "the stuff they're saying in the education classes", "context": "Patient implies potential lack of understanding about healthy food choices due to education", "file_id": "dr_TK0914", "chunk_id": 32 }, { "code": "Accessible healthcare resources", "category": "FACILITATOR - Resources & Access", "subcategory": "Adequate insurance coverage", "quote": "my two autistic sons both receive benefits", "context": "Patient mentions access to benefits for family members", "file_id": "dr_TK0914", "chunk_id": 32 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "it's all very expensive", "context": "Patient mentions that eating healthy is expensive", "file_id": "dr_TK0914", "chunk_id": 33 }, { "code": "Lack of access to healthcare", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "they can't afford to eat that way", "context": "Patient's sons cannot afford healthy food due to financial constraints", "file_id": "dr_TK0914", "chunk_id": 33 }, { "code": "Healthcare System Support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "My doctors", "context": "Patient mentions having doctors to call for advice", "file_id": "dr_TK0914", "chunk_id": 33 }, { "code": "Lack of access", "category": "BARRIER - SDOH", "subcategory": "Lack of access to healthcare", "quote": "I have to get this- ... to see", "context": "Patient implies difficulty accessing necessary care", "file_id": "dr_TK0914", "chunk_id": 34 }, { "code": "Financial constraints", "category": "BARRIER - SDOH", "subcategory": "Financial constraints", "quote": "None explicitly mentioned", "context": "No direct quote, but patient's situation implies potential financial struggles", "file_id": "dr_TK0914", "chunk_id": 34 }, { "code": "Education barriers", "category": "BARRIER - SDOH", "subcategory": "Education/health literacy barriers", "quote": "None explicitly mentioned", "context": "Patient's understanding of their condition is not directly discussed", "file_id": "dr_TK0914", "chunk_id": 34 }, { "code": "Provider support", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "My doctors", "context": "Patient mentions relying on doctors for advice", "file_id": "dr_TK0914", "chunk_id": 34 }, { "code": "Health literacy", "category": "FACILITATOR - Patient Empowerment", "subcategory": "Health literacy", "quote": "None explicitly mentioned", "context": "No direct discussion of patient's understanding of their condition", "file_id": "dr_TK0914", "chunk_id": 34 }, { "code": "Vision Loss", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "This vision loss I have is a kaleidoscope almost", "context": "Patient describes their experience with vision loss", "file_id": "dr_TK0914", "chunk_id": 35 }, { "code": "Daily Activity Barriers", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I mean, you want me to list all the other can’ts", "context": "Patient lists limitations due to vision loss", "file_id": "dr_TK0914", "chunk_id": 35 }, { "code": "Expectation Of Quick Visit", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "In and out", "context": "Patient expects a quick and efficient visit", "file_id": "dr_TK0914", "chunk_id": 35 }, { "code": "Lack of comparison", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I have no basis for comparison", "context": "Patient lacks prior experience with glaucoma doctor", "file_id": "dr_TK0914", "chunk_id": 36 }, { "code": "Brief appointment", "category": "FACILITATOR - Healthcare System Support", "subcategory": "Accessible providers", "quote": "In and out", "context": "Patient expects a quick visit", "file_id": "dr_TK0914", "chunk_id": 36 }, { "code": "Effective communication", "category": "FACILITATOR - Provider Relationship", "subcategory": "Effective communication", "quote": "He asks if I'm still using the drops", "context": "Provider inquires about patient's treatment adherence", "file_id": "dr_TK0914", "chunk_id": 36 }, { "code": "Brief appointment", "category": "BARRIER - Provider/System Issues", "subcategory": "Poor communication", "quote": "it's just very brief", "context": "Patient perceives appointment as too short", "file_id": "dr_TK0914", "chunk_id": 37 }, { "code": "Lack of comparison", "category": "BARRIER - Patient Beliefs & Perceptions", "subcategory": "Lack of understanding about DR progression", "quote": "I have no basis for comparison", "context": "Patient lacks understanding of their condition", "file_id": "dr_TK0914", "chunk_id": 37 } ] }